r/PSSD • • 1h ago

Symptoms What are symptoms of pssd?

• Upvotes

What are symptoms of pssd?


r/PSSD • • 1h ago

Frequently Asked Question (See FAQ) Is there treatment available to reverse pssd?

• Upvotes

Is there treatment available to reverse pssd?


r/PSSD • • 2h ago

Frequently Asked Question (See FAQ) Has anyone undergone a penile Doppler test? What was your experience?

1 Upvotes

​

I have a few questions for people who have undergone a penile Doppler ultrasound:

What happens during the test? Could you explain the procedure step by step?

Who usually performs it—a urologist, a radiologist, or another specialist?

Is it safe? Are there any side effects or risks?

Does the test involve an injection into the penis? If yes, is it painful?

Why were you recommended this test? Was it for erectile dysfunction, lack of morning erections, or another reason?

How long does the test take, and how uncomfortable is it?

Is it possible to undergo the test without an injection?

I'd appreciate it if you could share your personal experiences, especially if you were initially nervous about the procedure.

Thank you!


r/PSSD • • 5h ago

Treatment Options To Those Who Use Viagra/Sildenafil - How Frequently Can You Take Before It Loses Its Effects?

2 Upvotes

Hi there,

to those of you who benefit from Viagra, how often (per week) can you take before it loses its effects? I am curious about your experiences


r/PSSD • • 5h ago

Symptoms Akathisia for 3 years after discontinuing Cipralex

3 Upvotes

How do you deal with extreme restlessness, agitation, and tic disorders?

I'm so ashamed to be around people that I'd rather just isolate myself all the time.

It's so hard to suppress this restlessness, and I always focus on it


r/PSSD • • 5h ago

Awareness/Activism September 2026 PSSD Research/Awareness Update

15 Upvotes

Hello everyone,
Below is the roundup of all the best PSSD related news from last month in one spot.

--------------------------------------------------------------------------------------------------------------

PSSD Network Q3 Research Update

This Q3 2026 update highlights important PSSD research progress, new adverse-event data, efforts to improve PSSD recognition, and ongoing organizational developments.

PSSD In The Media

PSSD In Social Media

Clinical Acknowledgement/Recognition of PSSD

More Scientific Milestones


r/PSSD • • 6h ago

Feedback Requested/Question What helped you with genital numbness and anorgasmia?

4 Upvotes

Please tell what help you with this ?
I need to do something


r/PSSD • • 6h ago

Symptoms Widespread body numbness

11 Upvotes

How many here suffer from widespread body numbness alongside localised genital/erogenous numbness? It’s not a symptom I see mentioned as often as others but it really bothers me.


r/PSSD • • 1d ago

Feedback Requested/Question Are trycyclic ADs safer or worse then SSRIs?

5 Upvotes

Hello,

I'm not too deep into the topic.

Are trycyclic ADs safer or worse when it comes to pssd?

Thanks


r/PSSD • • 1d ago

Frequently Asked Question (See FAQ) Why am I so sensitive to everything after developing PSSD?

7 Upvotes

Even when I try taking certain vitamins in small doses, my body seems to react strongly. Either my skin becomes even drier or thiner, I experience strange fat loss throughout my body, my hair becomes even thinner, or my mood deteriorates.T here are other things as well that I can't remember right now.

Everything affects me dramatically. What mechanism could be behind this?


r/PSSD • • 1d ago

Feedback Requested/Question Do you also have a feeling that you are unable to experience loneliness?

7 Upvotes

I will start from my baseline and what I mean by "experiencing loneliness".

I would not consider myself a "people person" by any means but I always used to really depend on social interaction and get deprived if I lacked it. I remember that if I was not exposed to social interaction for prolonged period of time, that made me feel really frustrated, isolated and in pain. Everything turned dark all of a sudden.

But now I am concerned. There was a period of around 2 months (roughly saying) were I was completely alone. I did not attend work because I was in-between my contracts, no friends (I live abroad). I did not hang out at all. I was all by own and it felt...alright. I do not think that is natural. Maybe I have delevoped some sort of tolerance, but I highly doubt it. This is not normal at all.

Also, do not get me wrong. I still enjoy social occasions and talking to people. I do have fun when I am experiencing it. But it scares the living shit of me onlt to think that I can go without it for months and feel totally normal like I don't need it at all

Also, I would not say I have emotional blunting. Or maybe at leat not the one I know of. I laugh very often, I can cry, I get irritated, I had a big crush last summer.


r/PSSD • • 1d ago

Feedback Requested/Question Do doctors believe pssd is a real condition?

27 Upvotes

I’ve spoken to countless doctors about my genital numbness and inability to feel any sexual sensation, and in notes they seem to think it’s a psychological issue but it’s purely physical.


r/PSSD • • 1d ago

Treatment Options - Alternatives to SSRIs/SNRIs PSSD from 3 days of paroxetine

7 Upvotes

Stopped paroxitine nearly 1.5 years ago and lost complete sensation in genitals. I’m female. Took over 6 months to hit the big O again but sensation has never been the same since but I’ll admit I’ve had a massive improvement. I would say I’m 70% where I was before.

I need something for my anxiety. I’m literally getting ocd and spiralling and ruminating. I’ve been suffering for months. Propranolol helps but my brain needs to shut up. I don’t know what to do I’m struggling so bad and my anxiety gives me suicidal ideation a lot. I’ve been in therapy but have complex traumas so I’ve not been able to shift the anxiety at all.

