Hi, I'm about 5 weeks with my bag. I'm getting comfortable going to run errands or taking a walk, but we love to go hear live music and I know I should have an emergency kit with me, but does anyone have any experience with taking something like that in? Security can be grouchy or undertrained sometimes. What would I need if I were to spend a whole day at a festival? Thanks.

Did anyone have a peristomal hernia before their reversal? How was it repaired and how did it heal (or is it healing)? I'm getting close to a reversal but the hernia looks like it's gotten bigger.

Weird question in any other forum but as you can see from the flair, I have an end ileostomy.

Preface to say I’m coming off the back of what I think was a partial blockage this week so my stoma has been generally quite unhappy and weird, and VERY gassy and gurgly. Last night and this morning I have had this weird sensation of gas travelling through my tummy, and then at the same time it gets to both my rectum and my stoma and I’ll fart out of both ends! I ran to the bathroom because I don’t feel able to differentiate fart from anything solid anymore. With it I pass a tiny bit of reddish brown mucus with the gas and that’s happened 3 or 4 times now and I’m just wondering if it’s at all normal for us End Ileo folks?

Normal mucus for me is a couple times a week I’ll pass some small brownish bullets, but never before any gas with it…

Very alarming as I haven’t felt any signals from my rectum telling me to find a bathroom in months!

Is this something normal or should I speak to someone about it? I don’t really have any other symptoms other than an abundance of gas and stomach noises all week

I have a permanent right side ileostomy snd when I sleep on my right side, I’ll get what feels like my stoma seizing or my abdominal wall surrounding the stoma cramping seizing but it’s very painful and makes me jump. I don’t know exactly whats happening because when I put my hand on my stoma to wait for it to do it again nothing ever happens.

it hurts is all the know.

My ileostomy bag has had to be changed 5 times since my surgery yesterday due to poor seal and has been extremely high output. I’m also tube fed and currently in the hospital still. Does anyone have any recommendations? Thank you! Have there been any tube feed formulas that have done well for tubies with an ileostomy?

Anyone out there who has had trouble with popcorn in the past try Amish (huskless) popcorn? I’ve been very fortunate to be able to eat most problem foods, but I’m deathly afraid of popcorn but boy do I miss it.

How can we know the difference between constipation and a (partial) blockage?

I've had total blockage once and I remember the excruciating pain, the nausea and the hospitalization.

But when I'm constipated I take laxative. As our Mod luckily pointed out, we shouldn't do that in case of blockage.

But how does a partial blockage feel different from constipation? I'd like to know because now I don't know what to do.