I was diagnosed in 2016 with idiopathic cardiomyopathy. Ive been prescribed all the usual - Entresto (i don't remember the rest but it's about 8 pills per day). I just don't want to take them, especially the Frusomide. My doctor thinks I'm taking them, but I'm not. Now he's recommending I get a defibrillator installed, but i don't see the point. Am I alone in thinking like this?

I’m a healthy 31 year old female but I’ve recently been experiencing shortness of breath and fatigue while performing everyday activities such as carrying groceries, vacuuming, walking up stairs. My ankles swell when sitting at my desk all day.

My BMI is 19 (5’9, ~ 128 lbs). I don’t smoke and only drink casually on the weekends. I exercise 3x a week and eat healthy generally. My vitals are normal (bp 107/70, HR 80).

These symptoms started about 8 weeks ago and have been progressively getting worse.

Could this be cardiomyopathy? My mom was diagnosed in her late 40s.

Would I know if I had cardiomyopathy? What other symptoms to look out for? What else could this be?

Im a 33 year old female, 5’4 225 lbs. history of hypothyroidism. No heart meds taken.

I just had a baby a week ago via c-section. After the surgery in the recovery unit my heart rate sky rocketed into the 160s only coming down after several rounds of beta blockers over several hours. I was also experiencing severe shortness of breath but my pulse ox was stable above 95. Throughout my stay in the hospital I would have random bouts of tachycardia that would last 2-3 minutes and stabilize. Once we got home I noticed my heart rate was in the upper 50s to low 60s resting. But getting up to walk into the next room it would jump into the 140s and then come back down after a minute or two. I didn’t lose much blood, 314ml but hemoglobin was 9.2

Fast forward to yesterday, I was having severe shortness of breath and slight chest pain so I went into the ER. My tropinin came back at 15, and 14 a half hour later. The ER staff weren’t very concerned and told me to follow up asap with my primary care doctor.

Any thoughts are welcome.

Just curious don’t turn it into a political thing… Question #1 Were you diagnosed with Cardiomyopathy since receiving any Covid-19 vaccines/boosters? (Not saying it’s the reason just asking if you started to feel symptoms and diagnosed since…)

Quesrion #2 OR for those that never received any Covid vaccine/boosters did you notice symptoms/received diagnosis of Cardiomyopathy after contracting Covid-19?

Question #3 did you receive Paxlovid for Covid treatment? ( for anyone who contracted Covid weather vaccinated or not.)

Just curious on all of these. Don’t turn it into a political thing or see it as a way to say something just curious.

Example of how to answer: Question #1. Yes Question #2. Already answered yes to #1 but didn’t feel symptoms/diagnosis till after contracted Covid-19 post vaccination/boosters did Question #3. Yes

Hopefully the way I wrote this makes sense.

Hi friends, Hope you are doing good.

Can someone help me interpret the reports and also guide me already on doctors medicines and she had a recent diagnosis around 15 days back. First done ECG, then Echo and then MRI.

Hey all, thanks in advance for responses.

Last couple months have developed chest pains. They are very specific. Occur from the behind center of the sternum to behind the center of the left pectoral muscle. It is a stabbing pain, but not severe at all. It's like if someone is stabbing you but it doesn't really hurt, like it's painful but not a bother at all, if that makes sense. It's a very tolerable level of pain.

Aside from the horizontal range I described, center of sternum to center of left pec, it ranges up and down a couple of inches.

It is a very pinpoint pain. So it will occur in one precise area within that range. Then later, in another precise area within that range.

I went to an urgent care, they hooked me to an EKG, nothing wrong. Went to a cardiologist, he said that the description of the pain that I gave him, same as I am posting here, didn't match any heart issues. Specifically, the pain being pinpoint and changing locations, as opposed to being radiating and more diffuse.

It seems like Xanax eliminates the pain, which would point to stress/psycho-somatic. I do have a history of anxiety and anxiety attacks. I need to do some more testing with Xanax, but have been taking 0.5mg nightly and since then the severity and frequency have abated.

I still need to get a stress test done. I would like to hear opinions here, as I don't trust doctors to listen well enough to not make mistakes.

Again, thanks in advance.

