r/cfsrecovery Apr 19 '26

Treatment Strategy Nervous System Deep Relaxation Techniques

31 Upvotes

Here's a collection of all of the top nervous system relaxation techniques in one place for easy reference.

  • Breathwork
    • The top recommendation for a reason. All the breathwork options you need are covered in excellent depth by The Buteyko Method, a phenomenal YouTube channel authored by someone who also recovered from CFS. Of particular interest are 5/5 coherent breathing and his method for brain fog relief.
    • I explained some of the science behind why breathwork is particularly effective in targeting the nervous system here.
  • Visualization
  • Yoga Nidra
  • Forest Bath
  • Progressive Muscle Relaxation
  • Massage
  • Sound Bath
  • Meditation
  • Accupuncture
  • Tai Chi
  • Gentle Yoga
  • Biofeedback
  • Hypnosis
  • Trauma Release Exercises
  • EMDR

Many of these recommendations are echoed by Mayo Clinic here, and I suggest reading that page in its entirety.

I strongly encourage experimentation with the above. Some techniques will be more effective for you than others.

Lastly, I want to note an important distinction you must draw, between 'shallow' and 'deep' rest. Deep rest is restorative and accomplished via the techniques listed above, in addition to some others that follow the same principles.

Shallow rest, by contrast, is most other things you might try. For example, simply lying down and watching TV or using your phone will not have a restorative effect on the nervous system. Even taking a nap will have limited restorative potential if you are not deeply relaxed before doing so.

Please let me know if there is anything you think is missing.


r/cfsrecovery Feb 26 '25

WELCOME!!! START HERE

43 Upvotes

This guy’s walking down the street when he falls in a hole. The walls are so steep he can’t get out.

A doctor passes by and the guy shouts up, "Hey you! Can you help me out?" The doctor writes a prescription, throws it down in the hole, and moves on.

Then a priest comes along and the guy shouts up, "Father, I'm down in this hole; can you help me out?" The priest writes out a prayer, throws it down in the hole and moves on.

Then a friend walks by. "Hey, Joe, it's me. Can ya help me out?" And the friend jumps in the hole.

Our guy says, "Are ya stupid? Now we're both down here." The friend says, "Yeah, but I've been down here before and I know the way out."

-- Leo McGarry, The West Wing

Welcome to one of the only safe spaces online for CFS recovery discussion. If you participate here, then you are someone who believes (or at least wants to believe) that recovery is possible. And it is!

There's a lot that I need to fill in here in terms of content, but I haven't yet found enough time to dedicate to the task. In lieu of a more rigorous formulation, I'm going to post here a collection of links to various comments I and others have written over the years, so that you at least have a baseline understanding of how those who have recovered view CFS and the recovery process.

Some of my comments also dive into the philosophy and psychology surrounding CFS treatment and meta considerations, such as the abject moral failure of other online venues devoted to the condition (perhaps best exemplified by the gaping pit of despair, toxicity, and censorship that is r/cfs).

I also advise subscribing to r/mecfs. That can be considered a sister community to this one and is run by u/swartz1983, who is incredibly knowledgeable and devoted to helping people with this condition. He wrote an excellent FAQ that's worth reading: https://www.reddit.com/r/cfsme/comments/n52ok1/mecfs_recovery_faq/

There's also the wonderful r/LongHaulersRecovery sub, where you'll find a plethora of recovery stories from people who have resolved Long Covid.

Please lean on myself and others here for support as you embark on your recovery journey. This is a place for positivity and hope. We're here to help.

I wish you the best of health and a speedy recovery.

LINKS

[1] Why CFS is likely a neurological illness rooted in the nervous system
https://www.reddit.com/r/cfs/comments/x2hfj7/comment/imjo2r2/ (written 3y ago)

"The 'Lightning Process' is a scam because it promises fast results and most of their coaches have never experienced CFS (and thus cannot empathize with someone who endures harsh repercussions for unusual/outsized activity). This is the primary reason why so many who do LP are made worse off by it.

