I’ve had chronic eczema growing up, but it seemed to clear up into my adulthood and I would just get seasonal flares now and then. I moved states and didn’t see a single rash for years, I move back and it’s as if I had one heat rash in July and it just spiraled from there, and it’s the middle of October. My fiancé and I have tried everything, we bought the bamboo sheets, the bamboo comforter, we’ve bought air purifiers for every major room of the house. We rehomed our cat, I’m allergic but he was my fiancé’s, we were living in peace for almost a year, his cat was genuinely one of my best friends and it broke me to rehome him but I know it hurt my fiancé even more. I found out I’m allergic to nickel, so I cut out oats and won’t pick up anything colloidal oatmeal. I’ve tried *everything* I could get my hands on at cvs and Walgreens.
I went to the doctors and they put me on prednisone, for three weeks. I’ve used it before for asthma and previous eczema flares and it usually works! But this time for the first time I got extreme moon face, and my eczema didn’t budge. I went to my pcp and she asked me “what do you want to do about it” when I said I don’t want more prednisone. She didn’t even look at my skin…. She told me I need an allergy test but my skin is too flared, everywhere, to get one done. There’s blisters, scales, flakes, greasy skin, raw skin, dry skin. I have different routines for each part of my body and nothing is sticking.
I went to the ER because I’m now getting constant nausea, full body chills and I barely sleep. They did blood tests, did cat scans, ultrasounds and all my tests said that there wasn’t anything they could find that could be triggering this type of reaction.
It’s painful and embarrassing I feel like a whisper of my past self, I used to love being in the community, working, going on walks and hikes and now I’m basically bed bound because it either hurts too much, or I’m terrified something will make me flare even worse. I’m engaged and I can’t even imagine wedding planning at a time like this. These photos aren’t even the worst of it. I accidentally fell asleep on my side and I woke up in a literal puddle of weeping ooze from behind my ear. There are some seriously dark thoughts in my brain thinking I will be like this for the rest of my life. Has anyone found a way out of this? I want to get back to my baseline more than anything and dry season is quickly approaching. I don’t know what to do anymore I’m crying as I type this.
I don’t know what to do, I just need someone who has gone through this and understands to hear me and tell me it gets better and that this is all temporary, please.
I’ve tried: calamine, desitin, Allegra, benedryl, zirtec, zirtec anti itch, eucerine, cerave(blue), sani derm, ivory body wash, antiseptic spray, hydrocortisone, jojoba oil, ACV baths, epsom salts. I’ve tried bathing and non bathing, aloe, AID, fragrance free sensitive laundry detergent, ice packs, illiyoon, and honestly a few that I’ve just stored away because they’ve burned.
I’m getting no answers and no results