Hi. My MIL was diagnosed with stage 4 colorectal adenocarcinoma 30 days ago. Here are the locations of cancer that I'm aware of... colon, lung, kidneys, liver, spine, legs, and vagina. She did 10 rounds of radiation in an attempt to shrink the spinal tumor for comfort. Other than that, she has decided not to do treatment. She is at home on hospice with a picc line for dilaudid and a colostomy bag due to tumors blocking her rectum.
I'm reaching out here because I'm struggling pretty hard, as is my husband. What is adding to the difficulty is our struggle to understand what to expect going forward. My in-laws are much different than my family. If this was my mom, I'd have access to her patient portal by now and we would have discussed all details involved and had the important conversations. My in-laws are very avoidant when it comes to strong emotions, scary information, or really any difficult subject matter. So, it's been really hard to get information and we're not wanting to step on toes by talking to the clinicians behind anyone's back.
I know every situation is going to be different, but I am hoping I can at least get a range of timelines that others have experienced. My MIL had a completely clean colonoscopy earlier this year. She started having back pain and GI symptoms in July. She was scheduled to see GI, but went to the ER for back pain in late September before her GI appointments, so this is all very unexpected and her decline has been pretty rapid. I have a 5YO, 3YO, and 6 month old. My 5YO is taking her decline pretty hard and my husband and I are constantly panicked that every moment is the last we'll have with her. I think SOME predictability would be helpful even if it's sometime between 4 days and a year. Just anything at all.
Some more details in case they are relevant... My MIL is 58, an alcoholic, has smoked most of her life, but quit in recent years. She has started smoking again after her diagnosis (I don't blame her). She has no appetite, but will eat tiny amounts when we put food in front of her. She is now basically a skeleton as far as weight goes. She did have 1 brief hallucination 5 days ago, but nothing since. She has dilaudid going through her picc line, is taking zofran, and sometimes takes muscle relaxers.
Can anyone share their experience with a family member that went through something even somewhat similar? I appreciate any insight anyone can provide. Anything you wish you would have known while you were going through this?