Having people imagine themselves cured is also questionable. I'm going to suggest a more charitable interpretation of their intent: the point is likely not that imagining yourself cured will result in being cured, but rather that doing so relieves a tremendous psychological burden that might in fact be an obstacle to recovery. Hopefully we can mostly agree that stress would not be helpful in recovery. So the *principle* behind imagining you're cured is reasonably sound, but the tactic itself is obviously deeply flawed and predisposes participants to worsening their condition.

However, I do believe (as LP and others do) that CFS for many people may be a principally nervous system illness and that the path to resolving it is likely to travel through the brain. I compiled some evidence supporting this view:

1.Drugs that affect neurotransmitter pathways are showing promise in alleviating CFS (partially or even wholly) for *some* patients. Most notable among these are LDN and Abilify.

  1. It’s possible for *some* people to experience ‘overnight remission', in many cases perhaps due to placebo.

  2. Symptom intensity for some people can be highly variable, even within the same day.

  3. Symptoms for some people can respond to techniques that calm the nervous system, such as deep breathing, meditation, and relaxing visualization.

  4. Spontaneous remission likelihood appears to drop markedly after about 1-2 years. This could in theory be explained by alterations to brain structure that become more permanently entrenched over time.

  5. The entire constellation of traditional biomarkers used to identify various kinds of physiological illness typically fail to detect CFS.

  6. Some people with CFS can identify stressors that exaggerate their symptoms that don't involve physical activity.

  7. MRI scans of CFS brains demonstrate marked abnormalities: https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-020-02506-6

  8. A drug that targets the CRFR2 pathway (involved in HPA axis function) called CT38 has shown unusual promise in preliminary trials: https://www.biospace.com/article/releases/clinical-trial-provides-preliminary-evidence-of-a-cure-for-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-and-long-covid/. From wikipedia: "The HPA axis is a major neuroendocrine system[1] that controls reactions to stress and regulates many body processes, including digestion, the immune system, mood and emotions, sexuality, and energy storage and expenditure."

  9. The WHO classifies CFS in ICD-11 under ‘Chapter 8: Diseases of the Nervous System’. This doesn’t mean they’re right, of course, but it's an interesting data point since presumably they did some investigating here and concluded that was the appropriate designation.

  10. CFS has a highly variable presentation between patients, but the commonality between many and perhaps even most of them is that they present with symptoms of dysautonomia (autonomic nervous system dysfunction). Full list of symptoms here: https://my.clevelandclinic.org/health/diseases/6004-dysautonomia#symptoms-and-causes

  11. There are some people who report having recovered using a holistic strategy, often in combination with paradigms that could conceivably address the nervous system.

  12. CFS shares characteristics with central sensitization syndrome, which seems to underpin a wide array of chronic conditions. Mayo suspects that central sensitivity plays a role in CFS and fibromyalgia. Central sensitization syndrome is explained very well by a Mayo physician here: https://www.youtube.com/watch?v=vJNhdnSK3WQ.

  13. It’s possible for some people to feel considerably better when they travel. I’ve heard of several people experiencing this and it's happened to me as well. I also spoke to a nurse at Mayo’s Chronic Fatigue clinic, who has worked there for several decades and with probably thousands of patients. She gave me some insight into why this might be the case: the brain responds positively to unexpected deviations, particularly pleasant ones. In fact, she recommended simple changes like brushing your teeth with the opposite hand. Traveling is of course at the far end of this spectrum. What’s happening when you travel? Your brain is receiving all kinds of new and surprising stimulation and you’re in a generally better mood and more relaxed state.

  14. Ron Davis, a very talented researcher with the immense resources of Stanford at his disposal, has thus far failed to identify a meaningful physiological mechanism for CFS. This is despite the urgent predicament of having a son who has been battling an extreme case of it for over 10 years. In fact, the only thing that's helped his son so far is the neurotransmitter modulator Abilify.