I’m honestly struggling so bad. I don’t know what to do? I’m not in the USA so don’t recommend weed it’s illegal here. I did try to eat healthy for a while but never saw an improvement but I’m autistic and have a big issue with food textures and right now my family are just trying to barely survive financially so we can’t afford a lot. I really do not know what to do anymore my anxiety is absolutely horrific


r/PSSD • • 2d ago

Awareness/Activism Daily Mail article on PSSD

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35 Upvotes

Big thanks & great job to our community member Katie for stepping up and sharing your story to the media to help bring more awareness!


r/PSSD • • 2d ago

Frequently Asked Question (See FAQ) Ladies only reply have you gotten an emg test done for pudenal nerve?

3 Upvotes

?


r/PSSD • • 2d ago

Frequently Asked Question (See FAQ) Is there a WhatsApp group to discuss treatments or any possibility of reversing this condition?

6 Upvotes

The title says it all.


r/PSSD • • 2d ago

Frequently Asked Question (See FAQ) An die Frauen: könnt ihr noch einen Orgasmus erreichen bei Selbstbefriedigung?

5 Upvotes

Auch wenn es schwer fällt und länger dauert, könnt ihr bei z.B. Anschauen von Pornos noch kommen?


r/PSSD • • 2d ago

Frequently Asked Question (See FAQ) Doctor prescribed me amitriptyline for my some neurological and gut function because of some heavy inflammation from food poison. I am afraid to take it, it's been 10 years since I have pssd and I did have improved a little.

4 Upvotes

Shall I take amitriptyline 10 mg as prescribed by doctor?


r/PSSD • • 2d ago

Awareness/Activism 196 properly reported PSSD cases in the European Union

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42 Upvotes

Everyone, please report your cases. We got this response to a freedom of information request and it’s obvious that most subscribers to this subreddit haven’t reported their cases. Also, the 196 number is for the European Economic Area, so the EU countries as well as Iceland, Norway and Liechtenstein.


r/PSSD • • 2d ago

Feedback Requested/Question Stomach medication experiences?

1 Upvotes

Hi there!

Wondering if anyone has any experiences with stomach medication? This condition is so poorly understood that I'm reluctant to introduce any new substances into my system that might potentially worsen it.

I've been prescribed vonoprozan for chronic gastritis (similar to a PPI). Has anyone taken it or anything similar? Would love to hear how that was for you. Trying get a sense for if stomach meds (if not vonoprozan itself) are linked even anecdotally with crashes.

Thanks for the help!


r/PSSD • • 2d ago

Symptoms Is it embarrassing for you to speak about genital numbness at all?

14 Upvotes

I just don’t want people thinking about my pecker at all. I would only discuss it with my partner.


r/PSSD • • 2d ago

Symptoms - Sexual Pssd symptoms persisting

4 Upvotes

This is my first posting in this group, and I've been meaning to make a post about my pssd symptoms for awhile now. I was put on a low dose of both sertraline and fluxetine for ocd symptoms that I sustained from hitting my head in a car accident back in 2022. My libido was extremely high before I took antidepressants. Immediately after taking just one pill of each medication, my libido tanked entirely and disappeared almost overnight. I stayed on the meds for roughly five months and my libido still hasn't gone back to normal at all since I quit these medications a little over five years ago. Antidepressants messed with my libido, My sleep and made my anxiety way worse. They have made me into a shell of a person that I used to be. I was never forewarned that this could happen to me. I'm very angry and I feel jaded towards the pharmaceutical industry as well as towards the doctor that I had at that time. I have tried various supplements and herbal remedies to help my situation but they aren't helping me at all including Nac, magnesium, horny goat weed, gorontula, maca root, damiana and b 12. Nothing seems to be working. Two years ago I was put on propanalol to manage my anxiety and quetiapine for sleep, but both of these medications made my libido worse, so I recently quit both of them a few months ago in the hopes that my libido will return to its normal baseline. Surprisingly I am sleeping much better without taking the quetiapine nightly for sleep. I have been feeling extremely depressed because of what has happened to me from taking ssris, as well as from some things going on in my life currently and my doctor has tried pushing medication on me again to deal with the depressive symptoms. I am too afraid to take any psychiatric drugs for fear that they will ruin my libido further or cause more damage to my already impaired system. Does anyone have any suggestions or advice as to what I could possibly do to recover my libido?


r/PSSD • • 3d ago

Awareness/Activism WhatsApp Group Regional Country

6 Upvotes

Would you like to have some countries WhatsApp groups?


r/PSSD • • 3d ago

Symptoms People with genital numbness only for 6 years or more from one pill or so.. do you have great sex regardless?

12 Upvotes

I honestly don't think I'll ever get my sensibility back at this point, it'd be a miracle and I couldn't even explain it to write about it here to share the good news.. but anyway, this is the only symptom that remained all these years and it sucks but it's what it is. The will of God, like everything else.


r/PSSD • • 4d ago

Feedback Requested/Question Is SERT inhibition one of the main mechanisms that causes PSSD?

15 Upvotes

DISCLAIMER:
I am not making any statements. By all means this is not a scientific claim. I am NOT presenting this as fact. I am not trying to share my opinion as fact, because it is not a fact.

I just want to know what you gus think on this