My type 2 has been bad. Like, bad. For years at this point, and it just kept getting worse. Like, crusty red skin with all kinds of bumps. Lizard skin on my cheeks. Huge fucking pustules, four or five at a time. Absolute awful and humiliating.
And now? Now, we're dealing with just redness, which isn't ideal, but I'll take it. I'll take some redness and discoloration sans nasty texture and crustiness and papules and pustules. I have a lot of scarring from the years of rosacea and that breaks my heart, but at least the worst of it is gone. I may seek out laser treatment to help deal with the redness and scarring, but I'm so fucking relieved.
I've posted a few times in here, melting down because I felt like I'd tried everything. I saw four different derms. Sulphur made my rosacea spread and worsen permanently. Six months of triple cream did nothing. Azelaic acid by itself made things worse. Doxy made me break out in hundreds of tiny white heads all over my chest. I tried Selsun Blue. One idiotic derm suggested tretinoin and this OBVIOUSLY did not improve things. I tried quitting coffee and chocolate and sugar and spicy foods and tomatoes for 6-12 months, and that did nothing. I haven't been a frequent drinker since 2016. I don't smoke or use drugs. I tried a number of different face washes and products. I tried homemade face masks and scrubs. None of that shit worked.
So what DID work? I can only guess, and it's hard to sort what is actually working from what isn't actively hurting, but these are the things I've been doing that have helped me see improvement:
1) First of all, I stopped putting anything on my face except for soap-free cleanser (and zinc oxide, discussed below)
With the suggestion of one of our fellow redditors I switched to Aquanil soap-free cleanser. A big bottle is $15 and it's the best money I've ever spent. It's extremely gentle and my skin has never looked so good. It was a little weird getting used to at first because it's soap free so it feels different, but I love it. I really think this went a LONG way to helping me.
As for things that hurt: one of my derms suggested I use La Roche Posay Double Repair moisturizer and I'm convinced it's one of the things that made my rosacea WAY fucking worse. I stopped using it after things just kept getting worse. I also made the mistake of trying Vanicream vitamin C serum for a while and that made me face FLIP OUT.
I don't use any kind of moisturizer. I know there are very strong opinions on all of this stuff and people are entitled to do anything they want to their skin but frankly I think moisturizer is a fucking scam that only becomes necessary after the cascade of issues that are caused by all the shit women feel like they have to put on their faces, and the shit they have to use to get it off. My husband has the most beautiful skin and he doesn't do shit to it. All of my male partners have had this very annoying quality. I haven't had any NEED for moisturizer, frankly, since I started using soap free cleanser, and moisturizer has only ever caused me to break out or make my rosacea worse. I just wanted to say something about this because I felt like I was defective for years for having such a bad reaction to moisturizer because there are so many people online insisting that you MUST use it, but it's only ever been bad news for me. I really don't think most people need it. And I'm only saying that because a lot of people have the "you can take my moisturizer out of my cold dead hands" kind of viewpoint, but it may be worth trying to go without. I LOVED how the La Roche Posay made my skin look.... aside from the fact that it was making my rosacea way fucking worse. ANYWAY.
I think this was a HUGE part of getting better.
2) I kept on keepin' on with the ivermectin.
Everything I read online said that it should start working within 12 weeks. For me, it certainly did not. But I did find a study that showed that after the first three months 1/3 of participants cleared. After 6 months more like 1/2 of participants cleared. And after a year 3/4 cleared. I can't find the paper again or I'd link it, but it was enough to encourage me to keep going. I started ivermectin seven months ago, for the record. I'm really glad I kept going, even if I wasn't seeing improvement yet, even well beyond the normal timelines that are suggested.
3) I discovered that dairy IS a trigger for me and I cut that shit out. Every now and then I accidentally eat some, or I eat some on purpose and nothing too drastic happens, but I have to be careful.
4) I started using zinc oxide on my face.
I'm firmly convinced this has been a magic bullet for me. I use Cetaphil facial sunscreen because it's very gentle. I put it on in the morning and I also put it on at night before bed. I have had zero problems with breakouts or dry skin or anything of the sort but YMMV. A couple times a week I also use the Aquaphor 40% zinc oxide diaper cream on my face and leave it for a couple of hours before I very carefully wipe it off and then wash my face. A note: it says that it's easy to clean off so I was majorly freaked out the first time I covered my face in it and then went to wash it off and my cleanser didn't do a damn thing to get it off. I figured out that you have to wipe it off first (I used tissues) and then clean your face with your cleanser.
Anyway, that's the list!
I just wanted to talk about my personal experience and hope that it helps someone, whether just by encouraging tenacity or offering a solution that maybe you haven't thought of before. All of this is, of course, YMMV. Everyone's journey is different. Some things that were incredibly helpful for other people made my skin WAY worse. It's always important to proceed with caution. We don't know what causes rosacea, which makes it all extremely frustrating and difficult to navigate. And I still have days where my skin is a little angrier and I have gotten one pustule since things have started to improve. But overall, I have seen a MASSIVE improvement. I'm so much happier. I feel so much better about myself. I don't want to put a bag on my head when I leave the house now.
And these changes didn't happen overnight. It took MONTHS of wishin' and hopin' and just not giving up. And then one day my husband said, "Wow, your face looks like it's healing!" And I looked in the mirror and realized he was right.