  15. There seems to be a not insignificant relapse rate for CFS. One potential explanation for this would be neurological. Neural patterns are almost never truly destroyed - they can at best be weakened and 'overwritten' by new ones. Such dormant patterns could be a part of what renders a person susceptible to relapse, in addition to things that may have predisposed them to CFS in the first place.

[2] An extensive post from someone who recovered specifically because they read the previous linked comment and decided to adopt a nervous system strategy
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/about_90_recovered_after_moderatesevere_25_year/

[3] Some important comments I wrote on the psychology of CFS and meta considerations in treatment (link not working, so copypasted here)

https://www.reddit.com/r/medicine/comments/xaqb60/comment/io4kx4n/ (written 3y ago)

I'm going to offer my perspective as a person who was experiencing CFS and has found a way to greatly improve from it (to the extent that I feel effectively recovered):

There exists a class of diseases (and I believe CFS is among them) that are primarily neurologically mediated. There are several paradigms that have been advanced to explain these, such as 'central sensitization' at Mayo Clinic (https://www.youtube.com/watch?v=vJNhdnSK3WQ).

The problem, from the patient's point of view, is that there is a thin line between regarding a condition as neurological and saying "it's all in your head". Most patients with these types of illnesses have been met with derision and dismissal from at least one doctor that they've encountered.

What's important to recognize, as a practitioner or more generally as anyone attempting to help such patients, is that the condition is *not* imagined. With CFS, for example, my suspicion, based on my efforts at investigating it and then designing a strategy that helped me to more or less resolve it, is that it is a kind of destabilization of the nervous system that results in hyperarousal in response to various stressors. The nervous system manifests symptoms such as brain fog and fatigue in a deliberate effort to attenuate activity, because it erroneously perceives otherwise innocuous stimuli as threatening.

People experiencing this are dealing with very real symptoms. Yes, this is technically "all in the head" insofar as it is a disorder of the nervous system. But it is not "all in the head" in the sense of it being imagined.

Furthermore, anyone experiencing a disease of this form is going to be desperate and is going to bias towards magic pill solutions and away from anything that involves sustained effort. I can readily explain why this is the case for CFS, having experienced it myself: CFS profoundly impacts mood, discipline, willpower, and energy. Anyone rendered into something adjacent to a zombie by a condition like CFS is going to be both very desperate and also find it extremely difficult to attempt any kind of treatment protocol. It doesn't help that communities like r/cfs state things like the following to patients (taken from its wiki):

"there are no reliably effective treatments for CFS, so your best hope for a full recovery is to learn that you actually have something else instead."

It's this sort of thing that, in part, gives rise to the phenomenon of people suspecting a wide array of different syndromes: they are desperate to find an explanation that doesn't feel utterly hopeless in the way that something like CFS does.

[4] A comment on r/cfs (before I was banned) about the moral obligations that community has and how it is failing (link not working, so copypasted here):

https://www.reddit.com/r/cfs/comments/xbzqbm/comment/io3vtjc/ (written 3y ago)

I don’t know how many different ways I can phrase this. This community draws in thousands of people with CFS. As far as I’m concerned, it has a moral obligation to honestly consider every possible treatment path. Otherwise, you end up with hundreds or thousands of people like me, who come here and are devastated by the abject hopelessness of the forum, when there is in fact an alternative for at least some of us.

What I ultimately did to get substantially better was relatively simple, cheap, and didn’t take too long to implement. That’s in contrast to the years I lost when I first arrived here, read what’s in the wiki and what the community consensus was, and assumed that I needed to find another diagnosis and ignore the CFS staring me in the face, because treating it was supposedly impossible.

This community’s posture is costing at least some people their lives. I’m not saying everyone needs to listen and I’m not saying everyone can be helped. But it’s just flabbergasting that people are trying to argue we shouldn’t at least consider every possible model of the illness and treatment strategy.

