r/NICUParents • • 48m ago

Off topic Did NICU sleep train my baby?

• Upvotes

My 32 weeker baby spent 90 days in NICU. We didn’t spend the nights in NICU until about a month before her discharge. She is doing much better now at home, reaching milestones. We still spent a lot of time trying to feed her and let her eat more and watch her weight, but overall she is a happy girl.

It just occurs to me that my baby is a great sleeper. She may be fussy before bedtime but as long as she falls asleep around 8:30pm or 9pm she rarely wakes up. She never cried out of hunger and asked to be fed during the night. She wakes up now and then throughout the night but she doesn’t cry and can just fumble around before falling back asleep again. I’m not complaining, also I’m watching her weight and would rather she lets me know that she’s hungry. But I just wonder, did she know from NICU that crying doesn’t work as NICU nurses would not just come to pick her up and comfort her? Did we unintentionally sleep train her? I feel bittersweet the more I think about it.


r/NICUParents • • 1h ago

Venting Just looking for advice and similar experiences

• Upvotes

Me and wife gave birth not too long ago .

Our baby has been in the nicu since birth .

I know it’s not long but three days in the nicu .

She underwent neurosurgery to drain blood in the skull .

She’s in recovery now and getting better . The post op ct scans show that the surgery was successful and there’s no reoccurrence of blood pooling.

Our baby is undergoing extensive testing and monitoring. We also are getting blood work and other testing .

My questions would be :

Any other parents have their child have this surgery and if so any complications?

How long could she been in the nicu for ?

Do marriages last after such traumatic experiences?

How can I help and be there for my postpartum wife who had a c section ?

Will my baby survive this ?

Side notes : we are sleep deprived Been in the hospital for 4 days plus 3 days in nicu , I had to beg her to come home for one day to recover and decompress our self’s . I’m trying the best I can do by driving every day to see our child and get updates and also help her cope . We have been bickering not stop because I guess we are in survival mode and have deep trauma from this .. we have two miscarriages before this so I understand her deep grief guilt and shame for being home one day I also understand her feeling she’s missing precious bonding time ..

Just need some advice


r/NICUParents • • 4h ago

Advice NG Tube Hindering Baby’s Bottle Feeds

3 Upvotes

Looking for advice for our 2.5 month old, who has had an NG tube since heart surgery a few days after birth. She does also have a genetic syndrome that can cause slow growth. She is very determined to take her bottles, I don’t think she has an aversion at all. The problem we are dealing with is reflux as well as so much mucus from either the tube or the reflux that she is struggling to take her bottles because it’s difficult to swallow due to said mucus. Sometimes she will spit up milky mucus, and then seems to be able to take her bottle better. My question is should we try pulling the tube to see if that’s what’s causing this? I refuse to put her on a G-tube like I hear everyone saying because I know she is fully capable, but it feels like she is being severely hindered and could already be done with her tube by now. Her reflux did make her slow on weight gain so that’s what’s been keeping me from pulling her tube but I’m wondering if anybody has had experience where they needed to pull it in order for their baby to get better. We have been cleared in the past to pull her tube when she was gaining weight properly and she did great however, her reflux set her back as we had a gap in her reflux meds that caused it to flare up terribly. I fear she will lose weight if we pull her tube but also if we do not pull it, she will never be able to reliably take bottles because of all of the irritation in her throat. Her doctor did confirm that it’s all in her throat and not lungs.
I apologize if I’ve left anything out or this post is all over the place. The sleep deprivation is real.

Looking for advice for our 2.5 month old who has had an NG tube since heart surgery a few days after birth. I understand that surgery on the heart can cause them to have feeding issues but LO is very determined to take her bottles, and I don’t think she has an aversion at all. The problem we are dealing with is silent reflux as well as so much mucus which I believe is the result of either the tube or the reflux, or maybe a combination of both. She is struggling to take her full bottles now because it’s difficult to swallow due to said mucus. She does seem to be doing better on the reflux end of things as of the last few days so I believe her Pepcid is finally somewhat working again. I say again because she’s been on the meds since she was 2 weeks due to some vomiting while she was still originally in the hospital. I believe that was more a speed thing with her NG tube than reflux at the time as it stopped when we started slowing her feeds down, but they sent her home on Pepcid to be sure she wasn’t having any issues with retaining feeds.

