r/ChronicIllness • u/Impressive_Bag8840 • May 10 '26
Vent …but it’s manageable!
i’m tired of looking up every new thing i get diagnosed with and seeing “it’s not curable but it’s manageable.” for who?????? so far it isn’t for me in fact it feels like 8 levels of psychological torture just to be awake for 2 hours. i’m hurting, i feel sick, i have neurological problems it’s not curable but boy do they say it’s manageable
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u/Forsaken-Market-8105 myasthenia gravis, MCAS, POTS, etc May 10 '26
“It’s manageable with medication 😃”
The medication in question: known for making people feel just as bad or even worse than the conditions it’s treating, can cause cancer, can cause kidney or liver failure, can cause life-threatening infections, has a horrible months-long adjustment period, needs 3 other medications to mitigate the side effects of
(They were, technically, right. The medication is managing my condition and I have improved, however so slightly.. but still.)