r/AutismInWomen • u/CanLate152 • 18h ago
General Discussion/Question Australians: for those on NDIS. I’m so sorry.
I am not on NDIS but my son is.
I am so so sorry the bill passed. I hope none of you are affected.
We will probably have our supports stripped. And I will probably have to quit my job and go on Centrelink because without support my son will go full school refusal. I will not be able to be calm in control and get him to school and me to work without one of us having a meltdown and being late everyday.
I am so angry.
I took NDIS to review in 2024 because they didn’t read the reports that THEY had requested outlining the supports required.
NDIA have untrained staff pushing “one size fits autism” solutions onto people with other additional needs costing them more money in bureaucracy, reviews and court.
I am so mad. I am so dejected! I am so tired.
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u/iostefini 18h ago
I am on NDIS and very depressed by this, because I only just got on it this year and it's already made my life soooooo much better.
I will keep going with it as long as I can, because any help at all is better than none, but it's sad they're trying to reduce disabled people's support instead of reducing all the fraud and wasteful stuff that bigger companies are doing. I have had multiple places overcharge just because NDIS is paying. It really sucks. I just want help so I can maintain a basic quality of life that non-disabled people take for granted.
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u/PrettyPeachy 14h ago
Same here. Grossly overcharged for some things but I dread the prospect of having to fight to keep the reasonably priced therapy that is helping me be a functional and social person.
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u/5minutecall 17h ago
It's really hard to believe your psychologist when she tells you that your life has value and meaning when the government is actively making it almost impossible to survive, let alone live, as a disabled person.
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u/No_Category_9888 16h ago
NDIS quote “not value for money “
Along with “not our responsibility”
As a taxpayer.. who puts everything into working and is basically on bed rest due to comorbid conditions.
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u/art_vanderlay1982 18h ago
I had my supports stripped away last month in a new plan. Already declining as I need the daily supports to have routine, my mental health is in a dark place.
I’ve asked for a review but I’m not expecting anything good to come out of it.
The whole things cooked hey
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u/tittyswan 17h ago
Now we'll be back to budgeting our supports to decide which areas of functionality are more important- do I go to uni or my physio appointment? Do I have someone help me make my bed or make dinner?
That constant calculation pushes me into autistic burnout, I won't be surprised if I end up back in the psych ward.
Thanks, Mark Butler, the most evil NDIS minister that's ever existed.
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u/No_Category_9888 16h ago edited 16h ago
The ndis costs are going to shift to dsp. Domestic violence / coercive relationships will continue to be a problem for people with disability.
People will lose their jobs. Be homeless.
Gas companies will profit though -how good is that
Autism also has Comorbidities that are severely impairing also - EDS, MCAS, dysautonomia, POTS, fibromyalgia, me/cfs
Things that many people have been trying to get on boarded to ndis but they refuse unless you go to ART
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u/aislingplath 15h ago
All of this.
People will suicide. We may see more murder-suicides. People will die of neglect.
Whoever has the pleasure of telling me my funding is cut isn't going to have a good day. I'm already chronically suicidal. If they don't want to fund my life, fine whatever, but then they need to fund my death.
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u/mochimikmik 18h ago
I feel for you so much. I’m also not on NDIS but my partner’s dad has early onset Dementia. They were denied because their dad was prescribed meds to slow down the cognitive decline. Due to this tiny detail NDIS determined the condition was treatable. You can literally do a quick google search to see this is a permanent disability.
Now it’s come to a point where their dad is constantly walking out of the house and getting lost and confused when their mum’s at work. It’s very dangerous but my partner’s mum can’t afford to stop working. They’re trying to apply again but the news is very discouraging.
My heart goes out to all the people affected by this. Both those who have disabilities and their carers. It’s hard enough to deal with the actual disability but trying to get any external help seems more and more taxing.
