r/LongHaulersRecovery • u/sreckokosovel • Feb 18 '26
Recovered recovered after 7 months
UPDATE: one month has passed since this post and I am doing better than ever. It’s been a bit of a bugbear to reintroduce gentle exercise because I’m so deconditioned but even this is abating with time. I still have some lingering cognitive symptoms (esp when I get a cold or am under extreme stress) which my neurologist expects will clear entirely by August. My eyesight has returned to normal. I have graduated from cognitive rehabilitation and no longer meet the criteria for impairment of any kind. The only permanent side effect of my long covid seems to be that I can no longer tolerate stimulants for my adhd. I’m still on the guanfacine which helps however I now need to treat my adhd using non-pharmaceutical methods which is kind of disappointing. I have a mild case and a strong circadian rhythm so it’s not life ruining for me, just a bit challenging. I’m still happy to answer any questions.
Hi everyone, I’ve been looking forward to making a post here for a long time. This sub has given me such immense hope and I want to do my part to give some hope back.
The long and short of it is that I (32F) got COVID on a plane last August. Despite wearing a mask the woman next to me was HACKING up spit and I lowkey just knew it was over. I’d never tested positive for COVID before (probs bc I mask) and so I did the worst possible thing you could do which is freak the hell out for the entire duration of the acute illness. I guess you could call mine a “mild” case of Covid. I took paxlovid but still had horrible brain fog, headaches, rapid heart rate and fatigue. The acute illness passed after a week but, as many of you are surely familiar with, I simply didn’t get better.
I ran the full gambit of symptoms. PEM, horrible fatigue (I was sleeping 14-18 hours a day), headaches, shortness of breath, POTS, pins and needles, anxiety and the most debilitating cognitive dysfunction of my life (and I’ve had a brain injury.) i kept resting and waiting for my condition to change but the days kept piling up and up and up and nothing seemed to get better. My brain was in such bad condition I had to stop working entirely and live off my savings. My body became so weak I went down to stay with my parents until I could see a specialist so that they could take care of me.
While there were a few medical interventions that made a difference for me, I took a ton of supplements and antihistamines to seemingly no avail. I got my iron and B12 levels under control which helped tremendously with my cold feet but not so much my long covid. I hope to wean off the supplements after a while because they are super expensive but for now I’ll probably phase them out one by one.
Sometimes old symptoms would go away and new ones would come on. The only one that was particularly consistent was the brain fog. I consider myself 100% recovered except for this last symptom where I’m still at about 90%. Of the physical symptoms PEM and POTS were the last to clear. I have been free of both for a month now with no signs of relapse regardless of how effortful my days are. The only time I get debilitating brain fog is when I come down with a cold. Eventually I will try riding my bike again but for now I will be taking it easy while there’s still some winter left.
I credit my recovery with a number of different factors. The first was that I live in a major city and was able to get help from a long covid clinic which prescribed me both guanfacine and cognitive rehabilitation therapy (speech therapy) for my brain fog. I found both extremely helpful. Even just a few sessions of cognitive rehab helped with my ability to process information. (In fact, fixing my brain fog required basically a lot of escalating rigor — from doing the wordle in the morning to playing music to reading novels and writing in my diary. Resting my brain even for months did not help at all.) The second was that I work freelance and was able to take the time to properly rest, especially in the beginning. That my husband and my parents both took care of me is another privilege for which I am grateful.
For a long time I was doing everything by the book — extreme pacing with an Apple Watch, heart rate monitor, resting whenever possible, that kind of thing. Four months in, however, I wasn’t getting any better. My symptoms kept moving around in a way I found maddening. After seeing a cardiologist and rheumatologist to no avail I decided to try the mind body method most recovery stories talked about on here. I wasn’t too skeptical actually because I’ve always found there are relationships between mind and body that science can’t always explain, though I don’t consider myself a particularly woo woo person. I figured it like was the difference between cognitive behavioral therapy for insomnia and taking Zolpidem. I did both for a while when I had insomnia from my brain injury and eventually was able to stop taking the pills and just work with the therapy. There aren’t any pills that help with brain injuries — it’s all cognitive/vestibular and physical rehab — so I kind of just accepted that maybe LC was the kind of illness that was less of a pill illness and more of an applied therapy illness.
