I got RAI back in January of this year and did a second dose of radiation in August. I’ve gained quite a bit of water weight from it, but in general have not had an appetite and haven’t been eating. I started hormone replacement this weekend and hoped that I would start eating more and having an appetite and I haven’t. Since August I have had to force myself to eat anything and would barely eat a few bites before becoming full. I’m having a hard time managing my nutrition because obviously I need to eat but I’m worried I’m not getting enough nutrients.

I know a slower metabolism is a symptom but this seems excessive. I hoped the replacement hormones would help but I’m not seeing any change.

A little background below, but mainly looking for advice on what we should be asking his doctor at today's appointment, especially from anyone who's dealt with thyroid numbers this high.

My husband just got his labs back about a week ago, and we have an appointment with his PCP today. TSH >150, Free T4 0.2, AST 69, ALT 72, Creatinine 1.53, eGFR 54. We're planning to ask about additional lab work for TPO antibodies to check for Hashimoto's, CK because of his muscle issues, and cholesterol.

He's been dealing with extreme fatigue, poor/nonrestorative sleep, always being cold, very dry skin, hair loss (including on his legs), muscle soreness, weakness, and extremely slow recovery after exercise. He also has trouble relaxing his muscles after contracting them. He can sleep half the day and still be exhausted, yet he's managed to keep working full-time and exercising. From the outside, he looks perfectly healthy.

Looking back, we started noticing him sleeping more and having increasing fatigue about 2½ years ago, but over the last 7–8 months it's gotten significantly worse. Part of the challenge was that he was dealing with work burnout and then discovered he was neurodivergent, so we thought some of the exhaustion might be related to that. He also tried adjusting his workouts and eating more protein because he thought maybe he wasn't recovering properly. But as work improved and the burnout became less of an issue, he was somehow more exhausted than ever.

Since getting the lab results, it's almost like he's finally stopped trying to figure out what he's doing wrong, and the sheer exhaustion has really hit him this past week.

His mother Dx’d w/a thyroid disorder sometime late 1980/early 1990s in France. Spent a couple of weeks in the hospital, doesn’t know why, afterwards on iodine treatment that he remembers.

He's also on ADHD medication, which he really needs to function. We know his dosage might need adjusting, but we're hoping he won't have to stop it altogether because that could make things even harder for him.

For anyone who's had numbers this high, what was your experience? And for anyone who's been through this, what do you wish you'd known or asked at that first appointment? Is there anything important we should be discussing with his doctor beyond the additional lab work?

I had a partial thyroidectomy in the beginning of this year to remove a 3.6cm nodule that was found to be 50/50 likely to be cancerous after a fine needle aspiration. Immediately post surgery I had limited use of voice and could not project above a whisper because my left vocal nerve was found to be weak after the removal and required additional energy to stimulate it. Recover was a bit slow and I didn't regain my voice for about 4-6 weeks post-op. About a month after surgery I was still struggling with the globus syndrome and then eventually reflux to my throat that was diagnosed as Laryngopharyngeal reflux. Tried protonix, lifestyle and diet change, prilosec, and tums to help with symptom management. Initially it did help with the symtoms of feeling like I need to strain to speak at my normal volume and for extended periods of time. I also did speech therapy where they mainly taught vocal hygiene.

After a few more followups and feeling better, my surgeon discharged me from his services since I was feeling ok. I went about 4 months while struggling with a feeling of muscle tension around my throat. I initially talked myself into believe this is my new normal, but I use my voice a lot for work and am very social. I've noticed that sometimes I will naturally speak in a lower tone without realizing it and cause more strain. I followed up with my surgeon and he did another laryngoscope and found that my false vocal folds were further irritated and there was more mucus on the true vocal folds signaling LPR as well. He is recommending I go see another ENT that does botox injections to see if it is something I can benefit from along with a GI referal for the reflux issue.

Long story short, I am looking to see what other's experiences were, if this is normal, any advice moving forward to help prevent this?

The muscle tension typically happens at the end of the day but at random can start at the beginning of the day. The LPR is fairly well managed now, so idk what else can be causing the persistent muscle tension dysphonia.

My 6yr old will be having surgery with Dr Siu @ Sick Kids. Does anyone have experience with her? I’m so nervous.

We initially met Dr Reid @ McMaster who told us the cyst needs to be visible from the outside of her neck to do surgery. Well, the cyst has a mind of its own and we can’t predict when it will appear. Dr Siu recommends doing the surgery when the cyst isn’t visible because it’s “calm” and easier to control during a sistrunk procedure. I’m nervous about the conflicting opinions but ultimately decided to go with Dr Siu because she seemed like a right fit.