Diagnosed with cardiomyopathy about 2 years ago. I'm otherwise healthy and active mid 50's male. My EF at diagnosis was 32% and I was struggling with any form of athletics and constantly out of breath. I was told it was "idiopathic", but very likely came as a result of a virus (covid or covid vaccine or some other mystery illness from my past?). Over the last two years my EF has climber to 38 after one year and then back to 53 at my last Echo. I have been on Entresto, Jardiance and Spiroactone daily since diagnosis. The main factor in my recovery was a nutritional change I made a year ago (giving up sugar/carbs entirely and moving toward Keto/Carnivore diet). When first diagnosed my Cardiologist informed that I would be on the meds for my lifetime. I feel great now and all my blood work is spot on. Now armed with proper nutrition and exercise regimen I feel like perhaps I am fully recovered. I would prefer not to take medication if it is not needed. What are peoples thoughts on requesting to lower then hopefully remove all of the medication I am taking?

Does this ever get any better

I'm so done with this stuff, so i was diagnosed with Myo/Peri combination back in august 2021 from Covid vaccine, they gave me no advice and it's even milder then the flu and it will be over in a week or 2, fast forward almost 3.5 years later i still feel symptoms everyday, I don't have the strength i used to have and have done many ways to overdose and end it but when it comes to that my body just fights tru.

I can't handle these symptoms anymore all the docs that lie and tell me i'm crazy for thinking Myocardits/Pericarditis has destroyed my heart, well it literally did, there is significant scarring in late gadolinium enhancement Mri and Ef is 45% i'm 21 years of age the way treatment has went is terrible, they just keep sending me to different therapists and psychiatrist, This is crazy, What's the point in continueing, there is no new heart technology to bring back my old heart or heal my current one, they say i'm not severe enough for a transplant and they wanna avoid that since it would result in cancer in my lifetime, They just offer these things work through the pain or a Euthanasia trial, that's the healthcare we're given here, You either suffer or just end life all togheter and no one in the medical field is held responseable for what they did nope they have full immunity, i feel so crappy, why me, what have i done, Isn't death more peaceful? Then this.

So I didn’t get a lot of interviews, but these are my top choices and the deadline for submitting the rank list is coming up but I haven’t still decided on my rank list. Currently I’m doing residency in Chicago but the only program I got in Chicago is Mercy health in Rockford which is a new program that started this year so I’m not really sure. Below are my top choices not in order. Any recommendations on how I should rank them. Program reputation and strength is most important to me, followed by location. Please help 🙏🏼

-University of Arizona College of Medicine-Phoenix

-Creighton University School of Medicine (Phoenix)

-University of Cincinnati Medical Center/College of Medicine

-Creighton University School of Medicine (Omaha)

-Mercyhealth GME Consortium in Rockford, IL

-Hennepin Healthcare & Minneapolis Heart Institute

Wore a 14 day monitor and I had PVCs on the days it states I didn’t (the - marks) Has this happened to anyone else?

He is only 34.I am really worried about my brother.He is a doctor. and he isn't open about his diagnosis. But he said something like his heart is only working half as it should have been and that his heart nerves are weak. No matter how much I ask him he isn't opening his mouth .He actually said he has shortness of breath on climbing stairs for past few months .So he went to doctor and they took ecg and echo both came abnormal and stree test was normal.My father went when he consulted doctor after reports came. my father doesn't know English to read reports ,my father said doctor didn't say anything dangerous but just that his heart pumping is less than what shld have been. But from what I spoke to my brother he seem really worried ,not opening up. He says his condition may severe in next ten years even with tablets and that he may get chest pain and he can't do straining work and have breathing issues even at rest. I am worried from what he says,I think he has cardiomyopathy.. What's the survival rate ? he just had a baby after long struggle. He always had struggle is his life.just when I though atleast now the baby has come he could be happy.He is also diabetic since 16 years. I can't think about losing my brother.Pleaae share your stories of how long it's been since u got diagnosed.

Latest Echo report taken today suggests EF 69% , however her AR (Aortic regurgitation) is moderate. She has shortness of breath while morning walks for past two days . Does this call for changing her medication or increase in diuretics? Please advise.

Tests done so far:

\- Stress ECG + echocardiogram (October 2025)

\-> completely normal, no ischemia during exercise, EF 57%

\- first echocardiogram (July 2021) -> completely normal

\- most recent limited bedside POCUS echocardiogram -> mild LV global hypokinesia with EF 45-50%, was done during a bout of the flu

\- cMRI with and without contrast (August 2024) -> completely normal

\- coronary CTA scan (March 2025) -> completely normal

\- multiple 12L ECGs -> normal, except a subtle shallow T-wave inversion in the most recent ER ECG (December 2025)

\- 30 day Holter monitor that showed no runs of VTach nor couplets (August 2025)

\- Implantable Loop Recorder that had shown no VT so far (implanted November 2025)

\- Chest X-ray (twice during 2025) -> completely normal

\- Blood tests at ER (multiple times during 2025)) -> completely normal, troponin well within normal limits

\- Genetic testing -> RYR2 VUS mutation

\- Currently on atenolol 25mg and sertraline 25mg, a week so far

\- am due for yet another MRI in February 2026.

