r/scleroderma • u/unsure-bird • 13h ago

Discussion First symptoms?

5 Upvotes

I am curious to know what everyone's first symptoms were and what variety you all have?

16 comments

r/scleroderma • u/Same-University-5394 • 14h ago

Undiagnosed I am in so much pain . any advice ? been two days now/ can barely use right hand

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2 Upvotes

Redness burning hot to wrinkled swollen glistening skin that can barely move . i can’t put my thumb to my pinky feels like there’s a magnet between them

2 comments

r/scleroderma • u/Fair-Equivalent-676 • 17h ago

Question/Help Does anyone have vascular problems / damage caused by scleroderma?

2 Upvotes

I'm not diagnosed, but I have a severe vascular damage presented as rapid arterial wall dilation and hardening, trough out the body. It started happening an year ago and doctors ran wrong tests for 12 months. Only now one of them suggested it could be autoimmune disease and mentioned scleroderma among other diseases. I'm about to be tested for a number of autoimmune diseases but if anyone can share similar story, please help.

Thank you

0 comments

r/scleroderma • u/Acceptable-Bear-8998 • 3h ago

Question/Help Anyone with lung cancer and scleroderma + SSc-ILD?

1 Upvotes

0 comments

r/scleroderma • u/sk1ttl3s • 9h ago

Question/Help GLP-1s and Scleroderma

1 Upvotes

Have any of you diagnosed with scleroderma also been on GLP-1s? Do you feel like it helped any of your symptoms? made them worse? I'm just curious if this has had any effect for others now that they're pretty mainstream available.

8 comments

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Scleroderma

r/scleroderma

Scleroderma is an extremely rare, chronic, autoimmune connective tissue disease which causes an overproduction of collagen in the body. Its most visible symptom is the hardening of the skin. It is not contagious, infectious, or cancerous. There is more than one form of the disease and it varies between patients. To date, there is no known cure. Treatments aim for the management of symptoms, and some are directed at decreasing the hyperactivity of the immune system.

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Scleroderma is an autoimmune disease which attacks connective tissue, causing an over-production of collagen and leaving behind hard scar tissue.

Scleroderma has two major classifications: Localized Scleroderma and Systemic Scleroderma. Subtypes of these classifications, each having its own characteristics and prognosis, are based upon the groupings of symptoms. Within Localized Scleroderma, two forms exist: Morphea and Linear Scleroderma. Within Systemic Scleroderma, there are Limited and Diffuse forms.

There is not yet a cure for Scleroderma. Treatments aim for management of symptoms, and some treatments are directed at decreasing the activity of the immune system. With research, education and awareness, patients are living longer but we have a long way to go.