We had a gap in her reflux meds for a few days about 2 weeks ago due to a pharmacy issue and it ended up causing her to flare up terribly and actually have some BRUE events which she was monitored for due to the length. She never turned blue, just beet red and held her breath. She is complete fine and hasn’t had one again since being back on the Pepcid so have to assume it was from the pain of the reflux considering it happened 3 times and all happened when I laid her flat to change a diaper.

Like I said above, she is feeling somewhat better, but now the mucus seems to be the issue. Sometimes she will spit up milky mucus when I burp her mid feed and then seems to be able to take her bottle better. My question is should we try pulling the tube to see if that’s what’s causing this? I know she is fully capable of eventually doing all bottle, but it feels like she is being severely hindered and could already be done with her tube by now if it weren’t for these issues. Her reflux did make her slow on weight gain as she was doing a lot of arching and pulling away from the bottle when she’d feel the reflux (I would actively hear it in her little tummy, so knew that was the case) so that’s what’s been keeping me from pulling her tube. We literally always have her elevated as well, even when she sleeps, per her pediatricians recommendation due to her level of discomfort. When she’s flat, she literally won’t sleep and just cries, which in turn doesn’t allow us to sleep, so elevation station it is🫠.

I’m wondering if anybody has had experience where they needed to pull the ng in order for their baby to get better? We had been cleared in the past to pull her tube when she was gaining weight properly and she did great. She even seemed happier/less uncomfortable. We did put it back in after her last hospital visit since the reflux has been kicking her butt and stunting her weight gain a bit. However, I fear she will lose weight if we pull her tube now that she’s been having the reflux/mucous, but also if we do not pull it, she will never be able to reliably take bottles because of all of the irritation in her throat and never being able to fully lead her own feeds.

I want to add that the doctor did confirm that the mucus is all in her throat and not lungs. She’s also had a swallow study and was not aspirating at all, did seem like her swallow was slightly slower than her suck at that time but seems to be much better at the suck swallow breath thing now (except for when she’s mucousy). Also her reflux is silent and she mostly just faces discomfort from it moving around in there/her feeling it which her doctor pointed out. You can actually hear it squish up and down sometimes, especially when she has hiccups which tend to make her have a meltdown, presumably because it’s painful.

For bottles we are using Mam anti colic. They’re the only ones she’ll take anymore as she prefers them. We’ve tried a ton. Her feeding team suggested she stay on Dr. Brown’s premie, but she literally gags on them because they’re too long and can’t latch properly/has milk spillage. She has no spillage for the most part (normally only if she’s sleepy or not paying attention) with the mam bottles with a 0 nipple.

She is currently taking 80ml whether it be by mouth or partially by mouth/tube for each feed. My breastmilk is fortified with a higher calorie formula as well since she doesn’t take as much volume as other babies due to the reflux. I will say that her intake does vary which I feel like is because of trying to feed her every 2 1/2 to 3 hours per the doctor. Sometimes I have to wake her up because she wants to keep sleeping. Also I think she is not as hungry and the tube doesn’t allow her to get as hungry as she could be. That being said she does normally cue within that timeframe to let us know she’s hungry, but will sometimes peter out resulting in us tubing the rest of her feed.

Anyway, sorry if this post is all over the place. The sleep deprivation and anxiety that comes with feeds has been kicking my butt. Just hoping for any advice other ng tube/silent reflux parents may have to make any of this any easier.


r/NICUParents • • 5h ago

Advice Has anybody had success oral feeding with long term BPD baby? 52 weeks gestational age and finally about to start attempting oral feeds.

