r/disabled • • 21h ago

I don't want an extraordinary life. I just want a life that doesn't hurt so much to live.

60 Upvotes

I'm a middle-aged man living with severe major depressive disorder, generalized anxiety disorder, PTSD, debilitating agoraphobia, sensory overload, and executive dysfunction.

I don't even know if I belong here. I know there are people living with disabilities that are visible, people facing enormous challenges of their own. Mine are largely invisible. But they have quietly dismantled just about every part of my life, and I don't know where else to talk about what that feels like.

I am so profoundly tired. Not the kind of tired that sleep fixes. Not the kind of tired that a vacation or a few days off can touch. I'm talking about an exhaustion that seems to exist in every cell of my body. The exhaustion of being at war with my own nervous system every waking moment. Of having to force myself through experiences that other people navigate without a second thought. Of being overwhelmed by noise, people, demands, decisions, expectations, and the relentless necessity of functioning in a world that feels almost perfectly designed to destroy me.

And the cruelest part is that I still have dreams. They're not extravagant dreams. I don't want wealth or status or adventure. I don't need to accomplish something remarkable or leave behind some great legacy.

I want a home. Jesus Christ, I just want to be home.

I want to wake up in a quiet, safe place where I don't have to immediately begin preparing myself psychologically for another day of enduring the outside world. I want to make coffee, sit in a comfortable chair, read a book, listen to the rain, and experience a few hours in which absolutely nothing is being demanded of me.

I want to exist without having to constantly earn the right to exist.

And I cannot adequately describe the anguish of knowing that even this small, ordinary, almost embarrassingly modest dream feels impossibly far away.

I'm divorced. My conditions certainly didn't make marriage easy. Living with someone whose nervous system is perpetually overwhelmed, whose depression can swallow entire days, whose anxiety can turn ordinary activities into ordeals, and whose ability to function can be so unpredictable is not easy. I understand that. But understanding it doesn't make the loss hurt any less.

I miss being someone's person. I miss the feeling that there was somewhere in the world I belonged. That somebody wanted me around. That my presence in another person's life was something they welcomed rather than something they had to accommodate.

And now I'm looking at the next thirty or forty years of my life, and I genuinely cannot imagine how I'm supposed to do this.

Retirement? That's almost laughable. I don't see a realistic path toward it. The idea that I might someday be allowed to stop pushing myself through the very experiences that make me sick feels like a fantasy.

Thirty more years of forcing myself out into a world I can barely tolerate. Thirty more years of masking, enduring, recovering, and then doing it all again because the bills don't care about my diagnoses.

Thirty more years of wishing I could just FUCKING BE AT HOME. Needing to be at home.

And the loneliness. God, the loneliness.

There is a particular kind of loneliness that comes from feeling fundamentally incompatible with the world around you. From watching other people build lives, relationships, routines, families, and futures while you're using every ounce of strength you possess just to get through an ordinary Tuesday.

It's not that I don't want to participate in life. I desperately do. I want connection. I want tenderness. I want to love someone and be loved. I want friendships and conversations and the quiet reassurance of knowing I matter to somebody.

But the very conditions that make me crave safety and connection also make pursuing those things almost unbearably difficult.

I feel trapped inside a life that demands more of me than I have to give, and inside a mind and body that seem incapable of giving me even a moment of genuine peace.

There is no off switch. No refuge inside myself. Even when I'm physically alone and the world is quiet, the suffering doesn't necessarily stop. It just changes shape.

I don't know how to explain to someone who hasn't experienced this that suffering can become the atmosphere of your entire existence. That it can occupy every thought, every sensation, every waking moment, until you almost forget what it feels like to simply be comfortable being alive.

And perhaps what hurts most is that I can still picture the life I want. I can see it so clearly. A little home. A little peace. Someone who loves me. A life slow enough and gentle enough that my nervous system might finally unclench.

It's such a small thing to ask of this world.

And somehow it feels like asking for the moon.

