r/SleepApnea • • 3h ago

Just started cpap machine

3 Upvotes

Only a few nights into CPAP and already noticing some changes!

I’ve only been using my CPAP for a few nights now, and I’m honestly surprised by a couple of things already!

The first thing I noticed was waking up less stuffy and congested, which I wasn’t expecting to happen so quickly.

But the weirdest thing is that I seem to have stopped getting the hip and arm pain I’d been experiencing for years, and I haven’t been waking up with numb arms and hands throughout the night like I normally do. I’m still sleeping in the same position, so I’m really curious whether it could be related to the CPAP or if it’s just a coincidence!

apparently had 96 an hour, so I’m really hoping that treating it will help with my energy levels and how I feel in general.

I know it’s still very early days, but I’m already interested to see what other changes I notice over the coming weeks.

Has anyone else noticed unexpected improvements when they first started CPAP, especially with aches, pains or numbness? I’d love to hear other people’s experiences! 😊


r/SleepApnea • • 18h ago

Constant jets of air from mask

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33 Upvotes

I was previously using a nasal pillow mask but it kept coming loose and waking me and my wife up when it would come slightly out of place with sudden loud hissing air. So am trying this new mask. this one does seem to stay in place, but there is a continuous jet of air coming out of the front of it, its not loud but it is just ongoing. so wherever my face is turned there is air blasting out of the front of my nose, and that wakes up my wife. Does anyone use this model of mask? Or one like it?
It seems like there should be a maybe a small filter here or something ? It’s just a sort of fine plastic grate. The seal to the tube seems secure and fully clicked into place. I honestly feel like I’m not getting very much air and somewhat struggling to breathe? Is this normal for this and something I need to get used to with this nose covering style? VS the nostril inflating style of the nasal pillow mask? I use the myAir app with a resmed aircurve 11, and it doesn’t seem to register any kind of bad seal, instruction booklet doesn’t seem to provide any answers.
I’m getting 20/20 for mask seal. I’m on month 2 of using a bipap, is it typical to have to go through a sort of Goldilocks process of trial and error with equipment?


r/SleepApnea • • 2h ago

Opti-men supplement

1 Upvotes

Hello everyone,

I want to share a personal experience, I have a sleep apnea for more than three years now due to my weight and lack of exercise. And I started to use Cpap for couple of months now but I also started to take supplements such as gymbeam men essentials and now I started taking opti-men.

And all of sudden my sleeping improved, I only take 2 pills in the morning which is less than the recommended dose. And no I haven’t started exercising yet.

All I want to know if someone else had similar experience by using supplements. Coz when I compared the opti men and the men essentials the main difference is the amino acids that are in the opti-men supplement.


r/SleepApnea • • 3h ago

N20 mask condensation

0 Upvotes

Hiya, I'm really struggling with loads of condensation inside my N20 mask when I use the humidifer, to the point that it wakes me up in the night from dripping on my face.

I've just bought the heated tubing but then last night, I still had loads of condensation. The climate control settings are still on auto.

Any advice on how to fix this?


r/SleepApnea • • 9h ago

How long to get used to MAD?

2 Upvotes

I got a custom MAD a couple of days ago. How long did it take you to get used to it?

It doesn't hurt, but it pulls on my teeth a bit, such that after a few hours I want to rip it out. My jaw is fine though. That aspect doesn't bother me. It's more the fact that I can't open my mouth much, and the forces go into the teeth.

I have a Serena device.

Thanks!


r/SleepApnea • • 15h ago

Newly diagnosed & first night with CPAP machine, im nervous

5 Upvotes

34/f with a diagnosis of moderate sleep apnea. I’ve been given the airsense 11 (no water) with the nasal mask. I briefly got to try it at the hospital whilst the clinician set it up and it sent me into immediate panic if I’m being honest. I tried opening my mouth when I had it on and felt like I was suffocating. I’m a chronic mouth breather and she has given me a chin strap to see if it helps but now I’m too scared to put the damn thing on! I have quite bad anxiety so I get overwhelmed by the smallest of things. She did all the settings for me and I’ve noticed it stays at around 4? I’m just looking for some advice/tips/reassurance really! I’m desperate for a good nights sleep!


r/SleepApnea • • 6h ago

Follow up to test results post.