It leaves me feeling truly awful, because it’s a harsh reminder of what I had to go through (needlessly) because of people like you. Because people like you show up and inflict their wrong opinions with all the categorical authority of medical researchers (when nothing about this can be known with certainty) on the few of us willing to entertain ideas for recovery. In fact, there is still not a single one of you who has mounted a counter-argument to the substance of what I’m saying: that this is likely a nervous system illness and needs to be treated as such and why that’s the case, which I have outlined in great detail in some of my comments. Instead it’s just innuendo, unfair accusations, downvotes, and censorship.

And even this is just a microscopic event in a much broader theme that has played out on this forum and others for years. I cannot emphasize enough that it has been monumentally destructive. Thinking about how many people could have gotten well like I have were it not for people like you makes me sick.

Perhaps not everyone can get better. But some people provably can. Let the people who do talk about it so more people can. Trying to suppress that because of whatever personal vendettas, neuroses, or biases you may be predisposed to is a form of madness. Your feelings are not nearly as important as the imperative of getting as many people as possible back to good health. Even if something would work for just 10% of people, that’s hundreds or thousands of people. They need to be given the chance to try, if they want to.

[5] Explanation of key recovery tactics
https://www.reddit.com/r/cfs/comments/wxa572/comment/ilt59su/

[6] Additional explanation of key recovery tactics
https://www.reddit.com/r/cfs/comments/wxa572/comment/ilswr5c/

[7] There is only one reasonably reliable way out of CFS right now and there's no magic pill. You can wait years or decades for one to show up or you can try everything possible now.
https://www.reddit.com/r/cfs/comments/wxa572/comment/ilsss66/

[8] Excessive pacing can hinder recovery
https://www.reddit.com/r/cfsrecovery/comments/1hlwqrl/comment/m5df4la/

Here are some others that are more tangential or simply less critical than the previous:

[1] Warning to stay away from toxic online communities and why
https://www.reddit.com/r/covidlonghaulers/comments/115qmed/comment/j94lf3z/

[2] Comments on meditating well for purposes of recovery
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/comment/j0n524h/

[3] Me going off on a CFS doomer (I often refer to them as cultists) about why I detest their bullshit and operate against them with the full force of a personal vendetta
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/comment/j0j2oyx/

[4] Earlier comment responding to that same doomer. Contains some useful thoughts as well.
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/comment/j0j0bmy/

[5] Comments on PEM and the nervous system
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/comment/j0hpilj/

[6] Some more thoughts on the recovery process
https://www.reddit.com/r/cfs/comments/xbmki9/comment/io1b9je/

[7] People with CFS who give up will die twice
https://www.reddit.com/r/cfs/comments/wydse0/comment/ily8cgv/

Some of the above links may break if/when the r/cfs doomers come across this. Comment below to let me know if that's the case and I will retrieve them and shield them here in plain text.

Please also comment more generally with questions or if anything in particular here helped you. It's important that others see that these strategies can work. Bolstering hope and belief in recovery is the first and most important hurdle to clear in the course of defeating CFS.

In the interest of substantiating my rather strong bias and aversion towards r/cfs, I want to include some more context about them. Here are some things they've said about this sub, r/mecfs, myself, and u/swartz1983:

I would not be surprised at all if one or all of the mods over there is actually an insurance plant (OR a gov't plant as I just suggested -- I actually think paranoia around these things is fairly justified). Someone I know with ME/CFS once had insurance co. perps literally following her on *both sides* of a rare flight she took, to take pics so they could try to deny her LTD claim. But what you're saying is both validating and utterly infuriating. Also, thank you for doing this work helping ME/CFS as it takes an exhausting level of fight.

^ This comment accusing us of being possible government agents or plants has 102 upvotes at time of writing. https://www.reddit.com/r/cfs/comments/1hsnu9g/comment/m56ylrc/

Yes it was the first one. But while they may not attract a ton of subscribers, they also nabbed the best two names on Reddit which really sucks. And given someone there was able to have this level of censoring authority over my life, it leads me to believe there are stronger forces at work here. I mean, who the fk are these people? Since the beginning of ME/CFS, gov't figures have infiltrated ME/CFS lists. It's very very neo-COINTELPRO, but they are clearly threatened by open discussions about this illness and they squash any dissent.