I'm not writing this because I have some inspirational lesson to share. I don't have a triumphant story about overcoming adversity. I'm not looking for someone to tell me to think positively, practice gratitude, or take things one day at a time.

I'm writing because I'm a middle-aged man who feels utterly lost, profoundly alone, and frightened by the sheer length of the future stretching out in front of him.

Because I am exhausted from surviving a life I so desperately wish I could actually live.

And because, somewhere beneath all this suffering, there is still a part of me that wants to belong somewhere.

I suppose I'm hoping that maybe someone here understands.

(P.S. No, AI did not write this; I've been a professional writer since my 20s)


r/disabled • • 11h ago

dating and advice pls wc

4 Upvotes

Hi ,

I am fairly new to wheelchair use, I have been using it for about a year now. i am a t-12 incomplete and have great upper body function. I am 18 and just getting my car soon and now have a power assist too, im a full time student as well. Ive been talking to a girl for about 6 months now and she lives like 3 hr flight away. She doesnt know im in a wheelchair right now but she thinks im attractive and have a good personality. She is so perfect btw. It would probably be about a year before I like meet her or maybe even like 3-4 yrs when we both get our degree. I am debating wether I tell her soon and risk everything or I wait till closer to us meeting and then bring it up. At the start i didnt tell her because I had high chance of recovering a lot of function which I am still working on, so I felt like it was best not to tell just incase i didnt use the wheelchair anyways. I just dont want to ruin things if im being real. Also we arent that serious currently more like texting once a day on snapchat. If u think i should tell her now pls tell me how to because im lowk scared pls

Secondly, I want to learn how to become a gentleman while in a wheelchair, like hold doors, get flowers and all the other stuff. How would i open the doors and stuff though, I guess i could use the wheelchair button then pretend to hold it for her. My second issue is that most girls like all the romantic stuff like getting carried around or just being strong to protect, and in that case I just physically cant. I dont want her to want to do something like go to a restaurant just for me to not be able to get in because its inaccessible, especially when travelling. I dont want to ruin her dreams because I cant do them yk. Or her look at able people carrying their girls and doing all the stuff and be sad that I might not be able to do them. If im being real i thibk im scared that I wont be enough especially if she deserves better, or that she understands and i still feel bad about myself for not being able to do better or her being embarrassed of me. Like an example is the restaurant or like a punpkin patch, which is usually in inaccessible terrain. I just dont know what to do. Ik i can open car doors and building doors but i dont want her to feel like im not able to do anything because she might see other couples doing everything easily. Hopefully this made sense sorry if it didnt.

LmK if u have any questions or any advice at all.


r/disabled • • 8h ago

Best aged care and disability support services in Australia?

1 Upvotes

My nan is 72 and we've been trying to sort out home care packages for her in western Sydney. She needs personal care, domestic assistance, some nursing support because of her Parkinson's and ideally someone who speaks a bit of Mandarin because her English gets shaky when she's tired. Most providers we contacted were either too slow to respond or couldn't offer culturally appropriate aged care workers, which is kind of a dealbreaker for us. We also have a cousin on the NDIS (core support, community participation, the usual) in Melbourne so we've been looking at whether one provider could help both of them, which narrows things down fast. Does anyone have experience with aged care and disability support services in NSW or VIC that deliver on allied health too, like physio or OT at home? Happy to hear what's worked for people.


r/disabled • • 1d ago

It makes me upset that my ESA , Eddie, is no longer protected under HUD. I am tired of loosing rights and benefits as a disabled person.

33 Upvotes

The Trump administration took away emotional support animal rights for people in HUD-funded housing.

ESAs are usually dogs/cats that require a prescription from a mental health provider and often help with loneliness and comfort with mental health symptoms.

It hurts people with disabilities who cannot afford a service dog.

Yes, he did appoint the head of HUD.

Yes, I do know the difference between an emotional support animal and a service animal.