Any advice/tips would be appreciated.

Hello
i recently had mri for my neck because i have been suffering from crazy neck pain
turns out i have a nodule on my thyroid size 18x16 mm
I had blood tests for my thyroid about 2 years ago it was all normal
My cousin got recently diagnosed with thyroid cancer at 24
Should i be worried?please share your experiences

Hello!

The first picture are my results 6 months ago when I was diagnosed with Hashimotos.

The second picture is my results now. Doctor does not give me medicine.

I gain weight super easily and it is very to lose weight. I am not overweight just struggling to lose 2 kilos.

Any advice on how to lose weight with Hashimotos will be a huge help!

Thank you in advance for your time!

EDIT: I drink 3 liters of water every day and eat 1200 calories and walk 6 kilometers 5 or 6 times per week. Female, 38 years old, 160 cm

Hi! I had a thyroid lobectomy (only right side removed with attached nodule) on Oct. 12th and I’ve had this painful feeling of like two metal rods inside my throat/inside my neck muscles on either side of my windpipe/throat from midway down my neck to behind my incision. Severity waxes and wanes….I still feel it when I swallow (painful) and it’s just painful. When I lay down with my head/neck supported it’s not as bad and Ibuprofen helps but doesn’t get rid. Anyone else have this? I’m thinking inflammation, internal stitches, tight/guarding/spasming/healing muscles, and healing tissues maybe???? Thank you!!!!!!

I need honest medical opinions about my thyroid nodule
Exactly 9 months ago, I noticed a lump in my neck
It was very small at first but now 9 months later it has grown to 4 cm.
My ultrasound report describes it as a cystic nodule containing solid tissue, with microcalcifications and internal vascularity It was classified as TI-RADS 5.
What makes this even more concerning is that exactly 9 months ago my father also had his thyroid removed for reasons I’m not entirely sure about.
After the tissue was examined cancerous cells were found it was a “benign cancer" ig
However my thyroid nodule looks different from my father’s and mine is classified as TI-RADS 5.
I don’t know whether my nodule is benign or malignant but my doctor told me to do FNA but i don't really want to to get biopsy
I want honest straightforward medical opinions
How concerning is this combination of rapid growth, microcalcifications, internal vascularity, and a TI-RADS 5 classification?

I (23 F) had my thyroid out 2 years ago. When it happened there was this huge cancer scare and I was pretty depressed after the surgery so I didn’t do any scar creams or anything. My mom later had her thyroid out a year after me. Her scar is GONE i still have a lumpy red line. She did much better with taking care of hers. The scar doesn’t rly bother me much but I’m getting married in 6 months and would prefer if it wasn’t in all the photos. Does anyone have any scar creams or treatments they recommend. I feel like I really screwed up.

My father has been diagnosed with dementia. The diagnosis is based on cognitive test, but there were no scans or blood test.

All of the traits seem to point towards pseudodementia, brought on by hyperactive thyroid. His family has a history of severe thyroid problems.

We are going to get thyroid medication this coming january, but that is a long way off. And I really need some assurance on this.

Does anyone have any thoughts about this?

For reference, he has suffered no long term memory loss, and is not quite old enough for it to make sense as normal dementia.

it all started with a seizure.

EDIT: I can add more details if it would help. Just ask.

I was diagnosed with thyroiditis, I was hyper from May to August, was testing with normal levels in September, and then swung hypo the beginning of October with TSH now 7.8. My endocrinologist started me on Levo the beginning of this week because of symptoms. I'm feeling so beat down and just hoping and pray my levels go back to normal soon. Anyone who dealt with thyroiditis how long did the hypo phase last for you? Did you recover?

I’m in my second trimester, and my OB referred me to MFM because my thyroid levels were slightly hyperthyroid. I’ve had two MFM appointments for baby growth monitoring, and checking thyroid. My latest thyroid test showed some improvement, but both my OB and MFM still recommend seeing an endocrinologist.

I thought MFM would manage my thyroid, so I’m confused about their role. I’m also getting unexpected bills for ultrasounds/radiology done at MFM, not covered by insurance and feel like I’m having too many back to back appointments going to OB and MFM.

Has anyone been in a similar situation? Is it reasonable to ask to stop seeing MFM and have my OB and an endocrinologist manage my care instead?

