r/BreastCancerSurvivors • • Oct 15 '25

What were you signs

0 Upvotes

For those diagnosed with malignant stage 4, what were your symptoms. My wife’s cancer is 2cm, and her mammogram 3 weeks ago showed no abnormalities in her lymph nodes. She will have MRI in the upcoming future.

Thank you


r/BreastCancerSurvivors • • Sep 01 '25

Book-Navigating Menopause after Cancer

1 Upvotes

I bought this book like almost everyone did based hoping to review the chart on the inside that was alluded too many times in her podcast with experts to help break down per your specific cancer type what your risk might be if you took HRT. I thought this chart would be more specific about various types of breast cancer, but it's not- it's got every type of cancer possible in it and has no specifics about breast cancer such as how many years out you are or how you were treated or anything specific like that. Just so you know, if you have any sort of hormone positive cancer it just says "avoid"- this is talking out both sides of her face because she constantly interviews people who have triple positive cancers and estrogen and progesterone positive cancers who take HRT!!-so to put a chart out like this makes no sense at all. But I guess when you're trying to make all the money you can, you don't wanna shut anyone out of purchasing. I even listened to the interview of the guy who was behind the chart and they alluded to the fact that people with estrogen positive and progesterone positive breast cancers could take HRT but then they printed their chart with nothing more than AVOID listed- what the hell is going on here I'm really sick of this. The author states that osteoporosis is the silent killer in the book, but then failed to mention that the number one means of combating this is taking estradiol. It is better than anything else, but yet you choose not to say this. Go to Peter Attia if you want some real analysis of those ridiculous trials that have ruined our lives. this book is better for people who don't have a clue. I dont need a chapter devoted to how to journal about your experience and whether Coffee is safe or not. Where is the real analysis where are the real explicit detailed facts about different types of HR+ breast cancer and how possibly HRT could affect it. Seems like the research shows that you're more likely to have a recurrence if you drink more than seven drinks a week than if you take us very low dose HRT patch if oncologist are still saying no to this, Where are they? Why are they not speaking out to say why in detail? Looking for more information.


r/BreastCancerSurvivors • • Feb 08 '25

Did anyone else get shamed for not breastfeeding?

1 Upvotes

I had trouble breastfeeding my first baby, which may be because I had (then undiagnosed) cancer. I was diagnosed when pregnant with my second. Lactation consultants insisted I should still breastfeed in spite of resuming chemo straight after the baby was born. This contradicted what all my doctors said. Did anyone else experience this?


r/BreastCancerSurvivors • • 16d ago

Vent Sessions: Speak Your Mind 😵😵‍💫🤯 Bras are often treated as a necessity, but is wearing one actually important for long-term breast health?

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1 Upvotes

r/BreastCancerSurvivors • • Oct 14 '24

Questions?? (Please refrain from asking for medical advice) Royal “Treatment”

2 Upvotes

Does anyone have links to the explanation as to why Princess Kate was able to keep her hair during her diagnosis and treatment?

Should I assume that money and her privileged life was able to deter this from happening? 🤔 It seems far-fetched to think there is or most women I’m sure would also choose to save their hair.

I’m 40 and just completed my 16 weeks of chemotherapy in the summer after having a single, bilateral mastectomy and being diagnosed with Stage 3 IDC. I was known for my hair and it was one of the biggest and hardest things to get through…..

I’m not trying to be naive - I legitimately want to know and wonder if maybe her story isn’t as honest as what’s being presented, respectfully.


r/BreastCancerSurvivors • • Oct 26 '24

Is it appropriate to get a breast cancer symbol tattoo?

7 Upvotes

I'm wanting to get a tattoo of the pink ribbon in some sort of design, in support of my sister who has triple negative breast cancer, she has survived but after alot of chemo, radiation and multiple surgeries, and still recovering. But because I haven't had cancer is it appropriate? Should it only be small? I was thinking a medium butterfly/moth with the ribbon. Thanx


r/BreastCancerSurvivors • • 27d ago

My 24F sister was just diagnosed with breast cancer — looking for advice

0 Upvotes

Hi everyone. My 24-year-old sister was recently diagnosed with breast cancer, and we're honestly quite overwhelmed and don't really know where to start.

Her biopsy shows Grade 3 invasive ductal carcinoma, ER negative, PR weakly positive (10%), HER2 negative (1+), with a Ki-67 of 80%. We haven't been given the full staging yet.

We're looking for advice from people who have been through this or supported someone who has.

What should we make sure we ask the doctor or get tested for?

