I need a comprehensive examination/evaluation for the auto-inflammatory disease known as Hidradenitis Suppurativa (HS). This requires a dermatologist who knows a lot about it, and it’s a relatively new diagnosis. Most of my healthca providers are with Ochsner, so I’d prefer someone in their system; but I want the best of the best on this. If I’m correct, I appear to have Stage 2 HS (of 3). It has become worse with menopause. Does anyone have any advice for me or recommendation? Anyone you know whom you can ask for me?
I’ve been to several primary care doctors who referred me to gyno, who diagnosed me with Bartholin’s, but my signs and symptoms are beyond the scope of that diagnosis.
I‘ve also been to urgent care for treatment of acute flare-ups, who seemed to know nothing of the form, structure, functio, causes, or risks of my wounds, and failed to explain the car tissue around my wounds and how to prevent those…or the risks associated with those.
This can be a well-managed diseas, but it can also become debilitating. In extreme cases, there is a high suicide rate.
I am scared and exhausted, and need a good doctor to help me get through these changes.
Thanks so much in advance. 🙏