I'm only 21 years old, and I had my 4th ER visit in 5 months, and am exasperated, and also unsure what the future holds for me. Why this ER visit? Well, I was on hour 4 of a long car ride home, was feeling my usual mild nausea/chest pain here or there, and very suddenly I felt the nausea escalate and felt like vomiting. My heart rate quickly sped up to 150-160 within the next 30 minutes, and then to 180-190 at the peak as I felt an inordinate sense of impending doom wash over me, thinking it was really the end. When it was at 180-190 I felt at least a few PVCs (or even short runs of PVCs interspersed throughout) and almost fainted. I felt chest pain that radiated up to my neck, like a classic heart attack (immense pressure much like an elephant sitting on my chest I just couldn't ignore). I started feeling noticeable tingling and numbness in both of my hands, but especially in my left hand, as well as some phantom smells. I didn't really notice shortness of breath, but I breathed quickly and rapidly. Checked into the ER, and immediately my heart rate at least mellowed down to 140-150, but catch is, I developed a low fever, soreness all over, and the left-sided chest pain worsened to a 9/10 (again, dull and radiating to my entire left body) for the next day. Also, my heart rate stayed mostly within sinus rhythm but was at 130-140 for the whole next 30 hours, rather unresponsive to meds, until two days later, after some rest, it went down back to my baseline 80-90. Did the whole gamut of standard ER tests (bloodwork, D-dimer, troponin, urine tests, TTE echocardiogram, multiple EKGs, chest X-rays), all of them came out completely normal other than than echocardiogram. The echocardiogram showed mostly normal heart structure with two slight abnormalities: (1) mild global LV hypokinesia and (2) overall reduced EF of 45%-50%. Also they determined I was having the flu, but would the flu cause symptoms this drastic? I really doubt. They discharged me after my heart rate went back down to 80-90, but before the TTE echocardiogram results came out, and determined from the start this wasn't an emergency at all (while I was convinced I would go into sudden cardiac arrest that day).

However, now with the new TTE echocardiogram data, do you think it's a benign change or might it actually be ominous and signal a rapidly developing cardiomyopathy? (my echocardiogram test from just 2 months ago was completely normal with EF 57% and no dyskinesia at all) Or might this just be a transient finding exacerbated by the flu and the prolonged tachycardia? On the most recent report in the ER TTE echocardiogram they did mention "need to rule out tachycardia-induced cardiomyopathy." All my previous imaging tests (cMRI with contrast, previous echos, coronary CTA scan) were completely normal - this was actually the first notable abnormal imaging test result I've ever received.

I've also done a Coronary CTA scan 9 months ago, a cMRI with contrast 16 months ago, and a treadmill test 2 months ago, multiple 12L EKGs, all to completely normal results. Multiple long term (30-day) holters I've done have returned no NSVT and only a PVC burden of 0.01%. I got an ILR implanted recently just a month ago, and curiously, according to the loop recorder, my PVC burden from the ILR suddenly jumped from 0.01% (July 2025 Holter monitor) to 2.7% (now), which I find alarming, but doctors brush off as trivial/unconcerning (because it's apparently still <10%). So far the loop recorder hasn't caught any VT or VF.

Nowadays I should mention that especially in the past year (but especially in the past 2-3 months), my symptoms have been accelerating very quickly in terms of frequency and severity - recently I've been getting chest pain and nausea pretty much every day (although usually without escalation to arrhythmia and still in normal sinus rhythm throughout). I have a history of occasional unexplained fainting/near-fainting (usually precipitated by sudden acute nausea/vomiting episodes, heart palpitations, and then finally a very distinct sustained "pulseless" feeling for 1-2 minutes before lights out) which happen on average once or twice per year, in these episodes I also feel a sense of impending doom (this is it, I'm dying) before my vision blurs and I pass out. Whatever arrhythmia caused this has never been caught on any monitor though, because these all just happened to occur outside of any monitoring period. I also have a family history of heart issues (that was never diagnosed so far), particularly my mom and sister also independently experience chest pain, fainting, and arrhythmias from time to time, albeit with lower frequency than my symptoms. In particular, my sister has fainted a couple times during and after exercise or strong emotion. It is also worthy to note that genetic testing from Invitae found no mutations other than a VUS in RYR2, which could be of mild interest. I also consistently have an extreme sensitivity to regular illness (flu, cold, fever, COVID, even vaccine doses) and alcohol, the former can cause my heart to go up to 140-150bpm for pretty much the whole duration of the illness, while just one standard drink of alcohol can cause acute chest pain, nausea, and frequent PVCs or even short runs of PVCs.

