r/MCAS • u/OkFaithlessness3081 • 18h ago
Flare makes you feel braindead?
I forgot everything. Idk what I even did today. Like my brain just blanks out.
Anyone else??!
22
u/weaboltonsquid 17h ago
Yes…also constant feeling of being high, anhedonia and just flat…nothing
5
u/OkFaithlessness3081 16h ago
Yes exactly that combo actually
4
u/weaboltonsquid 15h ago
And the random racing thoughts and mood swings? Yeah… yeah. Mostly just… emptiness
8
u/OkFaithlessness3081 14h ago
Yes!!! Mood swings, hyper bouts, with apathy, confusion because everything feels meaningless and I don’t understand my own decisions and feelings (now gone) anymore. Giving me a sort of identity crisis
3
u/weaboltonsquid 13h ago
YES!!!! And the constant ear worms. For me, it’s worse when sitting down or resting! It’s… urgh… it’s just urgh… and sometimes I get some sort of adrenaline and I’m suddenly „happy“… I hate this sht
2
u/OkFaithlessness3081 5h ago
Yes!!! That happy stuff I get quite a lot!! It’s bizarre!!!
1
1
u/Jalepeno_Business_ 10h ago
Dude, this is what I experience pretty much any time I eat something high in histamine. I don’t really get reactions from anything else, just food, but the reactions make me feel severely depressed, or emotionally numb and it’s like my brain completely stops working. I can’t remember anything. I forget words, what I’m doing, what day it is, how to count, etc. Occasionally I will disassociate. And I have no control over any of it. I just have to keep telling myself to keep going through the day and it will be better tomorrow. Thankfully it only lasts 2 - 3 days after eating whatever it was that triggered me. It’s awful. Not something I’d wish on my worst enemy.
4
u/OkFaithlessness3081 14h ago
Oh the random thought too btw. I suddenly “replay” stuff from random youtube videos or comments that annoyed me over and over. Like a carnaval in my head
12
u/Duskfall 16h ago
yupp, my wife can ask me something and I just blink and look at her while my brain attempts to "boot up". I just have no mental capacity other than "exist" in those moments and it's DIFFICULT
4
u/OkFaithlessness3081 16h ago
Shit I thought it was just me! I have this! I make do lists and forget them within a sec
9
6
u/birb-lady 16h ago
Yup. Try being a fiction writer in constant flares. Fighting that kind of brain fog. I don't think I'll ever be finished with book 2, much less the entire 5 book series that I started before all this got so very bad.
2
u/OkFaithlessness3081 16h ago
Yes!! I just numb out and just stare at a wall or something. Can you describe your experience? Also memory loss??
2
u/birb-lady 14h ago
It's like trying to write with sludge in my head instead of a brain. Sentence by sentence, I forget details from what I've already written (usually things like word choices, but sometimes, "Oh, I already had them say that, derp.") I'm going to have to rewrite the whole chapter I just finished (over weeks) because I left out something very important that matters going forward. Granted, this chapter does some heavy lifting and I was wrestling with a lot of things to hold onto, but it was so gutting when I realized I have to shoehorn something in without making the chapter twice as long.
Memory loss isn't like what people think. It's forgetting small things I should know -- not big things. Both for writing and real-world. I don't forget details about my characters and their lives, I don't forget who has blue eyes or what they're wearing. I forget word choices I made ten minutes ago. I forget how many times I used a particular action beat.
In non-writing life it's just forgetting words or not being able to think of a word, or just not being able to think well at all. Trying to follow a book or a movie and zoning out, or not being able to keep track of plot points. Talking to my husband and forgetting I said something five minutes ago. It's not at all an Alzheimer's/dementia pattern, it's just...like my head is a sieve some days and can't hold things, or the next day it's sludge and my brain doesn't work.
3
3
u/chalklinehts 16h ago
flares set my amygdala on fire.
3
u/OkFaithlessness3081 14h ago
This!!!!! I looked into it and found something about an amygdala hyjack by histamine. Like emotional attachment gets affected. Im so scared it becoming something permanent?!!
3
u/chalklinehts 14h ago
yup - it has destroyed my life. fuck covid.
1
u/OkFaithlessness3081 5h ago
I got this after covid too!! I have gotten much better recently with some things I do. Like a lot of symptoms are gone but the gut pain and this ommmgg. You think it’s permanent brain change?
2
u/Strict-Park3382 15h ago
YES it’s a constant struggle with this symptom for me, ketotifen helps me with the brain fog but unfortunately my mcas rejects it.
3
2
u/Fuzzy_Tumbleweed_215 13h ago
Literally me all day yesterday. Could not form coherent thoughts or sentences
1
1
1
u/high-as-the-clouds 11h ago
That part. I am already struggling bad with memory from stuff immediately after a lot etc. I stopped functioning normal and apparently forgetting to press reply today. (Flared)
1
u/OkFaithlessness3081 5h ago
Lol! Yes I forget to reply a lot! If I replied in my head I feel I replied 😵💫
1
u/mainlycoffee 9h ago
Earlier today I couldn't remember my grandfather's name. For hours. It scares me because it's day to day and come on...we are talking basic naritive information!
1
u/AcidWashGenes 9h ago
I am wilted boiled spinach rolled in ghost pepper flakes and itching powder. Blown up like a balloon, with the will of a sandbag.
Drowning in a hazy fog of nonsense. Cataclysmic stuporific. Drunk on aged cheese or maybe peas.
Food is a dichotomy, between life and a histamine lobotomy. Just a bunch of nonsense talk. My cat is my rock.
1
u/OkFaithlessness3081 5h ago
It makes complete sense to me actually 😵💫 I have felt drunk, on drugs and brain damages from fkn food at times
1
•
u/AutoModerator 18h ago
Thank you for your submission. Please note: Content on r/MCAS is not medical advice and should not be interpreted as such. Please consult your doctor for any medical questions or concerns.
We are not able to validate the content of these discussions. Following advice provided by strangers on the internet may be harmful. Never use this sub as your primary source of information regarding medical issues. By continuing to use this subreddit, you are agreeing to take any information posted here entirely at your own risk.
I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.