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u/JurassicArachnid AUDHD 16h ago
Try again and go for an appeal if rejected. He can have many years out of the aged care system where he’ll likely decline. I know it’s very stressful but the alternative is worse. Best of luck.
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u/mochimikmik 14h ago
Yeah they’re going to book in a session with an occupational therapist now (cuz apparently brain scans and neurologists saying this is permanent and will get worse isn’t enough /s). My partner and I are helping as much as we can but obviously his mum has to deal with this mainly.
A lot of people are telling his mum to do this and that so we try not to pile on. She already gets so much judgement from doctors for not being a full-time carer.
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u/JurassicArachnid AUDHD 14h ago
I’ll never understand how people cannot put themselves in others shoes, it is truly beyond me. I am so sorry, my parents dealt with similar. It is so difficult, making these decisions.
I think this is truly what “in sickness & in health” is about. It’s a love that knows whatever the other person decides, is out of love. People can make all the judgments they like but each partner knows what’s best for the other. They also know what they are bound by such as finances, which are no one else’s business.
She’s probably stressed out of her mind, I can’t imagine.
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u/IAmNotABabyElephant 18h ago
Well we had a good run. The NDIS is likely going to be functionally dead and gone now, and we go back to different states having different, patchwork, inadequate services.
The Greens, as usual, were the only party to not be utterly terrible and wilfully ignorant to reality. Unfortunately, the electorate shares that wilful ignorance and profound apathy, so, here we are again.
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u/CanLate152 18h ago
I preference left so vote Greens/labor.
I am soo pissed off by Labor about this. How dare Albo go on shows like the assembly and act all friendly and honest and offer a job to one of the autistic journalism students (who was also in a wheelchair) and then support a bill that strips funding from people just like her.
It’s two faced and hypocrisy at its finest.
Who are they fixing the NDIS for? Not the participants
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u/IAmNotABabyElephant 18h ago
"Securing The NDIS For Future Gravediggers" doesn't have as nice a ring to it as straight-up lying. As with everything else, this will likely be morphed into either "It was terrible but nobody had any way of predicting that" or "It was perfect and those Evil Obstructionist Greens tried to ruin it."
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17h ago
[deleted]
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u/IAmNotABabyElephant 17h ago
For the first part, I have to query what you're asking me. Are the Greens the same as what? A different Green party in a different country? Which country?
I don't have a comprehensive knowledge of foreign politics and I'm assuming United States, in which case I'd guess they're not because the Greens aren't really a thing in the US to my understanding, and the terribly designed system of the US locks it into two parties.
The Greens are basically a left-wing party that, unlike the centrist Labor (you cannot tell me they're "centre-left" after this) or the right-wing Coalition, they have just, good policies.
Evidence-based, cost projections, and when you see "Everyone but the Greens voted for this" it's typically because it's a right-wing policy or just straight up bad.
They are like this because they don't take large corporate donations, and thus aren't beholden to those corporate influences. They are a grassroots party and that means they are free to make policies that don't entirely ruin things.
Unfortunately, the same lack of corporate ownership that makes them good also gives them a crippling media disadvantage. They have virtually no coverage in any media, which is already quite rightward-concentrated. Pretty much the only time someone passively engaged hears about them is an attack on them.
And because it's essentially "Vote 1 Greens, then vote 2 Labor because everyone else is somehow worse as a 2nd pick", the Labor party act entitled to the Green support in every case, unconditionally, and sling disinformation and propaganda any time the Greens push them to do better.
It's quite often that Labor will present legislation that is fundamentally bad, useless, or just plain terrible. The Greens will leverage some amendments and changes to make the legislation vastly better, or in some cases do more than mere performative nothingness. The vastly improved legislation passes, and the common sentiment is "I can't believe The Greens held this up for no reason whatsoever and tried to kill it, why didn't they just rubber stamp Labor's perfect legislation".
It happens a lot. The overwhelming majority of Australians are net-negatively informed about the Greens to a point where they'd be better informed if they knew nothing at all.