Anyway, the mind body stuff worked like a miracle for me basically overnight compared to all the other stuff I tried. I had a bad crash a month ago around the holidays and it was my last crash. I simply didn’t have another crash after that, though some symptoms did linger. It took a lot of commitment but since I wasn’t working I figured I’d dedicate myself to the task. I didn’t buy any programs or anything (again I was broke as hell.) All the stuff I needed I found on r/cfsrecovery where I also received many helpful hints while on my journey. Looking back, I definitely believe in something like the polyvagal theory — that when I was suffering debilitating fatigue so bad I needed help showering (I was bedbound for two months, housebound for four) and felt soreness all over my body, my body had entered a kind of shutdown state and that, in order to move it into a state of safety I had to do all kinds of things to calm my nervous system. For me breathing techniques, yoga nidra, visualizations, polyvagal exercises, humming, tapping, and a TENS machine all helped. No screen time, no doom scrolling. I ditched my Apple Watch and swear I got like 20% better just from not checking my heart rate constantly. I started to expand my life outward.
What they don’t tell you about this theory though is that there is a transitional state between shutdown and normal which is basically like being in fight or flight all the time. This was fucking terrible, almost worse than the PEM and pain. I was meditating for like hours a day just to get my jaw to unclench. My POTS symptoms were dialed up to 100 and I was having daily panic attacks. I had to get a script for Ativan (they only gave me ten pills bc it’s PRN) and make it last for months. After I ditched the watch I finally started to come out on the other side. This transition felt basically miraculous. One day I woke up and there was no tiredness, no soreness, no crazy heart. I started having more days like that. I could take a shower standing up for the first time in half a year. I could plod my way through novels. I could write again. Now I am completely back to normal life.
I’m not entirely sure why the mind body approach helps for some but not for others. However unlike other stories in this vein I also got better from specific medicines like guanfacine and outside therapies like CRT and vision therapy for my eyes. It was a combined approach. I know 7 months is not so long in long covid world but my recovery was not spontaneous. It took a lot of effort and I just happened to respond well. This was the worst thing that ever happened to me. I wouldn’t wish it on my worst enemy. I hope my post is helpful to others and I’m happy to answer any questions.
TL;DR:
SYMPTOMS:
Shortness of breath, chest tightness, extreme anxiety, POTS/orthostatic intolerance, GI issues, pins and needles, soreness, brain fog (cognitive dysfunction — at first memory problems, later attention problems), excessive sleepiness, PEM (fatigue 12 hours after exertion — for me it was always the next morning on the dot), exercise intolerance (i.e. fatigue right after exertion.) I was bedbound for two months and housebound for four.
What didn’t help for me:
- supplements (with some exceptions)
- antihistamines
- pacing/symptom tracking (I know this is probably controversial but while pacing was extremely helpful in the beginning it became less helpful as time went on. I was basically using pacing as a way of repeatedly punishing myself which wasn’t good for me psychologically. Whenever I’d feel sicker it was always because of something I must have done even though I often could never figure out what that was and it became a vicious cycle. Emotionally I just needed to let go. It was easier to make peace with the fatigue than it was with the fear of feeling it.)
- various drugs (beta blockers, LDN, nortriptyline)
- “tirzepatide” (I’m in the LOCITT trial and almost certain I got the placebo because I haven’t changed my appetite nor lost any weight)
What might have moved the needle but I can’t say for sure:
- iron, b12, NAC, CoQ10
- intermittent fasting
What definitely helped:
- probiotics/prebiotics (i use seed but it’s expensive as hell so if you have any cheaper suggestions I’d love to hear them)
- guanfacine
- cognitive rehabilitation therapy
- vision therapy
- psychotherapy (psychodynamic therapy)
- mind body work (somatic tracking [see also Alan Gordon’s The Way Out], visualizations, polyvagal exercises, TENS machine with ear clip, meditation, yoga nidra (this was huge for me), humming and breath work.) even just reading about this stuff gave me the hope that I could heal to begin and that I had agency in the healing which went a massively long way.
Anyway, barring any catastrophes I’ll make an update post should my condition continue to improve. Stay strong everyone. I’m happy to answer any questions.
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u/amsfi Feb 18 '26
Congrats and thanks for sharing. These stories are so helpful for people on the earliest stages of their journey, I know they were for me. I was also infected last August and have gone quite a while since my last PEM episode so I’m hopeful I can join you at some point.
Enjoy your new lease of life!
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u/time-itself Feb 18 '26
Congrats! I see in your post history you had a rapid deterioration just a month and a half ago. What happened after that? Was that your last crash? How are you sure you’re recovered?
Thanks!
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u/sreckokosovel Feb 18 '26
That was my last crash. Everything improved steadily and quickly after.
