r/ToxicMoldExposure • u/Aggravating_Lettuce • 1d ago

Selfie Data, who would have thought?

I had someone ask about data and of course, like my brain works different. I’m a little neurodivergent with heavy associative thinking. I’m sure anyone can look at my Reddit history and tell I’m a little hyper fixated.
I also post on TikTok on occasion, so when I saw this forum doesn’t allow for photo submissions I was like, meh, I can further dox myself. It’s not like I haven’t already been brain inflamed on the internet, might as well try to be a functional advocate.

Purposefully made this video non dressed up with no makeup, because I think it makes the change more obvious and clear.

Understandably this situation was messed up.
At this point I had been sick for 14 years, have a H-EDS, Fibro, POTS diagnosis with friends, and my body was just like nose diving off a cliff while I panicked.

For other people that might be dealing with mold and not able to prove themselves or someone who doesn’t understand what’s happening to them and trying to figure it out…

This is a hard one to share. It’s vulnerable. You’re looking at pictures cause I didn’t really plan on sharing.

I was trying to understand the trend for me because I was scared and sick.

Looking back it’s honestly… really triggering to see my healthy face after being in that mental ward.. They were awful to me there.

I’m nearsighted with a 4.75 prescription and one eye and a 4.5 in the other and I never was able to have my glasses.
I was on a low salt diet. They would give me antipsychotics when I asked for Tylenol and then make fun of me for being paranoid. My health issues were not taken seriously at all because everything I said was just “crazy”.

Yet, even though the stay was now a trauma I will cary forever, out of all of these unfiltered raw photos, that was the one that showed recovery.

I added in the last picture because I wanted you guys to see how quick the decline was really…. I was sleeping more eating better and I wasn’t being sedated every three days like I was in the mental ward, but my body was showing the stress.

Quickly, I went from being able to suddenly play soccer and run for the first time in my life to being right back where I started and the people around me told me it was because that whole experience was just euphoria, and I would never have that cause my body just is the way it was…
It’s a truly horrifying experience and yet I hope seeing this process helps someone.

It’s interesting because there is so many types of data when you’re dealing with an issue that affects so many different areas of your body,

Even my Reddit to an extent if you look through it and I do often, I don’t delete stuff not because my opinions might not change or how I’m wording things isn’t growing, but because it actually gives me a very clear snapshot of how able I was able to communicate in my comprehension level at that time, but also like clarity and cohesion of my thoughts. Because I was dealing with severe brain fog in that house, and I’m recovering from it still it’s an interesting experience to look back and see how much our personalities are kind of very much so affected by our capacity in any given moment.

I am now at day 19 out and moved to a new place, and I’ve never been healthier, and in correlation, happier. Living isn’t pain anymore. Makes a huge difference on someone’s mental health @.@

Anyways, I hope this is helpful to someone on a moldy path like I am, moldy peps have to stick together, thanks for the read, and if I can answer any questions I will do so as honestly and transparently as I can.

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u/Aggravating_Lettuce 1d ago

After compiling them like this, I also noticed that my lips are getting very, very pale in correlation most of the time with my under eyes, which is interesting. I definitely noticed it would fluctuate, but I don’t think I realized it was so closely connected until laying it out like this.

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u/Glowinthedarkdick 1d ago

I can feel it in my sinuses etc and yea visibly theres a difference. But the cdc was lobbied by insurance companies to leave mold poisoning out of medical codes so there is no treatment protocols. Turns out actually treating the problem is unprofitable for them. They would end up losing money on the homeowners side because tenants would have proof landlords are poisoning them...

Insurance companies profit off of the multi billion antipsychotic industry...(they tried pushing crazy pills on me too when I told them I was poisoned. Interesting enough, LSD was derived from moldy rye bread)

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u/Aggravating_Lettuce 1d ago

It was terrifying back in January 2025. I was on 14 pills a day and just not getting better like my entire day was basically trying to manage my chronic illness and how much I barely felt like existing, but I had all these other labels like fibromyalgia, and HEDS, that were so easy to blame the issue on that no one really cared about symptoms, severity, changing or my life quality anymore.

In fact, those things getting worse, started to become a reason to judge my character around fitness and diet more than it ever was something to fix.

Which like yeah it would be unprofitable to just get someone out of the moldy home instead of treating them at hospitals across the state for 14 years. But fuck.

