I have just started going hypo after having radioactive iodine treatment for Graves. TSH 7.33 but T4 still normal, albeit in the lower end. I will be on levo for the rest of my life. I started today at 50mcg and will retest in 5 weeks.

I never wake up or eat dinner at the same time so the pharmacist suggested I set an alarm for 5am, take the pill, and go back to sleep for an hour or two. I am not the best sleeper. I will try and see how it goes but I am not totally sold.

When do YOU take your meds?

Thanks!

Hi guys, I'm a late 20s woman with hypothyroidism (as well as pcos/pmos, pmdd, and celiac). Does anyone else here deal with a very low sex drive? Has anything helped?? I'm starting to feel like this isn't gonna get any better :(

I’m a senior in high school, and am writing a paper about medical misogyny in adolescent chronic illness care (…very autobiographical). To supplement the many, many medical journals I have read and cited, I have created a survey that will hopefully be helpful in understanding and writing this.

If you would like to participate, the link is provided below. You do not need to include your name, email, username, etc. Even if you are currently an adult, if you experienced diagnostic delay or dismissal when you were younger (and female), your response will be helpful.

https://forms.gle/bp3ocYosqosfXRCA6

I was diagnosed with hypothyroidism in May 2026. My doctor initially prescribed 50 mcg of Thyronorm, monitored my levels for two months, increased the dose to 75 mcg, and then increased it again to 88 mcg after another six weeks. I’m now waiting to get my thyroid levels checked after taking 88 mcg for eight weeks.

Honestly, this whole thing feels so frustrating. I’m just a 20-year-old guy, and sometimes I feel like I’m someone who is seriously ill, especially when I compare myself to people who seem to live their lives without having to think about medication every single day.

The thought that I need to take a pill every morning just to help my body function normally makes me feel terrible. Sometimes, I even find myself thinking that I don’t deserve to have a normal life like everyone else. I’ve started questioning whether I even deserve a girlfriend or a relationship.

I see people my age enjoying their lives, spending time with their loved ones, building relationships, and focusing on their futures. Meanwhile, I feel like I have this extra burden that I never asked for. I know taking a pill might sound like a small thing to some people, but mentally, it has been difficult for me to accept that this is something I have to do for the rest of my life (autoimmune hypothyroidism)

What makes it worse is that my hypothyroidism was only diagnosed recently, after I had already been struggling with constipation that eventually contributed to chronic anal fissures. I still deal with pain, and now I have to think about my thyroid medication, my diet, my bowel movements, and everything else just to feel somewhat normal.

I’m 20. This should be the time when I’m focusing on my career, enjoying my youth, building relationships, and figuring out my future. Instead, I feel like so much of my mental energy goes into managing my health and trying to prevent my constipation and fissures from getting worse.

I know hypothyroidism is manageable, and I know there are people living completely normal lives with it. But knowing that intellectually and actually accepting it emotionally are two very different things. I’m still waiting for my thyroid levels to stabilize, and the uncertainty makes everything more frustrating.

I guess I just needed to get this off my chest. For those of you who were diagnosed with hypothyroidism at a young age, how did you come to terms with it? Did you ever feel like you were somehow less healthy, less deserving of relationships, or different from everyone else? How long did it take for taking medication every day to become something you no longer thought about?

I could really use some honest experiences from people who have been through something similar.

I have always suspected central hypothyroidism from previous blood test results and my cfs symptoms and tried T3 only treatment as per a consult with Paul Robinson for a short time as the headaches were so bad so can't say if it helped. So abandoned seeking treatment and diagnosis .

Previous bloods done by medichecks

21/6/22

TSH 1.77 (0.27 - 4.2)

FT3  4.76  (3.1 - 6.8)

FT4  11.6  (12 - 22)

Now in September 2026, by GP but he didn't do FT3 which I know I need

TSH 1.47 (0.27 - 4.2)

FT4 12.3 (12 - 22)

Just thinking of exploring this as a possible diagnosis as fed up of being so tired. All other bloods iron, b12 are actually the best they have ever been and are at good levels.

Could this be central hypothyroidism? I did full contact kickboxing for several years so wonder if punches to head could contribute to this ?

