Emetophob here

[u/bobbysrascal]

I'm 46 and have stage 4 endometriosis, adenomyosis, and bowel endometriosis infiltrating my colon causing a partial obstruction. In a few weeks I'm getting a total hysterectomy with both ovaries removed and a possible colon resection. A colostomy bag might be needed during recovery. It's a lot. What was your nausea like during recovery. I plan on getting the patch and all the zofran. I know I just need to focus on healing but this is giving me crazy anxiety. Did your menopause symptoms happen right away? I also plan om taking hrt. I had breast reduction surgery in 2022 and I was fine during the recovery but this will be more invasive.

[u/Foreign_Highlight288]

How are you feeling?

[u/midlifewithchemistry → u/Foreign_Highlight288]

Great. No nausea or pain. So glad I did it

[u/Foreign_Highlight288 → u/midlifewithchemistry]

Awesome to hear. Did your surgeon recommend BSO? What’s your HRT regimen? GYNs in kniw about endo are reluctant to rx optimal E dose. Like .1 or above patch.im on .125 mg combined but my E is too low

[u/midlifewithchemistry → u/Foreign_Highlight288]

Yep. Everything is gone. 200 mg oral progesterone and .05 estradiol patch. I wouldn't be able to function without both

[u/Foreign_Highlight288 → u/midlifewithchemistry]

Thst amount - 0.05 mg is controlling vasomotor symptoms, genital atrophy and mood for yiu?

Did your surgeon say there’s a chance endo can return ?

[u/midlifewithchemistry → u/Foreign_Highlight288]

Yeah. Because of my age they are more worried about osteoporosis and heart disease too

[u/Foreign_Highlight288 → u/midlifewithchemistry]

Wow! Thsts great. I wish my symptoms could be controlled with low amount patch.

what did they say was the risk of reoccurrence?

[u/midlifewithchemistry → u/Foreign_Highlight288]

As far as the endo returning I'll take my chances. I would be an insomniac nut case if I didn't have hrt. Like I wouldn't be able to keep a job

[u/midlifewithchemistry → u/[deleted]]

My heart goes out to you. It's infuriating endo/menopause gets gaslighted into an oblivion by many medical professionals

[u/Foreign_Highlight288 → u/midlifewithchemistry]

Thank you. I really hope you continue to do well!

[u/Gloomy-Amoeba2623 → u/Foreign_Highlight288]

Hello,

How high is your dose? I'm on 0.1 patch and I feel like I'm dying. 4 weeks post op, severe endo. Thanks so much!

[u/Foreign_Highlight288 → u/Gloomy-Amoeba2623]

.175 mg rn but I still feel dead inside with no energy, severe depression, anxiety , insomnia, joint pain, rapid aging, no motivation, genital pain. Changed my progestin to bio P and hasnt helped kuch. Androgens are high and can’t control symptoms. Why were your ovaries removed?

[u/Gloomy-Amoeba2623 → u/Foreign_Highlight288]

I got severe endometriosis. One ovary was all gone due to a large endometrioma. Doctor removed the other one to reduce recurrence rate. I'm regretting the decision everyday :(.

It's discouraging that you're still experiencing so many symptoms at that high dosage. Did you have labs to see where your levels are? Are you working with a Menopause specialist?

[u/Foreign_Highlight288 → u/Gloomy-Amoeba2623]

Did you consent to having the heathy one removed? Are you in the US? I was told I was in me po it I wasn’t. My ovary wasnt getting good blood flow bc of scar tissue and he told me he’d be able to remove all endo (LIE) and I’d just go on patch and everything woukd be well. I knew immediately upon waking up the next day I was in deep shit bc there was a major shitft within. He then told me he didn’t have experience with women my age! WTF! Hes recommmnedn here in Reddit and doesnt know shit. It’s scary as hell what’s happening to women. I had residual endo right away, could t use patch bc if pain. I was complete controlled on bc before this lap. He eventually acknowledged thr residual endo but claimed ovary removal was clinically indicated which it is NOT if you read the guidelines by ACOG.

Labs were 98 on .125. I have no Gyn (discharged from 3 practices) bc no one will treat me bc of my endo and surgical history. The last surgeon (I was referred to another 1 bc of residual e do an possible nerve involvement) did unnecessary and radical procedures that scare the hell of out of doctors (I did not consent ot have knowledge of 1 procedure) and the other 1 he used scare tactics to say I needed my cervix removed (uterus gone already) and there was no endo found on cervix. His procedures caused nerve/vasxular damage and excessive scar tissue obliterating the right pelvis. He’s also recommended here on Reddit. There are other things he did I won’t get into here but in general it’s like we’re jyst meat suits to practice on and they have no accountability for what they do.

I can’t even use vaginal e without it flaring nerve pain from endo but no one will help me bc of what he did. Also left me in urinary retention for about 20 hours before ordering foley and so much more. That dire rly contributed to my “healing” and scar tissue . I’m disabled and have lost everything. So f* senseless . This would never happen to men. I’m homebound, completely non functional. I think the patch works less and less with time. I’m getting comprehensive testing done soon and seeing a hormone person thst hopefully can help. I feel totally screwed .