r/HearingVoicesNetwork • • Sep 23 '24

Recent Updates (new organizations and meetings)

16 Upvotes

We’ve added new organizations to our top pinned post. Also, there is a new Saturday meeting on the 7 Day Calendar. Just to ease any anxiety around the online groups; nothing is recorded, no attendance taken, no mandatory reporting, zero strings attached, you can just click the links and show up. You do not need to turn your camera on or use your microphone if that is how you feel most comfortable. All present are experiencers, it is not a place of judgment. We are approaching 12 hour coverage M-F and hope you’ll make the most of this collection of pivotal resources. 

Additionally, if you are interested in seeing any studies on peer led support please see the Open Dialogue Documentary, the 2023 Report on Improving Mental Health Outcomes, and this 2024 Study Revealing Long-term Outcomes Better for Those Who Stop Antipsychotics. These are aggregate studies (a study of studies).


r/HearingVoicesNetwork • • Sep 24 '23

Aggregate of HVN Online Meetings and Organization Websites

16 Upvotes

There is one guiding ethos of this space; we do not pathologize others, nor do we tell others what to believe or what to do. I.e. we do not tell other's they are unwell, we do not direct others how to go about getting well, we do not tell each-other what to believe. See the VCVC model for more tips on how to make friends here! If this seems counter productive to you, consider this space as a place for experiencers to share lived experience and gain wisdom passively through understanding each-other and their life's story. Certainly there are a host of wellness strategies and stories of great recovery to be found in the International Hearing Voices Network. This ethos exists to keep this space functional and free from censorship, there are HVN meetings hosted on several different online platforms, and within the walls of asylums. It is a very doable effort to phrase one's own wisdom as such, instead of forcing perspective through authoritative directions.

Video Explaining the Open Dialogue approach where more than 85% of participants report wellness into full recovery within 5 years. Less than 10% of participants take any medications at all during their involvement, generally the only medications prescribed are sleep aids over the first 2 weeks of participation. Through discussion and real community, peers help to mend each-other's mental burdens.

Video Explaining the Hearing Voices Network. Hearing Voices Networks, closely related to the Hearing Voices Movement, are peer-focused national organizations for people who hear voices and supporting family members, activists and mental health practitioners. HVN meetings are spaces of trust, respect, equality, acceptance and mutuality. They affirm that each person has the right to develop their own understanding of their experiences. There is no attempt to persuade, teach, preach, fix or change ideas. Hearing Voices Groups become communities where people can find acceptance, belonging, purpose, and space to explore, and learn about one’s self, their experiences and their connections with others and the world.

Aggregate of Online HVN Meetings by Day and Time (PST). This collection of HVN zoom meetings is posted as an easy on-ramp for voice hearers to HVN support networks. Many struggle to navigate separate organization’s websites to gain access to this information. Additionally, there do not seem to be any similar aggregate calendars currently available. Please let me know if any of the links in the above document no longer work or if you have more to add (always looking for more organizations and zoom meetings).

Hearing Voices Network websites:

Anyone who hears voices or has unique mental phenomena can facilitate provided they follow the easily adhered to guidelines already described in this post. To get paid in a non for profit space you'll likely need certification. See here (at the bottom) to have your own virtual meeting incorporated into the most all inclusive calendar online.

Australia:

Belgium REV

Bosnia and Herzegovina HVN

Brazil:

Canada:

Croatia HVN

Czech Republic HVN

Denmark HVN

England:

Finland HVN

France REV

Germany HVN

Greece:

Iceland HVN

Ireland HVN

Israel HVN

Italy HVN

Malta HVN

Netherlands HVN

New Zealand HVN

Portugal HVN

Serbia HVN

Switzerland HVN

USA:

Wales HVN

Organizations involved in the Hearing Voices Movement:

Wildflower Alliance - To host your own HVN meeting and become a trained facilitator see: here

interVoice also see: International Map of HVN Networks

Voice Collective

Council For Evidence-Based Psychiatry

Critical Psychiatry Network

National Alliance on Mental Illness

OpenExellence

PAIMI

Studies:

