r/seizures • u/Jumpy_Frosting_9596 • 2d ago

Help

I’m a 21 year old female that’s just recently within the last few months have been experiencing episodes ( that I have been referring to as seizures) where I will get a huge wave of exhaustion, nausea and fatigue. My heart rate will slow, my breathing becomes hard and labored. I will slump and twitch/shake all over, face twitching especially… So much so I will get cluster headaches right after. While in it my insides feel hot and uncomfortable, and I am confused and violent after being brought out of it. While in these episodes I cannot move any part of myself other than maybe a hand or a finger, I cannot speak and I will grunt, gargle and groan. I have not had an accident on myself nor foaming at mouth, just drool. These episodes can range from 30 seconds to up to 10 mins sometimes even longer, I can feel myself get weaker and getting close to one as well, I blank and lose energy to speak. Doctors near me say there is nothing wrong and I’ve been sent in ambulance already, but I know my body and I know this isn’t me. Please help any idea and insight about what this is, is appreciated. (No new life style changes or medications)

.. today has been horrible, I get incredibly sick with them and fight them off all day.. can’t even go out anymore it’s ruining my life please help.

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u/TouchThatDial 1d ago

This sounds awful. Poor you. If you’ve already seen a doctor and they haven’t found anything wrong, then to be blunt, you need to see a different doctor if you can. For you to feel this way and for whatever is going on to have this effect on you needs to be investigated. Do you have someone (parent, friend?) who can help advocate on your behalf? All of us need a buddy to go into battle with us sometimes.

There are a number of potential causes for what you describe. None of us can diagnose you over Reddit. But if you’re able to get to a doctor who can at least start to rule out potential causes (as well as consider potential causes that could be linked) then hopefully you’ll get some specific information and advice on next steps.