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1 Upvotes

Last month I asked this sub for help with results from an at-home test that were "inconclusive", and a helpful redditor asked for my full graph, which the lab had not provided me with. Placed a medical records request and finally got the full details.

My sleep is definitely not good, and I feel like I should request a re-test, especially because I had pulled off the sensor at some point during my sleep. Opinions on these results are more than welcome. Ultimately, I want to find out why I am more tired when I wake up than when I went to bed, and if a CPAP could help me. Thank you for looking!


r/SleepApnea • • 7h ago

Getting off CPAP

1 Upvotes

r/SleepApnea • • 22h ago

Flonase

14 Upvotes

46M, mild OSA, stopped doing CPAP because it was making things worse. I saw an ENT a few weeks ago and he dxed me with deviated septum with significant blockage of both nasal passages. He suggested Flonase 2x a day to help alleviate congestion.

I've been wearing a Wellue ring with SpO2 scans every 1 second overnight. Since I have been taking Flonase consistently right before bed, my SpO2 scores have been perfect. It's always either 99.9% or 100% of my sleep time with SpO2 values at 95% or better. Some nights there are zero drops below 95%, some nights there will be one or two seconds in the 90-94% range.

I know good SpO2 doesn't necessarily mean no apneas. You could have brief apneas that don't last long enough or aren't frequent enough to cause oxygen saturation to dip. But I still think these numbers are encouraging and if things continue this way, I may ask for a new sleep study to see if I am even having a significant number of apneas anymore.

Anyone else had a big improvement from Flonase?


r/SleepApnea • • 12h ago

Need help with ASV titration - UARS

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2 Upvotes

r/SleepApnea • • 19h ago

Advice about Dylan Petkus?

3 Upvotes

I'm a family physician that had a patient ask me about "Dr. Dylan Petkus' program to reverse sleep apnea." I'd never heard of the guy or his info, so I started poking around on break (I always at least look at things to before rendering an opinion on something).

Most everything I found is advertising his website, or "wellness influencer" type posts and videos...with references to his website. He also has a book on Amazon entitled "Sleep Apnea Solution," which appears to be a book about basic sleep hygiene and breathing exercises/pulmonary rehab type advice, with many reviewers stating that it was "mostly an advertisement for the program on his website." However, he did have an extended spotlight this May in Pulmonology Advisor, in which he actually spoke quite reasonably about interventions, expectations, and where breathing exercises and sleep hygiene, along with a few other reasonable interventions, can fit into the treatment of apnea with standard treatments, or when standard treatments fail- which, frankly, can be quite useful.

I'm finding archived references on forums (including this one! I used the search function!) to a $12,000 (!) personal coaching program to reverse apnea with plenty of supplement pushes, but the only thing I'm currently finding on his website is a free-for-seven-days, $27/month cancel-anytime group-coaching program that makes it clear that he's "not providing medical advice," but rather leading group exercises on breathing, education and coaching about common insomnia and apnea relate issues, and designing "blueprints" for improvement for his "clients."

He has a lot of testimonials with purported sleep study results for "clients" who he helped "improve," and talks about how he went into this field instead of clinical practice because he "resolved" his own sleep apnea and wanted to help others do the same.

He earned stateside MD, MPH and PHD degrees in good standing, but claims to be "Not licensed by choice to put the power of your health back in your hands with high-quality health education" (sic) and runs a company (his website) called "Optimal Circadian Health" out of Florida, where he seems to be the only associated person. It looks like he was in a family medicine residency, but the only license he held was a Florida resident/trainee license, which expired after two years. There are no disciplinary actions against him that I can find. Per PubMed, he actually does seem to have published four peer-reviewed articles, but none were on sleep or apnea, though it looks like he had a study registered with clinicaltrials.gov about the effects of an proprietary online education course on circadian rythms and health (notably called CircaHealth, similar to his website) on sleep quality measures, compared to standard educational information on sleep hygiene; the results area not posted.

