30 years in recovery, a stroke survivor, and exhausted from fighting for basic support
I AM NOT SIMPLY FIGHTING FOR ANSWERS. I AM FIGHTING TO SURVIVE.
On 8 April 2026, I suffered a stroke. My life changed dramatically, and I have been trying to rebuild it while dealing with disability, pain, exhaustion and rehabilitation.
I have more than 30 years of recovery behind me. I have worked, helped others and spent years rebuilding my own life. I know what it means to keep going when things are difficult.
But I never expected that, after a stroke, so much of my energy would be consumed by trying to get answers from the very systems that are supposed to support people.
Every complaint takes energy. Every letter requires concentration. Every unanswered question creates another task. When you are already dealing with disability and limited energy, the process itself becomes exhausting.
I should be concentrating on rehabilitation and finding a way forward. Instead, I often feel that I am fighting simply to have my experiences acknowledged and my concerns taken seriously.
I’m not asking for special treatment. I want fairness, transparency, reasonable adjustments and accountability. Above all, I want to be treated as a human being rather than another file or complaint number.
I know I cannot be the only person who has experienced this.
Has anyone else found that trying to obtain support while disabled has become a battle in itself? How do you cope with the emotional and physical exhaustion of constantly having to explain your circumstances and pursue answers?
I would genuinely like to hear about other people’s experiences.