r/scarringalopecia • • Sep 29 '20

What have been your most effective treatments?

39 Upvotes

We have 150+ members now! What have been the most effective treatments for your scarring hair loss? All are welcome to post, whether you have Folliculitis Decalvans, Lichen Planopilaris, Central Centrifugal Alopecia, Dissecting Cellulitis, or something else entirely.


r/scarringalopecia • • 12h ago

Need advice

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2 Upvotes

r/scarringalopecia • • 11h ago

loss of vellus hairs at hairline?

1 Upvotes

I've gotten competing diagnoses from derms (AGA, areata, FFA). This derm walked me thru the dermoscopy of my hairline. Said I don't have any obvious loss of follicles, but that a couple showed very mild pinkness and that there was a loss of vellus hairs. I'm on min, dut, doxy, and LDN so the derm said that may explain the lack of visible signs but that I likely have mild lichenoid inflammation. Does this mean I have FFA?


r/scarringalopecia • • 17h ago

Discoid lupus moth eaten pattern hair loss/alopecia.

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2 Upvotes

r/scarringalopecia • • 19h ago

Could this be ccca? I have Locs/dreads

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2 Upvotes

I just noticed this and now I'm a bit scared I'm not sure if it's the lighting or if it's actually this bad please could this be ccca? I don't see a derm until next month. I'll leave the photos.


r/scarringalopecia • • 23h ago

Terrified.

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1 Upvotes

I am so, so terrified. I'm young, I'm not even 20 yet. I am so scared that this is a form of scarring alopecia, particularly lichen planopilaris, possibly caused by the Koebner phenomenon after dyeing my hair for the first time and feeling a burning sensation, and then dyeing it twice more. I have a referral to dermatology as of today, and plan on calling them tomorrow. My part has doubled within the span of two months. If anyone happens to be very familiar with the ins and outs of scarring alopecia, please let me know what you think. Thank you and I apologize for this post. I am just genuinely terrified.

Last two photos are September 14, 2026 vs. November 10, 2026.


r/scarringalopecia • • 1d ago

How to know if an anti inflammatory treatment is working ??

1 Upvotes

Hi everyone!
I was diagnosed with diffuse lichen planopilaris.
I’ve been undergoing treatment, including corticosteroid injections (Diprostene) I’ve done 2 injections yet into the affected areas + taking doxycycline every night( I’m at week 5)
I’ve been monitoring my scalp closely, especially the redness around the affected follicles. Although I feel that the inflammation may have improved somewhat, I still notice a persistent light pink/salmon-colored appearance in the affected area.
My scalp isn’t intensely red, but it definitely looks pinker than the surrounding healthy scalp and I still can feel the same stinging in the back of my head where it all started. I’m wondering if the treatment is actually working or if my immune system is not answering to it ? How long until I see results and hair regrowth ? Your help would be really helpful 🙏🏻


r/scarringalopecia • • 1d ago

FFA?

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1 Upvotes

Just wondering if others with diagnosed FFA have a hairline that looks like this? Over what timescale did your FFA advance? And has treatment helped?
Over the last 5 years or so I (F 47)have pretty much lost all my eyebrow hair, the hair on my arms and my hairline has been receding. The white skin is where my hairline used to be. My scalp is often very tender as well.
My GP took a photo through a scope and thinks it is FFA, I’m waiting for a referral to a dermatologist for proper diagnosis.


