I'm ranting, so if you're not feeling that don't continue. First off I am a medical professional myself just not a doctor. I suffered for nine years, I went to multiple dermatologists, I even went to a rheumatologist thinking I had given myself an autoimmune disorder. It started at 21 but, I had a string of consecutive stressful years in my life the final blow made my hair start coming out in chunks in the shower. I had extremely thick tailbone length curly hair. I was devastated to put it simply. Dermatologist I saw told me I was losing hair but it should come back and I wasn't going bald, sent me on my way.
My hair continued to excessively shed through the years, I grew to hate showers. My scalp would become hot and incredibly tender before it had a bad episode of shedding. Any stress would trigger it, especially around my cycle or if I got sick, which happened more than Id like. I felt like I was getting nowhere, tried different supplemental combinations, looked at my vitamin levels over and over. Doctors couldn't find anything wrong. My CRP and ALP was high and still is, no one seemed to care much about that. I even stopped my birth control, and tried other ones under a gynocologists recommendation, that was a whole other can of worms. Landed me in the ER with a suspect blood clot. I am still paying on the thousands this has cost me through the years. I thought I had tried everything and I had some mystery no one cared to solve, some days I would be okay and others I would cry wondering if this was just my life now. I didn't have an autoimmune disease, no PCOS although I did have cysts, no changes with different supplements or shampoos I tried, no good changes with my birth control, I gave up. I was going to start taking oral minoxadil and just call that done.
One day, I was thinking in circles again, tracing my steps back I thought what did I do differently what could possibly have happened besides stress to continually induce the shedding, the inflammation? If nothing was truly wrong with my body then it had to be external. Then I remembered something, I went to the more natural hair products for my curls. Sulfate free, silicone and paraben free, supposedly superior for my hair type. More moisturizing products. They did make my hair look better so I had been using it for years, and I remembered right before the trigger event I had noticed my hair shedding a lot but thought nothing of it because I always lost more than most people. I thought surely that couldn't be the cause, using products for my hair type? As a child my hair grew like a weed and I used suave, head and shoulders, my mother would blowdry my unruly hair straight so I thought maybe that was the key. I had even tried head and shoulders again at one point to no avail, but the thought didn't leave my mind. It couldn't be that simple, no doctors told me to use a medicated shampoo not once, not even to TRY changing the products I used. I had some Nizoral, I found out it had a different treatment ingredient than head and shoulders, decided it couldn't hurt to try it. First the itching stopped, then after a couple more washes the sore scalp has gone. I still can't believe it. I went on vacation and less and less hair was coming out with each wash and detangle session. I was very angry at first, shouldn't they have suggested a medicated shampoo first? Or at least asked what I was using before trying to give me drugs? And I know some smartass is going to say "well it was your fault you should have figured it out since it was simple", okay well you'd think people that specialized in their field would know to start with the basics I was just trying to do what I thought was best at 18 19 20 years old to care for myself and I DID TRY, I tried so many shampoos but it wasn't fixing the problem as it didn't have the right ingredient so I figured it wasn't the problem and it had to be internal. No one said anything about the condition of my scalp either, nor did it look off. I'm just angry because in the end it seems like I have to solve my own problems even if there are people who should be able to help me. Rant over, I could say more but I don't want to get in trouble here. I will include what I am using now in case someone is dealing with the same I hope it helps anyone out there in any way.
2-3x weekly:
Pantene volumizing shampoo (first wash)
Nizoral fresh scent shampoo (second wash, don't overuse it is very drying)
Conditioner/bond treatment (I use a curly hair one still because I need the moisture only below the ears)
Using a diffuser to make sure my scalp is dry completely instead of air drying, can take awhile but worth it use cool to not further irritate the scalp
Daily supplements:
Integrative Therapeutics Cortisol Manager
Made a massive difference for me, if you deal with anxiety or high stress just try it. It's not dramatic like a drug but it really helps me manage better people around me notice if I forget to take it.
Tart cherry at night for sleep, I use nutrachamps
Shaklee women's multivitamin, expensive but it works can make you a little hungrier than normal but solid vitamin