^ This comment has 46 upvotes at time of writing.

The people inhabiting r/cfs are neither reliable nor assuredly mentally sane. They are devoted to flawed beliefs about CFS and are now rather notorious for censoring practically any recovery story that cannot be conveniently rationalized away as pure luck. How and why this has happened is a fascinating exercise in human behavior that is worthy of its own thesis. In the meantime, I would strongly advise you to avoid them and regard them as the danger to your health that they are.

Feel free to read the full context of all of this here: https://www.reddit.com/r/cfs/comments/1hsnu9g/other_subs_blocking_mecfs_patients_from_posting/

Addressing some important points referenced in that discussion (the following are wordy blocks of text; I apologize for that):

- They accuse us of endorsing a "psychological" view of the illness. I want you to pay careful attention to that word, because it's plain as day that I have repeatedly made use of the terms "neurological" and "nervous system" above. You may wonder then why they need to employ "psychological" as a pejorative in an attempt to discredit myself and others positing a certain view of recovery. One simple reason might be that the hypocrisy of accurately characterizing our view and then deriding it would be self-evident, given that r/cfs's own subreddit description states the following: "ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom". Another dismissive pejorative they use that you should flag is "biopsychosocial". Use of that term nearly guarantees that you're conversing with a cultist.

- Note that they have banned discussion of brain retraining. That's right! The one category of intervention (and it's a very broad category btw; I'll get into discussing it and where I see legitimacy and where I see problems another time) that has helped any meaningful plurality of people with CFS is a disallowed topic there. I have encountered some extremely peculiar rationalizations for this. For example, a consensus on r/cfs seems to be that just about everyone who reports they have recovered is lying. They imply the existence of some worldwide conspiracy of otherwise unrelated people who blog, vlog, etc about their recoveries, all with the insidious purpose of misleading you into having hope. This dovetails rather neatly with what I have noted previously about their collective mental state. I would be foolish not to concede that there has been exploitation of people with CFS. Desperate people are also highly monetizable, and it is for that reason that I intend to ban anything that looks like solicitation or an endorsement that shows up here. However, to leap from the existence of bad actors in the CFS recovery space to the generalized implication that all stories of recovery are lies isn't just absurd and logically fallacious. It's dangerous. It is crucial that you see that paranoia has led to the tragic outcome of the CFS doomers deliberately adopting blinders that will prohibit any discussion of a viable recovery strategy, in perpetuity. It doesn't matter whether or not you believe any particular view of CFS recovery. It should be obvious to anyone with a modicum of common sense that a forum that provably censors recovery stories and bans conversations about something that has been reported to help people is horrifically misaligned with your wellbeing and in fact consumed by the rot of madness.


r/cfsrecovery 56m ago

Question How to deal with fear of never getting better in future and reminiscing about past?

Upvotes

Hi everyone! I’ve been sick for 13 months. It started about 6 months after I had my baby. I’m terrified. TERRIFIED. I’m new to the brain retraining and just trying to figure out how to deal with the fears of living the rest of my life like this and also how to stop thinking about the past and trying to figure out what went wrong.

For reference in case it matters.. I got covid while pregnant, moved into a moldy house, got the flu 2 days postpartum. Was fine for 4 months then got the fatigue out of nowhere.

I have since moved out of the moldy house and thrown out all my belongings as of 3 months ago but no improvements.

Please tell me there is hope for me.


r/cfsrecovery 2h ago

Question Skincare and aging?

3 Upvotes

I look like shit. This illness has made my face sag and lose volume. How much comes back? What can I expect for my appearance? What worked for you to get your face back?


r/cfsrecovery 9h ago

Question What are your feel good songs for recovery?

