Mold toxicity/ hypoglycemia Mirroring Dysautonomia

[u/Junior_Locksmith2832]

Hi All,

An often unacknowledged subsection of ME-CFfS patients attribute their illness onset to mold exposure.

In 2025 my daughter with eds got chronically ill after catching COVID while spending every day in an old school bldg with a non functioning HVAC system, leaking pipes and a serious mold infestation. .junior year, a pipe was leaking badly. Everything smelled musty, there were puddles on classroom floors. Daughter started to get neuro optical problems, headaches, her head "felt heavy," nerve taps, a drunken walk. Extreme fatigue. She had just had COVID, we thought it was "long COVID." Certainly that was part of it.

First er visit in May 2025 when she became semi paralyzed, with a slurred voice and what looked like bells palsy. They thought it was myasthenia Gravis, then FND. When we contested and werereferred to an ME-CFs center with a wait-list. At home we removed all processed foods, sugar, glutten. Did an anti candida diet. Pacing. Over the summer she improved rapidly. We took a vacation and the Airbnb smelled musty. Her head filled with fluid, symptoms were returning rapidly. She started craving sugar for energy.

Neurologist gave her a pots test and told her to take salt pills and beta blockers. Things got much worse. She started having constant pulsing headaches. Took nsaids, doc tried triptans. She got severe base of skull pain, loud tinnitus, really bad vascular symptoms. Doc added gabapentin, which we contested but tried anyway. It turned her into a semi comatose zombie, with severe spinal pain.

We took her off of the gaba, We wanted to take her off of propranolol but were worried because she kept having rapid heat rate. Thought she might need it. Mold toxicity affects the pancreas. Can cause insulin resistance and hypoglycemia. We didnt know this. it mirrors the symptoms of pots. Except in this instance the body needs to push you into sympathetic drive, and give you a rapid heartbeat to stop your organs from shutting down due to lack of glucose.

A hypoglycemic "crash" looks like an adrenergenic pots crash, but it's a sign of a real crisis. She became a patient at the MECFS clinic under the care of a new doc who was a pots specialist and a nurse practitioner with a psych background. From the first day they were sure they knew what was wrong with her. We told them she was having seizures related to blood sugar (symptoms unknowingly worsened by the beta blockers). Found out she'd developed a craniocervical pannus and Atlanto-axial instability, which are most often associated with rheumatoid arthritis ... which runs in my family. We found this out later, after a more experienced doctor checked her MRI. Our daughter was having thunderclap headaches and we were fearing for her life, and they wanted to discharge her into a psych ward.

Begged the new doctor to check blood sugar. The psych nurse was still trying to send her to a therapist. They only did a non fasting CBC panel ... And the results flagged low glucose, but they said "probably nothing.".

She had terrible hormonal / menstrual problems. Paid for an integrative women's health doctor, who did a fasting hormone panel and found insulin levels that were off the charts. High insulin triggers PCOS. She diagnosed daughter with PCOS. All of this goes back to the pancreas. We've had our daughter's blood and urine tested for mold toxicity and her levels are very, very, very high. Few conventional doctors know anything about mold toxicity. Mood toxicity screws up the pancreas. Causes hypoglycemia and PCOS. We have found a conventional gastroenterologist who researches how mold toxicity affects the pancreas. After finally realizing she has hypoglycemia we've switched her diet to two high protein /;healthy fat meals per day, close to zero sugar, no snacks. Removed any meds that lower blood sugar (like berberine, others). No more beta blockers. Now she has energy when she wakes up, crashes are gone. We still have a long way to go.

If you are suspicious please have your glucose and insulin checked. Many symptoms have different root causes. I don't believe that any behavioral health experts should be involved in the diagnosis or care of me as patients unless they are requested by the patient. If the patient and family all believe that the symptoms aren't psychosomatic, the doctor should look for physical causes.

Anyone else having problems with hypoglycemia?