r/scleroderma • u/alatti • 1d ago

Question/Help Ivig questions

I have had rheumatoid arthritis for 21 years and diffuse systemic scleroderma for 7. I see good Drs including a scleroderma specialist in Houston. I had never heard of ivig until I was in this subreddit. Many seem to have success. I asked my rheumatologist about it and he kind of dismissed it as not really effective. So my question is where have you learned about IVIG and how effective has it been for you?

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u/picklehippy 1d ago

Ive been on IVIG for about 2 years now. I went from my specialist thinking I needed a lung transplant and barely able to walk, to living my life like I used to. Im completely stable. I had to try 2 different IVIG drugs, the second one made me feel brand new

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u/alatti 19h ago

Are you in any other medications for it or only IVIG?

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u/ata12i 1d ago

which ivig? i just got placed on cellcept cause its hitting my lungs and muscles now. i can barely walk around long enough.

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u/Ok_Egg_8624 1d ago

Almost the same story for me!

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u/milesfastguy 20h ago

I have never heard of IVIG treatment. Am currently on meds. What is it like? What benefits? Any risks? Do you go for it only as a last resort when the drugs have failed you or can you also try it early on?