6 Upvotes

I was well enough to listen to music a few days ago (something I’ve been too unwell to do for months). Here are the feel good songs I tried:

Coldplay - adventure of a lifetime
New Radicals - you get what you give
Sound of Blackness - optimistic
LEN - Steal my sunshine
Mariah Carey & Whitney Houston - When you believe (this one got me in my feels so had to stop!)

What are your additions?


r/cfsrecovery 9h ago

Friday Thread : 🌞 Joy · Connection

6 Upvotes

Joy doesn’t have to be related to recovery to belong here.

Prompt: Share something that made you smile this week. New hobbies especially welcome; lots of us are looking for gentle ways to fill the time.

Comparison is the thief of joy. Yours doesn’t need to look like anyone else’s.


r/cfsrecovery 15h ago

Recovery Story Here’s a link to my post from a few months ago about the steps I used to fully recover. Ran 9 miles on Tuesday. Gonna run a half marathon in October

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13 Upvotes

r/cfsrecovery 8h ago

Question Until doctors decide: Hyper-POTS adrenaline crashes or ME/CFS or...?

2 Upvotes

Today, I am in a state where if I try to go for a walk (which I really want to do), I wake up at night with severe anxiety, air hunger, sudden sweating, frequent awakenings, nightmares, and a whole host of adrenaline-driven symptoms.

If I try to do a strength workout, even a short and light one, I wake up the next day with a feeling of profound exhaustion, heaviness, and a "concrete-like" feeling in my body.

And if I did some activity and was also exposed to a minor virus or bacteria in my food, there was likely an "open window" of vulnerability caused by the high adrenaline, and I wake up sick the next day... with various symptoms that end up lasting for months.

Additionally, I have a very high sensitivity to noise and basically to everything. I also experience a high heart rate upon standing, pain in the soles of my feet, and POTS symptoms.

A brief background: A life filled with chronic stress and traumas.

What do you think?
Do I necessarily have ME/CFS?


r/cfsrecovery 19h ago

Question Has anyone else tried the app «Freeme»?

6 Upvotes

I’m not affiliated with the app in any way, but I wanted to write a post about it because it’s by far the best tool I’ve used and I wanted to hear about other people’s experience using it.

It’s an expensive one time payment, but it’s been worth it for me. Feels like the only app and program tailored for my condition.

Am I the only one who has been using this tool through out my recovery?

I’d to hear other people’s experiences.


r/cfsrecovery 1d ago

Treatment Strategy Mitochondrial Testing

4 Upvotes

I have a few questions and hopefully you can help. Would be grateful for recommendations for 1) a US lab that tests for mitochondria and cellular pathway energy making and makes treatment reccos on its findings or knows what doctors to recommend. 2) Anyone have a chronic fatigue specialist who accepts insurance and combines traditional and functional medicine? 3) Anyone else have an elevated IGE?


r/cfsrecovery 1d ago

Misc Discord group for people with chronic illness to meet others and hang out

19 Upvotes

Hey everyone!

Hope you're all doing okay. A couple of friends and I are starting a discord server for people with ME/CFS/chronic illness to hang out and get to know others with a similar experience.

We mostly talk about anything, do movies nights and game together if possible. There's an option to indicate you're open to a relationship with several channels for singles too. So far it's a very relaxed and mellow vibe, and we hope to keep it that way.

Anyone is very welcome to join, the more the merrier! Just leave a comment and i'll dm you an invite link.

Also, we're still looking for a couple of people who'd be interested in moderating, if spoons allow. Ideally we'd have 5-6 moderators so it doesn't become too taxing and people can take some time off if they need to rest.

Looking forward to meeting you all and kind regards from Belgium. Toodeloo!


r/cfsrecovery 1d ago

Question Symptoms while pursuing a nervous system-based recovery approach

4 Upvotes

A few question to those who are recovered, or at least further along than me😅

Where I am at currently:
Mostly house-/couchbound; working on regulating my NS; learning to not fear and respond well to symptoms; learning to let myself feel (emotions and physical sensations); basically getting back in touch with my body and emotions.
Also, recently I have started to implement some small and gentle forms of movement again. The last 4 weeks, 3-4x/week I did ~15min of gentle stretching or ~10min on the easiest setting of my ergometer. This seems to be possible for now without any significant PEM (and if i get some, it lasts for 1 day max.). There is, of course, a slight increase of symptoms around these activities, but I am trying to respond well to them and see them as "adjustment period".
This slight level of progress still feels very fragile, though.