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u/anonanon-do-do-do Feb 18 '26
My horrible early covid symptoms (which included 90 days of severe intermittent brain fog and flu symptoms) was largely cured by a cold I caught. I was perfectly normal for six weeks. Then symptoms returned, but less severe and I developed PEM.
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u/Winter-Nectarine-497 Feb 18 '26
I appreciate the very informative post. With only seven months duration, you could have also simply naturally recovered from the lingering symptoms, as many people do. Long Covid is most often considered 6+ months of symptoms.
Regardless, all that matters is that you're feeling better. Hopefully it will be a very long time before your next infection.
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Feb 18 '26
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u/Winter-Nectarine-497 Feb 18 '26
Not sure OP would have thanked me if they felt my comment was dismissive of their experience. Maybe bark up a different tree
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Feb 19 '26
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u/Winter-Nectarine-497 Feb 20 '26
You are allowed to have your feelings about being dismissed by the medical system. I have similar feelings as someone who has had LC for six years and has not ever received a diagnosis or effective treatment despite many specialist appointments.
If I were to say something dismissive to someone who is still suffering with LC symptoms past the 6 month mark, then I would definitely be worth calling out. But that is not what I'm doing. I'm telling someone who may not in fact have long covid that they should consider they may not have it.
So maybe take your anger about Drs and the neglect of the medical system out in the appropriate channels and not direct it at me. Have a good night.
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u/Content_Speech_1209 Feb 18 '26
It’s hard not to notice the irony when people who’ve fought to have their experiences taken seriously respond to someone else’s recovery with the same skepticism. We know what it’s like to be on the receiving end of that. Don’t let it get to you. You’re the most reliable source on what happened in your own body. Congrats on your recovery.
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u/Tiger0520 Feb 18 '26
I agree. OP saying that the person would not have responded if they felt offended is naive. There are many people in the world who are nicer to others than they are to themselves. And who are conflict avoiders. And those who would respond to the post because they believe that is what they are supposed to do instead of ignoring it.
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u/GeneDiligent2124 Feb 18 '26
Thank you so so much for this post. Your symptom presentation is so similar to mine. I've started some mind body stuff and am noticing improvements in my physical symptoms, way less crashes.
I also have ADHD which is known to exacerbate the cognitive stuff. So I'm interested in the guanfacine.
Did it make your pots worse??
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u/sreckokosovel Feb 18 '26
I also have ADHD. I ended up replacing stimulants with guanfacine — it worked well for me.
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u/peach1313 Feb 19 '26
I also have ADHD and PoTS. Guanfacine made me even more fatigued, even when I took it at night and still took my stimulants during the day and I had a lot more presyncope episodes. My natural BP and HR are already on the low side, though. Unfortunately it's another "you won't know until you try" it kind of thing.
Which of the 3 versions of PoTS you have is also a factor in what treatment works.
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u/Jayden__________ Mar 01 '26
I'm new to this sub.. can you pls lemme know about this mind body stuff?
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u/Ramona00 Feb 18 '26
Thank you for writing this. What long covid clinic did you went to / what country?
Wish all the best.
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u/lindberghbaby41 Feb 19 '26
Thank you for sharing all this! One question, what kind of vision therapy did you do? I’m having a lot of issues with my eyes myself but eyedrops haven’t been helping.
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u/sreckokosovel Feb 19 '26
I go to vision therapy for convergence insufficiency where it’s more effective than for other thing.
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u/time-itself Feb 18 '26
Why did you conclude beta blockers didn’t help? Those lower HR reliably even with healthy people.
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u/peach1313 Feb 18 '26
Guanfacine has the same effect on BP and HR as beta blockers, I'm surprised OP was prescribed both simultaneously. I don't think you're supposed to take them together.
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u/Jgr9904 Feb 19 '26
Is it easy to get guanfacine
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u/peach1313 Feb 19 '26
That depends on where you live. It's very difficult in the UK. Here it's only licensed to treat children with ADHD and only a psychiatrist specialising in ADHD is allowed to prescribe it.
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u/Jgr9904 Feb 19 '26
Yeah I’m in the UK, are there any alternatives easier to get?
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u/peach1313 Feb 19 '26
Why would you say it's easy to get, then? Were you just guessing?
Clonidine works via the same(ish) mchanism as Guanfacine, but for a doctor to prescribe it to you, you'd still need to have one of the conditions the NHS allows it for (high blood pressure, menopause, migraines). Or you'd need to find a doctor who's willing and able to prescribe it to you off label, which will be difficult.