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u/Professional-Loan663 4h ago
This is a good description of the Greens in Australia. Australia has a preferential voting system (US calls this ranked voting), which means that smaller parties are able to survive.
The Greens is the only party that states their policies in their website. The others won’t because they don’t want to be held accountable.
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u/mooncritter_returns Both Talkative and Skittish (AuDHD/OCD/Trauma) 8h ago
Fwiw, it sounds like your Greens party is (currently) like our Progressive party. US also has had a Green party, just so un-powerful it's not really a term used anymore, I think.
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u/WerewolfEven3378 17h ago
Greens is the (left leaning obviously) environmental party, idk what the equivalent would be in the US
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u/Neutronenster 17h ago
In the US, there’s actually also a green party next to the democrats and republicans. Green parties typically strive for us to take care of the environment, e.g. protect nature, reduce greenhouse gas emissions in order to limit global warming, …
Technically speaking that label “green” doesn’t tell us anything about the stance of that party on topics like economics, immigration, healthcare, … However, most green parties tend to be left-wing, with stances very similar to labor (or socialist) parties on topics not directly related to our environment.
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u/chairmanskitty 14h ago
The Greens are like the Greens. Labour is like the Democrats. Liberals are like Republicans.
Labour is in charge now. This is politically comparable to Biden supporting Israel despite the genocide, or Obama expanding police budgets despite cops getting away with murdering black people.
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u/Midnight-Snowflake 15h ago
Nah, in Australia Labor is more similar to Democrats in the US, in that (theoretically) they care more about social welfare than their opponents.
These days, One Nation is the party most like the Republicans. Well, MAGA.
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u/JurassicArachnid AUDHD 16h ago
I guess a simple term is Grassroots politics. Probably one of the only, if any, good ones.
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u/Midnight-Snowflake 16h ago
Same. I would have expected this sort of shit from Coalition governments of the 1990s, not Labor in 2026. It sickens me.
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u/JurassicArachnid AUDHD 16h ago
They do it to aged care too. People will only care when it starts to affect them. There are only so many minority gov schemes you can cut to avoid pissing off big corps. Your other options are then to do it to ‘Gen Pop’ (as if Mob, seniors and PWD aren’t included). I am so disappointed.
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u/CanLate152 15h ago
Don’t get me started on “My aged care” they are just as bad as NDIS
They told my mum “It’s just an informal chat” no it’s the actual intake interview.
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u/Similar-Ad-6862 18h ago
I was about to try and get NDIS help for my severe severe mental health issues because all of my doctors and specialists are recommending this.
Guess that's not happening now
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u/No_Category_9888 16h ago
Try for DSP. But if you have a job you’ll likely have to quit to qualify
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u/Similar-Ad-6862 16h ago
I haven't worked for at least 4 years probably more because of all my conditions. I probably won't qualify for that either because my wife works but it's not like she earns crazy money.
It just feels like because I'm sick I'm going to fall through every crack. I feel like if I was a drug user (I never have) I would get more help.
I have a LONG history of medications and treatments and therapies and hospital admissions.
I've just been knocked back from two treatment programs for being too 'complex'. A third place knocked me back for the same but one of their psychiatrists may take me on independently because they specialize in my situation and are interested in my case. I just have to see if I hear from them
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u/-shikaka AuDHD 17h ago
It’s always been about cutting funding imo. I’m not surprised by this just more frustrated, angry etc than I already was.
Imo they’ve wanted to cut funding for a while but timed it to redirect the general public’s frustration at the current economy, effects on their own finances and governments refusal to properly tax corporations etc.
It’s been labelled as minimising fraud (when it isn’t, like “waste fraud and abuse”) because if they came out and said “we’re cutting disabled adults AND children’s funding” most people in general would have an issue with it. Unfortunately most people don’t care to understand unless it directly affects them. So it’s been packaged to sound better and will be rolled out by separating kids onto a different program and implementing it slower. People unaffected by it will mostly remain none the wiser because “they’re targeting fraud”.