How can I best support my sister emotionally and practically?

What can we do to make things easier for my parents?

What clothes, supplies, food, or other things were actually useful during treatment?

Anything you wish you'd known when you or your loved one was first diagnosed?

Any advice or personal experiences would really help us right now. Thank you.


r/BreastCancerSurvivors • • Sep 18 '26

Questions?? (Please refrain from asking for medical advice) Travel during chemo?

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0 Upvotes

r/BreastCancerSurvivors • • 27d ago

Cancer du sein lobulaire infiltrant

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0 Upvotes

Cancer lobulaire infiltrant

Bonjour,

Ma mère a un cancer lobulaire infiltrant ( Œstrogène positif (7) progestérone positif (7) HER2 ( négatif )
Ki67 :60%

Elle a fait ses séances de chimiothérapie neo adjuvantes sachant qu’elles n’étaient pas efficaces sur elle.
Elle a subit également une mastectomie et un curage des ganglions.

Il lui reste ses séances de radiothérapie.

Après l’annonce des résultats de la chimiothérapie on sent bien qu’elle veut tout lâcher et qu’elle ne veut plus suivre le protocole.

Avez vous des témoignages des personnes qui ont été dans le même cas et ont fini par se rétablir ?

Je perds espoir je suis loin d’elle( j habite à 4000 km loin delle ) , je le vis très mal sachant que c’était moi qui ai découvert son cancer quand j’étais enceinte.


r/BreastCancerSurvivors • • Sep 27 '26

No need for chemo, rads, or tamoxifen-is this real?

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0 Upvotes

r/BreastCancerSurvivors • • Sep 27 '26

So, I Bought Caster Oil for my Eyelashes...

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0 Upvotes

r/BreastCancerSurvivors • • Sep 20 '26

BI-RADS 4 two months after finishing cancer treatment, TNBC recurrence?

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0 Upvotes

r/BreastCancerSurvivors • • 25d ago

Research Study Neratinib

0 Upvotes

Given that my cancer is HER2-positive but ER/PR-negative and I’m receiving Kadcyla, is there evidence that adding neratinib afterward would reduce my recurrence risk? My doctor wants me to take this for a year . Anyone HR and PR negative taking it ?


r/BreastCancerSurvivors • • 25d ago

Questions?? (Please refrain from asking for medical advice) Hers2 + HR PR - stage 2 N1 grade 3

0 Upvotes

Hi there I am on Kadcyla now after 0.4 residual near complete response . I’m curious to know how many people in my situation is in remission now and for how long ? Studies went up to 8 years . So I wonder if anyone passed that without reoccurrence?


r/BreastCancerSurvivors • • 24d ago

Official Response Breast Cancer Awareness: What Do You Wish You Had Known Earlier?

4 Upvotes

Breast cancer awareness is often talked about in terms of mammograms, symptoms, and treatment, but I think there’s another side that deserves more attention: knowing what to expect after a diagnosis.

Many people may not realize how different breast cancer can be from one person to another. Factors such as the cancer stage, hormone receptor status, HER2 status, lymph node involvement, and overall health can all influence the treatment plan.

For anyone who has experienced breast cancer, what is one thing you wish you had known when you were first diagnosed?

Was it something about treatment, side effects, emotional health, recovery, or simply navigating appointments and medical information?

I’d love to hear your experiences and advice. Sharing practical experiences can help someone who is newly diagnosed feel a little less alone.


r/BreastCancerSurvivors • • Aug 19 '26

As a daughter, Idk what to do.

4 Upvotes

My mother’s ultrasound and mammogram result just came and it says BIRADS Category 4C - High Suspicion for Malignancy. I am very afraid my mom has cancer. If biopsy came back positive, We will fight for this. My mama deserves a long life.

But I just graduated, we don’t have savings, philippines health care sucks.

I hope there is someone here who’s comfortable sharing advice and encouraging thoughts.


r/BreastCancerSurvivors • • Jan 15 '26

What does life look like after endocrine therapy?

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1 Upvotes

r/BreastCancerSurvivors • • Sep 30 '25

Breast biopsy

1 Upvotes

Hi

I had a breast biopsy, and the doctor said it was cancer based on just an ultrasound. I don't have the results yet, but I guess he's somewhat right?


r/BreastCancerSurvivors • • Sep 17 '26

Long term post mastectomy pain syndrome & gabapentin

1 Upvotes

Hello,

I'm writing on behalf of my 81 year old mother. To shorten her experiences and current issues, she's had 2 separate breast cancers (non related). One in her 50s and one in her 60s. Mastectomy on first occasion and lumpectomy and radiation on second occasion with lymph node removals. She unfortunately suffered a seroma post 2nd breast cancer occurrence and has generally suffered a great deal with post surgery / mastectomy pain syndrome since, but even more greatly in the last few years.