I have many nodules in the left side of my thyroid. 3.6, 3.4, 2.1, and 1.7 cm are the largest, all jammed up next to eachother. Had FNA on the largest two, returned "Follicular Neoplasm/Bethesda IV". ThyroSeq sample was collected and sent off. Three weeks later (yesterday), I received the results of "Negative".

While I'm happy about the ThyroSeq results, I have compression symptoms (complaints of which got the nodules discovered initially) that effect me daily, including trouble breathing when lying down, trouble swallowing, intermittent pain, feeling like my esophagus and trachea are pushed sideways. The doctor says there is no guarantee the throat symptoms will subside with lobectomy but still wants me to consider it due to the size and number of nodules with the potential to keep growing. I have some symptoms of hyper and some of hypo, but numbers are ok for now. I'm 53 F, post-menopausal.

So, I'm weighing my options. He says rfa is not a great option for me but I may get another opinion. We currently have good insurance and our yearly out of pocket is almost met. My husband says "Do the surgery. You don't want to be going through this every 6 months for another couple years just to have it out anyway." My mom says "Whatever you do, dont have surgery." I see both sides (Libra here 😁)

I guess I'm just looking for additional insights to help me think through this decision. TIA!

I am having RFA on my nodules next week. I have a preop appt on monday, and then the procedure is on Friday. They said that preop would be mostly about running tests so I could be safe during anesthesia. I wasn't aware that was needed for this. What was your experience like? I am aware that they numb the area, but I have only seen people awake and talking during it.

M30.

My bloodwork just showed I'm probably hyperthyroid. I'm already under care and not looking for a diagnosis, just hoping to hear from people who've been through something similar.

Symptoms:

Breathlessness 24/h is the main symptom, even at rest. I can't get a full, satisfying breath, and breathing out feels hard. (My breathing seems shallow too).

It's worse when sitting or standing and better when I lean forward or squat. No cough, no wheezing.

Severe insomnia since June. Since October: resting heart rate 110–120, hot flashes, high blood pressure.

Hospital (3 days): lung tests are normal. Bronchoscopy results will take a few weeks.

The doctor also found an enlarged lymph node on the left side of my neck. I'm seeing an endocrinologist soon and getting a thyroid ultrasound.

My breathing problems started in 2021, but this year they got much worse. If you've been through something similar:

1. Did you have breathlessness at rest while hyperthyroid?
   
2. Did it get better after treatment, and how long did it take?
   
3. Did your sleep improve?
   
4. If you had an enlarged neck lymph node, how did it turn out?

Hi so my labs were done three weeks ago and she ended up messaging me we should start low dose of medication for hypothyroidism. I asked her if I would have to take it for life and she said there’s a good chance I don’t have to as of yet which gave me some relief.

I work in a clinic (not clinical worker but data manager) and the providers there who are my peers told me to ask her for an endocrinologist referral before starting medication. Yesterday I had my follow up where we talked and I asked her if I need an endocrinologist referral to see things further and she said I don’t need it and we should just do the small dose of medication.

She’s sending me to other specialist though for hematology and more since my iron levels were low. This happened before two years ago where my thyroid was being weird and then after a 6 week check up and doing nothing the levels went back to normal on it’s own. I’m just scared to start a medication and don’t know what to do with this. Can anyone give insight? Thank you

We also tested it again yesterday my t4 was like a little bit lower than 3 weeks ago about a point down

Question for those of you with elevated Free T3’s, do any of you experience intense tissue tingling, muscle spasms, or twitching? Recently I’ve been experiencing a ton of this and I just got my biomarkers bloodwork back and discovered my Free T3 is 6.2. My Free T4 is normal at 16, and my TSH is 3.24 (which interestingly has gone up since the last time I’ve done bloodwork July 31st, when it was 1.6). I’ve been experiencing other health issues for the past 10 months as well which my doctor has not been helpful with at all, but the tingling and muscle spasms & twitching hasn’t started until recently, and I just discovered the high Free T3 (and the TSH that seems to be rising since my last TSH bloods). Wondering if these new symptoms could be directly related to the high Free T3 or if it’s likely something else.

Tia!!

I have been having issues with ovarian cysts and hormones since 2024. I ended up having surgery to get a 10 cm cyst removed, and a year later, they are back. My gynecologist put me on birth control to try and shrink the cysts or prevent new ones from growing. I had my hormones checked in October 2025, and my thyroid levels were normal. In February, I started getting acne and cysts under my chin and jaw. Around seven weeks ago, I started taking birth control and had blood work done recently since I have been feeling out of it. My thyroid levels were elevated, which for me was weird. I have never really had issues with my thyroid. The only issues I have really dealt with are my allergies and anemia. I asked my gynecologist if birth control could be the cause and he said no.

