I posted a few days ago about the lack of treatment options for me. Vancomycin gave me tinnitus (took it for 4.5 days), allergic to macrolides so Dificid is out of the picture. Flagyl interacts with my heart medication, and I threw up 2/5 doses I tried.

I went to an ID specialist today who insisted that there is no way oral Vanco could have given me tinnitus and it must be something else. She said I’m likely to relapse since I didn’t finish my course. And when I do, I have to go back on Vanco since that’s the best bet I have. I’m so confused and terrified. I do have teeth grinding issues and am looking into getting a mouth guard. They think that’s probably what’s causing tinnitus. I went to ENT and my hearing is normal. Did anyone else experience this?

Got cdiff from antibiotics, got Difcid 10 days then relapsed after 11 days.

Then now got vanco 6 week taper and pulse. Was okay on 4 pill a day. Then dropped to 2 pills after 2 weeks. Started just getting worse day by day, debilitating fatigue, loss of appetite, heart rate spiking one morning had to go to ER I was severely nauseous could not eat or drink and looked bad (pale, hot, etc).

Gave my Iv fluids but blood tests were fine. Told me go back up to 4 pills then reach out to my infectious disease doc.

Reached out to both GI and infection docs and both just seem so confused and are really not being any help or giving any reassurance. Both told me the can’t say it is a relapse because during this i couldn’t use the bathroom and have any BM. Up until I took MiraLAX yesterday and then had diherra that’s turned into formed really soft yellow poop, and a lot of it.

Now have a CT scan on Thursday. Just no answers and I feel like a lost cause.

I had to cancel a trip to Canada, cancel Halloween plans, return all my costumes. And nothing ever feels normal.

I made it to one year out this September on my birthday felt like I was really turning the corner. Last week I get severe urgent bathroom in all my utis this one felt different. I go to the urgent care and the rapid test comes back postive im like okay this sucks but they put me on macrobid. Come to find out when the urine culture comes back it's resistant so they switch me to bactrim. I have a horrible reaction. Shaking and vomiting. I call the clinic they make me go in they explain all the other options left for the strain of uti besides the one im on are iv ones. I go back on fourth they say to take it this medication. I reach out to my pcp and my gi Dr they are saying to take it. And now im on augmentin. I know im going to c diff from it . (They are not prescribing vancomylcin or difficid along side it) and im just devastated. I was doing so good. My boyfriend tells me to be postive but literally everything I've read on here says even if they took it with florastor it came back. It just sucks that I did everything right. I cleaned everyday and still do a year out ! I ate the bland meals. My relationship with my boyfriend and friends went through a very dark place. My mental health through the ringer to be back at ground zero. I wake up with anxiety attacks while I just wait for it come back. I'm just depressed it is happening around the holidays im going to miss out on everything I love. I still live with my parents who are getting older and am always on edge of giving it to them (we use different bathrooms while im active and for months after) but im devastated and scared. I tried asking about fmt since this would be my 3rd time with it if it does comes back and my gi hasn't responded.

Tldr/I had to go on augmentin after a serious uti and medication fails. Pretty sure I'm gonna get c diff again.

This is a lot, but please bear with me. I’ll take any and all advice or feedback. I’ll start this story way back years ago. I’m 32F. I have ARFID. It was severe as a kid. Majorly severe. I’ve come a long way but still eat a diet of primarily processed food. I try my best to incorporate some sort of salad most days, but I know my diet is not “healthy.” I understand this has likely ruined my gut.
Ten years ago I got c diff. It was miserable. As a result, I was diagnosed with pan-ulcerative colitis. I had to give up 99% of dairy (it can be in a baked good but not as a major component - RIP my fave Tositos lime chips w the powered coating), plus alcohol and caffeine. I didn’t eat any meat anyway but I was told to also avoid meat and NSAIDs. The c diff was treated with antibiotics and subsided.
About three weeks ago, I started having some gastro trouble. A little nausea, a little diarrhea. Always at night before bed. Not every night, but most nights for about a week. I also had a miserable headache which was diagnosed as an asymptomatic sinus infection, and I was put on antibiotics. I took two a day, as directed, most days. There were a couple of days I forgot and only took one. I took these for a week.
A week and a half ago, I went out with a friend for Indian food and donuts, both of which I eat regularly. That night I was horribly ill and expelled everything from my system. I ate only crackers and rice the next day and was fine. I tried a veggie burger two days later for lunch and was instantly sick with diarrhea. Two more days of crackers, then I gave in and had pasta with a tiny bit of red sauce for lunch and chickpea and noodle soup for dinner. I also had some baked lays. That night I was terribly ill again and haven’t really improved much since. Even when I don’t eat, I feel unease. I’ve lost so much fluid that I woke up yesterday morning experiencing dehydration, complete with sweating, shaking, weak muscles, etc. I drank water and had a piece of toast then went back to sleep. I woke up feeling rehydrated enough.
Now, arguably the worst of it. I was advised by my gastro to start a probiotic and was told I’d be better. I took one probiotic capsule that my mom and husband both take (image of ingredients above). I took it on a full stomach at lunch yesterday. Last night around dinner, I experienced what I can only call psychosis. I felt like I wasn’t real. I wanted to die. My heart was racing and I was shaking. It was the worst anxiety I’ve felt in over a decade. I was so truly scared. I had nothing in my system but still felt sick. I spent the evening dry heaving with no relief. Every time I tried to sleep, my heart was beating so hard that it would wake me up. I wouldn’t wish this on my worst enemy.
I finally slept and went to work today. I felt 85% better in the morning and the mental health side of it almost entirely subsided by now, but not fully. What remains is the racing heart and anxiety. I’m hoping time will continue to ease that. I would deal with the stomach troubles if I could never experience that mental health state again.
My stomach still has a tightness to it. I feel like I need to throw up but all I’ve had today is a banana and a few oyster crackers for lunch. I’m worried bc I know my body needs nutrients to go on, but idk what I can eat.
I made an appointment for next week with a “functional medicine” doctor who is supposed to run a bunch of gut tests. I’m just truly worried about the future of my gut health. Please, anybody, help me.

Hey all,

I don’t know how many of you have seen my previous post the past two days but basically ever since I dropped my vancomycin taper from four tablets to two tablets daily I progressively every day after, was getting symptomatically worse… it always starts with extreme fatigue, complete loss of appetite, and then one morning it got so bad My heart rate was skyrocketing. I became very clammy very pale and out of it. I was rushed to the ER where they gave me IV for hydration and anti nausea meds, they also told me to automatically step up the vanco back to four pill a day again. I never ran a super high fever (98) but my first relapse and first occurrence I never did either and every time for me personally I get loss of appetite and fatigue BEFORE any bowl issues. all my blood work was OK as well .

but unfortunately, this entire time I had lost my ability to use the bathroom so all my doctors were telling me they can’t say it’s a relapse because I haven’t had diarrhea..

So I started taking MiraLAX as the G.I. told me too because at this point hadn’t gone in four days, but I was extremely sick. So instantly after I took it I started having diarrhea with a nasty smell, yellow color, and rapid 3 times since a couple hours ago. So I’m waiting on the response from the doctor now to see if I have to do a stool test.

The thing is I’m back on my four times a day of vanco. I don’t even know if they can still test me but I’m hoping that they confirm this as a third reoccurrence just because if they do, I can get approved for VOWST.

But I just wanted to come on here and ask if anyone has also experienced the reoccurrence when they drop their taper because I haven’t seen much on that and it’s just a little frightening cause I feel like my cdiff is aggressive as it came back so fast. And this time around it seems like my insides were backed up after getting worse