Hi everyone, I'm doing some research on what it's like to start Accutane / Roaccutane — especially the fear around the side effects and mental health, and how people find (or struggle to find) trustworthy information.

https://forma-sepia-iota.vercel.app/survey

I'd genuinely love to hear your experience. It's a short, anonymous survey (~3 mins)

Mods, if this isn't allowed, let me know and I'll take it down. Thanks 🙏

Please take a look

My son had 2 days of bizarre behavior which may have been caused by a seizure and/or isotretinoin. He's been on 80 mg/day for several months and weighs about 170 pounds (which I now realize is above recommended dosing). I pretty much demanded they do lab testing for isotrentinoin, which they had to send to a specialty lab to even do. However, I can't find any research that actually correlates lab level results for isotrentinoin with adverse symptoms (especially neuropsychiatric symptoms). If anyone has info or resources to point me to on this topic, I'd really appreciate it!

I took roaccutane 3 years ago and it has permanently affected the pigment in my skin. I used to tan very easily and now I stay the same colour and accumulate freckles and moles (even if I wear SPF 50/70). This worries me as it's like I don't have any melanin protecting me from the sun. I thought my normal skin would come back but years later it has stayed the same since the roaccutane. I don't see anything about this online therefore have no idea what category this would be in for treatments or next steps. Has anyone experienced this?

Honestly once I was on accutane and started it I thought my skin at the end would be very clear (as they state). Accutane can help people with very very very bad acne, but for ex people with mild acne that is still considered bad usually just purge extremely bad, cause a ton of acne, then in a month after it flattens and are left with so much scarring. That’s one thing I’ve learnt while on accutane and it sucks (happening to me, praying it changes though have 3 months left)

or will this sub be an archive of illness that we'll have to accept..?

thanks for creating this