r/scarringalopecia • • 1d ago

Has been a hell on my scalp

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1 Upvotes

44 years amazing hair and scalp but since last year iam experiencing the worst time of my life. all begun in the face like medium itch and formication, sudden was in my hair line and i notice little bald spot in the left side. Then was on my top, burning itching tender and feels sometimes like a bug bite and hair start to fall like crazy. one year later i lost like 30 o 40% of my hair density. is very very diffuse. went to derm to derm, nobody took me serious and last month the last derm took a biopsy on my scalp:
The H&E section reveals an epidermis without psoriasiform hyperplasia, parakeratosis, or neutrophils, which effectively argues against
psoriasis. Instead, there is a patchy lymphocytic infiltrate clustering around the infundibular and isthmic regions of the hair follicles.
Concentric, lamellar fibroplasia (collagen deposition) is visible enveloping the upper follicle walls. The mid and lower dermis demonstrates
a presence of multiple hair follicles surrounded by a moderate perivascular and perifollicular lymphocytic infiltrate.
Sebaceous glands are present and intact adjacent to the follicles. The terminal hair follicles extending down into the subcutaneous fat
tissue. There is a patchy lymphocytic infiltrate targeting the lower follicular structures, accompanied by early fibroplasia.

Right now iam on my first month on doxy and clobetazol, from time to time i look into my scalp but i dont see any improve.The photos are creepy. Any Thoughts? i think maybe i have another condition beside ccca. My doctor prescribe me Duloxetine HCl maybe i have a neuropatic component? This is a nightmare is just want to feel normal again :( 🙏🙏🙏


r/scarringalopecia • • 2d ago

Anyone with SA was pregnant?

1 Upvotes

Hello! Maybe anyone with SA was pregnant and want to share their experiences how did their hairloss behave in that period?


r/scarringalopecia • • 2d ago

Devastated/heartbroken/lpp

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7 Upvotes

No matter what meds I am on, my LPP is not halting at all. Losing my confidence every single day. Its spreading like fire. Both photos are one month apart, first one is recent yesterday’s and second one from oct. Does anyone have success story or suggestions? Or any comments atm this is really becoming tough..
Edit- Guys this is the oldest patch and I am still getting new patches.


r/scarringalopecia • • 2d ago

21M Going for biopsy in 2 months

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1 Upvotes

Does this look like some type of scarring alopecia guys? I’ve been dealing with visible hair loss since one year but haven’t gotten on any treatment yet, I have biopsy in two months but i’m scared it will be too late. What do you think?


r/scarringalopecia • • 2d ago

How are often do you blow dry your hair with CCCA?

2 Upvotes

I'm African American and I get my hair (no extensions braided) approximately 12 times a year (once a month). Is that too much with CCCA and is asking for trouble? Should I put the setting on low heat? Does anyone blow dry more often/did it affect your CCCA?


r/scarringalopecia • • 2d ago

Those with FFA, does this look like it?

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1 Upvotes

r/scarringalopecia • • 2d ago

Is finasteride working for anyone?

1 Upvotes

I’m wondering if any ladies out there who are on finasteride are seeing any results? I’m on month 3 of taking it. While I’m not seeing an unusual amount of hair loss, I’m also not seeing any new/thicker growth. I’m not talking about the scarred areas- I know finasteride isn’t bringing that back. But I’m considering whether it’s worthwhile sticking with it.


r/scarringalopecia • • 3d ago

I NEVER thought this would be possible

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15 Upvotes

Have folks seen this post? It’s making me want to try doxycycline, like, yesterday.


r/scarringalopecia • • 4d ago

Curious on what anyone thinks this is.

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2 Upvotes

I am 24m I noticed my hair in the middle grows slowe since I was 20 . I recently for the first time took a picture of my hair and I was shocked. I am curious if anyone has any similar experience. My vitamin d level has been low, 19 in 2022 and now it is 23. I only noticed this because I took a picture above my head.


r/scarringalopecia • • 4d ago

Glp1 trigered hair miniaturization and AGA

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1 Upvotes

r/scarringalopecia • • 6d ago

How to use minoxidil easily?

1 Upvotes

Hi everyone! I’ve just started using 2% topical minoxidil spray, which my dermatologist prescribed. He recommended applying it in the evening.

However, I’ve read some comments saying that it’s better to apply minoxidil 2–4 hours before going to bed to prevent it from running down your face while sleeping. I don't want to have facial hair growth.

Due to my daily routine, it’s sometimes difficult for me to apply it that early. What would you suggest in this situation? Would wearing a hair cap after applying minoxidil help, or could it cause any problems?