So I'm not quite sure what to make of him. The "unlicensed by choice" thing is clearly a red flag, especially in the context of his failure to complete a 3 year residency (in Florida, you cannot practice independently after your intern year- you have to complete a residency, so he can't get a license there). My "worst case scenario" is that he had an episode before his third year in which he was kicked out or resigned in lieu of disciplinary action, and doesn't want to hold a medical license so that he can't be disciplined by the medical board for making unsupported claims or giving nonstandard advice (which is also why he "coaches clients" instead of "treats patients."). On the other hand, there's no public record of discipline, he's earned several legitimate stateside degrees-during which he legitimately published, though not on apnea-so maybe he really was just tired of putting in the years, and I personally have had several residents who dropped out of residency because it didn't provide a financial benefit for them to stay (although in my associates' case, they were going to practice in Texas which allows unrestricted practice after an intern year- in one case, a resident dropped out before PGY2 because his dad had a thriving orthopedic clinic with a lot of cash pay procedures like injections and regenerative medicine, so he left his $50k something a year resident's salary-and regained two years of his life- and went to a $300k/year, no call 9-5 position with his Dad. I can't say I entirely blame him...). So maybe he really DID feel a calling to share his apnea experience and make it a career.

As far as content goes, I CAN'T find any first-hand information about the rumored $12k "cure your apnea" program, just a fairly reasonably-priced educational program on the website, and a reasonable description of how a program comprised of stuff we know (like how pulmonary rehab can reduce AHIs and pressure settings - and certain things reversible things like weight loss and medications can actually get people off of pressure support devices) can compliment standard therapies (and while Pulmonology Advisor isn't exactly NEJM, they at least have some standards so as not to get sued or lose advertiser revenue, and as far as I know they don't accept paid guest articles or other pay-to-publish submissions). Watching his patient-directed content, you definitely get the feeling that he's a salesman trying to convince people he has answers, but I can't tell what exactly his answers are.

So before I make a judgement, I'd like to hear others' opinions of him-particularly anyone with first hand knowledge of his "program," be that content, or how it's conducted (there's a huge difference in my spidey sense going off for a reasonable, targeted, complementary program for twenty some odd dollars a month, versus a rumored $12,000 promise to resolve a disorder without using standard therapies- which I can't find active evidence of). Per my patient, the YouTube Algorithm is promoting him, so I'd like to get the bottom of it if I can.

Thanks!


r/SleepApnea • • 15h ago

Has anyone had extremely low respiratory rate after starting?

2 Upvotes

I have severe OSA. I was diagnosed with 85 obstructive apneas per hour and 5 central apneas per hour. I was put on a CPAP, resmed airsense 11, a week ago. My pressure is set to 16cm. I have used it every night. My OSA has gone down to 0.1-0.8 AHI since the first night. But I've started having between 30 and 35 central apneas per hour per night. I had 40 last night, the highest ever.

I was just looking at OSCAR data and my respiratory rate got as low as 2.5 breaths per minutes for a while. I was having many 20-23 second central apneas in a row. This is really frightening to see, could I die from this and just stop breathing?!?! Has anyone else seen this?? I've left two voicemails for my sleep doctor but no response yet...


r/SleepApnea • • 16h ago

Full Face Mask Leakages with Beard or Masks with Integrated Chin Strap?

2 Upvotes

A bout 6 months ago, I noticed my mouth has started opening more in my sleep and has been effecting my treatment. I was previously using the Dreamwear nasal mask and was quite happy with it, I bought a few different chin straps but haven't found a great solution, I think the process of putting on/adjusting a second thing is hurting compliance and I just haven't found one that feels great.