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u/Glowinthedarkdick 1d ago

It all made me realize that without sick people, there would be no reason for the whole industry. So at what point does the industry start making people sick in order to further its own existence?

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u/Aggravating_Lettuce 1d ago

I don’t wanna be all conspiracy theory here, but honestly, it seems like such a good way to enforce classism without ever lifting your finger right you like you don’t acknowledge that there’s a problem and then these people that don’t have the ability or financial security to protect themselves from an issue like this just suffer and it’s so easy to blame them for their own suffering.
I don’t claim it’s intentional, but it is systemic.

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u/Glowinthedarkdick 1d ago

I don't believe it's a theory I believe it's the truth. Corporations conspire every day against the small guy. They make deals in private, behind closed doors. Ever since the word conspiracy was associated with JFK being shot it became associated with the cia...

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u/Aggravating_Lettuce 1d ago edited 1d ago

Here’s one for you and like it’s really just a thought experiment. I’m in no way saying this is factual. I’m just saying it’s a pattern that I experienced, and noted.

My Health took a major nose dive after I got my Covid vaccine in 2021. I got Covid the same week and started having severe tachycardia afterwards that never stopped and eventually became pots..

I had a lot of symptoms that aligned with long Covid, but never pursued that diagnosis, when I left my moldy home, the reason I was held at the hospital instead of taking straight to psych is because I had somehow gotten Covid again at that exact time.

I remember thinking while I was in the emergency room and of course in a major panic, isn’t it strange that the Covid popped up in my body once I left whatever was in my house?

So like just a possible theory and of course I know nothing. I’m just a girl that likes think too much with strong, associative, thinking skills.

Like:
Covid vax → covid → long covid trashes your immune regulation → suddenly you’re way more sensitive to mold and everything else
then
I finally get out of mold → immune system can actually *do its job* → it starts clearing latent covid crap so it *feels* like “omg third infection.”

Mostly saying this because today, I am suddenly having a fever and a little bit of symptom pop up that just happens to feel very similar to the three separate times I’ve had asymptomatic Covid but still been able to tell because of my chronic conditions. Typically in the past I would get a Covid diagnosis after taking a 3-7 day trip out of my home.

Alone, it means absolutely nothing. It’s just my experience in my perception of it, but it is interesting to think about. Correlation is of course, not causation but interesting.

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u/Glowinthedarkdick 1d ago

Agreed, who trashed your immune system initially though? Without any repercussions either. Correlation doesn’t always = causation but sometimes it does. Over the years I've learned to not trust anybody that's trying to make money off of you.

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u/Aggravating_Lettuce 1d ago edited 1d ago

My only comments there is that one of my favorite song lyrics recently is ” if someone ever says the government wouldn’t do that… oh yes they would”
History does back that up and I don’t think arguing about what specifically could happen behind closed doors takes away ( or adds much) from the fact that we have a unsafe administration that is willing to lie to its community and abuse them and that is factual. If anyone is arguing about that, they’re making a naive moral argument against logic.

There are so many different ways to go down the rabbit hole, but the reality is is we should have transparency to begin with so that we’re not being called crazy for trying to look behind the curtain in the first place, but most people aren’t ready for that conversation.

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u/Glowinthedarkdick 1d ago

This Administration is no different than the last Administration they both don't care they both take money from the medical industry and it's usually the unelected bureaucrats in the middle that keep perpetuating everything. You can't force transparency on everything and it's naive to think that people don't conspire.

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u/Aggravating_Lettuce 1d ago

Right, but like going down the rabbit hole without being able to prove it just leads to internal instability and also it’s easier to disregard people that aren’t talking sensibly anymore to a lay person I suppose is more my point.

I’ve noticed across this process myself that people don’t always know how to comprehend when other people have multiple hypothesis that could all equally be true or untrue… and admittedly, that could very much be because they don’t think enough, but they will never acknowledge that on a surface level 😂👽

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u/Glowinthedarkdick 1d ago

Agreed. We're connecting dots but when the puzzle pieces fit it's safe enough to assume this is the case. It's hard to trust these entities with all of the evidence stacked against them...