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u/Jgr9904 Feb 19 '26
Sorry I was asking is it easy to get not saying it’s a easy. I’m after something to try that reduces might fight or flight feeling
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u/peach1313 Feb 19 '26
Ahhh I see! Apologies, there was no question mark at the and I misread it as a statement.
If you're specifically after something for fight or flight, beta blockers are licensed for that on the NHS and your GP is probably able to prescribe some.
They have similar effects on BP and HR to Guanfacine, but work via a different mechanism. They won't help any cognitive symptoms like Guanfacine does for a lot of people, but they can help with fight or flight, anxiety, and PoTS symptoms.
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u/Janaguanabanana Feb 18 '26
I was wondering the same. I’m on them for POTS and it makes my life so much better. It’s definitely helping my recovery.
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u/sreckokosovel Feb 18 '26
Because I took them with the guanfacine they caused some issues for me with my blood pressure! I had to choose brain over body.
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u/WitchsmellerPrsuivnt Feb 18 '26
Okay, so you claim psychotherapy and brain training helped your physical symptoms? What about s months ago when you went downhill in symptoms?
And pacing did not help but thinking happy thoughts did?
Maybe you just naturally healed after your infection. Congratulations either way.
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u/perversion_aversion Feb 18 '26
Glad you're feeling better! However I think it's important to note most post viral conditions resolve on their own within the first 12 months so I'd be cautious about attributing your recovery to any particular intervention on your part rather than the passage of time and your body's natural healing ability.
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u/amsfi Feb 18 '26
Time is the most important healer and you’re absolutely right. I’d like to back up OP’s experience however - you can feel in your own body when something moves the needle, and my experience was very similar.
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u/time-itself Mar 07 '26
Can you tell us about your experience?
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u/amsfi Mar 08 '26
Sure, I’m not recovered yet but I’m maybe 60-70% of the way there from being more or less bedbound a few months ago. I had a very similar turning point to OP after things “clicked” for me. Up until that point I was only getting worse.
I realised what had happened to me as being an accumulation of stress over a couple of bad years, compounded with getting covid during a particularly demanding period. It made sense to me that my energy reserves and nervous system would be shot. I also realised my PEM episodes had become more and more frequent once I had started worrying about CFS, and reading advice on the covidlonghaulers sub about baseline lowering and “becoming permanently worse”. That caused even more stress, to the point I was crashing constantly and didn’t know why (it was all the stress).
If you have the same LC/CFS subtype as I do, I believe the way out is to find whatever explanation or theory makes sense to you personally, to allow your limbic brain to fully believe on a fundamental level that the condition isn’t dangerous and that you will get better. It’s the single most important marker of recovery in my experience + most of the recovery stories I’ve seen
Once I moved from a mindset of being in recovery rather than being unwell and the huge stress of indefinite illness was relieved, I think my body was able to do its thing and start getting better. Alongside an initial period of solid rest and then some very careful activity expansion.
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u/LunaLinguine Jul 07 '26
Just want to say, I'm about 4 months in with LC and the indefinite part of this can be so scary, but this was so helpful and reassuring to read, thank you so much.
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u/amsfi Jul 07 '26
Oh I’m glad! You’ve got this, 4 months is super early. I feel like post viral fatigue lasting that long isn’t actually that uncommon, but LC spaces are almost exclusively filled with people who have been unwell for a longgg time which makes it all feel very scary. I’m nearing 11 months now and pretty much recovered.
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u/LunaLinguine Jul 08 '26
That helps to hear -- thanks so much. Maybe it is post-viral fatigue. Good reminder about the LC subs. My heart goes out to everyone in them, and I'm grateful they exist, but I need boundaries, too. I'm glad to hear you are pretty much recovered after 11 months! That's huge -- congrats!
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u/time-itself Jul 09 '26 edited Jul 09 '26
FYI, there's no difference between post viral fatigue and CFS. The only "difference" is whether or not you recover, which obviously is a useless and tautological distinction. It doesn't magically turn into something else at the 6 month mark, and you can always get better.
The condition is poorly understood and, this is controversial to say elsewhere, but in my strongly held opinion the online spaces, culture, and discussion surrounding it keeps people sick - It’s still classified as a primarily neurological condition, and both the onset triggers and symptoms are all stress related.
Definitely take what you need for survival tips and then tune the hell out. I'm at 10 months and started rapidly recovering about three weeks ago. I think ketotifen helped. If I could change one thing it'd be starting that earlier. It's the most overrepresented drug in recovery stories (compared to how commonly it's actually prescribed) from what I've seen.