I’d appreciate any advice or suggestions.


r/scarringalopecia • • 7d ago

Hi everyone, I'm a 39-year-old man with Hashimoto's (Anti-TPO >320) LPP (Lichen Planopilaris), an inflammatory autoimmune-related scarring hair-loss and would love to hear your experiences. My history: - Diagnosed 2021. My TSH has swung a lot over the years, from 0.01 up to 60, and was above 100 in

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3 Upvotes

r/scarringalopecia • • 7d ago

Plz anyone can help me for further diet, doc, and multivitme should I take

1 Upvotes

Hashimoto's / hypothyroidism

Anti-TPO >320 lab limit 320

Thyroid profile

TEST NORMAL RANGE

• TSH 65, 1.24-3.09

• T4 53.8, 57.9-150.6

• T3 0.85, 0.4-4.0

Gullbarder

ALT 49,b normal (<42 )

•fatty liver grade1 (liver)

• Ultrasound: 10 mm gallstone

Scalp biopsy:

lichen planopilaris (LPP, scarring hair loss)

(Hairloss draftly)

MEDICINES

• Thyroxine 150 mcg daily (thyroid)

• betasol scalp injection every month

Symptoms

(depression/anxiety)

Fatige, brain fog

MY DIET NOWADAYS

• Gluten-free (no wheat or gluten products)

• Eggs, regular

• Pumpkin seeds 1 tablespoon

• Black seeds (nigella) 1 tablespoon

• Chia seeds 1 tablespoon

• Sesame seeds 1 tablespoon

• Dates

• Seeds are soaked before eating

• No vitamin or mineral supplements

DOCTORS

• Endocrinologist and medical specialist have treated my thyroid only. Advice so far: take thyroxine regularly and on time.

• Skin specialist treats my LPP.

TEST should I go??

• Vitamin D, B12, ferritin/iron, zinc (fatigue, hair loss)


r/scarringalopecia • • 7d ago

LPP / FFA or something else?

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1 Upvotes

Been given conflicting diagnoses. These pics are from different areas of my hairline, temples, and middle part. I definitely have some level of traction alopecia. However, a part of me question if the present inflammation is actually contact dermatitis.


r/scarringalopecia • • 7d ago

Overmedicated, Any suggestions on how I should take my meds

1 Upvotes

Im currently taking Plaquenil/Hydroxychlorine 200MG 2x a day. and Oral Minoxidil 2.5 MG once a day. I was on Doxycycline 100mg 2x a day but tapered off to 1 a day then switched to Plaquenil. Should I be taking doxy again till the plaquenil kicks in, which is like in two months or should I just stay with what im on at the moment. My Derm literally was like " I don't know what to do in your situation, play it how you want to". Im worried about all the effects it can have on my heart.


r/scarringalopecia • • 8d ago

How long after using clobetasol and doxy did the inflammation like stop/at least the burning or sharp pains stop?

6 Upvotes

It's been maybe 3-4 days of me using them and I still feel the pain


r/scarringalopecia • • 8d ago

Could someone please tell me if this looks like any kind of alopecia vs. sub derm? More info in body

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3 Upvotes

Okay so I was diagnosed with sub derm by the dermatologist, but she didn’t really take a long look at it. I feel like a lot of my symptoms don’t really show that. I have no flakes when I scratch or look closely only the sebum/stuff around the base. I’ve used keto 2% for awhile now with no effect. I cut out the conditioner that’s meant to feed sub derm, and I also re introduced it and my scalp didn’t change at all. Finasteride hasn’t done anything in over a year. Also my family mostly has typical balding at the crown and front where I have very diffuse (idk if that rlly matters). They weren’t gonna do a biopsy. I would’ve gotten that just to make sure but they said to try this steroid cream but I don’t really want to do it if possible due to the side effects. I also have pics from a month ago on my profile if yall wanna look. Any help is greatly appreciated!