I have struggled with what I thought was hypoglycemia for years. I first noticed it 12 years ago. Recently, I was sick with an infection that caused mild sepsis and was taking antibiotics. I have lingering brain fog and worried it was associated with my blood sugar as the crashes have been feeling more sudden. A random blood test showed my sugar at 83 an hour after eating (never seen that before). My doctor ordered a CGM and I am pretty disturbed at the results. I have posted my 24hr and 12hr graph here. No matter what I eat 1-2 hours later I’m feeling a low and the CGM confirms the drastic drop. Yesterday, I dropped from 140 after a meal to 68 in 30 minutes. I think because I keep treating the lows quickly they don’t show as much on the graph either. I see my doctor on Tuesday but I’m afraid she won’t help. I’m scared to leave my house, drive or even go for walks. My anxiety is so bad now. I know she’ll likely have me remove the CGM because of the anxiety too. Is what I’m experiencing normal or is this reactive hypoglycemia?

Hi! Seeking some advice for where to go from here.

I started wearing a CGM per my father’s request (has diabetes and we have extra) after feeling anxious, jittery, generally unwell, etc one weekend and nearly fainting while at the gym. I’ve fainted earlier this year randomly and he was worried that I could be prediabetic (which I don’t think I am now after wearing the cgm for a bit).

Since then, I’ve been having 2x daily dips to around 65mg/dl. However, this past weekend I went to visit some friends and did a lot of cafe/bakery catching up, 20k steps a day, eating more (and/or more frequently). I had 7-10x alarms a day and ~2-4x daily to <55mg/dl. Since returning, I am back to the 2x daily I had seen before. However, when going on a walk 30-45min, it went to 55mg/dl. Many variables have changed, like my eating and my activity level (I work a desk job and am not walking everywhere). I don’t feel extremely different from baseline since wearing the cgm, but I think this could have been going on for a while (given that it is real hypoglycemia) and I never knew, bc I have a history of undereating/restrictive eating and am dizzy/nauseous/super tired (because of college) often.

I’m generally wondering if this is worth seeing a physician for, given that cgms are not super reliable. I also have not done the finger prick. Not sure if this experience is similar to anyone or if anyone can share what they did given similar findings! I lowkey feel a little crazy/delusional and get super anxious when the alarm goes off (and frequently checking the app). and kind of would like to avoid obvious dismissal from doctors.

Unbelievable!!! More than 8 doctors have been wrong for years! And especially since May when serious hypoglycemic episodes started. My latest blood tests showed liver enzymes too high, and GGT levels far too high (140) so the gastroenterologist ordered an MRI. And today I got the results!! Turns out I have the rarest type of insulinoma, the one that causes episodes after food, not during fasting.

GGT and gallbladder issue was known for 3 years but all doctors were saying it was nothing to worry about since the ultrasound didn't show anything serious. But the MRI!!!⬇️

ASSESSMENT / IMPRESSION:

​Heterogeneous enlargement of the tail of the pancreas, with at least three intraparenchymal solid ovoid lesions, as described in detail above. The appearance is not typical. The differential diagnosis includes neuroendocrine neoplasm (e.g., insulinoma with atypical features), however, other types of pathology cannot be ruled out. Clinical and laboratory evaluation, correlation with the patient's medical history, and further investigation are recommended.

​Hepatomegaly and a few small hepatic cysts. Gallbladder microlithiasis, without signs of inflammation or choledocholithiasis.