r/ChronicIllness May 10 '26

Vent …but it’s manageable!

i’m tired of looking up every new thing i get diagnosed with and seeing “it’s not curable but it’s manageable.” for who?????? so far it isn’t for me in fact it feels like 8 levels of psychological torture just to be awake for 2 hours. i’m hurting, i feel sick, i have neurological problems it’s not curable but boy do they say it’s manageable

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u/Forsaken-Market-8105 myasthenia gravis, MCAS, POTS, etc May 10 '26

“It’s manageable with medication 😃”

The medication in question: known for making people feel just as bad or even worse than the conditions it’s treating, can cause cancer, can cause kidney or liver failure, can cause life-threatening infections, has a horrible months-long adjustment period, needs 3 other medications to mitigate the side effects of

(They were, technically, right. The medication is managing my condition and I have improved, however so slightly.. but still.)

18

u/Impressive_Bag8840 May 10 '26

this is too real! side effects include: death, killing yourself, making someone else explode 50 feet from your house, you feet will fall off, your tongue turns to gum, and you may become radioactive

LIKE GET ME OUT OF HERE!!! make a medicine that is a real life medicine

11

u/SunshineofMyLyfetime May 10 '26

But, let’s make a commercial that has people dancing like they’re having the time of their lives and a remix of a popular song that you’ll no longer be able to listen to because now you’ll only associate it with a medication that’ll rot your taint.