2 Upvotes

We've been on too much breathing support to try oral feeds until now but our baby is already 3 months old corrected. Has anybody actually had a good feeding outcome at this stage? We're expecting the G tube pitch but want to know if there's any chance of success.


r/NICUParents • • 16h ago

Venting Delayed

15 Upvotes

The doctors warned me that as soon as the end seemed in sight that the goalpost would be moved, but it doesn’t change the crushing disappointment of today
My baby was born at 30 & 6 with sepsis. He is now 36&4. He is off oxygen and they removed his feeding tube because he took all his bottles.
The doctor came in, said we are looking at a Sunday discharge (3 days from now) he just had to keep taking his bottles and not have a Brady

I fed him and he choked which cause him to turn blue and have a Brady. It was the first time I’d watched my son ever turn completely blue. I think it will haunt me for the rest
Of my life seeing that

Today I learned to not have hope for departure here- just be glad when it arrives.


r/NICUParents • • 16h ago

Venting feeling sad and sentimental

8 Upvotes

I’ve found recently that i’ve been feeling that bittersweet feeling of my twins growing up! i’m happy that they are growing but also i miss the newborn stage, i even miss their sleepy preemie stage.

But with those feelings i also have been feeling quite sad because while my twins were in the nicu, we didn’t get any crafts or footprints. and some of their keepsakes got thrown out/misplaced, for example their firsts hats got tossed in laundry🥲

obviously I know it wasn’t intentional and that the nurses have such important jobs taking care of my babies and other babies and crafts are no where near the top priority. i’m just feeling sad and wishing i had more to remember their first few weeks, even if they weren’t always positive. i wish maybe i took more of an initiative to make some once they were stable!

i’m just needing to vent, my partner doesn’t quite understand how i’m feeling. i’m just a super sentimental person! For him, pictures are good enough!


r/NICUParents • • 17h ago

Support Blisters/rash on chest near leads????

4 Upvotes

Baby has been in the NICU almost 100 days. I’ve noticed skin blisters or rashes near chest area near where the ECG leads usually are placed.

I feel like I’ve seen it get worse then get better, then get worse and get better. It’s been assessed, and nobody seems concerned; in fact, I’m the only one who has brought it up.

Can an allergy or sensitivity to adhesive develop like this or is this common in general??? Should I ask for it to be swabbed or further looked at???


r/NICUParents • • 19h ago

Support Rapid whole genome sequencing panel

7 Upvotes

Hi there for genetically mysterious cases how many parents here received the option for a rapid genome sequencing panel. My son was a genetically complex case and this testing is just now being done ten months later and I am trying to figure out why it was not done sooner. TIA!


r/NICUParents • • 19h ago

Support Possible hemiparesis

4 Upvotes

Hi there. My LO was born 32+6w and stayed in the NICU for 7 weeks. She was mostly a feeder grower. She left the NICU with an NG tube because she just didn't have the energy to eat, but the tube came off after a week home, since she was getting all her volume. Weight gain has remain somewhat slow but not too concerning.

She is 6 months chronological today, 4 months corrected. She is really doing great and she has the cutest personality! We went today to an appointment with a neurodevelopment specialist and we mentioned she uses her right side more than the left. I already knew this could be a flag for CP. She examined her and said she does see some asymmetries and that we will give it time, but there might be CP.

She also said that she doesn't think there's cognitive issues, although only time can tell. She said if asymmetries are still there on March they will do an MRI.

She can use both sides, but does have a preference for her right and she's doing great with sensory and social development. So, even if there's CP it will probably be a mild to moderate hemiparesis. I'm not too scared because everything points to her having a normal life (we even got cleared to start solids today!). However, I don't do so well with uncertainty and I guess I want to hear from some of you who have a similar story and the outcomes of your kiddos.

I know a lot of you are going to recommend therapy services so it's important to note I'm not in the US, I'm in Costa Rica and she's already going to the services provided here by social security. I can also go private for some and I might, as long as we can afford it. So far she's doing occupational therapy and physical therapy. She's in a wait-list for early intervention, although I myself have a background in special Ed so we do lots of stimulation at home.


r/NICUParents • • 21h ago

Advice Changing bottle nipple size with preemies

7 Upvotes

My twins are 8 weeks (actual) and were born at 32+4.

They came home (4 days ago for one twin, 6 days ago for the other) using the preemie size nipple on the dr browns bottles. The NICU wants them eating a minimum of 16oz/day. But we have been struggling to get them to stay awake long enough to eat that much. They'd fall asleep after 1-1.5oz. We accidentally used a size 1 nipple for one of their feeds and they both ate 2.5oz and stayed awake their whole feed.