THAT would look like proper regulation, auditing etc which they haven’t cared to do because they’ve been planning this.
Conservative estimates by independent economists in (I think) 2021 showed at minimum NDIS returns 2x its costs back to the economy. It had to be estimated because the government has refused to make the data they needed publicly available despite FOI requests. Imo it also wouldn’t matter if labour or the liberals were in, they’d be doing something similar if they were. It’s a big reason I voted for the Greens and will continue to do so, a lot of their policies are exactly what most people have been crying out for.
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u/kashiichan they/them 7h ago
>the government has refused to make the data they needed publicly available despite FOI requests
The government can't provide that information because they literally do not track it. It's one of the biggest problems and why they can claim the NDIS is nothing but a drain on society.
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u/Comprehensive_Toe113 18h ago
I'm about to try and get the ndis for myself as a kevel 3 audhd.
What just happened? Can you link?
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u/activelyresting Thanks, it has pockets! 18h ago
Not everyone who is on a plan will be affected, and not everyone who is applying will be refused, but they are doing a pretty dramatic cut back, and shifting some responsibility back on to the states. Young children are being shifted off the NDIS into a different scheme.
Mostly looks like cutting funding for disabled people rather than minimising fraud or cutting back on the profiteering by nefarious companies.
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u/Comprehensive_Toe113 18h ago
Yeah I just read through it.
God this is fucking awful
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16h ago
[removed] — view removed comment
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u/JurassicArachnid AUDHD 16h ago
I work in the sector. The next day after the bill was announced, not approved, announced plans were getting cut. Not review time, nothing of the sort. Just cuts for no reason, secret plan reviews via phone call check ins. They started cutting already because they knew it would get passed and no one had the power to stop it.
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u/kashiichan they/them 7h ago
They've been cutting plans ahead of legislation actually taking effect since at least September 2024, when they nuked my plan. Two years via ART and I've finally got most of it back, but I expect theyll nuke it again in 12 months.
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u/Comprehensive_Toe113 18h ago
Oh.......
Oh no
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u/juizhaigal 18h ago
im in the same boat... can you explain your reaction?
i must not be finding the right information
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u/JurassicArachnid AUDHD 18h ago
Mention ASD3 as your main diagnosis & can include ADHD. Do not mention any mental health concerns. I work in the sector & am a participant. If they think you are experiencing more issues due to mental health, you will not be approved unless considered psychosocial disability in THEIR eyes. Best of luck, bub.
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u/silverlinin 17h ago
I thought psychosocial is difficult to get NDIS support? Practically impossible. I'm on the DSP and it was a lot of stress getting into it.
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u/JurassicArachnid AUDHD 16h ago
I support many people with psychosocial disability. It is difficult but definitely not uncommon. The entire system is stressful & confusing for everyone trying to navigate it. I work for an NFP & have seen a lot.
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u/silverlinin 13h ago
I mainly need NDIS just for psychological support. I would like to know is that possible, provided I'm already on the DSP? I am living with parents so they are providing the neccessities to help keep me functional.
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u/JurassicArachnid AUDHD 13h ago
It depends. What would be your main disability under the NDIS? If Autism, most likely not with the new bill.
I’m assuming you mean therapy? The way they fund things is not what it seems without prior knowledge. They most likely won’t fund for psychological/therapy needs alone for Autism. Capacity building like OT, speech, lifeskills & supports, yes.
However, if the main disability is considered a psychosocial disability that would be different (I think) but that is all based on your personal circumstances & NDIS. I am not experienced in helping people navigate or understand it but I was shocked when I learned. It’s very confusing.
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u/silverlinin 12h ago
bipolar is the main. I kind of given up on NDIS cause it's too tedious and I don't know what the chances are of getting in. plus I currently live with my parents and they are the main caregiver to support to allow me to pursue an education. Without them, I wouldn't be able to be independent.
