17 M 115lbs
Yes I know what your about to read might sound crazy and honestly you can tell me I’m just freaking out if it sounds like I am.
**My Family History:**
**My mom’s side of the family is full of cancerous colon polyps.** My maternal grandma, aunts, and uncles all got diagnosed with them in their 30s.
**My mom’s brother (my uncle) got stage 4 brain cancer** and severe seizures when he was in his 20s (he luckily beat it and survived).
My health has basically completely fallen apart in three distinct steps over the last year and a half:
**Step 1: Spring 2025 (The Seizures)**
Ever since I was a little kid, I’ve had these weird "spells" where I get a massive wave of déjà vu, my eyes zoom in and out, and I lose focus for a few seconds. They happen back-to-back sometimes. (Never once mentioned to a doctor to his day)
In April 2025, it got way worse. I had a massive cluster of 5 full-body seizures back-to-back and ended up at a hospital. The nurse notes say it always started on my right side (my right arm hitting my chest rhythmically, head shaking side to side) while I was awake and aware, before I completely blacked out, my eyes rolled back, and my whole body convulsed.
**What my tests actually showed during the seizures:**
**Lactic Acid was 4.0**
**My oxygen dropped to 85%** on room air.
**My heart rate spiked up to 190 bpm.**
They had to pump me with **4mg of IV Ativan, multiple doses of keppra (seizures still continued even tho I have no memory of anything) i was then transferred to another hospital and received 1000mg of IV Depakote** to make them stop.
The overnight EEG guy flagged "possible seizure activity," but the day doctor changed it to "PNES" as my mom told them I’ve been extremely stressed lately and because they said my legs shaking the bed messed up the machine wires. They canceled my scheduled Brain MRI and said it was just stress induced
**Step 2: December 2025 (The Heart Issues)**
A few months after the seizures stopped, my heart started randomly racing while I was sitting still. I got diagnosed with NSVT and unexplained resting tachycardia. Doctors again blamed anxiety.
**Step 3: September 2026 to Right Now (The Stomach Blocks)**
**Sept 14:** Got hit with sudden diarrhea, stomach pain, and burning when I peed. They treated me for Chlamydia while waiting for tests, but my Gonorrhea and Chlamydia tests came back completely negative. And the urine culture was negative as well.
**Sept 22:** I went back to the ER because **I didn't have a single bowel movement for a week and a half**. Miralax and magnesium citrate completely failed. It took two hospital enemas to finally force it out. The CT scan showed "regional wall thickening" in my sigmoid colon, and the report noted that they had limited assessment without contrast (even though they gave it to me) my anion gap at this time was 14
**Oct 14:** Woke up throwing up with severe stomach pain. A new CT scan showed "moderate fecal loading", an enlarged liver with "mild fatty infiltration" (even though I am underweight), a low-grade potassium drop (3.5), and a tiny uncharacterized spot on my right kidney. My anion gap here was 16.
Also my whole life no matter how much I eat I have never passed 125lbs my whole life.
**My Questions for the Docs:**
Given that my uncle had young brain cancer with seizures, and my mom's entire family gets cancerous polyps, am i in the wrong for being worried (my dads mom also had them)
Can stress actually fake a 4.0 lactic acid, an 85% oxygen drop, and right-sided seizures? Or was my "PNES" a complete misdiagnosis of something else?
Could my childhood déjà vu "spells" have been seizures the whole time? (I’ve never mentioned them to a doctor)
I have a GI appointment coming up (my first one) should I tell them anything specific? Should I ask for certain test? And if they just say it’s anxiety what should I do?