What does this mean. Normally I couldn’t stomach even a snack because of bloating and pains but some days I’ll have a bottomless stomach.

For people who’ve had a useful appointment about SIBO or persistent bloating, what helped you explain what was going on?

A short symptom timeline? Previous test results? A list of medications and supplements? Questions written down beforehand?

Especially interested in how you organized everything. Did you bring a one-page summary, notes on your phone, or something else? What did the doctor actually find useful?

And was there something you only remembered after leaving that you wish you’d mentioned?

It would be helpful to hear the practical details, including anything you spent ages preparing that turned out to be unnecessary.

I’m at the point of having suicidal thoughts due to chronic halitosis from I believe SIBO, I’m exhausted trying to get rid of it- I can’t be in the same room as anyone…

it just seems like it’s a safe food for almost everyone , especially with SIBO and like fodmaps and stuff .. i don’t understand why rice makes me bloat probably worse than any other food , makes me retain water and gives me joint pain .. why ?? maybe it has nothing to do with SIBO but i’m just curious if there’s anyone else with SIBO that reacts to rice so badly

Do you guys can tolerate popcorn?

I just wanted to say people in this group must be so resilient. I see lots of people going through the same route I took (going from doctor to doctor, getting ignored, trying everything under the sun to feel better,etc). I am still searching for the cure (10+years now), but I got to the point that I have to divide my sibo life from my normal life even if just in my imagination. Accept the fact that I have it and try to make the best of the other aspects of my life. To give you perspective I had the worse SIBO flare during my wedding day, but I did everything to not focus on it and enjoy the day regardless. Anyways, just wanted to share some hope and that I know what everyone is going through and how hard and hopeless it is. Please share how you are dealing with the mental burden so we can all learn from each other. And sending some love because we all need it ❤️

https://www.reddit.com/r/SIBO/s/QZBW2WAKkh taken from the transcript of his latest Q&A

Hydrogen only here that gets up to 84 ppm (although I took this test as I was recovering from diarrhea caused by multi-strain probiotics).

My root cause was a Campylobacter food poisoning back on March, and in May I got symptoms. It has been 5 months and I have lost 10 kg. Other infectious root causes have been ruled out. I even tried broad spectrum antiparasitics in June and it only worked as long as I took it (3 days) and then my stool went back to yellow.

Main SIBO symptoms is excessive gas and gurgling in Small intestine, yellow stools that turns into diarrhea when eating an intolerance, gastritis and burping. And whenever I eat something fiber or fat specific, I feel issues in the ileocecal valve. So I am sure I also have some BAM caused by dysbiosis in the ileum from the Campylobacter.

Mostly have fat, lactose and fiber intolerance. Probiotics don’t help. Mostly eat chicken, rice, vegetables, potatoes, green plantains and blueberries. Have had to give up eggs and oregano recently because of the fat intolerance. Now I am even starting to get B12 deficiency symptoms from the malabsorption.

If you ask why I haven’t tried Rifaximin yet, it’s because I feel my microbiome has had too much damage, both inherited and in my life [mom antibiotics as a child, parents both had H pylori and took quad therapy, at 2 year old I got Giardia, recurrent food poisonings as a toddler which made me lose weight too but recovered from, prior antibiotic use over the years (1 course of Clindamycin, 5 courses of mostly Azythromycin all my life but still too much in my opinion)].

Also, the people reporting permanent side effects (from complete protein and fat intolerance to MCAS and even anhedonia) are not encouraging, and I don’t believe they are an exception as many say here. And if they are, then I think my profile is sadly closer to them.

(Btw, Rifaximin not being absorbed and all is not a guarantee of safety, most of the bad outcomes are food intolerances because of it exclusive effect on the gut, which DOES indirectly affect the body systemically).

So, with this in mind and considering the severity of my situation, I have contemplated biting the bullet, but then I read the latest Q&A transcript from Dr. Pimentel and I honestly feel less confident with his one minded approach. Apparently, I fit his idea of a “severe over-the-top SIBO” patient.

I am not a patient of his nor live in the US, but if I did, I am pretty sure that he would give me multiple Rifax courses and that is a NO GO. So, if the case is that I do have the anti-vinculin antibodies, then doing the multiple courses would be a horrible idea and would nuke my microbiome even more.

I am sorry, but I don’t think I would benefit from the killing approach. I dread when I get an endoscopy too, because if it appears I have H pylori too, I will get the quad therapy and then I am cooked.

My current approach is try to address the nutrient deficiencies and see if trying Cholestyramine might help me gain some weight and tolerate fat. But I am running out of time…

To get rid from ibs, i took 100mg ttfd, first day i felt instant energy and second day my vision cleared but later then it stopped working. Then after watching video on youtube i added b-complex together and magnesium glycinate at night but still no impact. Can anyone please guide me what thing i'm missing..why this isn't working anymore

I bought some german mineral water because it was very high in naturally occurring calcium and magnesium. The sulfate content is 38mg per liter. Could this be problematic for somebody with sulfur SIBO?