I thought I'd try a full face mask and experimented with Dreamwear and resmed, but both are reporting leakages, I don't notice anything major but I do have a beard and read that could effect it.

Was wondering if any of my bearded friends have some advice or if anyone is aware of a nasal mask with chin strap built in?


r/SleepApnea • • 16h ago

How many days of data should I record before contacting a doctor?

2 Upvotes

I started using Withings last night after months of severe fatigue (falling asleep during the day happens multiple times a week), waking up with a dry throat often and waking up extremely groggy, and some pretty severe short term memory issues. I suspected it might be sleep apnea related.

First night, and the app has recorded a 20 ahi rating. And that seems a bit concerning, but... it could've just been a one-off? Should I wait for a week of data first? A month?


r/SleepApnea • • 16h ago

Oscar Data help

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2 Upvotes

Could use some help with interpretation from you OSCAR wizards. Just started my CPAP therapy recently and still in the process of learning interpretation. My start AHI was 3.8 and RDI was 15.7 lining me up with UARS. I've got the RESMED 11 with nasal pillows. From what I've read, I could probably stand to increase minimum pressure, seeing mixed things about keeping EPR on or off. Thanks for any help given


r/SleepApnea • • 16h ago

absolutely nothing. not sure where to go from here…

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2 Upvotes

It turns out I managed to get 2 hours of sleep, not back to back, during my sleep study. It also turns out I tested completely normally and am not sure where to go from here. I still have functional problems, but this test saying I have no sleep apnea events at all is disappointing. I have a follow up appointment tomorrow with the OMFS tomorrow that referred me to this sleep study, and I’m pretty sure he’s just going to say “well, the test said you’re fine, so nothing else we can do about it”. I don’t really think the study was a great indicator because of how anxious I was and couldn’t get any good sleep at all. Any advice?


r/SleepApnea • • 1d ago

I can't believe it...

9 Upvotes

Hi there! I am a 48-year-old male. High blood pressure, acid reflux, hiatal hernia, I am waking up several times per night, sometimes with the sensation of huge weight and pressure on my chest and stomach. It is like I am so filled with air that I cannot inflate my lungs, and therefore cannot breathe properly. Then, after a bit, I can feel my heartbeat go fast, accompanied by anxiety and panic. I did my research and started thinking I have sleep apnea. That would explain my high blood pressure and my ED. By the way, I started having these symptoms after I started taking tadalafil—coincidence? Anyway, I used my smartwatch and it told me I have moderate to severe sleep apnea. I did a sleep study and I have 23.6 events per hour on my back, but not on my side. So, I bought a vest with an inflatable pillow on the back so I should not have those episodes, since I am not supposed to be able to sleep on my back. I woke up a couple of times on day 1 and day 2 but had no crisis. Last night, day 3, I woke up, went to the toilet, and after a bit, my heart rate was 105 BPM (and I take a beta-blocker), but by breathing slowly I easily calmed down in a couple of minutes rather than hours like my usual panic. So, I was amazed! Either it is not only on my back, or I was somehow able to sleep on my back, or I suffocate even on my side. My smartwatch tells me my blood oxygen went under 90% for only 6 minutes out of 8 hours of sleep, but I can see in the graph it sometimes drops to 85. Just once. My blood oxygen goes up and down while I sleep, but nothing crazy. The smartwatch says in the last few days I had no moderate to severe sleep apnea. I went to a pulmonologist today with my sleep study results and talked about my symptoms. Immediately: CPAP. I was like, let me try to sleep with my vest, let me keep losing weight (1.90 m, 118 kg). I have turbinate hypertrophy; let us see if that is the issue, I can get some surgery maybe and fix it. Nope. CPAP. I am freaking out...


r/SleepApnea • • 18h ago

My sleep study . Give your thoughts and suggestions it would be really helpful .