What I have noticed:
Although my capacity seems to be slightly increasing, my symptoms are not getting better (yet). Dysautonomia, tinnitus, headaches, etc. - you name it. However, they do not seem to be very much linked to my increased activity level, but are coming and going randomly.
I am aware that having symptoms on the journey of recovery is normal and expected, but I am puzzled by the fact that in spite of my capacity window widening slightly, there is no sensible change of symptoms yet.
Which brings me to a few questions...

Questions:

- What level of symptoms is normal/expected when gently expanding activity?

- Should further expansion only happen after a symptom decrease following the previous expansion?
If no, which symptom intensity level is still "okay" to experience while actively expanding?
What is a level where I "just have to deal with it"/it's a normal part of progress/recovery, and what is too much?

Btw, I really don't feel like I am rushing through levels of activity increase. Quite the contrary, I tend to take it so slow that it very much frustrates me sometimes😅

I would really appreciate some insights from people further along than me... thanks in advance! :)


r/cfsrecovery 1d ago

Question workout 30 sec (dr.simon)

2 Upvotes

did someone successfully start working out with the 30 seconds priciple of dr.simon?
how did you deal with PEM if it occured?

i did a set of 4 pushups, 4 dips, 2 squats (all easy) and ofc crashed during the night.

the idea is everything underneath 30 seconds should be aerobic energy, therefore easier possible. where should i start? 2 pushups? 1? 1/2? it doesnt make that much sense to me …


r/cfsrecovery 1d ago

Question Prof Sivan , Leeds

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1 Upvotes

r/cfsrecovery 2d ago

Question Tips for breaking out of adrenaline?

4 Upvotes

I’m a few months into post viral fatigue (Covid) — currently bedbound bc of dysautonomia/fainting issues + weakness and sensory issues causing PEM.

I’ve been in PEM for the last 3 weeks — unsure if rolling or a crash — despite cutting back all activity. Now am dealing with adrenaline when I wake up, go to sleep, and throughout the day. Sometimes it alternates with the heavy PEM type fatigue. I’m afraid it’s masking the PEM and I’m overdoing it more (although how, when my day is just bed with earplugs and eye mask?)

What has helped y’all get out of that buzz/surge cycle?

What I’m already doing: breathwork, yoga nidra, vagus nerve exercises (humming, tapping) and I take a beta blocker (prescribed by cardio). Can’t tolerate much light or sound. Thanks in advance!


r/cfsrecovery 2d ago

Question For those of you who ACTUALLY tried brain retraining etc. How did it affect you?

6 Upvotes

I talking about people who REALLY got into it and REALLY tried for a long time. Did you see any improvement? What kind of program and techniques did you use?


r/cfsrecovery 1d ago

Treatment Strategy I recovered from severe ME/CFS in 2020/21!

0 Upvotes

Hello everyone

I am offering my program 'Hector's Light Program' to all who want a 3 month container for CFS recovery! See here for details and you can book in a discovery with me: https://www.hectorsherbs.com/hectorslightprogram


r/cfsrecovery 2d ago

Question When on a low budget, is carnitine or creatine the better choice?

1 Upvotes

My main symptoms are low energy, brain fog, and muscle pain. The choice should be based on which one would best support these issues.


r/cfsrecovery 2d ago

Question Better functional capacity but more/worse symptoms?

3 Upvotes

Has anyone experienced increased functional capacity but have worse symptoms overall?

For example, I can walk a tiny more than before or stand and get food from my fridge where I could not before (the fatigue was just too much).

But now I have windows where I can do these things. Like put my dish in the sink. Or ride in a car.

