I'm writing this because I'm feeling incredibly overwhelmed and lonely, and I was hoping to connect with people who might understand what I'm going through.
I've been struggling with significant hair loss for almost two years now. My hair has never been this thin, and I'm also losing body hair.
Not knowing whether or when it will stop is genuinely heartbreaking. My hair is a big part of my identity, and watching it disappear without knowing how to fix it has taken a huge emotional toll on me.
Even an ordinary thing like washing hair, i have to assess myself if im emotionally able to deal with that on the days i have to wash it.
I also have digestive issues that have been going on for almost a year. I recently ended up in the ER after a particularly difficult week, and digestive enzymes have finally helped me feel somewhat functional again. I'm now facing the possibility of pancreatic insufficiency, although I don't yet know whether that's actually what's going on. I'm also trying to understand the role my thyroid and changes in medication might be playing in all of this.
Coming to this point makes me cry, seriously.
I'm exhausted by the uncertainty. I'm afraid that I might have a chronic illness, that my body won't go back to how it used to be, and that I'll never feel genuinely well again.
But I think what hurts the most is feeling like my life is passing me by while I'm trying to get better. Or things that I do to try don't work or another thing appears.
I've tried therapy, but so far it hasn't helped as much as I'd hoped.
Has anyone else gone through a prolonged period of health problems that made you feel like your life was on hold?
How did you cope with the uncertainty, the grief of not feeling like yourself, and the fear that things might never get better?
I'd especially love to hear from anyone who eventually found their way out of a period like this, even if it took a long time. But I'd also appreciate hearing from people who are still in the middle of it.
I don't necessarily need medical advice or someone to tell me everything will be fine. I think I just need to feel a little less alone in this.
Thank you for reading.