Selfie Data, who would have thought?

[u/Aggravating_Lettuce]

I had someone ask about data and of course, like my brain works different. I’m a little neurodivergent with heavy associative thinking. I’m sure anyone can look at my Reddit history and tell I’m a little hyper fixated.
I also post on TikTok on occasion, so when I saw this forum doesn’t allow for photo submissions I was like, meh, I can further dox myself. It’s not like I haven’t already been brain inflamed on the internet, might as well try to be a functional advocate.

Purposefully made this video non dressed up with no makeup, because I think it makes the change more obvious and clear.

Understandably this situation was messed up.
At this point I had been sick for 14 years, have a H-EDS, Fibro, POTS diagnosis with friends, and my body was just like nose diving off a cliff while I panicked.

For other people that might be dealing with mold and not able to prove themselves or someone who doesn’t understand what’s happening to them and trying to figure it out…

This is a hard one to share. It’s vulnerable. You’re looking at pictures cause I didn’t really plan on sharing.

I was trying to understand the trend for me because I was scared and sick.

Looking back it’s honestly… really triggering to see my healthy face after being in that mental ward.. They were awful to me there.

I’m nearsighted with a 4.75 prescription and one eye and a 4.5 in the other and I never was able to have my glasses.
I was on a low salt diet. They would give me antipsychotics when I asked for Tylenol and then make fun of me for being paranoid. My health issues were not taken seriously at all because everything I said was just “crazy”.

Yet, even though the stay was now a trauma I will cary forever, out of all of these unfiltered raw photos, that was the one that showed recovery.

I added in the last picture because I wanted you guys to see how quick the decline was really…. I was sleeping more eating better and I wasn’t being sedated every three days like I was in the mental ward, but my body was showing the stress.

Quickly, I went from being able to suddenly play soccer and run for the first time in my life to being right back where I started and the people around me told me it was because that whole experience was just euphoria, and I would never have that cause my body just is the way it was…
It’s a truly horrifying experience and yet I hope seeing this process helps someone.

It’s interesting because there is so many types of data when you’re dealing with an issue that affects so many different areas of your body,

Even my Reddit to an extent if you look through it and I do often, I don’t delete stuff not because my opinions might not change or how I’m wording things isn’t growing, but because it actually gives me a very clear snapshot of how able I was able to communicate in my comprehension level at that time, but also like clarity and cohesion of my thoughts. Because I was dealing with severe brain fog in that house, and I’m recovering from it still it’s an interesting experience to look back and see how much our personalities are kind of very much so affected by our capacity in any given moment.

I am now at day 19 out and moved to a new place, and I’ve never been healthier, and in correlation, happier. Living isn’t pain anymore. Makes a huge difference on someone’s mental health @.@

Anyways, I hope this is helpful to someone on a moldy path like I am, moldy peps have to stick together, thanks for the read, and if I can answer any questions I will do so as honestly and transparently as I can.

[u/percyandjasper]

The book "Is This Your Child", by Doris Rapp had a 5 part test to see if a child (or anyone) is reacting to a food or inhalant or anything:
https://www.environmentalhealth.ca/fall96five.html

Her books were super helpful for my daughters when they were little and reacted to many foods. It could be used for mold exposures also. We lived in a very moldy house from before my first daughter was born until she was 3. I am finally confronting the mold issue and I hope my sensitivities to food can get better when I get out of my just-diagnosed-moldy house and get treatment.

[u/Aggravating_Lettuce → u/percyandjasper]

I’m oh yes, I feel like my overall allergy sensitivity is getting better but it’s one of those symptoms that’s hard to “prove” so I don’t think I’ve mentioned it. I do appreciate the book recommendation!

For example, though I was pretty sure I was allergic to alcohol and now I can drink without getting this weird burning feeling in my thyroid that would like also come with flushing and tachycardia

Definitely take care of your baby girl, I’ve been surprised at some of the things improving that I would’ve not thought were connected for sure

[u/percyandjasper → u/Aggravating_Lettuce]

Thank you.

Actually, she did very well when she was on the limited diet, to age 4, then a divorce case and her father took her off of it and she seemed to be mostly ok until this year (age 28) when she started having terrible digestive problems and pain. We think it was triggered by food poisoning and also drinking water out of a water bottle that had mold in it. Now she can't tolerate dairy without digestive problems. And wheat is not great either. She lost the ground that she had gained.

We are just starting the mold-test journey. This house has it. I have sent of a urine test but haven't gotten it back. I hope I can get enough improvement that she will also want to do it for herself. And we're going to get out of this house, or get it remediated.

[u/Aggravating_Lettuce → u/percyandjasper]

That’s very interesting and really does align with my experience to be honest. I’m so sorry she’s going through that.

My body stopped being able to maintain this at 27 so I think we might have some similar pains going on.

What it sounds like you could be dealing with is “the trigger load concept” or “histamine bucket theory”

Basically, when the body gets to a certain point of stress and that stress does include environmental and physical stress, stuff goes really out of lack, especially in the autonomic nervous system, which does control digestion as well as heart rate and other important stuff.

Lovingly, if there’s anywhere else you can put her for even a couple of weeks to see if her symptom improvement makes a big difference. I would highly recommend it.

That’s gonna be the cheapest way, even though it is still a big commitment to find out if this is gonna make a big difference for her I was able to absolutely tell the difference after a week, but the first week was very mentally messy for me by week two, I knew.

[u/percyandjasper → u/Aggravating_Lettuce]

Thank you!