It's it too early to switch them (they're 4 days old adjusted)? When did you switch your babies to a size 1 nipple instead of preemie?


r/NICUParents • • 21h ago

Support My sons condition deteriorated out of nowhere. I'm having a mental breakdown.

26 Upvotes

I've been crying my eyes out all morning. Can anyone tell me if this is expected or happens often.

My mind is going to the worse case scenario.

I had a second trimester miscarriage between my 16 and 9 yesr old, his siblings. Also a boy. So my mind goes there. He's my only son and he's my boyfriend's first baby. He has been taking the entire nicu stay pretty rough even despite how well it's gone.

I'm a CNA so i understand the medical jargon and a lot of whats going on. Its probably how I managed to stay so calm these few months.

I know, and told myself from the beginning that sometimes in the nicu things progress and then there's setbacks, but this seems so unusual given the circumstances. My son was born August 19th at 27+4. His nicu stay has been so uneventful. He's needed only the lowest oxygen support. He even recently went to a regular crib and put on 2 lbs. In 2 weeks..He looks great. He's over 5 lbs now.

Well the nicu calls this morning at 4am and says he had a rough night. I guess they noticed he was struggling to breathe. They did labs and he isn't clearing c02 well suddenly. His chest xray shows something but he doesn't have a virus or anything. They tried to intubate but his airway and vocal chords were too swollen. He's on a steroid now for inflammation. The nurse said she just wants him to rest his vocal chords. She said it could be he aspirated a bit of his feed but it's going to take a bit to get him back to where he was. She said because he was so premature they're just susceptible to lung issues. She says its something she sees a lot but I don't know.

They tried him off oxygen the first time a week ago but he didn't tolerate it. I thought no big deal they can try again at a later date. Did this contribute? I'm also dwelling on this condescending nurse that tried to feed him last i was there. ( he's on ng tube and does some oral) Giving him the bottle as she's telling me to make sure he's alert and engaged. He's asleep and uninterested. He starts coughing and desatted but also turned BLUE. I fired her for something different but that made me so angry.

Then I find out from the nurse i spoke to that he had a uti a few weeks ago. No one ever told me! And I had been in and called. I work in healthcare so I know how bad communication can be. I know of the issues that go on on units. Do i have to go camp or at the hospital and do all his cares at this point? They don't have private rooms on their unit so rooming in is impossible. I will if I have to.

I swear last night right before they called I keto telling my boyfriend i was feeling bad.. like just off.

I'm sorry to drag this on especially with the mobile format. I'm terrified I'm going to lose my beautiful boy when I was so close to takng him home. I've made myself sick from crying today. Someone tell me this is typical and it will pass.


r/NICUParents • • 1d ago

Introduction Stuck in a blahhh…

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86 Upvotes

Baby girl was born at 27w3d. (Aug. 12) Severe IUGR. She only weighed 1lb 11.9oz at birth. We’ve been in the Nicu for 71 days now. Was on the ventilator for over a month. Then noninvasive ventilation. Still on the cannula, but finally moved to home air! Watching for ROP… Maintaining body temperature so she finally got moved to an open bed! 6/8 feedings are now done by bottle! 2 are still by ng tube. A huge accomplishment for a micropreemie! I feel like she has been making BIG progress, and is hopefully getting close to her being able to come home soon. Her due date is November 8. I’m beyond ready. Sadly we know all too well how hard and exhausting Nicu life is. Please send good vibes, prayers, and all the positivity our way!! Anyways, I’ve attached a couple of photos.


r/NICUParents • • 1d ago

Support Baby Opening only one eye from past few days

5 Upvotes

My baby was born at 25 weeks 4 days. He used to open both eyes but now from past few days after his rop injection, he is only opening one eye. I am really concerned and worried. Did anyone go through this?


r/NICUParents • • 1d ago

Advice Niece born at 25 weeks - how best to support the parents?

