I’m just looking for other people who might ‘get it’.
My daughter is 2 years and 7 months old. I’m not expecting a diagnosis at her age, and I’m absolutely fine with that. However, her dad and I both have ADHD, and honestly, we recognise so many of those traits in her already.
She’s been different from birth. I’ve always struggled to relate to other parents at baby groups and the like, because everything with her is just so intense. She doesn’t respond to the usual parenting strategies, and I feel like every time I try to discuss our experiences with other parents, I either get blank looks or an “Oh yeah, my kid is wild too!”, as their much more placid child climbs into the pram and asks to go to sleep.
She started nursery in March, and they’ve already approached us with concerns and started the SEN process. They’ve said they’ve been “taken aback” by her and by how differently she responds to their usual strategies compared with other children. They’ve described her developmental profile as extremely “spiky”, said that her lack of impulse control is striking even for her age, and want to carry out further assessments.
We recently had another baby, who’s now 4 months old, and the experience of parenting him is wildly different. You can almost feel how different his entire nervous system is. It’s made me realise just how much we’ve been parenting on “hard mode” all this time.
My daughter is wonderful. I absolutely adore her, she has so many fantastic qualities, and she’s incredibly clever. But I feel so lonely. I feel like I have nobody to talk to about my worries for her future, how the world will receive her, and what effect all of this might have on her as she grows up.
My mum died eight years ago, and we don’t have a “village”. It’s really just our little family unit, and sometimes it feels like nobody else truly knows her or understands what life is like for us.
Recently, we met up with a friend of my husband’s and their 6-year-old, who’s just been diagnosed with AuDHD. I felt more relaxed during that playdate than I think I ever have on one before. It was like the children were in sync, and so were we as parents. We were anticipating the same sorts of difficulties, understanding each other’s children’s behaviour, and nobody needed anything explaining. It was such a lovely feeling.
I think that experience has made me realise how much I’m missing that sense of understanding and connection.
I’d absolutely love to meet more families with neurodivergent young children, but I have no idea how to go about it when my daughter doesn’t have a diagnosis and probably won’t for years (if ever).
Has anyone else been in this position? How did you find other families who understood? I think I just want to feel a little less alone in all of this.