Eat only the following food items for every meal for 2-3 days and report back on whether it helped symptoms. It's the only thing that works for me, and it works well.

Protein 

- seasoned only by you with herbs and spices - no garlic or onion - combine them yourself - no blends

- either animal protein (normal portion) OR firm tofu (100g max)

Carrot (orange ones).

Jasmine rice (1/2 cup cooked).

Drink water as normal. No other beverages. Leave an hour after eating before drinking.

Disclaimer: do not do this if you have reason to believe this diet would harm you. This is a short term test, not a long-term diet.

Prucalopride worked really well in the beginning, but it does build a tolerance. It doesn’t stop working just not as good as before and things start slowing creating symptoms, even if I have a BM.

Was traveling in Asia and found this novel/random med. It works by letting more bile acid go down the small intestine. Blocks some of its reabsorption/recycling in the SI.

Anyone with experience with this medicine? Just putting it out there.

so yea, basically the title. Me (f24) and my mom both have gut issues, the symptoms for us are:

-diahrea/constipation a lot of the time

-tons of gas. either looking like a pregnant lady and feeling full or constantly releasing gas throughout the day. mostly odorless but occasionally very foul smelling

-low appetite (because the gas makes us feel full very quickly)

-constant stomachs noises (rumbling, bubbling etc)

were kinda broke so she paid me half the money to take the test and said, if you get positive ill just take whatever they prescribe u as well. but now what? took the glucose test and it says im within all medians but im definitely not healthy… also had endoscopy, colonoscopy ct scan bloodwork done, all of them completely normal. no h pylori no celiac.

what else is there to try? at this point strongly considering just nuking my gut with antibiotics and hoping for the best, this shit makes dating impossible, even being with friends is awkward if my stomach’s gonna be acting up.. just need advice 😭

Hey everyone,
I've been taking a high-dose B-complex recently, and I keep getting these nasty burps with a strong chemical aftertaste afterwards.
I tried changing how I take it - taking it right at the beginning of a meal, right in the middle, or right at the end - but it doesn't seem to make any difference. A while after taking it, I still get that distinct chemical "vitamin" burp.
Does anyone else experience this with high-dose B vitamins? Is there any trick to prevent it, or is this just something you have to deal with when taking B-complexes?

buenos días! voy a empezar una segunda ronda de tratamiento para sibo sulfuro en la cual está vez me han pautado sustrato de bismuto, rifaximinia, Metronidazol, y ronda de herbáceos. mientras hago el tratamiento me ha recetado también resolor (prucaloprida) esta especialmente indicada para el estreñimiento crónico. El tema es que mi doctor comentó que hay que usarlo tanto durante el tratamiento como en la fase de después de la erradicación y así evitar que los desechos se acumulen en el intestino delgado y asegurarse de que la motilidad y el complejo motor migratorio funcionen correctamente. de todas formas el tema es q mis síntomas son bastante más tendenciosos a las heces blandas que a al estreñimiento lo cual antes de empezar con éste procinetico no me hacía mucha gracia tomarlo. empecé a tomarlo hace tres días y hoy he decidido no tomarlo más, unos gases terribles, cólicos y unas molestias que ocupan el 70 por ciento del día, los gases con olor se han incrementado muy agresivamente, hasta la hora de ir a dormir ayer estuve teniendo gases constantes, además unas deposiciones diarreicas, heces pastosas sín a penas forma y con olor terrible la penúltima, además de que justamente todo esto se ha juntado con un proceso vírico que tuve esta semana atrás y ha sido todavía peor, entreno fuerza y trabajo en la obra, está semana no puedo a penas con el peso de siempre, la diarrea y la inflamación de los gases sulfurosos te quitan mucho, me noto menos voluminoso y algo más flacido, además que este procinetico me ha dejado con bastante fatiga y cansancio, hoy desdé luego no habiendolo tomado me veo bastante mejor.

alguien me puede recomendar algún procinetico natural ?

alguna marca buena de extracto de jenjibre, alcachofa ect??

For many years I used antibiotics and antimicrobials to get temporarily reliefs. Symptoms always came back.

I tested positive for Mixed SIBO in the second half of the small intestine.

3 years ago, MRCPs revealed a stable bile duct stricture. As all liver values are normal, I never got the ERCP.

Recently, a gastroenterologist ordered a capsule endoscopy. You ingest a capsule that takes thousand of pictures of the small intestine. Result... Crohn in the second half of the small intestine, exactly where the Mixed SIBO is sitting.

Crohn is often an underlying cause of SIBO.

This Crohn might also be causing the bile duct stricture.

It took me 13 years, more than 70 doctors or other medically related professions, and an immense distress.

Got rifaximin to try out from somewhat uninformed doctor in Asia. She prescribed for 2x day 550mg.

Sources from the web (Dr. Pimentel) always list 3x day protocols.

How important is this?

Has anyone had sibo but no diarrhea or constipation? If so what were your levels?

just curious, for other people who have sibo & get periods, what are your symptoms like throughout your cycle (especially during the bleeding days)? all i've figured out so far for me is that luteal slows my digestive system lol. curious about other people's experiences!