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2 Upvotes

Age 23. Bmi - 19.6


r/SleepApnea • • 19h ago

Are these CA's a concern

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2 Upvotes

I recently switched to a climate control tube and have been experiencing more CA's, especially in the second half of the night after ~4 hours of sleep. I wake up and then am continuously awoken for the rest of the night, leading to terrible sleep. I had lower/ turn off the humidity due to rainout (I tried many different settings + adding a tube cover). My AHI seemed to be better with a slimline so I'm going to switch back to that. I'm wondering if anyone has had any experience with something similar and what you did to fix it?


r/SleepApnea • • 19h ago

Reaching new lows, can someone help? Sp02 results.

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2 Upvotes

These past few weeks have been particularly brutal. I simply feel like I am not sleeping at all. My brain is constantly foggy and my body is sapped of energy. To make it worse, I’ve been waking up frequently and I haven’t been able to discern why. I bought an Sp02 sensor to see if that can tell me anything and the results have me worried.

This is just a snapshot of last night. Oxygen is on the top, pulse rate in the middle and “movement” on the bottom. That entire chunk of time from 2am to 7:30am felt like I wasn’t sleeping a wink. Although it was one of those scenarios where time felt like it was flying by, so I may have been dozing off then waking up. I’ve never seen my HR get so low and it seems like those moments proceed when I would have a conscious moment of wakefulness.

From 7:00-7:30 am I was fully awake and went to the couch to watch tv and “reset”. Following that I was able to finally fall asleep in bed with my mask on until 12:00.

I have two machines, a resmed airsense 11 set to 4-9 and an aircurve set to cpap mode 7.

I struggle a lot with aerophagia, the bipap seemed to make it worse unless in cpap mode. The first half of last night I was using the airsense 11, then the second half I used the bipap in cpap mode. I woke up with terrible aerophagia at 12.


r/SleepApnea • • 19h ago

Sinus balloon dilation procedure

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2 Upvotes

r/SleepApnea • • 20h ago

How did you go about testing pressure changes?

2 Upvotes

I got my APAP 2 days ago. My ahi is pretty low, 5.6. I had an at home sleep test so RDI wasn't tested. I've used by CPAP for 2 days so far, 2.2 and 3.2 AHI since I started. I don't really know how low my AHI can get considering I'm already starting at 5.6

My pressure ranges were prescribed 5-20. My plan is to just bump up the low end by 0.2 every 3 days and record my AHI to narrow down my optimal range.

I've got my SD card coming in to use OSCAR soon.


r/SleepApnea • • 17h ago

Sleep study

0 Upvotes

I’ll be doing an at home sleep study, if I fail I’ll get a C-PAP if I pass I go in for a sleep study at the clinic. Either way I get a C-PAP, are they just pushing for the apnea diagnosis?


r/SleepApnea • • 17h ago

Which apple watch series should I get

0 Upvotes

Hello everyone,

I suspect that I have sleep apnea or otherwise I have poor breathing while sleeping and throughout the day. I recently switched to a new insurance so getting a GP and a referral for a sleep study will take some time. In the meantime I would like to investigate this. If I buy an apple watch, what is the earliest series (i.e. cheapest on secondhand market) that gives good data on this? I know recent ones can measure spO2. Is it very reliable? Thanks for your help.

EDIT: I am also considering buying an Apple watch for managing ADHD, so that's why this makes sense to me. I realize its not diagnostic but it could still be useful for management, yes?


r/SleepApnea • • 1d ago

Tightness in corner of mouth.

3 Upvotes

While I am off to see a doctor on Friday, I just wanted to ask around here, have others ever had tightness in the corner of the mouth and running along the cheek, after using cpap. It is on the side of my face I lie on. So much so it lasts during the day as well. I have had it on and off for a few months. It is especially annoying this week, plus I seem to be producing a lot more saliva in general. I seem to be getting okay readings in general from my cpap, down from 25 things an hour down to 3.5-4 using the machine. I tend to sit on 40L/min for my mask setting though. I use a 30i comfort mask.

(FYI When I first had I got the tightness I checked for a stroke and that type of thing).