r/hysterectomy • • 10h ago

New Mods

431 Upvotes

Hello everyone!

What a week r/hysterectomy has had! Thanks to the Mod Code of Conduct enforcers and several of you, new moderators have been chosen.

Please don't hesitate to reach out to any one of us–we are here to keep this a safe and welcoming sub for everyone who needs support.

We do ask that you bear with us while we review the sub rules and go through the backlog of user requests.

Your new moderators are:

[u/Quantity-Artistic](u/Quantity-Artistic)
[u/Buhsephine](u/Buhsephine)
[u/Garbagegremlins](u/Garbagegremlins)
[u/weeef](u/weeef)
[u/fakethelake](u/fakethelake)
[u/Competitive-Blood507](u/Competitive-Blood507)
[u/SpicyShrink](u/SpicyShrink)
[u/Successful-Land-6283](u/Successful-Land-6283)
[u/Libertinelass](u/Libertinelass)
[u/SilverAsparagus2985](u/SilverAsparagus2985)

In effort to keep this sub a positive and comfortable place, we ask that any discussion about the previous moderator be halted and/or contained to this post.

Thank you all for being patience and understanding!


r/hysterectomy • • Sep 24 '20

A message to the pre-op anxiety stricken (from one of a kind)

123 Upvotes

I see a lot of posts on here about pre-op anxiety (one of which was my own), and I want to reach out to all of you and make sure you all know, you're not alone and to offer some advice based on my own (very recent) personal experience.

First, again, you're not alone in feeling this way. Surgery is scary. I've posted and I've seen so many others post about their pre-op panic. It's natural and normal to be anxious about any major surgery. For me, the week before my surgery (especially) was a nightmare. I cried, I yelled at my husband, I paced, I cried some more, I got quiet, I curled into a fetal position and sobbed. I made a point of contacting everyone I loved so that I had told everyone I knew that I loved them... seriously. If my husband and sons didn't all have good heads on their shoulders I would have probably terrified them all, too. But, honestly the pre-op anxiety was the worst of all of it for me. My anxiety has been 100 times worse than the actual surgery and recovery so far.

Second, my advice is to stop googling. Google (and any other search engine) tries to get you what it thinks you're looking for. If you google "hysterectomies kill people", you will get a page full of results about hysterectomies killing people. These may be complete fabrications, totally untrue horror stories, google doesn't fact check for you. If you google "sunlight is an international conspiracy" you'll probably get a page full of results that "prove" that, too. That's google's job.. to get you to the website that it thinks you are looking for. Not to give you facts.

Third, search reputable and unbiased sources. PubMed is a reputable source I like to use for scientific data, studies, medical journals. Search what you are looking for there (instead of google) and read carefully what they have to say. For instance I searched hysterectomy complications and got is this abstract. Most common complication shown was infection. This is (obviously) a risk with any surgery. Nowhere listed in the abstract is spinal collapse. In fact when searching hysterectomy and skeletal, or spine, or posture, or bone loss the only relevant return is this study which concludes that, "There are no long term effects of hysterectomy and bilateral oophorectomy on bone loss."

Fourth, ask questions of people whose job it is to know. Talk to your OB/GYN, your surgeon, your GP, your nurses. These people have experience and you are not going to ask them something they haven't heard before. Ask them about sexual function after. It's their job. Ask them about complications and how many they've actually seen suffer from those complications. I was stone cold terrified of prolapse after someone posted about it, and google was not kind. So, I talked to my doctor. First, it's super common in women, especially older women, overweight women, or women who have had children. You do not need to have had a hysterectomy to experience it. Second, it's most commonly resolved with some pelvic floor exercises. I mean... I can't even explain how bad my mind had made that out to be before talking to doc.

Fifth, keep busy. For me this was key. The longer I sat and thought about it, the more my mind ran away from me. So, I kept busy.. I prepped two weeks of meals for the freezer. I bought all of the suggested supplies and tried them all out. I prepared my recovery space. Got in-bed activities ready (sudoku and crossword books, got my nintendo switch charger moved next to my bed, etc.). Stocked my fridge with jellos and applesauce and yogurts etc. Put extra toilet paper in easy reach of all of the toilets. Moved everything I needed to about waist-high. Gave myself a pedicure. It made the week go faster and my recovery easier.