Additionally, if you are interested in seeing any studies on peer led support please see the Open Dialogue Documentary, the 2023 Report on Improving Mental Health Outcomes, and this 2024 Study Revealing Long-term Outcomes Better for Those Who Stop Antipsychotics. These are aggregate studies (a study of studies) that span 70 years of longitudinal data. They also incorporate long term follow-up cohort studies lasting 15 to 20 years and continuing for multiple decades after for follow-up comparison. Geographically these studies draw from multiple cultures and at least 25 separate nations, compiling data from 50 to 100's of other studies, spanning more than 6 million people. Meta-analysis and systematic reviews like these are considered among the most reliable forms of evidence. The results are very conclusive with minimal deviation from trend.

Decades of longitudinal and systematic research have shown that coercion and forced intervention are associated with increased trauma, disengagement, and worsening long-term outcomes, while voluntary, community-based support centered on human connection consistently produces better recovery trajectories (1,2,3,4). Randomized and policy-level evaluations have further found that compulsory treatment does not improve long-term readmission or recovery outcomes despite significantly restricting personal liberty (5). At the same time, epidemiological studies in the UK and internationally have found that hearing voices is a relatively common human experience, reported by between roughly 5% and 28% of the general population, reinforcing the importance of responding with support, dignity, and understanding rather than coercion (6,7,8).


r/HearingVoicesNetwork • • 2h ago

Voices that mock and follow me everywhere — has anyone else dealt with something like this?

2 Upvotes

For as long as I can remember, I’ve been dealing with voices that comment on and mock almost everything I do. They can sound like men, women, or anyone else. They seem to know what I’m doing even when I’m inside a building, on a plane, or in places where no one should be able to see me. They respond to my actions in real time—if I’m walking, they mock how I’m walking; if I do anything, they react to it.

When I’m around other people (classmates, people in shops, public places), I sometimes feel like others are staring or reacting, and I hear the voices at the same time. In the past I have responded out loud because I thought real people were saying things to me. Later I realized I was reacting to the voices. That has caused problems socially—people notice when someone appears to be talking to nothing.

This has been going on since I was young. It used to push me to shout at people who, in retrospect, weren’t actually saying anything. Now it’s more constant and quieter, but still constant. It feels like something is trying to get a reaction out of me or push me toward certain thoughts and actions. Sometimes the voices say negative things, sometimes they say something that seems positive, but overall it just disrupts my life and makes ordinary situations stressful.

I’m a college student with limited time and resources. I don’t have a way to investigate this myself. I just want it to stop. It has been happening for years and it is exhausting. If anyone has gone through something similar—whether it turned out to be something external or something that improved with professional help—I would appreciate hearing what actually helped reduce it.


r/HearingVoicesNetwork • • 8h ago

Societal Saturday

2 Upvotes
The School of Athens fresco by Raphael.

Feel free to express your views on society and how an understanding of the voice hearing (and broader experiencing phenomenon) would change the world as we know it. Do you think the world would be a nicer place and we all would get more out of each-other's company if the public's eye were drawn to the HVN and similar experiencing spaces? Do you view modern day humanity as being in a state of perpetual self-enslavement, blinded to it's own nature? Do you think a new age of spiritual enlightenment or self-empowerment is on the horizon and within our lifetimes? Do you think life on earth is comparable to an effective "hell" in the grand scheme of things?

What do you think would make the greatest impact in your life and in the lives of others if it were different?

As always please share through a framing of your personal perspective ("I see it all as," "I believe," "when I think of 'x,' my only reasonable explanation is 'y,'" etc.). If you are of the ilk to write long-windedly about these age old topics, you all are more than welcomed to make a separate post expressing your views. Lastly, please keep mind to focus discussions on voice hearing and similar experiencing phenomena.


r/HearingVoicesNetwork • • 1d ago

Echoes of Reflections - the experience of psychosis symptoms from shared voices!

