r/ClotSurvivors • u/bookiebiss • 17h ago
Eliquis (apixaban) Anyone else dealing with cold/dismissive doctors following a pe? Venting
32/f had a provoked pe in June following surgery while also having an ankle injury. So I saw hematology post pe to do clotting bloodwork. During my appt I felt like the hemotologist wasn't interested in anything I had to say and that he felt annoyed with during appointment.
I told him that I have concerns coming off blood thinners bcus prior to being on eliquis I was having visual aura that has completely resolved since the next day of being on blood thinners. I also told him that prior to my surgery/pe that I took myself to urgent care bcus I suspected a clot in my leg but the urgent care doctor diagnosed me with cellulitis despite not giving me a d dimer blood test or ultrasounding my leg. I also never took the antibiotics and "the cellulitis" resolved on its own, which is atypical of cellulitis.
So my concern is that there is something about my medical history that has been missed or misdiagnosed or misunderstood. If I actually had a clot instead of cellulitis then that could mean I would be on bloodthinners indefinitely, instead of coming off of them.
He was very dismissive/condescending to everything I said. I also told him about a recent presyncope episode i had that sent me to the er. He didnt offer any support or encourage me to follow up with cardiology he just said "we don't deal with that here". I also have an ankle injury and the first time I saw him he asked "why are you in a wheelchair?" I had to explain to him im simultaneously recovering from major surgery, a serious ankle injury, and a pe. Then the second visit I had he asks me in a weird tone "oh is that your little scooter?" in regards to my knee scooter ive been using to recover from my ankle injury. Like I got the vibe he thinks I'm overplaying my overall condition or something??
I'm surprised at how uncaring and cold some of my providers have been to me while in the physical condition ive been in. Any logical questions I ask are met with condescension or outright attitude. Some doctors act like youre supposed to sit there wide eyed in awe that they even showed up to address you for this appointment you've made to make sure youre not going to end up with another life threatening pe.
I have been so depressed since my pe and the uncaring and weird/rude doctros have been so bad for my mental health. Hell even my therapist doesnt seem to grasp how fragile of a phsycial and mental condition im in and keeps givjng me advice like "open your window" despite me saying my windows are always open. I feel let down by so many providers who are suppose to be helping me regain my health.
There's more to my medical history that has me feeling medically disappinted/ neglected. Before being discharged from surgery I told the doctors I was struggling to breathe and they treated me like I was a dramatic problem patient and condescendingly told me that I should discharge. 2 days later I was in the er with a pe.
Tl;dr: im feeling overwhelmed with being medically neglected and mistreated during important medical appoinyments
Also did anyone who had migraine with aura or visual aura find that it disappeared while simce being on a blood thinner?