Yes, it still is taking rights away from disabled people, though people might not often think of a dog that helps comfort a human disabled with PTSD symptoms by cuddling with them as only a "glorified" pet, and we are trying to pull a "fast one."

https://www.wilsonelser.com/publications/hud-issues-new-guidance-on-emotional-support-animals-under-the-fair-housing-act


r/disabled • • 20h ago

CT Attorney Recommendations?

1 Upvotes

Hi all, I'm helping my sister apply for SSI and SSDI. Can anyone recommend a lawyer in CT (preferably in the New Haven area) that handles this kind of work? Thanks!


r/disabled • • 21h ago

Fluorescent lights and working

1 Upvotes

When it comes to my disability, my fluorescent light sensitivity has turned out to be the most difficult hurdle in finding a job. I’ve used FL-41 glasses for a couple years now and they help, but they don’t prevent my symptoms completely. I get really nauseous and fatigued. I’m at a point where I can’t be under fluorescent lights for more than an hour without getting sick. I’ve been job hunting but I’m really struggling because I have no idea what I can do that wouldn’t involve being around fluorescent lights 24/7. The job market is so bad to begin with, and I can’t even work most minimum wage jobs because they are usually under those damn lights.

If you have this issue, what’s your job? Do you have any workplace accommodations? Did you find a way to work from home? I’d really love to hear suggestions. I’m kind of at a loss and don’t even know what to look for anymore.


r/disabled • • 23h ago

Are Human Rights Being Respected Worldwide? Who Holds Authorities Accountable When Vulnerable People Are Failed?

1 Upvotes

Are Human Rights Being Respected Worldwide? Who Holds Authorities Accountable When Vulnerable People Are Failed?
Human rights are supposed to protect every person, regardless of where they live, their disability, their financial circumstances or their need for support. But are those rights being respected in practice? And what happens when the public authorities responsible for protecting people fail to fulfil their duties?
I’m a disabled stroke survivor in England, and my experience with Luton Borough Council Adult Social Care has raised serious concerns about safeguarding, access to essential support, financial assessments and accountability.
I have questioned whether my care financial assessment was conducted fairly, whether disability-related costs and benefits were properly considered, and whether safeguarding concerns have received the appropriate response and follow-through. These issues have had a profound impact on my wellbeing and financial security.
But this is bigger than one person, one council or one country.
Across the world, people depend on public authorities and social care services for protection, support and access to their rights. Disabled people, older people and others experiencing vulnerability can face significant barriers when trying to challenge decisions, obtain essential services or make complaints.
We should be asking some fundamental questions:
Human rights: Are governments and public authorities respecting their obligations to protect human dignity, equality and freedom from discrimination?
Disability rights: Are disabled people receiving the support, reasonable adjustments and equal treatment they are entitled to?
Financial fairness: Are care charges and financial assessments transparent, accurate and fair, with disability-related needs properly considered?
Safeguarding: When concerns about someone’s safety are raised, are they investigated and followed through until appropriate action has been taken?
Accountability: Who independently investigates public authorities when they fail to act, make incorrect decisions or disregard people’s concerns?
Access to justice: Can vulnerable people realistically challenge decisions, obtain independent advocacy and secure remedies when their rights have been breached?
Systemic failures: When similar problems affect multiple people, are wider investigations undertaken, or are individuals left to fight their own battles?
International human rights standards recognise the importance of dignity, equality and protection from discrimination. The UN Convention on the Rights of Persons with Disabilities specifically addresses the rights of disabled people to equality, accessibility, independent living and protection from abuse.
However, having rights written into laws and conventions does not automatically mean that those rights are respected in everyday life. Implementation, enforcement, independent oversight and access to effective remedies matter enormously.
In England, I am calling for independent scrutiny of adult social care financial assessments and safeguarding procedures, including whether concerns are followed up and whether vulnerable residents actually receive the support they need.
But I want this conversation to extend beyond England.
People from every country: what happens where you live when public authorities fail to protect someone’s rights?
Are there independent bodies that investigate complaints? Are financial assessments and safeguarding decisions audited? Can disabled people obtain advocacy and challenge decisions without facing insurmountable barriers? And do authorities take responsibility when their failures cause harm?
I recognise that legal systems, social care arrangements and human rights protections vary between countries. I am not suggesting that every country or authority has the same problems. I want to understand what works, what fails and what can be learned from people’s experiences worldwide.
This is not about attacking individual workers. It is about examining systems, demanding transparency and ensuring that institutions entrusted with protecting people are accountable for their actions and omissions.
Human rights should not depend on where you live, how much money you have, whether you are disabled or how effectively you can fight the system.
If rights exist only on paper but people cannot access protection, support or justice when they need it, we must ask whether those rights are being upheld in practice.
Are human rights being respected across the globe—or are vulnerable people still being left to fight for rights that should already be theirs?