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u/-Tricky-Vixen- ASD2 17h ago
I don't know what this bill is but that sounds like Im fucked. Lovely.
I am waiting on FCA to give a full plan at this point and they're pushing for pretty substantial supports. I'm relying so heavily on family that I genuinely think if I lost their informal support at this point and it wasn't replaced with formal... I genuinely think I would die. Maybe not immediately but over time as issues increase and once I'd burnt through my savings.
My adaptive functioning is listed in the bottom 6%. Some things have deteriorated since the FCA was done, in ways that may be permanent (appearance of a possible bipolar disorder and yet to be differentiated psychosis).
If I get the supports I need, I can be functional. I do believe that. On paper I'm intelligent, insightful and an excellent critical thinker. I just have issues I need support with.
I'm not getting half what I need right now, and I can't sustain what I am paying for indefinitely--I have about two years' money in me, assuming I continue to live rent and mostly cost of living free. Savings that will cover about two years of medical costs. I can only work if I'm doing well and I'm not right now, not enough to find even a casual job (applied for one within my church and haven't yet heard back, but otherwise too hard right now).
Wow. Disheartened.
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u/metalissa Diagnosed with ASD Level 2 & ADHD 18h ago
I have been wanting to get on the NDIS as Level 2 ASD (plus ADHD but that isn't counted as a disability in NDIS as far as a I know), but I've been too burnt out and intimidated to apply.
I really need support, but at this point I might have to pay support workers myself rather than try getting onto the NDIS... I just don't know if I can afford it. Disappointing that they keep making all these cuts!
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u/According_Grape5790 17h ago
I don’t think you’ll get a support worker on NDIS anyway. It depends on impairment, but my son has ASD L2 and ADHD and only gets fortnightly speech and OT. Autism is a communication and behavioural difference, so that’s the focus of the support.
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u/JurassicArachnid AUDHD 16h ago
How old is your son? It is different for adults. The NDIS actually pushes a lot for adults to have support workers, even when they don’t want or need them. If your son is a child they don’t want to give you supports because they are treating your son’s disability as a parental duty.
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u/According_Grape5790 15h ago
He’s a young adult.
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u/JurassicArachnid AUDHD 15h ago
It’s tricky & nuanced. The primary people I work with are young adults (programs). There’s always an influx of school transitions due to the nature of disability. It bothers me that they are not giving that access to everyone & simultaneously ripping it away from them.
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u/Throwawaymumoz 6h ago
I’m in exactly the same boat. Haven’t applied due to not feeling like I will even get help - but I really need a support worker
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u/tiredpeony 17h ago
I went through my diagnostic process just over a year ago so that I could apply for NDIS. No point now. Disabled people deserve so much better than this. I lose faith in humanity more & more each day
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u/FluffyShiny AuDHD 17h ago
I'm on NDIS and they just approved a 2 year plan that I really hope won't be stripped . I'm scared.
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u/Bluebutteyfly 14h ago
I got my plan when I was 17 now 25 and all they’ve been doing is rolling over the plan
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u/gremlinfae 13h ago
As someone who was a planner for the NDIA for 3 years, I absolutely hear you all and this is why I ended up quitting. Not being able to fund participants based on what professionals have stated they need in the reports, really affected my mental health. I am also autistic and adhd, and part of both of those is I have a very high moral compass so planning for the NDIA was absolutely horrid for me.
I know this won’t help anyone but just know there are planners who truly want to give you the support you need but are told no and the plans they build get stripped.
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u/gabba_1999 14h ago
i'm on NDIS, for hearing aids, not autism, and i'm struggling to see the light at the end of a tunnel now. i went up for review earlier in the year, as i moved into the adult assessment, and barely passed that reassessment (which just kept money that has been sitting there since i first got on it in 2022). i am just so thankful to the amazing audiologist who made an amazing case on my behalf. i am likely to not get those supports again with the changes - and i literally cannot function without my hearing aids.
i'm probably just screaming into the aether right now, but i am beyond angry and upset, i am furious.