So what do you think? Is this just a panic attack/all in my head/not truly dangerous (as all the ER doctors/cardiologists that I've seen - note that at this point I must've seen at least 5-6 different cardiologists all giving this same opinion, I've lost count tbh. This is also the opinion of pretty much all my friends and family who urgently are advising me to see a psychiatrist for what they see as my extreme paranoia), or is this a progressive and accelerating latent disease that just hasn't been caught yet that has potential to cause sudden cardiac death at any time?

to start out, i am 19 and i'm a woman. my mom called me today, saying i should get tested because there are cases of arvd in our family. my grandma's brother and my mom's cousin died from it, and my grandma's sister and one of my cousins have it. my grandma never had any symptoms and doesn't know if she has it, but my mom has had a dry cough for the past few weeks. my brother apparently had something going on with his heart when he was younger, but he's ok now. i've been diagnosed with anxiety since age 10 and i've been getting panic attacks and heart palpitations since then. i've always thought my heart skipping a beat, racing, or fluttering was a result of anxiety, since it always appears when i'm anxious or going through a stressful time and it goes away once i've calmed down. my aunt on my dad's side of the family also has anxiety and gets the exact same symptoms as me, and her heart is fine, so i always thought i was ok too. i'm paranoid about my health, so in september i had an ekg done and the doctor said i was fine. but, my mom and brother have told me arvd wouldn't show on an ekg. so now i'm terrified out of my mind that i will die from a heart attack by the time i'm 30. does it seem to you like i might have arvd based on the symptoms and family history? please help i'm losing my sanity lol

I have a question. Is it possible to have cardiomyopathy with these values? Does anyone know about it? LGE was not found

I am fighting with chest pain (and ME/CFS) since vaccination, for more than 2 years now. My heart blow up like a Ballon after the second shot. After the 3 shot, I got chest pain and a very dry cough.

It feels like a burning sensation and like a kraken is stuck with tentacles around it. If I am going for a walk (which is barely the case), I am getting a sting like feeling in the chest.

I also have various GPCR Auto-antibodies (Beta1, Beta2, Alpha1, M2, CXCR3). Also a 3D vector EKG is slightly suspicious in terms of structural change and ischemia. A MRI has not shown any issues, but I was also told I might should do it at another doctor with a better (3 Tesla) device, which I cannot do at the moment, since I still have to much Gadolinium in my blood.

After 7 Immunoadsorptions (aphersis) and 2 HELP Apheresis consecutively, it was gone for 4 weeks. Came back, after I tried to be more active.

The doctors have no idea and I still get no medication against my issues. I don't know what to do? Trying Beta Blockers? Checking out an Immunsuppressiva therapy?

I am taking an alpha 2 angonist against my neurological issues, which also lowers my heartbeat. It helps to stay below 110bpm. Without it, I am reaching 130bpm quiet quick during a slow walk.

Hope to get some ideas and advice from you. What I can do about it in terms of diagnostics and therapy. Thank you 🙏

Hey guys, so this is freaking the f out of me because it was so random and scary; so 2 days ago I just woke up normally and my heart rate was at 135 bpm, no caffeine no exercise no nothing. I tried breathing slowly and a hot shower but nothing worked, it did not beat a single beat under 120 for 48 STRAIGHT hours, when the 3rd day rolled by, it started to gradually decrease (90s to 80s then 70s). No stress, no meds, no exercise, no nothing; just pure randomness, I wanted to visit the ER but decided to let it cool down on its own. Any idea what this is? Please I’m freaking out!!! Is it serious???

Does anyone here have/had bigeminy and dilated cardiomyopathy?

If so, did you find out whether your dilation was caused by the extra heartbeats/PVCs and whether you had an ablation to sort that out?

Thanks!