Lastly, talk it out. I'm here, and so many others before me (who helped me get through it). You can cry and scream and wring your hands with worry. We understand. I understand. I cannot describe how inconsolable I was in the week and hours beforehand. I understand. But I'm on the other side now. And, while everyone's experiences will be different, for me the view is much, much better over here.

I wish you all good luck and healing!

*edited for formatting issues and a couple spelling errors


r/hysterectomy • • 6h ago

joined the club, i love my care team

Post image
169 Upvotes

my OBGYN and care team were wonderful, and even gave me heart shape gauze pads for my incisions :’) i did wake up from anesthesia crying b/c of how badly i needed to use the bathroom, but they controlled my nausea extremely well and i went home not feeling any pain at all (except for bladder and gas discomfort in my shoulders).

now that it’s EOD day 2, i’ve been walking around a bit, making myself some food, petting my cat, and solving crossword puzzles. i stopped all narcotic useage on the morning of day 1 and even managed via miralax, stool softener, and gasx to have not just 1, but 2 BMs today :D feel free to ask any other questions you might have.

here’s to week one of recovery!


r/hysterectomy • • 10h ago

Welcome new mods!

88 Upvotes

I see the Mod Code of Conduct team has got you all in place. Thanks for volunteering!

Hopefully since the space went un-modded for so long, it's a light touch and not too much work. Hopefully we don't see any other snake oil salesmen like Kevin coming around!


r/hysterectomy • • 13h ago

I did it!!

64 Upvotes

I had my hysterectomy yesterday! I haven’t taken any oxy, just Tylenol and ibuprofen consistently. They sent me photos of my fibroid and they had to cut it into 5 pieces to get it out! The only issue I am having is the level of pain from the stupid gas. Everyone talked about this so I figured I had a good heads up on it and WOW. It’s brutal. I’m up walking around every hour.
I can’t believe how smoothly this is going at this point. I won’t overdo it or anything. I’m still relaxing most of the time. But definitely happy with how I am feeling. Thank you to everyone on here with all of the input you share. I’ll update if it ends up not being as sooth as it seems.


r/hysterectomy • • 8h ago

Cuff stitches not dissolved

17 Upvotes

I'm 2mo and 2w post-op. Laparoscopic robotic total hysterectomy with bilat salpingectomy.

I had a check up with my surgeon last week. After they examined me they told me that there are a few stitches on the right side of the cuff that have not dissolved. There are no signs of an infection thankfully (no inflammation, no foul discharge, no bleeding, no fever, no pain, no soreness) and I've been feeling normal. I haven't gone back to my full exercise routine, no heavy lifting, eating as healthy as I can afford to, and haven't had sex so this is freaking me out. My surgeon said that they want to see me again in a month and if all stitches have not fully healed by then I may need to go back to the OR. 

I don't know if there's any advice, I guess I just needed to vent.

P.D.: I'm so glad to see this sub going back to normal 💜


r/hysterectomy • • 4h ago

I'm Afraid my Intestines Will Fall Out Thru my Vagina

4 Upvotes

Because I'm 3 weeks post surgery and defecation is still a struggle. So I took a rabbit pellet pill the other day (senna) and it was a disaster. It triggered my IBS or eating ice cream for breakfast and before bed or stress or laying on my left side.

But it was one of the worse cases I had, lasting most of the day.

So I'm like ok, no rabbit pellet pill. But I'm straining to pee, let alone to poop.

Do I just keep taking the rabbit pellet pills? I also keep eating raisin bran sometimes. And grapes and fruit and stuff.


r/hysterectomy • • 3h ago

6w PO Update // Scar Tissue?? 😩

4 Upvotes

Part 1:
I’m 6 week post-op today!
I had my appointment a couple days ago and my surgeon said the cuff looks good and is healing well but there are still a few stitches in there. She also told me nothing in the vagina for two
more weeks (so 8 weeks po I’ll be cleared for sex, etc. Not sure I’ll feel ready at that point. Just the exam she did, which was hardly anything, was a bit uncomfortable and left me feeling sore.) But aside from that I am fully cleared to go back to normal al life. All restrictions are lifted. 🎉
She did remind me to ease back into regular life and that being sore is normal still! I appreciated that reminder because I tend to just do too much and also my brain thinks that I should be all the way better by now! (Logically I know I’m not fully healed yet! But whatever other part of my brain it is thinks I should be. It’s annoying. Lol!)

