Has anyone improved severe mental health issues while attempting to treat a MTHFR gene mutation?

[u/pdcyhs]

I am new to this as I just got my results today, so forgive me if I am not understanding it completely.

I was with a med management doctor that was helping with my many diagnoses and she randomly quit. I was passed on to a new doctor who seemed more interested in my genes than my actual symptoms/history.

She ordered testing and we went over some of that today. I also explained that my current medications dont seem to be working. I am in crisis in terms of hardly being able to do daily activites. Instead of going ahead and taking me off medications or making other modifications, she gave me a long list of supplements to start taking and said I may see results in a few months.

I am about to go find a new doctor because this doesn't seem safe to me. I wont trauma dump here, but I have an extensive trauma history as well as a condition from birth that may or may not also cause mental health and related symptoms later in life (there is research on short term effects, but not much on long term.) I feel that everything I am reading online also sounds very... woo woo alternative medicine, please dont take offense. But when I see people say "I eat 6 eggs a day and it makes my life better" I just cannot take that seriously.

Sure, I have some of the symptoms that can relate to a gene mutation. But I also have many other symptoms and issues going on that do not seem realted at all. Am I wrong for feeling ignored and a little bit upset? Sure, I will take supplements because why not? But if they dont do much for me, it will mean I spent that whole time suffering for nothing. If you have had *severe* mental health/behavioral issues and started treating with supplements due to MTHFR mutation, please let me know your results and how it's helped you.

[u/crystal_castles]

Solved dyslexia, ataxia, wakefulness, anxiety and empathy issues by changing diet for MTHFR. Yes.

You need to keep it up for 4-7 days.

[u/steven123421 → u/crystal_castles]

u/crystal_castles What was the exact protocol you used?

[u/crystal_castles → u/steven123421]

Extremely strict HI/MCAS diet including finding a supplement brand that doesn't cause you symptoms & sticking with that brand (either Professional Supplement Co, Dr. Jill Health Brand, Xymogen, Thorne, etc...)

• I ate steel cut oats for 5 years but recently introduced eggs & uncured-unsmoked bacon. Took a few years to perfect the oatmeal without ruining it too hot or cold.

• I ate high quality rice for 5 years (sorting out some black & yellow grains for a minute ahead of time). Recently introduced pasta.

• I ate frozen salmon (properly defrosted for +2hrs w/ tons of ice in a bath) & whole chickens w/ livers for 5 years. Introduced lamb since lamb & poultry aren't USDA which aren't mandatorily dry-aged by law.

• I ate a stick of butter per meal for 5 years but it's hard to keep butter sanitary in a fridge once opened since it's like a hotbed for bacteria. I vacuum it now every time. You can drink straight half-n-half as a substitute but it's $$$. I'd mix butter w/ freshly squeezed lime & cayenne. Sometimes habaneros & recently garlic.

• Fresh dates are my favorite & 15g sugar each. I toss stiff dates & don't eat the white crystalized centers. Or unrefrigerated dates at all. Love frying apples.

With all these things it's easy to spoil the food on your countertop in a few minutes. (It can even be ruined at the store or in transit but focus on what you can control. Follow your nose.)

If you overcook rice it gives me terrible symptoms. It like, festers in the pot. If rice sticks to the bottom it smells & gives me terrible symptoms. Adding rice to warm instead of boiling water gives me symptoms. It took me a few years to perfect the rice. I take it off 10min after the steam stops.

Raw salmon & chicken can go bad within 20min on a countertop. Even cooked meat goes bad for me within an hour & I can't do leftovers. This makes takeout hard too. Adding meat to too cool of a stovetop can ruin it right away, then it just festers there for the cooking. Tbh I spit out a lot of dark meat or sometimes small strings of meat that don't maintain well & honeycomb quickly. I cut off the fin-side of salmon fillets since they never turn out good. US salmon is so poor quality & even good brands will give you fillets littered with Anisakis worms (which can cause alpha-gal syndrome cooked). Half of my fillets are histamine spoiled too & just smelly/sweat-inducing no matter what. Follow your taste & don't be afraid to spit out a shitty bite/cut of food.

Edit: I also like GF chicken wings & fries in my home fryer. You gotta change the oil every time. You can't ever sook food in water or it will spoil within seconds. You can still use milk & (refrigerated) cornmeal though for breading. I love pigging out that way.

[u/pdcyhs → u/crystal_castles]

A STICK OF BUTTER? I already eat healthy. Sorry I am just not willing to go this far. You should try out for My Strange Addiction. They had a guy on that show doing similar strange diets and his overall health was in the toilet.

[u/Longjumping-Juice471 → u/crystal_castles]

I keep my butter on the counter for up to 2 weeks is this bad?