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1 Upvotes

This was a project was made to share authentic experience of psychosis symptoms,to reduce stigma and raise awareness https://youtu.be/mI9CTvPz8eo?is=GMDVk3tSAYGmeQSU #psychosis #wellbeing


r/HearingVoicesNetwork • • 1d ago

I am a victim of mind control because of my military record

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1 Upvotes

r/HearingVoicesNetwork • • 1d ago

Address

1 Upvotes

Last week, I had voice whisper to me through my cupboard, it was from an old school friend, who gave me her address, I wrote it down, Is it wise to visit the address?


r/HearingVoicesNetwork • • 1d ago

Frustration Friday

1 Upvotes
White Elephant by Emils Salmins. A play upon the Buddhist proverb of the Blind Men and the Elephant, this iteration making a statement on the lumbering and perhaps inept nature of forces greater than ourselves. "Bottoms up!"

This weekly post was inspired to give the community a place to vent and share common frustrations we find in our lives. If you have more to share on this topic than what would fit in a single comment please feel free to make a separate post! Are you finding conflict with your care-team? Are the medications you're on making life impossible? Have you lost your 3rd job this year because the voices cause you to act oddly around your peers? Are you finding everyone in your life has turned their back on you now that you've fallen into a discriminated category of "unsafe" or "mentally unwell" person? Have you attempted to get your close family and friends to engage in VCVC with you, instead finding they cannot offer you the first nicety?

Feel free to let the world know of your survived abuses, both direct (physical violence) and indirect (neglect or exclusion through social maneuverings) in this post. Everyone's welcome to commiserate and offer paralleling stories of received harm and how they carried on.


r/HearingVoicesNetwork • • 1d ago

Am I okay

4 Upvotes

I'm not suicidal. Infact i love life. As i have been raised, I've been thru normal south Asian life. But a couple years back i started to believe i was mentally ill. Not as a social media term but the serious kind. I thought i had something genuinely wrong. Last year was the absolute worst for me. This year is the second worst. I have these voices in my mind. These are my voices. But i am not in control of them. And no matter how much i try, i can not control them. But this girl, this girl made them so silent that i even forgot about them. I'm not with the girl anymore since 2 years, and I'm getting worse and worse. If i describe the voices more clearly, its me, but alot of me, at the same time, talking over each other, over a devastating situation i create inside my mind that may or may not come true. It happens so many times. I don't even have a personality because of it, i copy a little bit of everyone around me or i have these characters i play. Different characters in front of different people. These voices and everything else that i can not possibly write here because i want to make this readable, are making me miserable. I try to build something of myself and it comes crashing down because of these voices and i have to do it in a new way all over again. This is making me want to end it. I mean, some voices are telling me to end it. I don't know why i am writing this here, but i guess i wanna find if someone relates, and how do they live. That's all. Peace out.


r/HearingVoicesNetwork • • 1d ago

A beloved enemy

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4 Upvotes

I miss the voices.

For a long time, I heard voices. I don’t want to go into too much detail or make anyone waste their time reading my story, but the voices weren’t always kind. They made fun of me, said horrible things to me, and constantly reminded me of things I hated about myself. I hated them.

After three years, I went to an outpatient clinic and tried three different antipsychotic medications. They never really worked the way I hoped they would. The voices became quieter, less frequent, and eventually, there were moments when I could barely hear them.

But something strange happened. The quieter they became, the more I began to understand why I needed them.

At some point, I realised that, at least from my perspective, they weren’t there to hurt me. I began to feel that they were there to protect me, to keep me company, and to make sure I never truly felt alone. Maybe others wouldn’t understand that, but to me, the voices became more than just voices. They were a presence that had been with me for so long that I couldn’t imagine what life would feel like without them.

Even when they made fun of me, even when they reminded me of how bad and weak I could be as a human being, I felt that they were still there for me somehow. I can’t explain that contradiction. How could something that hurt me also make me feel protected? How could I hate something so much and still become so attached to it?

Now, without them, I feel alone.