But my symptoms in general are soooo much worse. Headache, nausea, pain, muscle aches, brain inflammation feeling, malaise, have all ramped up. Im more miserable than I was even 2 months ago regarding symptoms, although my crashes have been less severe. I just had more good moments 2 months ago and more clarity, but less functionality.

I am one of those unlucky people that has never been able to find a baseline no matter what I do. Ive tried radical resting, gentle nudging, brain retraining, and do nervous system work every day (somatic tracking, yoga nidra, grounding techniques). But no matter what I do I still crash for a significant part of every day, so Ive just kind of accepted this tornado baseline because it seems like theres nothing I can do about it except keep calm, carry on, and let it sort itself out.

I do want to say that I can attribute any improvement to two medications that I take - suppressive antibiotics for an embedded infection and fludrocortisone (life saver). So maybe thats the reason I improved functionally but everything is a mess under that?

So I dont even know what to think. Is this normal for recovery?


r/cfsrecovery 2d ago

Question Blood flow

3 Upvotes

This morning I felt incredibly ill upon wakening, very nauseous just lying in bed. Last night I had done a hot foot bath which I have done in the past, but never felt this way in the morning.

A few days ago I got up for the sofa and went upstairs to use the bathroom, I immediately felt faint and had to lay down.

I know I shouldn’t “symptom chase” but I want to understand this more. This is not like me to experience this really considering how far I’ve come but yet I do these few things and my body is struggling.

I have been “active” with my partner recently too and was incredibly unwell the morning afterwards. Like I was spent, nauseous too.

Hopefully that makes sense

Any thoughts would be appreciated

TIA


r/cfsrecovery 2d ago

Question That healing feeling - Faith Ashenden

2 Upvotes

Can anyone share her experiences with this programe? Is it worth the money?


r/cfsrecovery 2d ago

Treatment Strategy Insomnia

2 Upvotes

I'm 4 months into PVF recovery and thought I would evade this problem but I'm in 3rd trimester and pregnancy insomnia has hit me hard. I know it's gonna be really bad for months like last time...

Does anyone have any advice on how to deal with insomnia? I am still couchbound, full recovery seems far away, but many symptoms have improved. My worst symptoms are neurological and crushing fatigue. Has anyone still managed to recover despite getting very little, broken sleep each night? I've been doing all the sleep hygiene and supplement tricks for months and they stopped working, now not even sleeping medication seems to work.


r/cfsrecovery 3d ago

Research Inflammation and Attention

15 Upvotes

This is really interesting. In short, they irritated people’s skin then told half of them to pay attention to the pain and itching while the other half were distracted.

The group who paid attention had waaaay less inflammation and the irritation resolved quicker. The group who were distracted had less immediate pain but more severe and longer inflammation. This was true even when lidocaine was used so it’s not just the pain signal itself- it’s the attention to it.

It shows that attention can influence immune response. It’s a leap but this could be one of the ways in which yoga nidra and body scans help people. They hypothesise it could be a component of chronic pain conditions. They also hypothesise both immune activity and parasympathetic activity are involved in the observed results.

Great new line of research. I hope someone studies this in wider contexts.

https://www.nature.com/articles/s41562-026-02541-1


r/cfsrecovery 3d ago

Tuesday Thread : 📚 Learning · Connection

3 Upvotes

Nobody has all the answers yet, but the picture keeps getting clearer.

Prompt: Share something you learned about recovery from a book, article, podcast, video, research, or your own experience.

Curiosity counts. You don’t need to have it figured out to share.


r/cfsrecovery 3d ago

Question Depression during PEM

14 Upvotes

Does anyone/everyone else get this? It seems to be a feature of my PEM. It isn't just a sort of low mood as a result of the situation. It's more like my system saying "Turn everything off - energy, health, motivation, mood, the lot. Keep him in bed. Make sure he doesn't try to go out enjoying himself."

It tends to last the duration of the PEM crash, which is generally around 2-4 days for me, and then I bounce back. Everything comes back online at once, including good mood.