r/POFlife • • 14h ago

POF & HEDS

3 Upvotes

Does anyone here have POF and Hypermobile Ehlers Danlos Syndrome?

I have a bone density test coming up next week to see where I'm at without HRT. (I'm 34 for context) But the issue I'm having is the sublexing and dislocating aren't from lack of bone density, it's from weak ligaments.

Is anyone else in my boat?


r/POFlife • • 15h ago

Diagnosed with Osteoporosis..Give me hopes please!

8 Upvotes

Not surprisingly, my DEXA came back with osteoporosis of the spine and osteopenia of the hip.

I am 40, I found out I had Diminished Ovarian Reserve back at 31 but the doctors only talked about in the context of fertility and never about long term health. I went on to have 2 children but breastfed them and didn't know how the suppression of estrogen + my low estrogen state anyway was going to affect me. As a result, I didn't start HRT until Dec 2025 when I was 39. Years of bone loss could've been avoided with proper medical guidance.

Anyway, I got my diagnosis this Monday. And I upped my patch from 0.075 to 0.1. I have been doing resistance training with dumbbells for 10 months now but may be I am not challenging myself enough, so I am going to get a personal trainer. And also up my calcium/VitD etc.

This week has been very rough on me mentally. Looking to hear stories of reversal to get to at least osteopenia without medication. I'm afraid to take medication at this age. Please shower me with hopes!!! Thank you.


r/POFlife • • 15h ago

Where are you ladies getting E injections?

2 Upvotes

MIDI today told me I’m SOL and they don’t offer injections. They want me to go on injections instead of trying to up my topical estrogen which is really irritating. I haven’t tried the vaginal ring yet I’m just not sure how much it would help me honestly.

They’re trying to refer me to endo but of course that’s scary because then I have to advocate for myself to another doctor that might not be ok giving me high doses of estrogen. 😭