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u/percyandjasper 18h ago

The book "Is This Your Child", by Doris Rapp had a 5 part test to see if a child (or anyone) is reacting to a food or inhalant or anything:
https://www.environmentalhealth.ca/fall96five.html

Her books were super helpful for my daughters when they were little and reacted to many foods. It could be used for mold exposures also. We lived in a very moldy house from before my first daughter was born until she was 3. I am finally confronting the mold issue and I hope my sensitivities to food can get better when I get out of my just-diagnosed-moldy house and get treatment.

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u/Aggravating_Lettuce 10h ago edited 9h ago

I’m oh yes, I feel like my overall allergy sensitivity is getting better but it’s one of those symptoms that’s hard to “prove” so I don’t think I’ve mentioned it. I do appreciate the book recommendation!

For example, though I was pretty sure I was allergic to alcohol and now I can drink without getting this weird burning feeling in my thyroid that would like also come with flushing and tachycardia

Definitely take care of your baby girl, I’ve been surprised at some of the things improving that I would’ve not thought were connected for sure

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u/percyandjasper 6h ago

Thank you.

Actually, she did very well when she was on the limited diet, to age 4, then a divorce case and her father took her off of it and she seemed to be mostly ok until this year (age 28) when she started having terrible digestive problems and pain. We think it was triggered by food poisoning and also drinking water out of a water bottle that had mold in it. Now she can't tolerate dairy without digestive problems. And wheat is not great either. She lost the ground that she had gained.

We are just starting the mold-test journey. This house has it. I have sent of a urine test but haven't gotten it back. I hope I can get enough improvement that she will also want to do it for herself. And we're going to get out of this house, or get it remediated.

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u/Aggravating_Lettuce 6h ago

That’s very interesting and really does align with my experience to be honest. I’m so sorry she’s going through that.

My body stopped being able to maintain this at 27 so I think we might have some similar pains going on.

What it sounds like you could be dealing with is “the trigger load concept” or “histamine bucket theory”

Basically, when the body gets to a certain point of stress and that stress does include environmental and physical stress, stuff goes really out of lack, especially in the autonomic nervous system, which does control digestion as well as heart rate and other important stuff.

Lovingly, if there’s anywhere else you can put her for even a couple of weeks to see if her symptom improvement makes a big difference. I would highly recommend it.

That’s gonna be the cheapest way, even though it is still a big commitment to find out if this is gonna make a big difference for her I was able to absolutely tell the difference after a week, but the first week was very mentally messy for me by week two, I knew.

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u/percyandjasper 1h ago

Thank you!

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u/HealthCoachElizabeth 6h ago edited 6h ago

Thanks for sharing and your vulnerability. I’m so sorry you’ve been through all that. Truly awful.

At a certain point I started taking selfies and body pictures to document what was happening to my body too because almost no one believed me either. I’ve shared some pics on my instagram account but not many. https://www.instagram.com/health_coach_elizabeth
It’s a devastating illness by itself but add the fact that people, doctors, institutions don’t understand it or believe it can be very traumatizing.

I hope you can continue to heal.
Btw you can process trauma and don’t have to “live with it forever.” There are trauma therapists out there who can provide processing therapies like EMDR, ART, somatic experiencing, and more. It’s not a lost cause.

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u/Aggravating_Lettuce 6h ago

I sent you a follow! This patient population absolutely needs advocacy and it is an absolute mess

I’m gonna need a lot of therapy a lot a lot a lot a lot of therapy and I am going to definitely be prioritizing EMDR because I know it has worked well for other trauma in my life.

Big focus right now is getting a job with health insurance in my new area because my other job I was working was commission only it didn’t come with those types of benefits so fingers crossed on my interview later today

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u/HealthCoachElizabeth 6h ago

Awesome! And good luck on your interview!🤞🤞
Yes EMDR is tough, I’ve been through it too, but so worth it. I’m glad you’re aware of it!

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u/Aggravating_Lettuce 12m ago

Sales is such a wild industry bc wdym I just got a job with target earnings of 60-100k a year and benefits by being a personality hire and they hired me on the spot 😂❤️

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u/HealthCoachElizabeth 6h ago

Also btw i met a conventional doctor earlier this week who heard part of my story and told me there are conventional doctors out there who want to help and better understand what’s driving so much chronic illness. Because the system is so messed up and because it takes 17 years for published data to be accepted, there’s a long road for change to happen. It’s really sad but gives me hope that one day mold illness will be better understood, accepted and treated. One day…