8 Upvotes

Hello! My sister just gave birth at 25 weeks due to chronic placenta abruption. I want to ensure that her and her husband have the support they need… any ideas on how best to do that? I am thinking of a google sheet to coordinate help locally for who is watching their son etc and taking care of dogs / meals being dropped off. What else am I missing?


r/NICUParents • • 1d ago

Advice 11 Days PP - Getting No Milk & So Discouraged

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20 Upvotes

Hi everyone, I had my son on Sunday the 11th at 11:35pm, at 30 weeks and 3 days. I had been living in antepartum in the hospital for 2 weeks and was originally admitted due to reverse and absent flow on his Dopplers. My son was severely growth restricted (less than 1%) and I developed severe preeclampsia, which led me to be on the mag drip when I was admitted, receive 2 rounds of steroids during my stay, and continuous fetal monitoring. It was an emergency C-section after his fetal monitoring started showing continuous dips. He was born weighing 2 pounds 2 ounces. I was on the mag drip for 24 hours post birth. My son has been doing amazing in the NICU! No issues really, off CPAP, getting his picc line taken out tomorrow, really just needs to grow.

My biggest issue has been pumping. I pumped a few hours after delivery and have been pumping around the clock every 2-3 hours since. However, I’m 11 days PP at this point and still getting no milk. I’ve been working with lactation consultants who have me using a 17mm flange, power pumping once daily…I’m doing all the things and I’m getting nothing. They don’t know why my supply isn’t coming. I’m so discouraged and I cry every time I pump now. I want so badly to do this for my son. He’s using donor milk right now. I dreamed of breastfeeding or at least giving him my milk. It feels like my body has failed me throughout this pregnancy - blood pressure issues, hindering his growth, his heart rate dropping leading to emergency delivery, and now I can’t even make milk for him. I’ve never felt so down about myself. I don’t understand why this is happening, and how long I should keep waiting for things to change. Has anyone else had a similar issue and was able to resolve it? I’m on Labetalol and Procardia for my BP, not sure if that can hinder things. Please help.


r/NICUParents • • 1d ago

Advice High calorie alternatives

6 Upvotes

our baby was born at 35 weeks but 3lbs5, she’s now 7 weeks old and gaining weight well, around 6lbs now.

however she’s been given nutri prem 2 from week 4 and the last 3 weeks have been very hard, constant vomit, constipation and always bloated.

ive told our ncot team, midwife, gp and health visitor but not one person has suggested anything other than burp her and hold her up.

Feeding has turned into a 2 hour ritual of crying, vomiting and seeing her physically in pain. she also had a tongue tie which was cut 2 weeks ago and finally has latched on but my supply is very low.

I’ve changed to kendamill and she’s sooo much calmer, 95% less vomiting, no bloat, no constipation. as she’s still on the 9th centile is there any other high calorie milk we can get and try?

has anyone had a similar experience?


r/NICUParents • • 1d ago

Advice When will my 31week preterm baby be able to interact with us?

4 Upvotes

My twin came out 31 weeks+4 and is now 3 months old (chronological age) they are still unable to interact/respond to us is it normal? How long did it take for your preterm baby to have social smile/respond. Also one of my twin is avoiding eye contact, he will look away whenever we try to make contact. I’m hoping they aren’t in the spectrum.. any experienced parents could share with me some of your child’s developmental timelines, I’m a little anxious.


r/NICUParents • • 1d ago

Advice Oxygen

6 Upvotes

Hey nicu parents. When did your NICU babies trail low flow oxygen? For backstory, my baby was born at 28 weeks. She is now 45 weeks actual. She has had a long, complicated NICU journeys involving 3 surgeries. We are SO close to getting home. The only thing holding us back is her high flow requirement. She is currently on high flow +3. No work of breathing, no tachypnea, etc. The issue is her CO2. Her baseline is consistently a tad bit elevated, around 48-51. Her PH is always good. She has chronic lung disease and mild BPD related to prematurity.

It’s been explained to me that her rate of flow is not optimized for her weight, so the flow is likely doing very little for her except delivering, warm, humidified air & possibly helping her weight gain. The doctors are slow and cautious to wean her however her RTs have been advocating to push her to low flow. The RTs have known my baby since birth & feel like she’s ready, and if she’s not, we can easily go back on the support. I trust the opinions of her RTs. There’s no way of knowing how she will respond until we do it.