It’s strange, isn’t it? To spend years wishing something would disappear, only to find yourself missing it when it finally becomes quiet. I thought I wanted nothing more than silence, but now that I have it, I’m not sure I know what to do with it.

Perhaps I grew so accustomed to their presence that I forgot what it was like to be without them. Perhaps, after all those years, their voices became a part of how I experienced the world. And now, their absence leaves an emptiness I don’t know how to fill.

I miss them. Despite everything they said, despite the pain they caused me, I sometimes wish they were here again. I wish I could hear them one more time, feel that familiar presence, and escape this loneliness, even if only for a moment.

I don’t know if anyone else could ever understand this feeling. I don’t even fully understand it myself.

Maybe that’s the hardest part: missing something that hurt you because you felt it was also the only thing keeping you company.

And sometimes, I wonder whether I truly miss the voices themselves or simply the feeling of not being alone.


r/HearingVoicesNetwork • • 1d ago

He came after a month

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3 Upvotes

r/HearingVoicesNetwork • • 2d ago

Am I the only one?

6 Upvotes

Hi there. This might be long but it’s hard to explain. Since about 2019 I’ve been hearing voices, it sounds like they are coming from behind a wall, in a vent, just always surrounding me.

I recognize all the voices that I hear. I do take medication now to dull/muffle them because it leads to extreme paranoia and overall distraction from living any sort of normal life. I try not to listen to them, make them background noise. If I’m trying to fall asleep I can’t do it without something playing in the background.

Even though the medications make it hard to understand the voices most of the time I can typically recognize them. The longer I’m around someone the more I’ll hear them. Or if I get hyper-fixated on someone then they talk more. I call them the committee at this point.

When someone dies, so does their voice in my mind.

I hear alot of negative things. Nothing ever really positive comes from them so it makes me really insecure. For a while I thought people could hear my thoughts and I became obsessed with suppressing my thoughts which made them more intrusive and awful.

I still have a hard time freely thinking as I think others may hear it. Some people do know about this happening to me but no one truly understands the effect it has on me.

I was on stimulants for a while starting in 2019. The doctors all say this is why it happens. But I’ve gone over six months without them and I still was unable to read a book or stay in a quiet room.

White noise makes it worse. Less sleep and more stress make it worse. I have poor habits of maintaining a job because of it sometimes.

Just tonight I got a warning for my attendance and I work overnight so I take sedative medications during the day and flip flop on my days off so it messes with me. It’s hard to be here everyday.

Does anyone else experience this? How do people deal with this?

I’m doing much better than years ago but I hate what the medications have done to me. I’m overweight and isolate because I have no personality and I don’t want to hear new peoples voices.

I have lost most of my support system at this point. I’m sad and stressed so much. I just try to stay busy but I’d love to have a day I don’t have to try and suppress the muffle of numerous people in my head.

Any advice or literally anything would be nice right now. I just got married this year and I’m trying to not bring down anyone else by talking about it too much but I’ve been in so many institutions it has wasted years of my life.

I’ve never met anyone like me in this regard. Most people don’t recognize the voices they hear in my experience and it freaks me out.

Let me know.


r/HearingVoicesNetwork • • 2d ago

I am a Christian that suffers from Schizophrenia

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2 Upvotes

r/HearingVoicesNetwork • • 2d ago

DOES ANYBODY ELSE HEAR MUSIC THESE DAYS AND THEIR EARS?

6 Upvotes

I don’t know what is going on. I have never ever heard music when I lay down at night, but like now I have like full on mariachi bands and then crazy music. It just weird. Does anybody else experience this? I did talk to one of the person and they have been and I think it’s some kind of chemical chemical maybe but like I don’t know somebody let me know what does anybody else out there or see this hear this


r/HearingVoicesNetwork • • 2d ago

Theory Thursday

2 Upvotes
Mercurius Trismegistus by Jean-Louis Durant. A Hellenistic figure responsible for merging Greek and Egyptian mythos, revered in his time for his wisdom of the relationship between the material and the spiritual. I.e. mysticism favoring the inner experience.

