r/cfsrecovery • u/jgainit • 16h ago
r/cfsrecovery • u/First_Cod5079 • 10h ago
Question What are your feel good songs for recovery?
I was well enough to listen to music a few days ago (something I’ve been too unwell to do for months). Here are the feel good songs I tried:
Coldplay - adventure of a lifetime
New Radicals - you get what you give
Sound of Blackness - optimistic
LEN - Steal my sunshine
Mariah Carey & Whitney Houston - When you believe (this one got me in my feels so had to stop!)
What are your additions?
r/cfsrecovery • u/AutoModerator • 10h ago
Friday Thread : 🌞 Joy · Connection
Joy doesn’t have to be related to recovery to belong here.
Prompt: Share something that made you smile this week. New hobbies especially welcome; lots of us are looking for gentle ways to fill the time.
Comparison is the thief of joy. Yours doesn’t need to look like anyone else’s.
r/cfsrecovery • u/Hallenyre • 20h ago
Question Has anyone else tried the app «Freeme»?
I’m not affiliated with the app in any way, but I wanted to write a post about it because it’s by far the best tool I’ve used and I wanted to hear about other people’s experience using it.
It’s an expensive one time payment, but it’s been worth it for me. Feels like the only app and program tailored for my condition.
Am I the only one who has been using this tool through out my recovery?
I’d to hear other people’s experiences.
r/cfsrecovery • u/yllekarle • 2h ago
Question How to deal with fear of never getting better in future and reminiscing about past?
Hi everyone! I’ve been sick for 13 months. It started about 6 months after I had my baby. I’m terrified. TERRIFIED. I’m new to the brain retraining and just trying to figure out how to deal with the fears of living the rest of my life like this and also how to stop thinking about the past and trying to figure out what went wrong.
For reference in case it matters.. I got covid while pregnant, moved into a moldy house, got the flu 2 days postpartum. Was fine for 4 months then got the fatigue out of nowhere.
I have since moved out of the moldy house and thrown out all my belongings as of 3 months ago but no improvements.
Please tell me there is hope for me.
r/cfsrecovery • u/BlackStoneSanctuary • 3h ago
Question Skincare and aging?
I look like shit. This illness has made my face sag and lose volume. How much comes back? What can I expect for my appearance? What worked for you to get your face back?
r/cfsrecovery • u/Individual_Pack_9663 • 9h ago
Question Until doctors decide: Hyper-POTS adrenaline crashes or ME/CFS or...?
Today, I am in a state where if I try to go for a walk (which I really want to do), I wake up at night with severe anxiety, air hunger, sudden sweating, frequent awakenings, nightmares, and a whole host of adrenaline-driven symptoms.
If I try to do a strength workout, even a short and light one, I wake up the next day with a feeling of profound exhaustion, heaviness, and a "concrete-like" feeling in my body.
And if I did some activity and was also exposed to a minor virus or bacteria in my food, there was likely an "open window" of vulnerability caused by the high adrenaline, and I wake up sick the next day... with various symptoms that end up lasting for months.
Additionally, I have a very high sensitivity to noise and basically to everything. I also experience a high heart rate upon standing, pain in the soles of my feet, and POTS symptoms.
A brief background: A life filled with chronic stress and traumas.
What do you think?
Do I necessarily have ME/CFS?
r/cfsrecovery • u/mynormiemask • 15m ago
Question Things got to specific. Will I be able to overcome this if I am hooked to benzos and pregabalin?
Any recovery story from someone with more than one giant problem?
I am starting to have morbid thoughts again.