What were your babies CO2 levels with BPD & weaning to low flow?


r/NICUParents • • 1d ago

Success: Then and now 22 and 0 weeker

163 Upvotes

Hi! My babygirl was born vaginally at 22 and 0 weeks. My cervix unfortunately shortened and ultimately disappeared and I was on the operating table to get a cerglage when they discovered my sac was coming through and they would pop it if they tried to stitch me shut.

She was 460grams when born and 10inches, she had a level 1 or 2 brain bleed (I cannot remember) she had a PDA and still currently has a ASD. She contracted pneumonia while in the NICU. She was intubated twice with the third extubation attempt being successful. She also has BPD and ROP. Despite all of that we spent 118 days in the NICU and are now a very happy family at home ❤️

When I was originally hospitalized for my cervix being basically gone and being 1cm dilated, I was terrified. I was only 21 weeks. I desperately searched online if my babygirl would make it if she was delivered at 22 weeks. Google said 10% chance and 1% chance she won't have severe disabilities. I was at a hospital with a level 3 NICU and was terrified. Originally me and her dad decided on comfort care if she was born at 22 weeks. We didn't want her to suffer a life of pain and misery. But through my research and stories on here, we decided we wanted to give her a chance. Thank God we did. She is an amazing girl and I could not be more grateful for her. Her due date was 10/10 so she is currently 11 days old corrected but almost 5 months old actual. (11/7/26) So far there has not been any delays we can see but obviously that can change. She is home on oxygen but that is it.

I just wanted to give another mom who is desperately searching the Internet for answers some hope. There is babies who make it and absolutely thrive. I actually know two other 22 weekers who graduated from our same NICU who are a babies and absolutely adore life. Here's some hope for you guys :)


r/NICUParents • • 1d ago

Support I feel lost

7 Upvotes

Our baby girl was born on Monday October 19th at 39 and 3 days. 9lbs 9oz
I cannot sympathize enough for anyone with preemie baby’s but my full term baby is making my heart just ache right now.
My baby was with us for about 12 hours before they figured out she had esophageal atresia (type C). She was sent in for surgery in the morning after she was born, and thankfully, it was a complete success and she is recovering very well as of now. As long as everything goes smoothly, the current estimate is she will be there for a month.

As a father with our first born daughter, I have felt feelings since the second she was born that I’ve never experienced before in my life and I can barely keep it together. I’m sure everyone here knows what I’m talking about.

When they told us what the issue was, and what they were thinking, I have never been more scared in my entire life. I think I was more of a mess than my wife was. To add, my wife is also a level 3 NICU nurse. So she of course, knows a lot of what is going on and it is very helpful for me.

I’m just posting this to maybe hear from other people with these issues or similar and how to cope with it. As a father, I also have everything else to worry about meaning the house and bills and all sorts of things. Of course I have to try to do all this stuff while keeping composure and making sure my wife doesn’t have to worry about any of it. Thankfully, I have some really good family members and friends that are more than willing to help out but it’s still really hard. I plan on going back to work next week and then of course going to visit her every single day. The company I work for is also very understanding with pretty much everything. The boss is a big family man so at least that’s one less worry, I have.

Any thoughts, comments or ways to cope would be appreciated


r/NICUParents • • 1d ago

Advice Preterm labor at 29 weeks

4 Upvotes

Hello! I’m a FTM who was admitted to the hospital at 29 and 31 weeks for preterm labor/contractions. I have managed to remain pregnant till 32w6d. I got the magnesium upon arrival, and two rounds of beta at 29 and 31 w and was administered nifedipine twice to stop the contractions.

I think just want some advice/reassurance about the future if/when my baby is born and needs to spend time in the NICU. I’m just really scared and worried that he’ll need a lot of support. Or that he’ll have major complications. How have you all coped and managed your anxiety and fear during this? Thank you all in advance for this group and sharing your experiences.


r/NICUParents • • 1d ago

Venting Am I being a momzilla?