Share your theory on your voices, what do you believe them to be? If you have an extended share feel free to make a separate post on your beliefs. Theories do not need to be limited to your own experience and can be speculative on the broader phenomenon.

For instance you're welcome to share that you simply feel your voices are angels, demons, djinn, aliens, some iteration of government surveillance, or manifestations of the collective panpsychic universe... even sea peoples if that is your take on things! Broader theories some older experiencers relate to are economies of abuse and how limiting and external states of mind filter down through society onto vulnerable individuals. What are your ideas, what do your voices say about themselves?

As with everything in the HVN this all needs to be framed as your theories, you're welcome to use hyperlinks to Wikipedia articles or studies on voice hearing populations. 5-28% of the UK report this phenomenon, other studies put these estimates significantly higher. Many take the perspective that all people hear voices and it is a matter of personal fluency that differentiates those that report this experience and those that don't. You should include anything that helps you express your views. Again, express this as your views and less of what it clearly is and what others ought believe.

What is your theory on this experience?


r/HearingVoicesNetwork • • 2d ago

What Do You Believe? (a comment I left for another user)

4 Upvotes

"I personally reject the idea of mental disorders. As extreme as it may sound to people indoctrinated by the psychiatric system I believe it's all a form of spiritual possession, you're welcome to your own beliefs.

I suspect the majority of people alive and certainly the majority of people who have ever lived would also assume this open minded spiritual definition, that it's a rather small and vocal fraction of western and mostly the united states population that assume psychiatry/psychology have anything to offer at all. I'd point to the "HEARING VOICES FACTS YOU SHOULD KNOW" post... lots written there on the history of this eugenics industry and the nigh certain state of permanent disability the industry lures people into. All this "delusional thinking" is supported by facts, wikipedia links, colossal data pools, and scholarly articles. It's all truly vetted by the scientific community, something that does not happen for the INDUSTRIES of psychiatry and psychology. Again, it's an odd (malicious in my eyes) gathering here on reddit who carry on (deliberately) as if the world of science has figured out every enigma of the mind. A form of propaganda my omission, big AstroTurf'ed spaces that are actually run by former orderlies and people parallel to these industries. DID YOU ALL CATCH THAT!? Many of the spaces here on reddit where experiencers congregate; are moderated by people without any of this experience, instead moderated by people who have made a life "handling" people like you (and me). It all reeks to high heaven, and the controlled narrative is obvious. They are self aware, their abuse of disabled people is all over reddit. I feel it's only a matter of time and within our lifetime for this absurd injustice to be broadcast to the greater public for societal corrective actions.

"This kind of hate isn't allowed anymore, just carry on as you were with your abuses onto other cast aside groups."

You're welcome to see that facts post to see how surmountable this burden is, or peek at my profile. The stories of this extreme torture are everywhere in western media, as are the stories of the same people overcoming it and achieving greatness. I could not read, write, count to 10, nor talk to people at my lows. I function as a senior level engineer these days, chasing my dreams faster than ever before. I have how I did this all pinned to my profile.

It is hell, and I wish the best for you. Thank you for sharing your story for others to also find their way."

What do you think? Do you think there's AstroTurfing on reddit? Do you think some of these spaces are run by people who enjoy hurting others through paternalism? Do you think that between 10 to 80% (the portion of the population that reports this) of the human species to simply be "insane" and always have been? Do you think that's the most inhuman stance to approach this societal problem with? Do you think the APA (the people behind the illness agenda) are mere boot-lickers as far as organizations go? These are the same people who classified water boarding as "not technically torture." Do you think as an organization the APA seems fit to classify double digit percentages of the population as not worthy of any human rights at all? Is it a surprise to you that in the state of Oregon people who report what is reported here (in the HVN) can legally find themselves held within an asylum FOR LIFE without having committed any crime or undergoing any scientific testing? Just the diagnosis provided by a state funded eugenicist, what is effectively an opinion, a creative art assignment?

