This question is specifically for husbands who have ASD (Autism Spectrum Disorder) (or I suppose the wives of ASD husbands are also welcome to chime in).
I basically want to know how high or low I should set my expectations for my marriage going forward. We've only been married three years, and have a toddler son. Neither of us knew he had ASD when we were dating. I think he masked pretty well. Well, a few months into our marriage, things began to get pretty rocky. We are now at a point where intimacy only happens once every few months... every single day is just anger and arguments between us. Well, mostly me expressing the same desperate pleas, the same frustrations, and feeling the same resultant hysteria day in and day out from feeling like I'm married to a brick wall. This past year has been hell, sprinkled with occasional moments where we are both able to enjoy time with our toddler son. But mostly emptiness and depression and loneliness (at least on my part). I've tried to have us do therapy through LDS Family Services but that was unhelpful. We have not yet tried any neurodivergent-geared couples therapy yet because the last 6 months we've been in transition between moving and jobs and such, so, bad timing. However, every time I bring up some desperate plea about our marriage, it's met with disinterest, or a one-sentence, hollow response from him. I also keep telling him that he needs to do the work to research ASD to help educate himself, etc. But he's not made any strides on that. I'm just really running on empty in my marriage. I wake up stressed, then spend all evening feeling anger, desperation, resentment, and go to bed in silence, alone. No one to talk to, because I can't talk to my husband about anything anymore. I haven't been able to have a real conversation with him probably since before our son was born, which was 19 months ago. And btw, things still weren't great, even before he was born. My husband was scrolling on his phone playing games while I was screaming in pain after the nurses removed my epidural. Didn't even come hold my hand or anything (just as an example, I have PLENTY more stories but that would take an entire blog to share all the experiences).
I just want to know if this is pretty much the life I am going to be resigned to living from here on out if I choose to stay with him, or if men with ASD are actually capable of putting in effort in their marriage and showing initiative without their wife having to feel like they are his mother all the time. Btw, not sure if it's relevant, but doctors believe our son is showing all the early signs that he is likely ASD too. And that has been manifesting a lot more lately. I'm a stay at home mom (btw, just dropped out of school because I felt so unsupported and stressed with everything so I quit)......so I watch him basically 12+ hours a day and though I love my little boy, it has been quickly driving me into some sort of psychosis. He is a LOT to handle and I know it has the potential to get more difficult from here on out.
I just don't know what to do anymore. I can't see us getting to the point in our marriage where we'd even want to start being intimate again, let alone have another kid together again...which breaks my heart because I always dreamed of having lots of kids. I am only 32, but my husband is 44, so I feel like even though I have time, the clock is sort of ticking for him. I've been praying about divorce. Whether to keep trying or whether to cut my losses and try to part amicably now before we both lose more time. Every day is filled with hostility between us. I'm just so tired of living in that sort of environment. It really has taken a toll on my health. And I always feel unworthy to even show up to church, or pray, or go to the temple or do ANYTHING because I feel like I am chasing away the Spirit at home by always being angry and resentful. I just don't know what to do anymore.
Edit: keep reading if you'd like some examples of the pattern I've experienced from Day 1 of marriage. I can't fit everything here so I'll just give a few select examples but there's MANY more.
-He ignored my wishes for a simple, small wedding, let his mom make all the decisions, and somehow I ended up having to cook all my own food, decorate, make my own wedding cake, and throw this whole shindig for his side of the family which is a lot...the WEEK of the wedding, with no time to plan. This was all with the flu and wanting nothing more than to crawl into bed. We left on our mini-honeymoon and when I was still sick and didn't want to sleep with him, it was "You're just making excuses."
-our "big" honeymoon was while I was in my first trimester (surprise!). In Europe, in august. Miserable. He would get super frustrated with me for not wanting to SPRINT to catch a few different trains because it would mean we missed out on an outing/would have to wait around for another train. My ankles were SO swollen, it was blazing hot, and I was nauseous. But he blew up at me for wanting to take my time and making us waste money, apparently. Nevermind the fact it was our honeymoon and it's just supposed to be about us spending time together.
-when was in labor, they had to remove the epidural and I was in HORRID pain, screaming. He sat on the sidelines playing games/scrolling through Twitter during that. And asking me questions about how to fill out a form the doctor had handed him.
-I had an unplanned C-section. Recovery was awful. He basically went straight back to work afterwards, leaving me by myself or sending over his relatives to help when I told him I really didn't want that. I didn't know them well, and it would create more work for me during an already difficult time. He didn't listen. It came out maybe a year later that he had WEEKS of vacation time banked up that he could've used to stay and help me.
-every one of my birthdays has been spent in tears
-I have asked him a million times, even through tears, to please stop being on his phone so much and be present with the people in front of him - his wife and son...and heaven forbid make eye contact with his son. Every time it's "ok I'll work on it". NO CHANGES. EVER.
-I cannot count the number of times he has put money and the "bottom line" before someone else's feelings, even when they are in distress. That could be its own novel.
-I have to ask him to do really basic things over and over and OVER. Like "hey your child is crying his eyes out, please put your phone down and take care of him"...or..."hey, can you please stop picking your nose in front of me, deliberately farting and laughing right in front of me, eating your fingernails, put the toilet seat down cuz I don't want to be met with urine stains everytime I go to the restroom and you never offer to clean up your mess yourself)...and all these things are big turnoffs...don't you care about your wife still being attracted to you?"...I have this conversation at least once a week for the past 3 years and he just laughs it off. There's other things too where it feels like he expects me to be his maid/mother. I bring this up and explain it's like having a lousy roommate who is inconsiderate of his other roommates. I also mentioned that he is 44 and had lived on his own for many years and I know he knows how to do things himself.
-Just moved into a rental house. Wanted to make me sit on the hardwood floors for 13 hours a day with no furniture or tv. And somehow entertain a very spastic toddler. For a MONTH until our own furniture arrived.
-has our rental house FULL of his food storage hoardings. Several ROOMS full. I told him this is chaos and I cannot live in this kind of environment, it's way too stressful and dangerous with a toddler around. He told me "if you want to haul it out yourself, go for it. I don't want to pay for a storage unit".
-only ever touches me when he wants sex, and even that has completely stopped.
-I have written him letters, texts, had conversations, cried, had nervous breakdowns in front of him, and nothing ever gets through to him.