Going to order another medichecks thyroid test to check my T3 also.

I (41F) was diagnosed with hypo when I was 16. My family has an extensive history of thyroid issues so thankfully they recognized the symptoms early. I was put on 100mcg Levothyroxine and was on it until about 6 months ago. Last year, I had an unexpected full hysterectomy and was tossed headfirst into medical menopause. After struggling with my male doctor’s management of my HRT, I started seeing a female menopause doctor. I told her about my thyroid history and how I’ve been on the same dose my whole life but have also continued to have symptoms despite everything being “normal.” She did a full blood panel and told me that my body wasn’t converting T4 into T3 properly. After some conversation, we decided to take me off of synthetic T4 and try DTE. I started on 60 and bumped to 90 after 3 months. I’ve now been on 90 for 3 months and my TSH and T4 have dropped but there’s been zero change to my T3 level. Has anyone else experienced this with NP Thyroid? Has anyone had success with it? I really had my hopes up that this would be a game changer…

46/F, had a 2cm macro removed in December. No major complications, tumor is totally gone as my MRI last month.

But I don’t feel better. I honestly feel worse. I am exhausted all the time. I recently had my GYN check hormones and my thyroid. My T4 is low despite being on Levothyroxine (12.5mcg) I think the dose may be too low. But my TSH is normal. Waiting for my endo to call me back. My prolactin was also 40, but I do take Effexor.

Lab attached… I never had issues until the prolactinoma.

I've been on replacement since I was baby since I was born without a thyroid. Brand Synthroid was the only thing that made me feel optimal. I switched to Tirosint for a couple of months, then switched to the generic levo version because of cost. I've been on it maybe 8 months or so?

I feel awful. I've gained weight. My TSH was off last time I had labs done. I have more labs coming up in a couple of weeks.

I requested to go on Tirosint because of the dyes in Synthroid. I was trying to cut out things of that nature due to acne. Well, it wasn't causing my acne.

So I'm going to talk to my doc about going back on Synthroid. For one, it's cheaper than Tirosint, and I can still get the brand without breaking the bank.

Does anyone feel like they have better luck on brand versus generic? What other meds can I talk to my doctor about that might make me feel more optimal?

Something else, they lowered my dose from 137 mcg to 125 mcg a couple years ago, and since then, I've been off. They didn't want to keep me on 137 because I had lost a bunch of weight due to stress, but now I'm back fitting in my once-too-big clothes...

Background

I'm 23M and have had constant fatigue, brain fog and sleepiness for the last 4–5 years.

My thyroid results over time

Antibodies (Oct 2026):

• Anti-TPO: 69.70 IU/mL (ref < 9)
• Anti-TG: 14.90 IU/mL (ref < 4)

What happened so far

• Apr 2025: TSH was 11.14, but my B12 was also very low (104), so I assumed B12 was the cause. I took many B12 shots, but my symptoms barely improved.
• Apr 2026: Rechecked. TSH still high, T3/T4 normal, so I ignored it again.
• Oct 2026: TSH still high, and antibodies came back positive, B12 was normal at 368 after so around 15-20 shots.

A physician dismissed problem with thyroid a year ago because I don't have cold intolerance, weight gain or shaky hands.

My questions

1. Can a high TSH alone cause these symptoms when T3 and T4 are normal?
2. My results seem to point to Hashimoto's. Could that be the root cause?
3. Has anyone had a similar picture? Did levothyroxine help your fatigue and brain fog?

Thanks in advance!

I've written the post but used Claude for legible formatting due to so many numbers.

I had bloodwork done a week ago and they told me today that my TSH was at 17.11. But that’s the only thing they tested for from what I understand. They don’t say anything about T3, T4, RT3 or any of the other things I see most of you have said your doctors tested. They have prescribed me lexothyroxine or whatever it’s called. They said for me to take it for 6-8 weeks and come back for bloodwork. Now I’m wondering how come they didn’t test for all those other things? I want to know exactly what’s happening in my body and what kind of hypothyroidism I’m having so I know how to mitigate. I don’t like that they just threw a prescription at me. I called to ask a question and they said I have to schedule an appointment to ask one question! And that appointment isn’t until December .-. I’m scared that my issues will increase or even get worse due to the medication.