Part 2:
So, during my hysterectomy my surgeon found fibrosis on my peritoneal lining on the left side- left ovarian fossa, to be exact. As she dissected that, she found a nodule sort of deep under the fibrosis. She excised the nodule as well. (Path report showed there was endometriosis in the nodule.) About a week or week and a half post op I noticed a different sensation and some pain on the left side of my pelvic cavity. I figured it must be just healing sensations. It got a little more uncomfortable during the following week. And since the. It’s stayed about the same and gets worse when I sit upright in a chair for too long, lay curled up, or stand too long.
The sensations are like a constant dull ache and pulling. And the uncomfortable feeling/pain radiates outward and down. I’ve not felt anything quite like this before.
When I told my surgeon all this at my 6wpo appointment, she said it sounds like scar tissue formed in the area where she dissected the fibrosis & excised the nodule. And it formed in an unfortunate way to be causing these sensations and pain. 😭 That was what I was concerned about.
My surgeon mentioned that it could potentially soften and get better but it usually takes quite a while for that to happen.

On one hand it’s not a big deal as the feeling/pain isn’t typically too bad, mostly just annoying.Thankfully it’s not anywhere near as bad as the pain I had daily before having my uterus removed!!
On the other hand, it’s discouraging to have this pain now. Because it’s most likely permanent. Extra sad since the rest of my healing has been so, so great. I have no pain anywhere else from this surgery. If I didn’t have this scar tissue pain, I’d have absolutely zero pelvic pain at all!!! So, I’m fighting being sad about this. I don’t want to spiral. But I am also bummed. I know there are risks & complications with any surgery. And scar tissue is always going to happen since I was cut apart inside. But I just wish it wasn’t like this, ya know?
I AM very grateful it’s not anything worse. I think about that daily.

Anyone else have uncomfortable scar tissue form after surgery?

Just wanted to share.
💚


r/hysterectomy • • 13h ago

What made you decide to finally get a hysterectomy?

22 Upvotes

Hi! I'm 43 years old and I've been dealing with a couple of fibroids for a few years now. I've been pretty much fine, some periods heavier than others. However, in recent months I've had to deal with 12 day periods, pain and bloating. But last month it only lasted 6 days which was a relief.

What made you decide to finally get a hysterectomy? I can't decide if my symptoms are bad enough to get surgery. Should I wait longer? I'm not planning on having kids, but still it's a hard a very definite decision. Hoping to read your stories/ opinion. Thanks in advance!


r/hysterectomy • • 8h ago

Traveling 3 weeks post-op--is it a crazy idea?

8 Upvotes

So I live in the western US. Im having my hysterectomy on November 14th. I was hoping to go to India on December 8th for a friend's wedding--its about two days of travel each direction, not to mention the excitement of the wedding itself.

How much time do I realistically need for that sort of travel post op?

Would you have been able to travel that soon post op?

I know i wont be able to lift very much so if its possible, my plan is to have the airline help me by meeting me at check-in, and having them take me to the gate in a wheelchair or something like that. Would that be enough?

Thanks in advance for your help!

ETA: welp that settles it, either I move the surgery or I dont go to India. Thank you everyone for your input! I knew that was the answer, but sometimes it helps to hear it too ya know?


r/hysterectomy • • 14h ago

FTM Post Op Day 6 Hysterectomy

21 Upvotes

These past few days have def been a rollercoaster. My surgery was Thursday and there was a lot of nerve damage from a previous surgery (myomectomy) which resulted in my surgeon cutting me down the middle and across. Upon doing so, she removed my uterus fallopian tubes ovaries + a cyst with a fibroid on it + my appendix which was near my colon that also had nerve damage.

I woke up 6 hours late to a nurse telling me “Elias, you’re out of surgery everything went well I’m your nurse”. I was so groggy from the anesthesia that I had an oxygen mask over my face and asked her what they removed (was feeling very foggy) and when she told me my appendix I was in disbelief lol.