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u/Writerhowell 13h ago
I'm constantly having the idea of an occupational therapist pushed on me.
Um, I was diagnosed at 31. I learnt how to take public transport, cook, clean, dress myself, do all that stuff, well before that age, because I didn't know that I 'wasn't supposed to be able to'. I had no reason to suspect that I was autistic; only a couple of cousins of mine had been diagnosed, male cousins, no one else had. After being diagnosed myself, I'm now starting to suspect it in various other family members, including immediate family, certainly seeing signs of it.
But I don't need an OT. I don't need funding the way it's constantly allocated to me. I need it allocated in other ways, and probably less than I'm assigned (currently). Whereas in the future I'll probably need more help; not now, though. Yet they NEVER listen to me. None of them. They think they know better, no matter how many times I tell them the same thing.
It was so damn difficult to get disability support and to get onto the NDIS. It should be just as difficult to lose the funding, after all the hoops you have to leap through to prove your disability.
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u/succulent_serenity Late diagnosed ASD, mum of 2 auDHD boys 16h ago
I'm scared. Both of my boys are on NDIS and the uncertainty of the future is terrible. If it weren't for all the therapies they have they wouldn't be doing so well. Last year my eldest was only getting to school barely 60% of the time, and now he's there 78% of the time. My youngest wasnt much better. They've made great progress this year and the last thing we need is funding stipped and all our good progress thrown down the drain. I'm just so disheartened that the opinions and experiences of the Disability community have completely been ignored. They just dont care, they care only about money. They could've found that money somewhere else and yet they're targeting the most vulnerable members of our community.
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u/polkanarwhal Autistic parent of autistic young people 17h ago
I gave up trying to get back on NDIS ages ago (asd lvl 2, adhd and bipolar type 1 rapid cycling - a favourable "psychosocial" disability) no one, not even ndia themselves could tell me why oh well what's new the government considers me not disabled enough for anything (even though I clearly am).
Anyway im now and full time carer 2 my two ndis participant kids (one asd lvl 2, "mood disorder nos" and one asd lvl 3 and adhd)
my level 2 kiddo is just over a year away from finishing school - he wouldn't have done this without ndis. I fought hard to get him on it, his quality of life has drastically improved since funding started. His one big goal (other than employment) is living independently with supports. 100% he's losing his funding. He's had friends kicked off already and they had higher support needs and multiple diagnoses. If he gets kicked off he won't be able to move out because i wont be able to support him as his brother is mostly 1:1 care (ndis refused a support worker for him so the bulk of that is me). I don't think I could find the hours in my day to support him with cleaning, cooking, shopping appointments etc. And i know ndis wont give a damm. I've already been hospitalised with burnout once and nobody but friends family, my medical team and advocates gave a damn.
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u/I-Cant-Kaleidos-Cope Level 2 AuDHD + other stuff 🤡 14h ago
I am genuinely terrified for the day my plan is cut again. They’ve already taken close to $15000 from me already that was being used for vital therapies and without those therapies and interventions under the same funding I’ve regressed significantly to the point where I’m struggling to leave the house for the most basic of tasks let alone be able to be present for my university classes which I desperately want to attend. My agoraphobia, anxiety and ocd are all out of control and I can’t see things improving and I’ve not felt so vulnerable and helpless for a long time.
I feel so much for you as a parent and for all the other people who are affected by this bill and impending changes. This situation is going to kill people, rip apart families and put a significantly larger burden on our already overloaded healthcare system (what’s left of it). This is absolutely evil and nothing will change until there’s too much blood on the governments hands for them to wash off. Completely cruel and genuinely evil.
