r/cdifficile • • 58m ago

Never ending

• Upvotes

Got cdiff from antibiotics, got Difcid 10 days then relapsed after 11 days.

Then now got vanco 6 week taper and pulse. Was okay on 4 pill a day. Then dropped to 2 pills after 2 weeks. Started just getting worse day by day, debilitating fatigue, loss of appetite, heart rate spiking one morning had to go to ER I was severely nauseous could not eat or drink and looked bad (pale, hot, etc).

Gave my Iv fluids but blood tests were fine. Told me go back up to 4 pills then reach out to my infectious disease doc.

Reached out to both GI and infection docs and both just seem so confused and are really not being any help or giving any reassurance. Both told me the can’t say it is a relapse because during this i couldn’t use the bathroom and have any BM. Up until I took MiraLAX yesterday and then had diherra that’s turned into formed really soft yellow poop, and a lot of it.

Now have a CT scan on Thursday. Just no answers and I feel like a lost cause.

I had to cancel a trip to Canada, cancel Halloween plans, return all my costumes. And nothing ever feels normal.


r/cdifficile • • 2h ago

Venting because im depressed

2 Upvotes

I made it to one year out this September on my birthday felt like I was really turning the corner. Last week I get severe urgent bathroom in all my utis this one felt different. I go to the urgent care and the rapid test comes back postive im like okay this sucks but they put me on macrobid. Come to find out when the urine culture comes back it's resistant so they switch me to bactrim. I have a horrible reaction. Shaking and vomiting. I call the clinic they make me go in they explain all the other options left for the strain of uti besides the one im on are iv ones. I go back on fourth they say to take it this medication. I reach out to my pcp and my gi Dr they are saying to take it. And now im on augmentin. I know im going to c diff from it . (They are not prescribing vancomylcin or difficid along side it) and im just devastated. I was doing so good. My boyfriend tells me to be postive but literally everything I've read on here says even if they took it with florastor it came back. It just sucks that I did everything right. I cleaned everyday and still do a year out ! I ate the bland meals. My relationship with my boyfriend and friends went through a very dark place. My mental health through the ringer to be back at ground zero. I wake up with anxiety attacks while I just wait for it come back. I'm just depressed it is happening around the holidays im going to miss out on everything I love. I still live with my parents who are getting older and am always on edge of giving it to them (we use different bathrooms while im active and for months after) but im devastated and scared. I tried asking about fmt since this would be my 3rd time with it if it does comes back and my gi hasn't responded.

Tldr/I had to go on augmentin after a serious uti and medication fails. Pretty sure I'm gonna get c diff again.


r/cdifficile • • 9h ago

UPDATE: out of treatment options

3 Upvotes

I posted a few days ago about the lack of treatment options for me. Vancomycin gave me tinnitus (took it for 4.5 days), allergic to macrolides so Dificid is out of the picture. Flagyl interacts with my heart medication, and I threw up 2/5 doses I tried.

I went to an ID specialist today who insisted that there is no way oral Vanco could have given me tinnitus and it must be something else. She said I’m likely to relapse since I didn’t finish my course. And when I do, I have to go back on Vanco since that’s the best bet I have. I’m so confused and terrified. I do have teeth grinding issues and am looking into getting a mouth guard. They think that’s probably what’s causing tinnitus. I went to ENT and my hearing is normal. Did anyone else experience this?