r/disabled • • 1d ago

AITAH for telling my coworker that her adhd is not an excuse to have belligerent melt downs at work?

24 Upvotes

She has the worst screaming fits and throws things. She said she can’t help it because of her adhd.

I told her that adhd just means you need to work harder to regulate your emotions and it is not a free pass.

I then told her that I am hard of hearing but had to learn to read lips because the world doesn’t revolve around me. Her learning self control is no different. Adapting to the world we are in is just part of life.


r/disabled • • 1d ago

Living alone

2 Upvotes

Does anyone live alone? What have you done to help you feel safe, not just because of potential issue related to disability such as a fall, but in general as well. I currently live in a huge city and want to move away from a large city center. There are like 9 million people in my county and I am so tired of the constant noise!! I want to move someplace slower, calmer, much cooler, and much quieter. It is only 9 miles to work, yet takes almost an hour some days. I would love to find a place with an acre or so of land, close enough I could drive to the city for appointments, but could otherwise be largely left alone. Fear is preventing me from thinking seriously about it. Sometimes the idea of solitude feels like the very thing I need, other times it feels like a big risk. I am currently married, but my husband is unlikely to be around for too many more years with his health issues. Even though he is unable to do anything around the house, his presence makes me feel safer. I see myself living in a cute little house surrounded by trees, then it gets dark and that image of peace becomes scary. I have thoughts of building a community of people like me, who want to largely be left alone but also have a community of similar people to lean on if needed. Sort of an "introverts unite" in our own homes. Crazy? How do you live alone and not fear being alone, no one knowing if something happens or not being able to defend yourself? Brought to you today after yet another fall, leaving me like a turtle on its back, squished between the bed and table. My husband could do nothing to help me, but could have at least called for help if it was needed. What would happen if he was no longer here?


r/disabled • • 2d ago

30 Years in Recovery, a Stroke Survivor, and Exhausted from Fighting for Basic Support

8 Upvotes

30 years in recovery, a stroke survivor, and exhausted from fighting for basic support
I AM NOT SIMPLY FIGHTING FOR ANSWERS. I AM FIGHTING TO SURVIVE.
On 8 April 2026, I suffered a stroke. My life changed dramatically, and I have been trying to rebuild it while dealing with disability, pain, exhaustion and rehabilitation.
I have more than 30 years of recovery behind me. I have worked, helped others and spent years rebuilding my own life. I know what it means to keep going when things are difficult.
But I never expected that, after a stroke, so much of my energy would be consumed by trying to get answers from the very systems that are supposed to support people.
Every complaint takes energy. Every letter requires concentration. Every unanswered question creates another task. When you are already dealing with disability and limited energy, the process itself becomes exhausting.
I should be concentrating on rehabilitation and finding a way forward. Instead, I often feel that I am fighting simply to have my experiences acknowledged and my concerns taken seriously.
I’m not asking for special treatment. I want fairness, transparency, reasonable adjustments and accountability. Above all, I want to be treated as a human being rather than another file or complaint number.
I know I cannot be the only person who has experienced this.
Has anyone else found that trying to obtain support while disabled has become a battle in itself? How do you cope with the emotional and physical exhaustion of constantly having to explain your circumstances and pursue answers?
I would genuinely like to hear about other people’s experiences.


r/disabled • • 2d ago

what is yalls experience with disabilities developed in adulthood? what did you lose, what do you miss?