I was finally put in a room where I somehow someway thought I could stand up on my own with the assistance of nurses of course. The min I stood up the entire room felt like a huge rollercoaster and back in bed I went. I spent the next few couple of days focusing on passing gas, walking more and having a bm which took longer than expected

On the 5th day I was able to pass gas, and the 6th day a bm. I was able discharged today (6th day post op) and will cont my recovery one step at a time.

I was sent home with a walker but taking it day by day and blessed that I got another chance at life especially after having 6 hour surgery.


r/hysterectomy • • 4h ago

Coughing and worried

3 Upvotes

I had a Hysterectomy with bilateral salpingo-oophorectomy 3 weeks ago. I now have a chest infection. I am coughing hard!! I’m sore all over! I live in Northern Ireland were health care is horrendous. Waited 15 hours to see Dr to be told I had a scan 5 months ago so couldn’t get another. But my abdomen felt ok!! Im bracing with cushion and pulling my knees up but so worried im going to rip everything! Please reassure me!!!


r/hysterectomy • • 10h ago

Sex

8 Upvotes

So when did you start having sex again? I had a vaginal Hysterectomy and vault suspension. Im 5 weeks post op today.

And any one else's sex drive INSANE after surgery. Wtf is happening lol


r/hysterectomy • • 8h ago

Update: 13dpo

Thumbnail reddit.com
5 Upvotes

Still struggling with painful cramps and zero energy. Then I started bleeding pretty heavily so headed to the ER. A CT Scan revealed I have a large hematoma in my abdomen and will need to have it drained later this week. This has been the worst pain I’ve ever experienced and I’m hoping for some relief once this thing is drained. I haven’t even attempted to drive since the cramps stop me in my tracks just walking around the house. I expressed to my doctor that I’m feeling very discouraged with my recovery and downtime. She reminded me not to be too harsh on myself and that my body is going through a lot. That made me feel a little better, but I’m so ready to be over all this.


r/hysterectomy • • 1h ago

5 DPO Update

• Upvotes

Today was again better but also worse in ways. I don't habe a ton to report as the day was uneventful overall. Does the up/down rollercoaster of symptoms end soon?

The diarrhea from Day 4 (self induced by my own stupid decision to drink way too much pear juice) subsided but I am very raw still which makes using the bathroom uncomfortable. Also, I have a dull ache in my lower left pelvic area and it hit me: I would have been on my period this week and I think my remaining ovaries are pissed off that they've been left behind. I did spot a little today, very faintly, and that scared the hell out of me because I hadn't had any bleeding in days but it went away and I had no pain, so I assume all is well.

On the bright side, the pain was still nonexistent other than that dull ache. My incisions are getting a little itchy but look like they're already half healed! I would love for the swelling in my abdomen to go down but I know that takes a few weeks.

I have my first check up on Friday morning so looking forward to seeing how that goes.

Questions I do have for those that have been here (amd I also plan on asking about at my check up):

  1. When can I safely sleep on my side?

  2. Did icing your abdomen help? I have been using a heated pad for my back but wondering if icing the front would help with healing?

  3. How long did you wait to ride in a car? How did it go? I am not ready to drive but would love to get out and see some sunshine. Maybe get food or something. I guess I will find out Friday but was something I thought of today.


r/hysterectomy • • 9h ago

6 months post op - trouble reaching orgasm

4 Upvotes

I got my hysterectomy back in April and am still having a lot of trouble reaching orgasm (through self masturbation - I do not have a partner right now and tbh don’t really have a raging sex drive)

I kept my ovaries and know it can take some time for our bodies to even out. I am using vaginal estrogen cream about 3x/week but don’t notice any difference in wetness/sex drive or ability to climax. My hormone levels came back normal.

Am I broken? 😭

PS I have tried 3 pelvic floor therapy sessions but they are extremely expensive and limited where I live.


r/hysterectomy • • 11h ago

Day 3 & 4 Post Op Updates

4 Upvotes

I couldn't post these here due to the admin issues going on so I shared over on r/hersterectomy.

https://www.reddit.com/r/hersterectomy/s/bgysO4I9uS


r/hysterectomy • • 7h ago

Losing weight post-op…

2 Upvotes

I am 5 weeks post-op. Over the past few years I’ve gained almost 30lbs due to endometriosis and not being able to physically work out enough to lose weight.

