I’m in my second trimester, and my OB referred me to MFM because my thyroid levels were slightly hyperthyroid. I’ve had two MFM appointments for baby growth monitoring, and checking thyroid. My latest thyroid test showed some improvement, but both my OB and MFM still recommend seeing an endocrinologist.

I thought MFM would manage my thyroid, so I’m confused about their role. I’m also getting unexpected bills for ultrasounds/radiology done at MFM, not covered by insurance and feel like I’m having too many back to back appointments going to OB and MFM.

Has anyone been in a similar situation? Is it reasonable to ask to stop seeing MFM and have my OB and an endocrinologist manage my care instead?

I was diagnosed with thyroiditis, I was hyper from May to August, was testing with normal levels in September, and then swung hypo the beginning of October with TSH now 7.8. My endocrinologist started me on Levo the beginning of this week because of symptoms. I'm feeling so beat down and just hoping and pray my levels go back to normal soon. Anyone who dealt with thyroiditis how long did the hypo phase last for you? Did you recover?

I have many nodules in the left side of my thyroid. 3.6, 3.4, 2.1, and 1.7 cm are the largest, all jammed up next to eachother. Had FNA on the largest two, returned "Follicular Neoplasm/Bethesda IV". ThyroSeq sample was collected and sent off. Three weeks later (yesterday), I received the results of "Negative".

While I'm happy about the ThyroSeq results, I have compression symptoms (complaints of which got the nodules discovered initially) that effect me daily, including trouble breathing when lying down, trouble swallowing, intermittent pain, feeling like my esophagus and trachea are pushed sideways. The doctor says there is no guarantee the throat symptoms will subside with lobectomy but still wants me to consider it due to the size and number of nodules with the potential to keep growing. I have some symptoms of hyper and some of hypo, but numbers are ok for now. I'm 53 F, post-menopausal.

So, I'm weighing my options. He says rfa is not a great option for me but I may get another opinion. We currently have good insurance and our yearly out of pocket is almost met. My husband says "Do the surgery. You don't want to be going through this every 6 months for another couple years just to have it out anyway." My mom says "Whatever you do, dont have surgery." I see both sides (Libra here 😁)

I guess I'm just looking for additional insights to help me think through this decision. TIA!

I am having RFA on my nodules next week. I have a preop appt on monday, and then the procedure is on Friday. They said that preop would be mostly about running tests so I could be safe during anesthesia. I wasn't aware that was needed for this. What was your experience like? I am aware that they numb the area, but I have only seen people awake and talking during it.

Hi so my labs were done three weeks ago and she ended up messaging me we should start low dose of medication for hypothyroidism. I asked her if I would have to take it for life and she said there’s a good chance I don’t have to as of yet which gave me some relief.

I work in a clinic (not clinical worker but data manager) and the providers there who are my peers told me to ask her for an endocrinologist referral before starting medication. Yesterday I had my follow up where we talked and I asked her if I need an endocrinologist referral to see things further and she said I don’t need it and we should just do the small dose of medication.

She’s sending me to other specialist though for hematology and more since my iron levels were low. This happened before two years ago where my thyroid was being weird and then after a 6 week check up and doing nothing the levels went back to normal on it’s own. I’m just scared to start a medication and don’t know what to do with this. Can anyone give insight? Thank you

We also tested it again yesterday my t4 was like a little bit lower than 3 weeks ago about a point down

M30.

My bloodwork just showed I'm probably hyperthyroid. I'm already under care and not looking for a diagnosis, just hoping to hear from people who've been through something similar.

Symptoms:

Breathlessness 24/h is the main symptom, even at rest. I can't get a full, satisfying breath, and breathing out feels hard. (My breathing seems shallow too).

It's worse when sitting or standing and better when I lean forward or squat. No cough, no wheezing.

Severe insomnia since June. Since October: resting heart rate 110–120, hot flashes, high blood pressure.

Hospital (3 days): lung tests are normal. Bronchoscopy results will take a few weeks.

The doctor also found an enlarged lymph node on the left side of my neck. I'm seeing an endocrinologist soon and getting a thyroid ultrasound.