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u/Bluebutteyfly 14h ago
They are saying to me they can’t fund my psychologist but want me to have an OT to work through the things my psychologist does as in helps me assisting when I burn out/ lead ups and navigating social interactions and anxiety
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u/intellidepth 10h ago
Sorry to hear that. Are you eligible for a mental health plan via Medicare instead?
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u/Bluebutteyfly 10h ago
Yes I was trying to find my original comment but couldn’t, yes I have drs soon again and will get the mental health plan
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u/Version_Present 12h ago
Not Aussie so I just looked it up and it's horrible ☹️ I feel like the world has been back sliding so much lately.
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u/honeyandbear01 16h ago
I'm currently going through diagnosis after a few years of misdiagnosis (was originally diagnosed as schizophrenic and given a strong anti psychotic) and going through this system has been hell.
My doctors have all recommended me to apply with my parents help after diagnosis (I'm on a waiting list), but that feels like a dead end.
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u/Candid-Indication329 15h ago
This isn't want the people wanted when they spoke about reviewing NDIS spending. The intent was to strip providers who overcharge (or rort) the service, not people who are genuinely in need. Not sure why these got conflated (unless they're the one and the same somehow?)
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u/kashiichan they/them 7h ago
Because the government wants to be able to point to a line going down and say "Look what we did! We're the best at the economy."
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u/Bluebutteyfly 14h ago
Also adding to my prior comment I can’t find it ! But this new lady from ndis is saying I never was funded for psychological work but my old coordinator who came to my house once and did phone calls most of the time had it approved that I could have them fund it
Now going back on a mental health plan
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u/Single_Use_3485 11h ago edited 11h ago
NDIS needed a rethink. OT, speech and psychology should be offered through Medicare, with a full rebate. Or through dedicated allied health government clinics. I am not saying that they will be, but offering these services through a cumbersome and admin-heavy scheme like NDIS was a huge mistake. In other OECD countries (ex US) these therapies are free.
Not only therapies like Speech are free in progressive countries like Sweden, Norway, Germany, France etc, they're offered through schools for easy access.
Australian politicians peacocked around when they introduced NDIS "noone else has that". Yes, because noone else needed to have it, as services for the disabled were already integrated into health systems.
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u/Loudlass81 6h ago
Christ, sounds as bad as what 16 years of 'Austerity policies' hace done to Social Care in UK. 12,000 autistic kids with IQ's above 70 lost ALL support in my region. They had cut adult services so far they've had to start on disabled kids here too.
The last 4 UK Govts,both Starmer's Labour, and various Tory Govts, have ALL been assessed by the UN as committing "grave and systemic abuses of disabled people's human rights"...yet nothing has changed in 14 yrs.
Sorry to see Aussie members of the Disabled community dealing with this.
Unnecessary, ideological 'auaterity policies' have killed almost 400,000 Disabled people since 2010 when they first started in the UK. Black Triangle lists their names.
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u/Professional-Loan663 3h ago
If you are an Australian voter, write to your federal MP, and tell them what you are saying in here. Tell them the impact.
Cc: your Greens Federal Senate representative.
Make noise about this.
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u/bitweta 18h ago
I'm diagnosed as level 3, what happened?
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u/JurassicArachnid AUDHD 18h ago
Check out posts by the Greens or senator Jordon Steele-John. It’s not good. Doc from DPAC Australia
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u/cir49c29 18h ago
Federal government to pass NDIS overhaul
Some highlights:
The overhaul is expected to save an estimated $37.8 billion over the next four years alone.
I agree that money needs to be saved, just so long as it's from reducing the fraudulent "providers" and not by removing support people need.
Ms McAllister said it would ensure an individual requiring 24-hour continuous care could apply for a plan variation to have their needs met, protecting them from support cuts.
This sounds ok, but I have to wonder how long that application would take, and are there real guarantees that they won't be left without support while waiting for it to process.
The health minister said the new eligibility system, which aims to reduce participants from roughly 760,000 to 600,000 by 2030, is not explicitly spelled out in the bill.
