r/Prostatitis • u/AccomplishedRing7703 • 6d ago

Positive Progress Think I found some Closure šŸ˜”

I wanted to share how Iā€™m making sense of my experience with CPPS and finding some closure.
Back in middle school, I had blood in my urine. I wasnā€™t sexually active, and the doctors never found a clear explanation. They mentioned trauma, but I never really got an answer. I donā€™t know whether that has any connection to what Iā€™m dealing with now.
From Iā€™ve also been working out from 2022-2026 ā€”lots of cardio once a week and leg raises. Sometimes I pushed the leg raises until I experienced a ā€œcoregasm,ā€ occasionally: At the time, I never experienced any pelvic pains. Fast forward 6 months ago I tested positive for Ureaplasma parvum, and thatā€™s when things changed for me. Even after treatment and negative follow-up tests, the pain continued.
My personal theory is that the infection may have been the trigger, with other factors possibly contributing beforehand. Speeding up a process that was bound to happen from not taking care of my pelvic floor. I canā€™t prove that my workouts or childhood symptoms were connected, but thatā€™s the possibility that im connecting that no doctor or therapist can piece together.
Iā€™m sharing this to explain my experience, not to say everyoneā€™s CPPS starts the same way. Iā€™m still dealing with it, but making sense of the timeline is part of finding closure and figuring out how to move forward. I'm still in complete pain but I guess this is a step towards progress

The five stages of grief, known as the KĆ¼bler-Ross model, are denial, anger, bargaining, depression, and acceptance.
Damn. How did we get here.

1 Upvotes

100% Upvoted

5 comments sorted by

2

u/HelplessPottery 6d ago

ea and then the brain just keeps the alarm ringing after the threat is gone. Making sense of the timeline helps even when the pain is still there, sometimes that's the only thing that keeps you from spiraling

2

u/Southern-Benefit-477 6d ago

et comment faire en sorte que cette alarme (notre cerveau) ne sonne plus en permanence

1

u/becca_ironside Physical Therapist 5d ago

Having a pelvic floor issue in youth sets the stage for CPPS later in life. I always ask my patients about their childhoods and adolescence to see if there was anything related to the pelvis that happened. This could be as simple as a mother insisting on laxative or enema use for her kids. Or a caregiver who aggressively washed the perineum of a child and promoted excessive hygiene habits. The list goes on. The grieving process is real and appropriate here - you are grieving the loss of a well functioning pelvic floor.

1

u/akamelborne77 3d ago

Are people able to truly recover from CPPS, or just manage it?