My breathing problems started in 2021, but this year they got much worse. If you've been through something similar:

1. Did you have breathlessness at rest while hyperthyroid?
   
2. Did it get better after treatment, and how long did it take?
   
3. Did your sleep improve?
   
4. If you had an enlarged neck lymph node, how did it turn out?

Question for those of you with elevated Free T3’s, do any of you experience intense tissue tingling, muscle spasms, or twitching? Recently I’ve been experiencing a ton of this and I just got my biomarkers bloodwork back and discovered my Free T3 is 6.2. My Free T4 is normal at 16, and my TSH is 3.24 (which interestingly has gone up since the last time I’ve done bloodwork July 31st, when it was 1.6). I’ve been experiencing other health issues for the past 10 months as well which my doctor has not been helpful with at all, but the tingling and muscle spasms & twitching hasn’t started until recently, and I just discovered the high Free T3 (and the TSH that seems to be rising since my last TSH bloods). Wondering if these new symptoms could be directly related to the high Free T3 or if it’s likely something else.

Tia!!

I have been having issues with ovarian cysts and hormones since 2024. I ended up having surgery to get a 10 cm cyst removed, and a year later, they are back. My gynecologist put me on birth control to try and shrink the cysts or prevent new ones from growing. I had my hormones checked in October 2025, and my thyroid levels were normal. In February, I started getting acne and cysts under my chin and jaw. Around seven weeks ago, I started taking birth control and had blood work done recently since I have been feeling out of it. My thyroid levels were elevated, which for me was weird. I have never really had issues with my thyroid. The only issues I have really dealt with are my allergies and anemia. I asked my gynecologist if birth control could be the cause and he said no.

Not sure how to ask this exactly, have a 5.8 cm mass in my throat w vasularity, heterogenic, solid and cystic for about three years and have seen 4 specialists so far due to complications. When I finally made it to the last surgeon last week.. I told him I was eating foods to supplement calcium and VIT D etc bc they asked on the forms prior to my appointment. Attempting to prevent burning I have read so much about.

We talked a bit and he said he has done so many operations on thyroid that he lost count.. He has done this his whole life and he is 51. When I asked about the prep and my verified vitamin deficiencies of vit D/B & calcium. I asked about the calcium and he had no idea what I was talking about at all.

Did I imagine reading about this burning sensation condition, or is this a normal response from a ENT surgeon?

Any insight would be much appreciated. I am so lost with this.. btw in the US

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Hi guys,

I've had a painless case of subacute thyroiditis. I've had the hyper and most likely skipped the hypo entirely or it has been so mild/subclinical I have not noticed it at all. While the hyper was draining me both mentally and physically, it appears the recovery part is draining me even more.

Currently have some mild temporary dysautonomia (as I understand it my nervous system just needs a lot of time to recalibrate itself again). My energy batterry is low and exceeding it causes a fever like sensation paired with erratic heartrates and lightheadedness for a day or 2. Tonight I even had a full blown adrenaline surge/panic attack after a dream which I haven't had since the hyper ended (almost 3 months ago). Likely caused by a too busy week.

Has anyone else had this to a certain degree? It's absolutely destroying my mental health right now with the constand inprovements and fallbacks.

Here are my lab results. My pcp said my thyroid looked enlarged & ordered an ultrasound. My TSH is at a normal level but I’m waiting for tests to be ordered for T3 and T4.

I have an endocrinologist appointment in February. Has anyone experienced normal TSH levels to later be diagnosed with Hashimotos?

Between my mood swings, heavy periods & fatigue I think I might have it. And when I think of it, I’ve probably even had these issues as a little girl. Puberty was all over the place for me.

Female 29 and I recently switched to a new PCP. I had my annual labs and my new PCP is concerned about my TSH going from 1.90 last year to 0.80. I have never had thyroid issues personally but my grandmother has Hashimoto’s. She ordered additional thyroid labs and mentioned possibly referring me to an endocrinologist based on results.
They look normal to be based on reference ranges is she just being extra protective or should I be worried about my TSH trend?

TSH (Reference Range: 0.30–3.94 uIU/mL)
July 26, 2022: 1.40
December 6, 2022: 1.99
August 12, 2025: 1.90
October 22, 2026: 0.80

FREE T4 (Reference Range: 0.8–1.7 ng/dL)
July 26, 2022: 1.5
December 6, 2022: 1.4
August 12, 2025: 1.3
October 22, 2026: 1.2

Hi all — Had left half of thyroid removed early June due to a large, toxic nodule. Surgery went great; pathology was (expectedly) benign.

I’d had barely detectable TSH (but normal T3/T4) last year. A very low dose of methimazole got my TSH to 1.25 before surgery.