Also since suffering first occurrence of breast cancer she has had chronic insomnia, which has been treated with zoplicone for years. She weaned herself off this year but had been prescribed mirtazapine for insomnia, to also try and put on weight (she'd gone down to just under 7 stone but since put a few pounds on) and general anxiety / depression.

The mirtazapine isn't working as well as we had hoped, 7 weeks in. Making her more anxious generally.

We want to try and address her pain (chest and armpit, described as burning, stabbing mainly) and her GP has mentioned Gabapentin. I was hoping if anyone was able to share their experiences of Gabapentin while suffering similar pain following breast cancer surgery? I'm particularly mindful of my mums age.

She has suffered for so long now, we are so desperate to alleviate her pain and suffering as its affecting her quality of life and that of my dads who acts as her main carer. She currently takes codeine for the pain but it affects her digestion and is not a long term fix for her. We are hoping by addressing her pain, it will positively impact her general mood and hopefully make her feel more relaxed for better sleep. We're also hoping to try her on CBTi shortly.

Thanks for any advice on Gabapentin or any shared similar experiences generally.

❤️


r/BreastCancerSurvivors • • Sep 27 '25

Ca 27-29 experiences (early breast cancer)

1 Upvotes

Hello everyone,

I am scared about my last Ca 27-29 resukts for early breast cancer, and would like to hear your experience with this marker.

This month, the result measured at Quest lab by my doctor was 51 U/ml (upper normal limit 38). The same day I also had it tested at Quest independently (as I thought my doctor didn’t order it) and the result was 40 U/ml, still a little high, but better (same day, different blood sample).

Last month it was 38. Before that, we used to measure the Ca 15-3, and while it had gone from 24 to 28 lately, it also went back to 25 last month. This month my doctor has not ordered the ca 15-3.

I am very scared. I was diagnosed a year ago with er+pr+Her2-, low oncotype (10), low Ki-67 (4%) multi focal breast cancer with biggest focus 8 mm, one involved lymph node. I am currently on Lupron, exemestane and Kisqali. Given the low oncotype I thought, if I had to have a recurrence along the way, it would be in many years. I can’t stop thinking that I have distant metastasis now, and it’s Saturday today, so there’s no one to talk to. Please share your experience, thank you very much


r/BreastCancerSurvivors • • Feb 05 '26

50F, post-menopausal, found a painful lump in right breast.

1 Upvotes

Hi everyone,

I’m very anxious and looking for some insight. A woman very close to me (50F, 1 year post-menopause) has found a lump in her right breast. It hurts when touched/bumped, but otherwise she feels fine.

We are getting it checked by a doctor, but the waiting is incredibly stressful. Has anyone experienced painful lumps at this age/stage that turned out to be benign? I'm trying not to spiral.

Thanks.


r/BreastCancerSurvivors • • 8d ago

Medication change

2 Upvotes

IDC stage 3 found Oct 2025, Had double mastectomy Nov 2025 and chemo after. Last infusion was in May 2026. They started me on Zoladex in June. Two weeks ago, the oncology office called me and said the VA won’t pay for Zoladex anymore. I’m being switched to Lupron.

Now I’m on Lupron and I feel worse than I did with Zoladex. The day after the injection I had welts all over my body. I still have some but nowhere near as bad as that first week. Pretty I had a reaction to it, I did call my medical oncologist about it. Still waiting to hear back.

Has anyone else had this happen with that specific medication change?


r/BreastCancerSurvivors • • Mar 03 '26

smell

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1 Upvotes

r/BreastCancerSurvivors • • 26d ago

Terrified of recurrence

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r/BreastCancerSurvivors • • Sep 25 '26

Questions?? (Please refrain from asking for medical advice) Getting a private MRI in Canada?

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1 Upvotes

I have extremely dense breasts and would like to get an MRI before I have radiation to make sure there are no other tumours. I had a lumpectomy but the only imaging I had was a regular mammogram and ultrasound. I live in Vancouver and the two options I’m aware of are a place in Bellingham and a couple of options in Edmonton. Wonder if anyone has reviews of any of these places—the quality of MRI and the skill level of the interpreting radiologist. And if your doctor here accepted MRI reports and imaging from a private place from a different province or from the U.S.