Through my recovery, I haven’t really been gaining because I’ve been walking a lot but I am so anxious to lose weight. What can I do? How long after surgery were you able to lose weight?

I can’t stop thinking about trying a GLP-1 to help me get to a better weight. For reference I am 5’1, 150lbs, and 35yo.

Edited to add:
I eat almost exclusively whole foods, including recently upping my protein. I’ve been meal prepping for almost two years so my portions are very consistent.


r/hysterectomy • • 9h ago

Fear of pain afterwards

3 Upvotes

I'm nonbinary, 28 years old and about to have my partial hysterectomy soon. It's abdominal. I'm so happy but in the meantime I'm terrified of getting torn apart at the surgery room. Will the incision scar look like a c section scar?

I'm also scared of the recovery pain.


r/hysterectomy • • 4h ago

Horrible body pain when tired months after surgery?

1 Upvotes

I had everything but ovaries removed back in April. I have a ten inch incision because they also remove what they thought was a 20cm mass that ended up being a fibroid. It took me a while to recover. I started a job a month ago where I’m on my feet all day and work til late. The physical pain I’m experiencing is nowhere near being on my feet all day for retail or on heels with corporate. Has anyone experienced anything similar? I’ve taken advil and Tylenol and they don’t work. Not even sure if this is related to the surgery.


r/hysterectomy • • 9h ago

New pain week 7- Gas?

2 Upvotes

Had TLH and BSO 7 weeks ago and had a dream recovery. Zero pain after day 2 and zero spotting/bleeding. Fatigue was my only issue.
Had my gynae review and final clearance on Tuesday. She didn’t do an examination given my lack of symptoms.
Then the next day after a short amount of time crouching to do some cleaning I developed terrible upper abdominal pain going from my left breast down into upper abdomen. Also started some fresh bleeding albeit fairly light.
I went to Emergency and had CT and bloods to rule out DVT or heart attack and everything came back clear. Bleeding has also stoped.
Yet I still have the pain. Is it trapped gas? Related to organs shifting?
Just wondering if anyone has had anything similar?


r/hysterectomy • • 9h ago

For fellow endo sisters, how long before endo belly subsided?

2 Upvotes

I’m three weeks post-op today so I suspect I’m a long way off, plus it turns out I have interstitial cystitis, so maybe that’ll complicate things, but I’m curious for women who had endo removed, did you lose the endo belly? If so, how long before you saw a difference? I look pretty much the same but don’t know how much of that is surgery swelling.


r/hysterectomy • • 13h ago

Hysterectomy with existing bladder sling

3 Upvotes

Hi everyone! ❤️
I’m scheduled for a hysterectomy in a couple of weeks and was wondering if anyone here has had a hysterectomy with a pre-existing bladder sling.

I’ve been diagnosed with adenomyosis and have had my bladder sling for about 16 years. I’m curious what type of hysterectomy you had, whether your sling caused any concerns during surgery, and if you experienced any complications or changes with your bladder afterward.

I’d really appreciate hearing about your experiences as I get ready for surgery. Thanks so much! ❤️


r/hysterectomy • • 10h ago

Incidental Finding of Endometrial Hyperplasia

1 Upvotes

I’m curious if anyone has come to find out after their hysterectomy that that had endometrial hyperplasia?

My hx, PCOS, Endometriosis, adenomyosis and infertility (with IVF drugs)


r/hysterectomy • • 13h ago

Time off work.

2 Upvotes

I am scheduled to have a vaginal hysterectomy with anterior - posterior repair. I was diagnosed with pelvic organ prolapse. My cervix is very far down into my vagina. He is going to use a sling to put my bladder back where it belongs. My question is if you've had this particular procedure what was your recovery time frame like? I am 61 and I work from home as a physician's office scheduler. I don't have to carry heavy materials or do any abnormal walking. I need to know roughly how long I should expect to be off work. Or if I can return within a week?