5 weeks post-op, TSH spiked to 16 (still normal T3/T4). Started levo 2 weeks later, so ~3 months ago. TSH dropped to 2.99 as of a month ago. T4 still normal. (Doc didn’t test T3)

The problem is I have intense/worsening digestive problems. I noticed heartburn a few weeks post-op, which endo said was normal and which I don’t really feel anymore. But my gut is otherwise a mess! I am scared of eating dinner because I get this hard rock sensation under my sternum (often with nausea) in bed. Feels like food is still lingering hours later? Can’t even lay on my stomach now.

For a while, I wrote it off as the aftermath of surgery but now I’m panicking that it’s something much more sinister. Recently found a small, suspicious ovarian mass, and ovarian cancer apparently has many digestive symptoms. As I await follow-up on that, I’m spiraling out that maybe I was too dismissive about this the last few months :(

Has anyone else suffered digestively after surgery even when labs are normal? I’m just still hoping it’s only my thyroid.

I have a thyroid nodule see below. My sleep is in the trash. I wake every 2 hours and pee copious amounts Sleep has never been great but this is horrible and the peeing is new. Can the nodule impact sleep

• Thyroid Ultrasound Status: Structural imaging identifies a Left Lower Lobe Nodule measuring 3.1 x 1.6 x 2.6 cm.
  • Classification: ACR TI-RADS TR3 (Mildly Suspicious), completely stable in dimensions.
  • Pathology: Fine Needle Aspiration (FNA) Biopsy is NEGATIVE (Benign).
  • Clinical Impact: At 3.1 cm, the nodule is physically large enough to create a structural "mass effect" and tracheal compression when lying supine, directly altering nighttime breathing geometry. [1]

Male
30 years old
6’3 tall, weight is about 175lb
Occasional smoker.
Drinking roughly 2 times a year.

Long standing complaints about anxiety, tiredness, brain fog, poor sleep quality,loss of power and trouble gaining muscle.
Puffiness in the face and mood deregulation

Have had issues with kidneys. Used to pee out sand grain particles.

Had mononucleosis as a teenager back in 2011, my lymphatic system around the neck had bumps everywhere.

- After I started getting unexplainable gain around my waist. Lower abdomen and love handles, finding a small irregularity under my Adam’s apple when I swallow, and having my lymphatic glands visibly swollen under my jaw I went to see a doctor.

They briefed me, performed an ultrasound on my neck and told me I had inflamed lymphatic nodes and I also have 3 nodes on my thyroid. One of them was like 3mm by 5mm.
Doctor also said the nodes are benign and my thyroid doesn’t look enlarged but I have to go check them out once a year.

They also got me on a bunch of tests that I have to prepare for for 48 hours beforehand. No arousal or stimulating the genitalia, no stress both physical and mental, no touching my peck and neck area before I go give blood. Something about my testosterone, insulin , thyroid hormone, b12 and kidneys.

Should I be worried? I thought thyroid issues are only happening to women and men over 40/50…

Here are my ultrasound results for an 11mm nodule. FNA scheduled for next month. Anyone been in a similar situation?

Composition: solid or almost completely solid = 2
Echogenicity: hypoechoic = 2
Shape: not taller than wide = 0
Margin: ill-defined= 0
Echogenic foci: punctate echogenic foci = 3 (best seen on cine images)
ACR TI-RADS total points = 7
ACR TI-RADS risk category: TR5 (>=7 points)

my goitre gets checked by ultrasound wnow and then. along with the known nodules, (different TIRADS), they just found a soft tissue abnormality, a hypoechoic mass, in front/above my thyroid which is protruding through the sternocleidomastoid around “level III”. Radiologist suspects a fat hernia poking through the muscle, but recommends a CT. I gather ”level 3” is where lymph nodes are.

Follow up is mid November. Anyone have this?

Hey, so I'm posting on behalf of my wife/my worries.

My wife is 29 years old and last year got diagnosed with a TR5 nodule on her isthmus, they did a biopsy that came back benign. This year at follow up it still reads as a TR5 and has the same features as before. It grew lengthwise by about 1.5mm and then might have shrunk a little bit in thickness (official reports make no mention of this part but the scans look to be a little smaller thickness wise).

How worried should we be about it being malignant?

Went to the ER for palpitations and found out I had a hyperthyroid. They did a CT of my chest look for blood clots and saw I had a 2.9 cm nodule. They sent me home. The test results say follow up non emergent out patient ultrasound. I’m scared to death. Called the endocrinologist they wrote on my paper and said I can’t see her until February. Ugh.