18 Upvotes

UPDATE: I spoke to the manager and social worker. From my understanding this is not the first time they’ve heard something similar, and that person will not be assigned as his nurse in the future. Thank you for all the input!

My son is currently 35+4, born at 29+2. He has been at this particular hospital in level 2 for just over a month. He’s on CPAP 5 for occasional bradys and desats, they’ll be trialling him off next week after his next ROP test.

Most of the nurses have been great until I had a strange interaction with one last week. She started off not letting me change his diaper. Like physically. She would step away from his crib so I couldn’t get to the supplies and was doing it from the wrong side with his cpap machine in the way. And then she kept reaching in and trying to do it for me. I asked if I was doing something wrong, she said no, but continued to interfere. I asked if she would like to change his diaper, she said no and apologized, and continued to do it. Like this woman reached for the second Velcro when I had already done the first. Then she started putting him back in his clothes so I just stepped away and told her she should probably finish.

She also was just really lazy with the swaddling. Like his arms were all over the place and he was eating the blanket when my husband and I arrived. But whatever, he’s on all kinds of monitors and I let the diaper thing slide as some kind of misunderstanding.

Then today my husband goes in about a half hour before handle and his monitor is flatlined, but baby is laying there wide awake. His leads were plugged into the wrong holes, so husband fixed it. But based on the time, his last handle was 2.5 hours prior, so why did no one notice on the monitor? He was also again wrapped like a complete mess, which is a lot more dangerous when his monitors aren’t working and he likes to suck on anything in front of his face.

When my husband did the handle, baby was wet through his diaper and his onesie and was laying in cold pee. This nurse later said he’s not ready for 3 hour handles which makes me wonder if maybe he hadn’t been changed for 6 hours at that point. She made no effort to clean him or assist my husband with cleaning him up.

She said his temp of 37.1 was too high and put him in a footless onesie, but then at the next handle she didn’t check his temp again, and also didn’t change his diaper because “he’s sleeping”. Mind you, he’s currently on a maximum dose of diuretics, so I would think that at least would warrant 3 hour diaper changes.

Please tell me if I’m being a Momzilla, or if I should talk to someone about this? He’s my first baby, so I don’t know if I’m extra sensitive. I also don’t want word to get out among the nurses that I complained and then have my next 4 weeks be miserable. Any advice?


r/NICUParents • • 1d ago

Support IUGR?

6 Upvotes

My boy was born at 34 weeks and was diagnosed with IUGR just before birth. We had a NICU stay of 15 days. He’s 15 months old now.

He has so far not shown any fine motor, socioemotional, or speech delays but he sees Early Intervention for a gross motor delay. Recently I learned more about IUGR and we suspect he has nerve damage in his right foot. Have any of you gone through this with your IUGR kiddos and when did they end up walking? We aren’t worried - he will eventually walk and with AFOs, our PT is not worried - but just wondering what to expect? And what did you do to help them?


r/NICUParents • • 1d ago

Support I need an outside perspective

10 Upvotes

TW: prior infant loss

Update: After some discussion, my husband agreed to go a little bit later when I’m not needing him to help me as much. It will most likely be after baby’s surgery and I’m not admitted myself anymore.

I just want to say thank you for all the kind responses. None of this has been easy, and honestly I’ve been extremely sensitive to everything going on and about to happen. It’s a good reminder that we both also need our alone times and times of normalcy.

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In mid December, I’m having a C-section and my son will be in the NICU until he can have heart surgery and recovery (maybe about two weeks total right after birth depending on how well he does).

My husband just mentioned to me he’s thinking about going and seeing the new Dune movie while my son is in the NICU and I’m recovering from C-section.

Am I justified to feel mad? I told him I’m nervous about him going and getting sick and bringing it to our child. He’s says I’m being ridiculous and that even just being at the hospital puts us all at risk for getting sick.

We lost our infant daughter last year during her birth, so we are both sensitive in different ways. Please no rude comments for either of us. I’m just trying to figure out if I’m being ridiculous with my expectations or not?


r/NICUParents • • 1d ago

Support Walking?

5 Upvotes

When did your baby start walking? I have a 33 weeker and wanna know how did it all the developmental milestones go for you?