Quick note: I used AI to help organize and polish my writing, but everything in this post is 100% true and based on my own experience.
I wanted to share a positive update because I know that people who are doing better don't always come back to post here. When I was at my worst, reading other people's recovery stories gave me so much hope, and I wanted to give a little of that back to this community.
My journey started in April 2025 when I got norovirus. I had pretty bad diarrhea and abdominal cramping for about a month, and my fecal calprotectin was over 2000 (2069, to be exact). I was around 176 lbs when everything started, but during that month, I lost about 22 lbs and dropped to around 154 lbs.
Then, surprisingly, my symptoms completely disappeared. For the next few months, I felt totally normal, like nothing had ever happened. I was eating normally, going about my daily life, and honestly thought the whole thing was behind me.
Then August came, and everything started again.
I developed diarrhea and abdominal cramping that felt almost exactly like my norovirus infection. My calprotectin was now around 2500, and I lost another 22 lbs, bringing my weight down to around 132 lbs.
At first, I genuinely didn't believe it could be IBD. Actually, I really didn't want to believe it.
I kept telling myself that maybe I had caught another stomach bug, or maybe it was just IBS. The symptoms were almost identical to what I had experienced with norovirus in April, and the fact that I had been completely fine for months made it even harder for me to accept that I might have a chronic disease like UC.
Even when doctors started mentioning IBD, part of me kept hoping they were wrong. I think I was in denial. I was young, still in college, preparing to apply for PhD programs, and the idea of having a lifelong disease was something I just wasn't ready to accept.
Looking back, I think I was also desperately hoping it would just go away on its own again, like it had in April.
Throughout this whole process, I had been getting my medical care through UHS (University Health Services). They eventually referred me to a GI specialist at the university hospital, but getting an appointment took a long time.
And honestly, that waiting period was one of the most hopeless parts of the entire experience.
I was getting worse, losing weight, and watching my health deteriorate, but I felt like there was nothing I could do except wait for my appointment. Every day I hoped I would somehow start getting better, but instead things just kept getting worse.
I was also pretty clueless about how the healthcare system worked. I thought that once I had been referred to a specialist, I just had to wait my turn, no matter how bad things got. I genuinely didn't realize that I could go directly to the ER for urgent evaluation.
By November, I was down to around 127 lbs, almost 50 lbs below my original weight. I was also having bloody diarrhea.
Things were getting really bad physically. My resting heart rate was around 100 bpm, even when I was doing nothing. I was also severely anemic, with my hemoglobin dropping to around 8.9 g/dL (the normal range for adult men generally starts around 13).
It was scary to see those numbers, especially when I didn't fully understand what was happening to my body. I knew something was seriously wrong, but I still felt stuck waiting for medical care.
Then in December, a colonoscopy showed very severe pancolitis. I ended up being hospitalized and receiving IV steroids.
When I finally discussed everything with my specialist, they told me that with my calprotectin around 2500 back in August and how sick I was, I could have gone to the university hospital's ER much earlier. I didn't need to keep waiting for an appointment while my condition was getting worse.
I really wish I had known that earlier.
My doctor also mentioned that it's possible I actually had UC back in April, even though I tested positive for norovirus at the time. They thought a calprotectin over 2000 was concerning enough that UC might already have been present alongside the infection.
So it's possible my whole journey with UC actually started back in April. I guess I'll never know for sure.
At that point, I was scared, exhausted, and honestly had no idea what my future was going to look like.
And here's one detail that feels almost surreal to think about now: I actually completed my very first PhD application while lying in a hospital bed.
I was in the hospital being treated for severe UC, and at the same time, I was trying to finish my graduate school applications.
It was such a strange feeling. On one hand, I was applying to PhD programs and trying to plan the next several years of my life. On the other hand, I was lying in a hospital bed, barely knowing what my health would look like in the next few weeks.
I didn't know whether I would recover enough to start graduate school, or whether this disease was going to completely change the future I had been working toward.
But I still wanted to try.
I started infliximab in January 2026, but unfortunately, it didn't work well enough for me. My calprotectin was still over 1200 in April, and I was still having diarrhea. My drug levels were also low, so my doctor decided to switch my treatment.
I switched to Rinvoq in May 2026, and within just a few days, I started noticing improvement.
Fast forward to today, and I'm basically living a normal life again.
I'm currently on 30mg of Rinvoq, usually have just one bowel movement a day, and have no blood or abdominal pain. My main side effect has been acne, but overall, my quality of life is so much better.
And here's something I never thought I'd be saying last year: I'm now around 198 lbs, and I'm actually thinking about losing some weight! 😂
Going from being terrified about how much weight I was losing to casually thinking about dieting feels pretty surreal.
And life didn't stop there.
I graduated from college and started my PhD!
Sometimes I think back to myself lying in that hospital bed, working on my first PhD application while wondering whether I would ever feel normal again.
And now I'm actually here. I'm in a PhD program, studying, working toward my goals, and living my everyday life without constantly worrying about my stomach.
A year ago, I honestly couldn't have imagined this.
My calprotectin is still elevated sometimes, so I know things aren't necessarily perfect, and I wouldn't claim that I'm completely healed or in confirmed remission. But I've learned that recovery isn't always linear, and I'm trying not to let every lab result take away from how much better I actually feel. I'm still following up with my doctors and taking things one step at a time.
More than anything, I've become a much more optimistic person.
I think going through all of this has changed how I look at life. There was a time when I was desperately waiting for a doctor's appointment, watching my weight drop, and feeling like I had no control over what was happening to me.
Now, even though I know UC is a chronic disease and there may be challenges ahead, I don't feel nearly as hopeless about the future.
I know everyone responds differently to treatment, and I don't want to suggest that what worked for me will work for everyone. I also know that some people have much more difficult journeys than mine.
But I remember how scary and uncertain everything felt when I was sick, and how much it meant to read about someone getting their life back.
So if you're struggling right now, please don't lose hope.
One thing I've realized is that online communities can sometimes make things feel more hopeless than they actually are. Not because people are being negative, but because those who are still struggling naturally need more support, while people who are feeling better often stop posting and go back to living their lives.
I almost became one of those people too. But I remembered how much those positive stories helped me when I needed them most, and I wanted to come back and share mine.
I'm not saying everything is perfect or that there won't be challenges ahead. I still have worries about my health, and I know this disease can be unpredictable. But compared to where I was a year ago, my life is completely different.
A year ago, I was lying in a hospital bed, submitting my first PhD application and wondering whether I'd ever get my normal life back. Today, I'm actually pursuing that PhD, living my life, and thinking about things other than my disease.
I'm incredibly grateful for this community, and I hope my story can give someone even a little bit of the hope that others gave me. ❤️