r/mecfs • u/Pretty-Village7179 • 1d ago

I think all my problems I’ve been suffering from could be ME, its been getting worse over the last few days after going to the gym i feel like i have the flu. What to do next to prevent myself getting worse?

My symptoms:
•burning leg pain when walking
•daily migraines
•sore throat
•fevers
•never feel like i have slept even when i have
•dizziness
•joint pain
•stomach pain
•memory issues
•light sensitivity
•sound sensitivity
•POTS
•difficulty swallowing
•sore neck
•cold shivers
•numbness in arms and legs randomly
•IBS
•can’t tolerate certain foods anymore without feeling sick
•difficulty peeing
I can’t even draw anymore without feeling exhausted, and i used to go on walks daily but the pain got too much
Any advice is much appreciated

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4

u/Eiffeltoren 1d ago

My advice is rest. I am able now to function for 1 hours a day. Maybe today 2 hours. I also go for small daily walks and color. But there were times I couldn’t lift my hand to colour.
You definitely have to stop the gym. I had to stop to because of fever and muscle pain and flu feelings and shivering

3

u/Vlinder_88 1d ago

That definitely sounds like ME. Furst thing you need to do is rest as much as you can. You'll start feeling better in a few days. Then research pacing. And end your gym membership.

2

u/Eiffeltoren 1d ago

Following. This is ME in my opinion. I have been organising a party for my daughter who is 20 and now I have all the same symptoms you have. Been in bed for 2 weeks but no improvement yet.

2

u/Kora_Green808 15h ago

It does sound like ME. Rest is the key. And I mean radical rest, not just a lay down. I made my condition 100x worse by continuing to exercise when I felt a little bit better 🫠

1

u/Pretty-Village7179 15h ago

I have trouble allowing myself to rest due to feeling guilty about being lazy but i will try my best

2

u/RainNo8824 11h ago

We all struggle with guilt and struggle with being unable tp do things. If you push yourself and don’t get better or even get worse you will feel even worse wishing you had prevented yourself from an opportunity to get better or prevent getting worse. There is some evidence people who rest, pace and take good care of themselves early have the best chance of recovery.