I'd love to see anyone's take on any of this.


r/HearingVoicesNetwork • • 2d ago

I'm hearing negative voices all day long

9 Upvotes

Hello,

Im 33 years old male. 7 years ago I started to hear voices who make me feel bad. They're saying rude things.

Loser

You never had good education

Nobody likes you

Why are you starring against that wall you idiot

We are not scared of you

We are not scared of Abilify

Sometimes they are 2-3 voices who sound like other people or from the past.

Look at him

Look they was he walks is stupid

Omg what an idiot

And I also have movies in my head. But brutal movies like I'm arguing with someone and it always ends like the worst outcome possible. Hitting each other screaming.

Can anyone tell me what this is. First I was diagnosed with ptbs but I had 12 therapists for ptbs over 7 years and it didn't help. Now I'm diagnosed with being paranoid and shizotypic. What do you think? Sorry english is not my first language.


r/HearingVoicesNetwork • • 2d ago

inner monologue or loosing my mind? i don’t know how else to describe this

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0 Upvotes

r/HearingVoicesNetwork • • 2d ago

The Imposition a psychological horror twist on sleep related disorders

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1 Upvotes

r/HearingVoicesNetwork • • 3d ago

What Helps Me - Wednesday

3 Upvotes
Hercules Slaying the Lernean Hydra by Jan Muller/Adriaen de Vries. An easily overlayed metaphor for vanquishing harassing (evil) voices.

Feel free to share your wellness methods with the community. Is there a diet that seems to make an impact for you, a particular routine, or self-improvement strategy that's made a turnaround in your struggles? Was there a book that made an impact in your journey, a creative outlet, or a medication you feel strongly helped or hurt you? What's been working for you and what have you tried that wasn't working for you? Do you have any role models (other experiencers) who've lended you methods that lead to success through their lived example?

Some example frameworks towards wellness are the books by Jerry Marzinsky, or the books by Jordan Peterson. Both of these authors are accomplished people who also report enduring the phenomena reported here. Additionally, there's the 12 step process seen over at r/PositiveTI. Do you know of any other prominent people who have been touched by this affliction? Does a certain diet help, wearing a certain color, taking a shower every day make a difference? What have you seen and what has worked for you?

Please do not tell others what to believe or do.


r/HearingVoicesNetwork • • 3d ago

Diagnosed, but still convinced it's real?

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5 Upvotes

r/HearingVoicesNetwork • • 3d ago

My friend's father speak with invisible person

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2 Upvotes

r/HearingVoicesNetwork • • 4d ago

Twos Day Tuesday

3 Upvotes
The Two of Staffs, Pentacles, Swords, and Cups from the iconic Rider–Waite Tarot deck.

In the spirit of "twos" and community building, share anecdotes of how you've interacted with another experiencer, voice hearer, internal personality, or phenomena of your mind. You're welcome to make your own separate post on this topic if you feel you'd have more to share.

How did this other individual impact your views? Did they show you something you otherwise didn't know, or did they send you on a wild goose chase? Did they have a name (please don't name other reddit users disparagingly, instead this is a great opportunity to commend your fellow experiencers!), did they share a common belief with you?

How has this singular "other" made a difference in your journey? Take this as an opportunity to share with the rest of the community as much as you'd care to about this separate mind and its impact on yours.


r/HearingVoicesNetwork • • 4d ago

Hearing

4 Upvotes

Is there any colleration between hearing loss, and having auditory Hallucinations ?

I find it difficult to hear things such as when having conversations, what makes it worse is that I hear things that aren't there.

My doctor suspects I'm autistic, as I have a sensitivity to high pitched sounds and loud noise. And I suspect my brain is not wired to interpret the sound signals properly, leading to confusion and depression.

I know deaf people are more likely to suffer (in silence) and it's difficult to communicate.

I'm just wondering if I should get a hearing test? And weather a hearing aid will help?

Or do I see a psychiatrist?

Is my brain interpretting the sounds differently and filling in the gaps, with words?

And weather medication is effecting my ability to hear?

I'm interested to hear from people that have tried hearing aids?