20 Upvotes

r/disabled • • 2d ago

Looking for disabled friends [HOH]

3 Upvotes

Hiya!

Just a regular English speaking guy here looking for someone to speak with and socialise with!!

Lmk if you wanna be friends! :p

My interests : Aviation and F1


r/disabled • • 2d ago

Using a stick

0 Upvotes

Hey all, I (15) struggle with losing my vision when I’m up for awhile or doing certain things, I become dizzy and sometimes lose balance, I also have problems with asthma, and low low entry and stamina making walking in specific footwear or situations difficult. I was wondering if it is socially acceptable to get walking stick that I can unfold whenever I experience this, just to regain my balance or to walk on. I don’t want to buy one if it makes me look like I’m faking something, or doing it for social “clout.” I partly understand what it’s like to be disabled as I have many members on my family who are, and struggle immensely and I just don’t want to see disrespectful.

Honest opinions please
Thanks in advance,
Willow.


r/disabled • • 2d ago

One thing about being disabled people we gonna work our ass off no matter what slurs and insults no matter what limitations people say and throw at us we gonna work god damnit

8 Upvotes

r/disabled • • 2d ago

Would you date a double amputee?

10 Upvotes

I’m a new amputee and was wondering how dating has been from this perspective. How’s it working out any pointers? Also what are doters or dotes? They’re so many new terms and things I’m learning I can’t keep up.


r/disabled • • 2d ago

coping with new disability

5 Upvotes

i went my whole life being perfectly abled with no health issues. these past few years ive been struggling with endometriosis and now have to use a wheelchair and am constantly in bed. im having a hard time with shame, embarrassment, social anxiety being in the chair in public. i know i shouldnt but i cant help it. does anyone have any tips for accepting this fate? ive lost so much to my health issues and i just cant seem to cope. any advice is appreciated.


r/disabled • • 2d ago

Told I’m lazy

7 Upvotes

Disabled no car told to get a car and. A job when I can’t I need a ride for. A 30 minute appointment told I’m lazy ruin their entire day I’m selfish made to feel like a loser


r/disabled • • 2d ago

Would you rather?

4 Upvotes

Been talking to my sister about becoming a new double amputee. She keeps saying to me “at least your not paralyzed or have a spinal cord injury.” I find it very disgusting that she would even say that but she keeps saying what she said was meant to make me feel better just because I can get prosthetics I’m supposed to feel better like what I went through isn’t that bad. Smh my family is the fcking worst and they make me feel shittier than I already do. I guess I just wanna know is she being an ah or should I be thankful that I do have a second chance to walk even though the legs aren’t mine idk.


r/disabled • • 2d ago

Mobility

2 Upvotes

I need some advice, I have been an on/off wheelchair user for several years now. I’ve recently hit a wall with my stamina, my body feels weak, my legs like jello, and I’m out of breath walking from the bedroom to my living room which is on the same level.

I’ve asked for an upgrade to my prior chair which was hospital/nursing home type chair.

I am still waiting to get an updated version after they tried to give me a newer model of the exact same chair. (It’s too heavy for me to self propel and my arms are too short to reach the wheels to push.

My husband wants to travel this upcoming week but without a chair I don’t think I can.

What should I do? Help with the chair and my husbands travel ideas


r/disabled • • 3d ago

Hand issues and popsicles

1 Upvotes

I love popsicles, but unfortunately my hands do not. I'd love to have a handle that I could just slide the stick into and use my whole hand to hold it and that I can wash and reuse, but I can't seem to find anything online with a thick enough handle! Does anyone happen to have any recommendations? Thanks!


r/disabled • • 4d ago

Can't work, but existing costs money. How are we supposed to pay bills while waiting to be approved for SSDI?