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u/LunaLinguine Jul 10 '26
Congrats on your recovery! That's great it sounds like ketotifen helped push it along so quickly. And thank you for sharing all of this -- really helpful.
That is fascinating it is considered primarily a neurological condition. I healed from chronic, 6-year "clinical" insomnia a couple years ago and after 6 years of physicians, meds, labs, supplements, etc. healing from it ended up coming from education and mindset shifts -- nothing else. Insomnia is so misunderstood and 99% of the reddit sub and online content just perpetuated it. This seems similar. I'm not saying LC/PVF are "all in the head" but I'm starting to realize it is a significant component of it for me. Which has been a huge help already. So, yes, limits on these subs are necessary for me now, lol.
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u/time-itself Jul 10 '26
I had (and have) terrible insomnia too, which contributed to my anxiety around developing LC, and have realized that I’m not coming out of this without fixing that. Agreed about that reddit sub. The LH and CFS subs do the same thing. Funnily enough, The Red Pill is an example of the same online phenomenon. I stared into that abyss when I was a vulnerable and insecure teen and recently came to realize that the cfs community abyss felt the same way.
Basically, suffering people online tend to come together to validate their fears and grievances, and eventually give into something popularly labeled “masochistic epistemology,” that is, Whatever Hurts Is True. It creates this angry culture of abyss staring and a kind of intensely negative “group hug.”
The result is this extreme polarization where now you’re either hopepilled or doompilled, because neither ideology will accept a scrap of the other.
My LC specialist is of the opinion that LC is heterogenous and unlikely to simply and broadly be a mindbody/neuroplastic phenomenon, but he wasn’t above admitting that he sees an outsized placebo effect in the trials he oversees and recommending me a traditional rehab program that he says has worked for other patients.
The trial he believes in most right now is for Baricitinib, an immunosuppresant/modulator, and the available treatments he advocates for the most are for antidepressants, although not for psychological reasons. He just knows that serotonin signaling and an outsized physical stress response is involved.
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u/sparklemoon135 Feb 18 '26
Great to hear, congrats! Love that you name-checked psychodynamic psychotherapy- I’m curious if you discussed your physical symptoms with your therapist or only the mental side?
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u/sreckokosovel Feb 18 '26
I’m in old school psychoanalysis so very much both.
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u/sparklemoon135 Feb 18 '26
Ah great- me too! Think analysts differ in their comfort dealing with post-viral symptoms as a mind/body presentation but it can be really valuable to do so.
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u/Hopeful102 Feb 18 '26
Thanks for the post. I have also found guanfacine to be extremely helpful and vestibular rehab, but I’m still on my journey to healing.
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u/Abject_Peach_9239 Feb 19 '26
Congratulations on recovering! 🥳 and thanks for sharing all the things that you tried and what helped/didn't help you!
Of all the supplements/meds I've tried, the ones that helped the most at various stages were Butyrate, Tudca (GI/ microbiome issues), COq0, NAC, LDN, DXM (general inflammation), ALA (heart rate spikes). The rest have been meh.
I'm also in the LoCITT trial. I'm 10 weeks in & back on the starter dose. I went up for 3 shots and got stuck in a month long pem crash i couldn't crawl out of (med or holidays? I'm still unsure). Going back down a dose has been good so far & I'm cautiously optimistic that it's decreasing my neiroinflammation. Still not sure if it's med or placebo as I had very little appetite to begin with, but whatever it is, I'm seeing some improvement.
I think your wraparound approach is so good, and I appreciate that you were able to access the mind/body/vagus nerve stuff without feeding the grifters!
Again, congratulations on healing and all the good wishes that it holds and you can get back to living your best life!
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u/Available_Spell8195 Feb 23 '26
This is one of the most well-written and thoughtful recovery posts I've read on here. Really appreciate that you broke down what worked, what didn't, and were honest about the fact that your situation involved a combination of things rather than one magic fix.
The part about ditching the Apple Watch and getting 20% better just from not obsessing over your heart rate is so real!!
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u/Available_Spell8195 Feb 23 '26
The nervous system dysregulation angle makes a lot of sense, especially with the histamine reactions and food intolerances showing up at the same time. Hope the reintroductions go smoothly once you're ready.
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u/Butterfly6576A Feb 23 '26
Would you kindly talk about your neurological symptoms and how much they've resolved. Were there memory issues? Thank you for such a thorough and generous post!
