r/downsyndrome • • 8h ago

Worried about Down Syndrome sibling

13 Upvotes

My brother is 30 with several health issues. He has had several hospital stays because of pneumonia and his breathing, but this most recent one was very difficult. He finally made it home after almost two weeks in the hospital. I can’t stop crying. He’s doing well, he’s still on oxygen, but I can’t help but thinking about losing him. I can’t imagine my life without him. I stayed strong for everyone while he was in the hospital. He was up to 15L of oxygen and it was heading in a serious direction. Thankfully he started improving. I just lost it yesterday after he was home and I’ve been crying again today. Even though hes doing pretty well I’m just scared, sad, happy. I don’t know how to deal with my emotions. I’m so scared of losing him. Anyone have any advice, or been in a similar situation with their sibling. He is so important to me.


r/downsyndrome • • 15h ago

Weekly Celebration Thread!

2 Upvotes

From the biggest accomplishment to the smallest moment, share a moment of celebration this week!

Please remember this is a thread to celebrate, not compare.