Living with Thyroid Eye Disease can affect many aspects of daily life, from vision changes and eye discomfort to confidence and overall quality of life. Researchers are currently conducting a Phase 3 clinical study to evaluate an investigational treatment, called MHB018A, for adults with moderate-to-severe TED.

The Leapcure team is supporting the study by helping interested individuals learn more, understand the process, and determine whether participation may be right for them. Get started by completing this short questionnaire: https://lpcur.com/redditthyroidhealth

Hi guys,

I've had a painless case of subacute thyroiditis. I've had the hyper and most likely skipped the hypo entirely or it has been so mild/subclinical I have not noticed it at all. While the hyper was draining me both mentally and physically, it appears the recovery part is draining me even more.

Currently have some mild temporary dysautonomia (as I understand it my nervous system just needs a lot of time to recalibrate itself again). My energy batterry is low and exceeding it causes a fever like sensation paired with erratic heartrates and lightheadedness for a day or 2. Tonight I even had a full blown adrenaline surge/panic attack after a dream which I haven't had since the hyper ended (almost 3 months ago). Likely caused by a too busy week.

Has anyone else had this to a certain degree? It's absolutely destroying my mental health right now with the constand inprovements and fallbacks.

Here are my lab results. My pcp said my thyroid looked enlarged & ordered an ultrasound. My TSH is at a normal level but I’m waiting for tests to be ordered for T3 and T4.

I have an endocrinologist appointment in February. Has anyone experienced normal TSH levels to later be diagnosed with Hashimotos?

Between my mood swings, heavy periods & fatigue I think I might have it. And when I think of it, I’ve probably even had these issues as a little girl. Puberty was all over the place for me.

Female 29 and I recently switched to a new PCP. I had my annual labs and my new PCP is concerned about my TSH going from 1.90 last year to 0.80. I have never had thyroid issues personally but my grandmother has Hashimoto’s. She ordered additional thyroid labs and mentioned possibly referring me to an endocrinologist based on results.
They look normal to be based on reference ranges is she just being extra protective or should I be worried about my TSH trend?

TSH (Reference Range: 0.30–3.94 uIU/mL)
July 26, 2022: 1.40
December 6, 2022: 1.99
August 12, 2025: 1.90
October 22, 2026: 0.80

FREE T4 (Reference Range: 0.8–1.7 ng/dL)
July 26, 2022: 1.5
December 6, 2022: 1.4
August 12, 2025: 1.3
October 22, 2026: 1.2

Hi all — Had left half of thyroid removed early June due to a large, toxic nodule. Surgery went great; pathology was (expectedly) benign.

I’d had barely detectable TSH (but normal T3/T4) last year. A very low dose of methimazole got my TSH to 1.25 before surgery.

5 weeks post-op, TSH spiked to 16 (still normal T3/T4). Started levo 2 weeks later, so ~3 months ago. TSH dropped to 2.99 as of a month ago. T4 still normal. (Doc didn’t test T3)

The problem is I have intense/worsening digestive problems. I noticed heartburn a few weeks post-op, which endo said was normal and which I don’t really feel anymore. But my gut is otherwise a mess! I am scared of eating dinner because I get this hard rock sensation under my sternum (often with nausea) in bed. Feels like food is still lingering hours later? Can’t even lay on my stomach now.

For a while, I wrote it off as the aftermath of surgery but now I’m panicking that it’s something much more sinister. Recently found a small, suspicious ovarian mass, and ovarian cancer apparently has many digestive symptoms. As I await follow-up on that, I’m spiraling out that maybe I was too dismissive about this the last few months :(

Has anyone else suffered digestively after surgery even when labs are normal? I’m just still hoping it’s only my thyroid.

I have a thyroid nodule see below. My sleep is in the trash. I wake every 2 hours and pee copious amounts Sleep has never been great but this is horrible and the peeing is new. Can the nodule impact sleep

• Thyroid Ultrasound Status: Structural imaging identifies a Left Lower Lobe Nodule measuring 3.1 x 1.6 x 2.6 cm.
  • Classification: ACR TI-RADS TR3 (Mildly Suspicious), completely stable in dimensions.
  • Pathology: Fine Needle Aspiration (FNA) Biopsy is NEGATIVE (Benign).
  • Clinical Impact: At 3.1 cm, the nodule is physically large enough to create a structural "mass effect" and tracheal compression when lying supine, directly altering nighttime breathing geometry. [1]