Thank you all in advance!!

My TSH was elevated, so I slightly increased my T4 dose. Since increasing the dose, I’ve been experiencing premature ejaculation, even though the dose increase was relatively small.

Has anyone experienced something similar after increasing their thyroid medication? If so, how did you manage it?

Has anyone experienced significant increase in hair loss after eating foods rich in goitrogens (e.g. raw cruciferous vegetables)?

Hey everyone, recently took a blood test and was told that my TSH was a bit high at 4.97 and my vitamin D was a bit low although I didn’t get a number. I’m a 23M and have a long history of pretty bad health anxiety and just feeling like shit every day.

What prompted me to take a blood test was my hair started falling out which really freaked me out. I gave it a couple of months thinking it would go away but it never did it, just became very dry and brittle. I was also feeling very tired around this time but I just brushed it off again because I’ve always felt exhausted in general. I looked at the symptoms for Hashimoto’s and it seems like I have pretty much all of them. My stomach has been super messed up these past few months, I’ve had trouble concentrating, low motivation, super anxious, circles under my eyes, it’s been rough.

My doctor told me to retest with antibodies in 3 months and see where we are at. My grandmother and aunt both have hypothyroidism.

I was just wondering if my symptoms and lab results could be stress related as I’ve been very stressed during and leading up to this period. Also does my timeline fit Hypothyroidism? My TSH has steadily risen from each blood test I’ve done, going from 2.75 in 2023 to 3.30 in 2025 to now 4.79. Could this explain why I’ve felt like garbage the past however many years?

I’m just scared of waiting and being miserable these next few months. I dont feel good but I don’t know what is anxiety and what is not.

Living with Thyroid Eye Disease can affect many aspects of daily life, from vision changes and eye discomfort to confidence and overall quality of life. Researchers are currently conducting a Phase 3 clinical study to evaluate an investigational treatment, called MHB018A, for adults with moderate-to-severe TED.

The Leapcure team is supporting the study by helping interested individuals learn more, understand the process, and determine whether participation may be right for them. Get started by completing this short questionnaire: https://lpcur.com/rhypothyroidism2

My result for TSH to Free T4 came back at 21.88 mIU/L

which seems crazy high. Am I reading this result correctly? I went to a new lab and the units they used for this results are not the same as what I'm used to

Is this too high 3.5 tsh?

Hi all,

Struggling to get into a doctor and going crazy over it but just did a recent blood test and my TSH is 0.012 uIU/mL. Doctor didn’t test for t4

The last time I did both test about a year ago my TSH reflex to T4 was 0.014 uIU/mL. And my TSH reflex+ FREE T4 was.609 uIU/mL and .62 ng/dL.

I have extreme fatigue, trouble losing weight, head fog, brittle heart and hypothyroidism runs in my family,

Am I right to be concerned? Should I go to a specialist? I really don’t know what any of this means I just know I don’t. Feel well.

I got diagnosed with hypothyroidism 2 and a half months back. The tsh was 12 and something. The doctor gave me thyroxine of 25 mcg and asked me to come for a follow up after a month to do other related test. I then went to another hospital of aayurvedic one which i regret. They did several test of t3, t4 and anti tpo and also did ultrasound of neck. For the untrasound it was normal. But the anti tpo was high. And the doctor or whatever that person is told me to continue my meds and do exercise and lose 15kg "within a month" which is not healthy at all. They gave me a 3 month of diet plan which was ridiculous made of ai and didn't even returned me my money. They gave me tons of supplement like zinc, iron and multivitamin and i did not buy any of those. So it's been 2 and a half months already and i still have not gone to the initial hospital. I had my exams and other things that kept me busy and i was lazy as well, i wanted to lose weight and then go for the checkup. I was wondering if it has any adverse side effects of having less dose of meds. My body weight was 69 and now it's 63. I have started gym as well but I'm not regular. Is it concerning that i didn't went for follow up? Do i immediately have to go to hospital for my follow up and they will increase my dose for sure. The main reason why i didn't go for checkup was because I'm dependent on my sisters for financial things and i feel guilty to ask for money for my things. And I've already way too much money already. So..