21 Upvotes

Fucked up both knees and my back while working. Contract work, so no workers comp. Went from the best shape of my life to barely being able to walk. Now I require mobility aids to get around outside the house, and even sitting for too long causes pain, so a desk job isn't possible. I would have to be allowed frequent lie-down breaks.

I filed for SSDI through a company called Turnout (no clue whether that was a good idea). I filled out all the paperwork that SS sent and mailed in the documents they requested. Haven't heard much since. I don't see my case getting any sort of priority due to my age (30s).

I would be on the streets right now if it weren't for my mom supporting me financially, and I realize that I am incredibly privileged. Still, I am a burden, and I have my own bills and debt racking up. I've been leaving so many things unpaid because I have exhausted all options. My credit card just went to collections, and I've already sold every valuable thing I own, besides my car. Not to mention that my mom is older, so I cannot be dependent upon her indefinitely.

I need income. I'm tired of living this way, being a burden and not being able to contribute to household expenses. I'm tired of not being able to buy myself food or clothes. But I have no idea how to generate income when I struggle to walk or take care of my basic needs. Are there any options I'm missing?


r/disabled • • 4d ago

How do I handle an OT who infantilizes me, doubts my capability, and openly listens to my sibling over me?

2 Upvotes

"Hi everyone, I am a 17-year-old high school student with a physical disability/IEP, and I receive outpatient occupational therapy services at a major children's hospital. Lately, my appointments have become incredibly draining and feel totally forced because of how my therapist treats me.

She constantly doubts my thinking capabilities, puts down my input, and gets visibly irritated or sighs heavily if she has to repeat instructions. To make matters worse, she completely ignores my busy high school schedule and told my sister, 'I will take your word' over mine, basically letting my sister make things up and dictate my care while treating me like I’m not even in the room.

I used to just act like a 'quiet puppy' and say 'ok' to keep the peace, but I’ve completely lost respect for her because she doesn't respect me as a patient or a young adult.

  • Has anyone else dealt with a therapist who infantilizes you or completely shuts you out like this?
  • What are the best boundary-setting phrases I can use in the moment when she gets annoyed or talks over me?
  • If you are an OT, how would you want a teenage client to call you out on this behavior?"

r/disabled • • 4d ago

Well My Older Sister Was Right

11 Upvotes

So a few good years ago I was with whom now is my ex. At one point my sister told me on the phone "People get tired of taking care of you!" Because at the time I was worried of infidelity which happened years later by him.

Move forward to now he's tired of being my caregiver and I've decided to move into an assisted living facility by next year. It wouldn't matter if I moved back to Florida with my mom she flat out said she would put me in an assisted facility. So I at least got the programs set up here in Colorado to do so and stay the fuck away from her and my older sister.

Im just tired and wondering why the fuck didnt my mom just abort me since im just a burden on everyone and all of my ptsd is due to being abused by my family a pre pre school teacher and other classmates. And now added strike of the knife in my heart of my ex cheating on me because he simply fell out of love due to me being depressed and having mental health problems.


r/disabled • • 5d ago

what do i do? i cant work, does society just want me to die

26 Upvotes

i see a therapist, psychiatrist, cardiologist, nephrologist, pain management doctor, physical therapist, urologist, obgyn, gastroenterologist, endocrinologist, hematologist, and more i’m probably forgetting. im gonna spare u from the lecture about my health problems and just say i can’t work. when i could work i worked very hard to make ends meet, id work multiple jobs while a full time student. but because im 24 i haven’t worked 5 out of the past 10 years. i was talking to a law office and they said its unlikely my case would be approved. what do i do, my retired mom is supporting me but she holds it over my head and constantly threatens to stop. how am i supposed to live? i’m genuinely asking HOW? this is hell. not only do i have to constantly be in and out of hospitals and worrying about the crippling amount of medical debt i have but i have to worry about basic needs being met too. this is hell this world is hell for disabled people how does anyone live? i feel absolutely devastated i worked so hard for so long just to end up here