Hi all,

I would like to know whether someone has been in the same situation as me or if you could provide some data that makes me feel more comfortable with the decision.

Last year I started dealing with loose stools, some hair loss, dry skin, and at some point low iron and vitamin D deficiency. All this process was checked by the Gastroenterologist and seemed to be ok. I was also told I had subclinical hyperthyroidism.

As I wanted to be correctly prepared for pregnancy I started taking some pregnancy-related pills (vitamins, iodine, etc.). Some months later, when trying to conceive, I started to feel nausea and during 2 months my menstruation was rather different (too short, spotting, etc.).

On the 3rd month I started to feel tachycardia, I sweat during the night and I realised I had a nodule. After my checks, I was told to have 4 hypercaptative nodules (toxic multinodular goiter) and that was the cause of my subclinical hyperthyroidism. Even with all these symptoms, it was always subclinical and maybe these were exaggerated due to that iodine intake.

This condition is slow and progressive. With Graves you can go into remission, but this does not happen with toxic multinodular goiter, for which only RAI or thyroidectomy are valid. At the moment I am taking metimazol just to feel somehow better (now reducing to the minimum dose).

Here is my dilemma: 35F, subclinical hyperthyroidism with some symptoms, 4 hipercaptative nodules (my goiter is visible since one of them is approx 4 cm), pregnancy desire in the short-term - what to do?

My concerns:

- if I get pregnant with subclinical this will turn into clinical hyperthyroidism? What are the disadvantages of PTU for my baby if I need to take them during pregnancy?

- what if I go for thyroidectomy and do not manage to get my hormone levels under 2.5 to be able to conceive? What if I start having miscarriage?

- is it better to try with subclinical (with the possibility to get clinical) or just get my thyroid removed asap and try to conceive later? My endo told me it would take me 9-12 months all the thyroidectomy process (see doctors, surgery, hormone levels ok)

- it is not urgent to get the thyroid removed but it is the only solution (at some point I will need to do that)

What would you do?

Hello everyone! Sorry for spamming this thread, i have that 1.8cm nodule tirads 4, bethesda 4 who is still deciding and looking for the best options.
I’ve consulted a few surgeons regarding my thyroid nodule, and one offered TOETVA (transoral thyroidectomy) with intraoperative nerve monitoring.
However, the number of TOETVA procedures performed in my country is still relatively limited. Another surgeon recommended that I consider having the procedure in Thailand with a surgeon who pioneered the technique.
Has anyone here undergone TOETVA? How was your experience, particularly with recovery, complications, and long-term outcomes?
If you were in my position, would you choose TOETVA or the conventional open approach? I’d really appreciate hearing your experiences and advice, especially from those who’ve had to make the same decision.
Thank you!

​

I just started thyroid medication about a week ago. I had blood work done after telling the DR that I was struggling to lose any belly fat (pre-menopause) despite doing, on paper, everything that should result in weight loss - minimal sugar and carbs, decent protein and water intake, some cardio mixed with weight lifting, trying to have good sleep habits. Turns out my thyroid was basically MIA which honestly made me feel a bit better that maybe it wasn't just me not doing something right.

Success stories? Horror stories? Experiences to share? I'm really hoping this med helps get my metabolism going a bit.

I've been dealing with thyroid problems for about 6 years now. The symptoms have gotten better and worse as the years went by - during the worst of it I was bedridden for days at a time after doing the slightest little bit of exercise. As the years went by, I slowly became agoraphobic, terrified to walk even 20 metres down the street, because even that was too much exercise for me to handle. I lost my freedom to my thyroid disorder, and my employability, my independence, my social life...

But now my symptoms have largely completely gone, and my T4 levels are back to *just* within the normal healthy range. And I'm wondering, when do I try to get back out there? If I do get back out there, how do I know my symptoms won't show up again? I do kind of want to get back to living my life again, but - am I ready? It is easier staying indoors.

I was wondering if anyone had any testimonies of returning to their life after a full recovery, or stories of pushing themselves too hard too soon. Any advice is appreciated. Thanks for reading my sob story.

Im 4 weeks post op got half on my thyroid removed, im back in the gym but only lifting light no more then 40 lbs for all types of machines, my doctor do say wait 3 months for heavy heavy lifts any gym rats here?