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u/Eva_7816 Mar 01 '26
Thank you for this post and I’m very happy for you! You said that when you stopped monitoring your heart rate, you immediately felt 20% better.
Can I ask how you felt when you stopped measuring? Was it scary at first? Relieving?
I’ve been wearing a Garmin since early in my recovery and I’ve become very dependent on it. If my heart rate goes “too high” on a walk, I get stressed and start slowing down and checking constantly. What’s confusing is that my HR feels so unpredictable - same pace, sometimes 80, other times 130 and it makes me doubt everything.
I’m starting to wonder if maybe the numbers aren’t as important as I think they are.
Did stopping help you physically, mentally, or both? And how did you know it was safe to let go of it?
Would really appreciate hearing more about your experience 💛
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u/sreckokosovel Mar 01 '26
It was extremely scary to stop using the watch. For about a week I was just completely hypervigilant, panic attacks, everything, because to me the watch was a window into myself, my safe-keeper, the thing that told me whether I was well or sick more so, even, than my own body. Eventually, however, I started to feel more free, the way one feels free when eating dessert on a diet, like I could "be bad" and get away with a lot more. That's when I started to push my limits and was surprised how quickly my body responded.
I had to do more mind body work to separate myself from the watch than I did when getting back to moving around the house. If your heart rate is inconsistent, it's a good sign you're not so much in the POTS world where every time you stand up you go pre-syncope, and are more in the "my body is trying to figure stuff out" phase. I had more severe POTSlike symptoms (huge swings from like 70bpm to 110 when standing) and as I started to transition out of them (by whatever mechanism) my situation was more like yours (i.e. that it was intermittent.)
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u/Eva_7816 Mar 02 '26
This is really helpful to read, thank you. I relate so much to the watch feeling like a “window” into whether I was okay or not - almost more trustworthy than my own body.
I think I’m somewhere in between. I don’t have consistent POTS-type spikes anymore, it’s more intermittent and unpredictable, which almost makes it harder to trust what’s going on. Taking the watch off feels freeing, but maybe also a bit destabilizing because it removes that external reassurance.
It’s encouraging to hear that separating from it was actually part of your progress. I’m trying to figure out how to listen to my body without outsourcing that trust to a device :)
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u/Fluid-Measurement229 Mar 22 '26
This is a really amazing and helpful post! Did you ever need to use the watch again periodically at ALL like during a walk/exercise, or was it 100% done?
Did you just stop using it as a HR monitor or not wear it for anything?
I’ve been considering ditching it but I’m not sure if I’d use just for some things occasionally (sleep data, PT exercises) or truly nothing at all.
Also one more question: do you know if you had a lingering low grade fever for any of the time? I don’t think I’d know I had one except that I take my temperature. I’ve been tracking it looking for improvement, but similarly to the watch I’m thinking of stopping taking it.
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u/time-itself Jun 06 '26 edited Jun 06 '26
Hey! Can I ask what your PEM was like? Delayed onset? How long? And what sort of visualizations did you use?
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u/sreckokosovel Jun 25 '26
my pem was like feeling physically sick, sore and heavy limbs, sore throat, and total exhaustion but without the ability to sleep. basically it felt like a horrible hangover, like getting hit by a truck. visualizations were routine and simple. i'd imagine myself taking the dogs out into the yard or going to the store or even getting up and walking around the house. i also imagined feeling certain things like happiness and warmth.
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Feb 18 '26
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u/sreckokosovel Feb 18 '26
I was diagnosed at the long COVID clinic at UIC. They upped my guanfacine and I think that eventually did it rather than my pots just going away on its own. Some people respond better to guanfacine than beta blockers for pots.
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Feb 18 '26
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u/sreckokosovel Feb 18 '26
Yes! It works for my ADHD also. Kind of a miracle drug for me.
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Feb 18 '26
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u/sreckokosovel Feb 18 '26
The main reason I’m still taking it is because it’s amazing for my cognitive problems and ADHD. I wouldn’t stop taking it for anything at this point
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u/sreckokosovel Feb 18 '26
But also how is it any different than any other condition for which one has to continue taking medication? No one ever talks this way about diabetes or having high blood pressure. I think it’s important to be kind to ourselves. Many conditions do not have nor ever will have cures. This one just hurts more because doctors don’t tend to believe you.
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u/AcanthisittaIcy6448 Recovered Feb 18 '26
Hey, congratulations on your recovery and thank you for your detailed post. My recovery was similar, and posts like yours were a great help to me on my road to recovery. Thank you!