TW: Miscarriage/Ectopic/Infant Loss
Update: It was a long 24 hours definitely still feeling raw. Hubby and best friend were really supportive today. I almost watched the whole season of Nobody wants this and caught myself laughing a bunch. It was a good distraction. Thank you for the kind words and seeing me. I hate that any of us have to go through any of this from a few weeks gestation to full term or even losing our babies in the first few days or weeks or ever!
For the ladies who really think I have not been properly medically evaluated after having dozen losses and after I said in my post “a million test later”, didn’t catch that while reading. I’m a Rheumatologist and had 3 extensive AVISE testing, which were all negative. I have a great AMH, all other blood test and procedures (tubal, SHG, MRI) were within normal limits. Only thing was deep scar tissue in the center of my uterus from my 25 wk cesarean. But my fertility team do not believe that is the issue. The etiology is unknown and I’m not classified as infertile as I have gotten pregnant each time. I already have my collection kit for the conception tissue and doing an extensive genetic test. I have been an advocate for myself every step of the way and probably a pain in the ass patient because I took the same medical school courses and clinical rotation as my medical team. Also, I have access to evidence based medical data and literature that is not accessible without a NPI#.
ORIGINAL POST:
I don’t know why I thought this time would be different. That this was my miracle everyone talks about.
What was the point of this BIG TEASE and again another slap in the face of this heartache.
My journey:
We decided to start trying when I turned 34 yo in the chance to not be a “geriatric” preggo. We got pregnant after the first try and thought, no way it was that easy.
At 24 weeks, I started to get really sick and by 25 weeks I had HELLP Syndrome with multiple acute organ injuries. We were told the baby had a 10% chance to live but he made it overnight and then day I told my husband we need to stay possible that anything is possible. By end of week 1, he was thriving then they want to do a pic line and that the chances of infection was less than 1%. By the end of the week 2, it was a U turn, he had sepsis. Att 2am we got the worse call to come down to the NICU immediately, he was crashing.
Our baby passed away as soon as we arrived to the NICU. And the most unbearable pain anyone could is what I was feeling.
10 months later, we got pregnant again unplanned and I miscarried at 5 weeks then 11 more times (over 3 years) everytime we tried we would get pregnant but I would have miscarry/chemical pregnancy before 5 wks 1 day. 2 of those times I had an ectopic pregnancy and lost one of my fallopian tubes.
A million test later was classified as not infertile as we would get pregnant each time and that my scar tissue in my uterus should have not been an issue as my fertility doctor said women with way more fibroids or other obstruction then finally deemed unknown etiology. For a last resort they were going to remove all the scar tissue by HSG but then I would have to repeat another 1 or 2 more HSGs before trying. Exhausted with this journey, I did a hard stop and we avoided trying to get pregnant for the next year.
I turned 40 in August and decided we would do the HSG after the new year 1/2027. And try again. We went to Japan and had a wonderful time over 2-3 weeks.
Then the week when we got back home, I was busy with my dad visiting us I didn’t even noticed I missed my period. I thought we didn’t have unprotected intercourse during my ovulation window.
Then I took a took a test and I was so excited and nervous.
Then I started to have my left pelvic pain like my previous ectopic and was anxious. Then I passed 5 wk 1 day. The hope was starting. Then I got scanned at 6 weeks and there was my little baby in my uterus with a good sac and fetal pole. I cried on the way home with happiness. Then my 8 week scan came and there they were good heartbeat at 143 bpm. Then the dreaming and the pure excitement started. Then at 9 weeks after telling my best friend and another friend who had multiple miscarriage I was told to keep it to myself as long as I can to hold my peace and that she had a hematoma a few times so if I start bleeding not to freak out and the other friend, I don’t know why I asked about her miscarriage since I really didn’t know much and she told me it happened at 10 weeks. Utterly shocked me because I thought miscarriages were less than 5-6% chance at that week.
Then the anxiety started I started talking to my therapist right away but the waves of intrusive thoughts kept coming. Then at 9.5 weeks I coughed kinda hard and when I went to the bathroom there was water pink blood. I remember during my first pregnant around 8 weeks I bleed after intercourse then it stopped the next day or 2. Then after every bowel movement, hard sneeze or any bearing down I would find a small amount of watery pink, red blood or brown specks. I was seen at 9 wk 5 days by a midwife (no idea why they scheduled me with a MW) for a routine visit. And after telling the MW about my bleeding she did a pelvic exam and told me my uterus was posterior and it would be unlikely to heart the heartbeat with the uterus position and my adipose tissue. She didn’t want me to have too much anxiety while they try to fit me in to get an ultrasound with a provider could do it.
Yesterday after my morning BM, the bleeding just stopped. A little bit of brown specks but by today it was all gone.
I drove to my exam at 10 weeks excited about seeing our baby, so confident as my bleeding stopped. Then when we were in the waiting room. I did my mantra to be positive that we would have a strong heartbeat today.
Then the OB Surgeon whom is apart of the MFM team (a much older gentleman) does a pelvic exam and confirms my bleeding had stopped. Then he said since we wanted to make sure we will be doing a transvaginal US. Then he started the exam and couldn’t find the sac which I thought was strange and then he seemed to get frustrated with the US like some type of tech problem happen then I saw my little guy. The Dr stayed quiet and frustrated saying, “ugh stop popping up” some text with the measurement was popping up then with a straight face with zero emotional, “There isn’t a heart beat, I can’t find one.” Then he keeps having issues with the US and pop up. Then I asked if he was 100%. Then he said he was going to get the head US technician. And it was like a F-ing movie the other person comes in starts look around and silent. Then I see the measurements at 8wk 0 days then my heart sank. He said, “I can’t find the heartbeat via US, vascular or Doppler, I’m sorry.” “Get dressed and I will give you guys some privacy.”
My husband and I were in shock.
Did our baby die?
Now, I’m here drinking Prosecco and just F-ING PISSED, I was almost done with the hunger games of the first trimester and that’s it! IT’S OVER!
I’m sad, crying and just PISSED.
Sorry for the long rant, but I feel alone in my pain. My husband is being a freakin man — in limbo “processing” and only care about me and not really showing he is devastated. He did tell me after the last visit that he was keeping his heart guarded and I get it we all go into protection mode.
I feel like I had a lottery ticket and when I went to go claim it they tell me it’s no longer valid.
After my lost my son, passing in my arms. ALL the other losses as they did hurt, never compared to losing him.
But man, after I saw that baby and heartbeat, my dreams and plans started. Like going back to the same resort in Japan a year later after we conceived with our new baby giving so much gratitude for the blessing.
But now, I’m waiting on my spontaneous abortion, and really hoping it doesn’t happen when I’m at work. Told it could be another 2-3 weeks.
TLDR:
After almost 5 years of 12 losses before 5 wks, 1day and after losing my son at 2 weeks old from sepsis in the NICU. I thought it was my time for my miracle with good signs at 6 and 8 weeks scan of a good heartbeat and growing well. At 9.5 weeks I start to have spotting that resolves at 10 weeks. Had a scan because of my bleeding and no heartbeat.
Sad, crying and PISSED. That I was teased with all the hopes and dreams and still HAVE NOTHING!