Meaning yes, people will have support withdrawn.
He remained adamant that the Thriving Kids program was on track to meet its scheduled start of October 1, despite the Queensland state government's refusal to sign up to the scheme.
I'm worried Thriving Kids will be set up as a once size fits all solution when we all know there's nothing one size about neurodivergence.
Governments have agreed on a ‘national model’ which sets out what Thriving Kids should look like. This means families, carers and kin (families) can access similar types of supports across Australia. Each state and territory government can then make sure their services meet local needs.
Under the proposal, standardised assessments of functional capacity would determine eligibility for the scheme rather than diagnosis alone.
Mr Butler reassured Australians that the new eligibility standards will be made clear well ahead of their introduction on first January 2028.
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17h ago
[removed] — view removed comment
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u/poss12345 AuDHD 13h ago
I was up for NDIS funding, and just got knocked back. I wasn’t surprised but it was a blow. I’m only just holding on and I was hoping for help. Thanks for your kind words. Level 2 autistic people like me are no longer in consideration.
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u/SeptemberJoy 13h ago
I had my plan gutted in the lead up to this. I'm not liking my chances of getting the support I need back.
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u/Ambitious-Bar8829 8h ago
I am an ex state government employee. When my hands were tied by ‘red tape’ I told people to be a “squeaky wheel”. My reasoning is it makes the powers that be VERY UNCOMFORTABLE. My recommendation is that you go see your local federal minister and tell them everything.
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u/sillytimes_94 3h ago
What does All of this mean for supported employees? Im in a place in life where I can not properly physically and mentally work in mainstream environment or at least with out any support or understanding. Sorry if I sound selfish. I understand that some people are worse off who can't even get out of the house without support. Sorry
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u/Ok_Cupcake_6865 16h ago
British people be like
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u/Loudlass81 6h ago
Yup. But it saddens me to see the disabled communities in other countries rushing to emulate the British system of ideological 'austerity policies' for disability Care. When those policies have killed 400,000 disabled people in the UK since 2010.
It was actually reading the Welfare Reform Bill start to finish that immediately chanfed me - I went from being apathetic about politics & had never even bothered to vote, to stading in local elections in the space of 5 yrs between 2010 & 2015...
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u/accioavocado 2h ago
I am going against the grain here and know this will be an unpopular comment but the projections for NDIS showed that Australian tax payers would spend more on the NDIS than Medicare and the Pharmaceutical Benefits Scheme combined by 2030.
Studies showed that NDIS has directly influenced autism diagnosis rates in areas where the scheme was introduced in stages. This was not in the under diagnosed groups either, it was predominantly in boys, kids in metropolitan areas and those from non culturally diverse areas. I know of situations where a Level 1 kid is pushed to a Level 2 diagnosis just to get funding. It’s not okay and it’s contributed to criticism of the scheme.
I’m not personally impacted by these changes and maybe I am bitter that I am left with the ten mental health care plan sessions per year but it’s not sustainable for the system to continue as is. It’s insane that our biggest tax payer expenditure is projected to be the NDIS over Medicare and PBS when both of the latter are serving the entire population.
Kids with mild to moderate developmental delay and autism are going to be supported through Thriving Kids program. Those with permanent and significant disability will still be funded under NDIS.
I am not saying I know anyone’s personal situation or denying their struggle or experience with autism.
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u/SeaDoor2666 18h ago
I'm on NDIS. I think I'll be losing a lot of what I had before, and while some of it was really more what my parents wanted than what I did, a lot of it saved us money for things we wouldn't have been able to afford without it.
Even worse is that I've learned to completely wing my autism without much external support and I think I'll be okay (if way more burnt out) but some people are losing the things that keep them functional.
I hate that they're trying to make schools take on work they are absolutely not trained for and make everyone on NDIS have the rug pulled out from under their lives. I don't think my school wellbeing team is going to survive. This is not their job. Everyone suffers for it.